Abilify Tardive Dyskinesia Lawsuit Cleared To Move Forward by Federal Judge
A federal judge has cleared the way for a lawsuit to move forward involving claims that side effects of Abilify may cause involuntary muscle movements, known as tardive dyskinesia.
U.S. District Judge Eldon Fallon issued an order (PDF) on August 21, denying a request by the drug makers Bristol-Myers Squibb and Otsuka America Pharmaceutical Inc. to dismiss a failure to warn lawsuit filed by Cory P. Jenkins, who was diagnosed with tardive dyskinesia following Abilify use.
Tardive dyskinesia is a disorder that causes repetitive and involuntary movement, usually involving the lower face and limbs. Symptoms can include grimacing, chewing, smacking of lips, rapid eye movements and impaired finger movements. There is no known effective treatment of the disorder, and the abnormal movements can become permanent, persisting even after use of the drug has stopped.
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Learn MoreAccording to allegations raised in the complaint (PDF) filed by Jenkins pending in the U.S. District Court for the Eastern District of Louisiana, he developed “chronic and continued restlessness and twitching of the upper and lower extremities, facial tics, jaw clenching and clucking, and constant eye blinking” in 2013, after taking the antidepressant.
Jenkins asserted two separate theories of liability, including defective design and failure to warn about the Abilify tardive dyskinesia risk.
In a motion to dismiss filed by Bristol-Myers Squibb and Otsuka, the drug makers argue that the defective design claims fail to allege that there was a safer alternative design. In addition, the defendants maintained that the failure to warn claims should be dismissed because Jenkins failed to allege that his treating physician would not have prescribed the drug if different warnings had been provided.
While Judge Fallon did dismiss the design defect claim, he rejected the request to dismiss the failure to warn claim, allowing the tardive dyskinesia lawsuit over Abilify to move forward.
“Plaintiff is merely required to allege that Defendants did not adequately warn Plaintiff’s treating physician and that the inadequate warning constituted the proximate warning of Plaintiff’s injuries,” Judge Fallon ruled. “[T]he Court finds that Plaintiff’s failure-to-warn claim satisfies this standard and is sufficient to survive Defendant’s … motion.”
Abilify Side Effects
Abilify (aripiprazole) was approved by the FDA in 2002, and is one of the top selling drugs in the U.S., generating sales of $7.5 billion in 2013.
In addition to concerns about the risk of tardive dyskinesia, Abilify has also been linked to reports of impulse control problems, including gambling addictions, sex addictions and other similar behavior that has been linked to a class of drugs known as dopamine receptor agonists.
A recent study by the Institute for Safe Medication Practices, published in the medical journal JAMA Internal Medicine, found that this class of drugs was linked to impulse control problems, such as compulsive gambling, sex addiction and other issues that may have a severe impact on an individual’s life.
There are six FDA-approved dopamine agonists currently on the market in the United States. The Parkinson’s disease drugs Mirapex and Requip were most strongly linked to incidents of impulse control problems among the dopamine receptor agonists, leading to gambling addictions and hypersexuality, and even compulsive shopping. However, a safety signal was also seen for Abilify gambling and impulse control problems, with at least 37 reports found specifically involving this one medication.
Researchers have warned that drug manufacturers failed to provide adequate warnings about the risk of impulsive behavior on the drugs, indicating that information about the risk dates back to at least 2009, when a study found that approximately 18% of patients taking a dopamine agonist for treatment of Parkinsons disease could suffer from compulsive behavior side effects.
Although Abilify is a partial dopamine receptor agonists, researchers found that the same signals for gambling and other impulse control problems with Abilify were seen among users of the antipsychotic medication as well.
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50 Comments
SandraNovember 28, 2023 at 11:07 pm
I have been taking abilify for many years and I noticed in my doctors have noticed that I have very bad mouth movements I bite my tongue all the time I talk funny due to my tongue I lick my lips all the time I move my mouth all the time and when I smile my mouth is crooked and I do have pictures of this and my doctor noticed when I went to the doctor on November 15th that I was talking funny and h[Show More]I have been taking abilify for many years and I noticed in my doctors have noticed that I have very bad mouth movements I bite my tongue all the time I talk funny due to my tongue I lick my lips all the time I move my mouth all the time and when I smile my mouth is crooked and I do have pictures of this and my doctor noticed when I went to the doctor on November 15th that I was talking funny and he wanted to look at my mouth movement and my tongue I've even been hospitalized for swelling of my tongue and they couldn't figure out what was wrong and Dr steinke said I needed to put put on in graza due to side effects of taking abilify
MarilynNovember 7, 2023 at 11:52 pm
I was given a drug years ago i can't remember the name of it but I know the doctor who gave it to me,I have hand shaking and movement of my tung and mouth the worse is chewing my lips until I have blisters and I can't stop it,please help me 🥺
CynthiaSeptember 24, 2023 at 9:22 pm
I also got TD from ability. I have lip and tongue movement but also a tingling in my mouth and lips. Reluctant to take any more pharmaceuticals I have been taking Gingko Biloba and vitamin E, my neurologist also recommends taking vitamin B12 and an omega-3 fatty acids for the brain zaps I also experience. I read on the internet that taking the supplement manganese may also help calm or reverse t[Show More]I also got TD from ability. I have lip and tongue movement but also a tingling in my mouth and lips. Reluctant to take any more pharmaceuticals I have been taking Gingko Biloba and vitamin E, my neurologist also recommends taking vitamin B12 and an omega-3 fatty acids for the brain zaps I also experience. I read on the internet that taking the supplement manganese may also help calm or reverse the symptoms of TD. I believe my movements have improved and I wish the best to all of you experiencing this horrible side effects from a medication we trusted to be safe.
ChristineSeptember 5, 2023 at 7:50 am
I was taking Abilify for many years, then was switched to Latuda. I now have TD. It is super annoying and causes me anxiety when having to go out in public, whether it be the grocery store or even family gatherings. I tried taking Ingrezza, but that caused severe dizziness. Austedo, the only other alternative, causes depression. Is it possible to join the ongoing lawsuit? Thank you
PatriciaJuly 19, 2023 at 1:58 pm
Could I get in on this lawsuit? I've been taking Paxil for over 26 years and have recently in the past few months had shaking hands so bad that my signature on a check looked like I was drunk. I can't do much of anything when my hands start shaking so badly like that! It's almost impossible to withdraw from the drug too! I've tried a couple of times over the years with no success! Thank you![Show More]Could I get in on this lawsuit? I've been taking Paxil for over 26 years and have recently in the past few months had shaking hands so bad that my signature on a check looked like I was drunk. I can't do much of anything when my hands start shaking so badly like that! It's almost impossible to withdraw from the drug too! I've tried a couple of times over the years with no success! Thank you! Pat
SharonMay 4, 2023 at 11:39 am
I received a severe case of Tardive Dyskinesia after taking Abilify for anextended time. This has severely impacted my life. I have extreme facial involuntary movements. I was put on another medication just to be able to talk. I have had to hire a caretaker just to drive me around because I can't drivebecause of this. I don't have a gambling problem this is ten times worse.
AnitaDecember 21, 2022 at 11:57 am
Abilify was prescribed to me in 2020 by my psychiatrist. After taking my medication for approximately 2 months I developed my tongue constantly licking my lips which resulted in not being confident public speaking the Dx of TD was given and the medications to treat were prescribed. I am on Medicare many meds aren’t covered but I have been prescribed Auscedo as I’m sure your aware no guarantee that[Show More]Abilify was prescribed to me in 2020 by my psychiatrist. After taking my medication for approximately 2 months I developed my tongue constantly licking my lips which resulted in not being confident public speaking the Dx of TD was given and the medications to treat were prescribed. I am on Medicare many meds aren’t covered but I have been prescribed Auscedo as I’m sure your aware no guarantee that it will really help my copay is $800 I live on a fixed income disability due to a stroke I had even now I’m attempting to find financial assistance for that drug I am so very unhappy already had enough issues didn’t need this for sure . I am interested in joining this class action lawsuit if possible
DavidOctober 11, 2022 at 11:11 pm
I am a 67 years old man with a variety of health issues including mental health. Last winter 12/21 my general physician prescribed abilify for me. After about 6 weeks I approached him with a new problem. My eyes were blinking uncontrollably and I couldn't stop chewing my tongue. There were other problems with my hands and feet. My Gen physician looked at me with what I believed to be a scared look[Show More]I am a 67 years old man with a variety of health issues including mental health. Last winter 12/21 my general physician prescribed abilify for me. After about 6 weeks I approached him with a new problem. My eyes were blinking uncontrollably and I couldn't stop chewing my tongue. There were other problems with my hands and feet. My Gen physician looked at me with what I believed to be a scared look. He took some time to research my current meds and came back with the answer answer I expected, TD. He noticed that the most recent med I was prescribed was ABILIFY. He asked me to stop the abilify and to come back in 10 days. Austedo was the next step. After a couple of months with no positive results. It is now October of 2022 and I feel like I am going insane. Please consider me for your service.
CheriAugust 30, 2022 at 11:11 am
My mom was on Abilify and developed Parkinsonism and TD. The effect has been totally life changing with horrible Parkinson symptoms that appears to be incurable. We weren't told about the serious side effects and have been thru hell and back with her condition. Can we got after ability or Dr who didn't even advise us to watch out for Parkinsonism symptoms. Apparently psychiatrist's know about th[Show More]My mom was on Abilify and developed Parkinsonism and TD. The effect has been totally life changing with horrible Parkinson symptoms that appears to be incurable. We weren't told about the serious side effects and have been thru hell and back with her condition. Can we got after ability or Dr who didn't even advise us to watch out for Parkinsonism symptoms. Apparently psychiatrist's know about this problem but her primary or the prescribing doctor should have warned us and given us the option of her taking it or not
NancyJuly 26, 2022 at 11:40 pm
I was Diagnosed with TD in March 2022. Had been on Abilify since May of 2009. I had to do my own research to get my reg Dr to see it. I had been seeing a nurse practitioner after my hands were shaking so bad. He took my Effexor way down and upped my Abilify in the summer of 2021 to 15 mg. I finally saw a psychiatrist that had me slowly get off of Abilify. 3 months last winter. I laid in bed goi[Show More]I was Diagnosed with TD in March 2022. Had been on Abilify since May of 2009. I had to do my own research to get my reg Dr to see it. I had been seeing a nurse practitioner after my hands were shaking so bad. He took my Effexor way down and upped my Abilify in the summer of 2021 to 15 mg. I finally saw a psychiatrist that had me slowly get off of Abilify. 3 months last winter. I laid in bed going through withdrawls. Finally the TD struck. I have no control over my tongue or jaw movements. I wish I could show a little clip on here. It gets worse when I use my hands. Trying to get a referral to a TD movement disorder specialist, but how far they are booked out will be interesting. I just turned 69. We all need a good lawyer to represent us for TD from Abilify. I believe it is worse than a gambling addiction.
MarilynJuly 16, 2022 at 9:25 am
I took Abilify for 21 years started at 15mg and their it stayed. I stopped the Abilify in 2020 because I diagnosed myself with Tardive dyskinesia because of leg and foot movement that never stopped. I also developed compulsive sexual behavior and some gambling,, I also quit paying all my credit cards and then got new ones.. Three months after quitting the Abilify my world came crashing down. My ha[Show More]I took Abilify for 21 years started at 15mg and their it stayed. I stopped the Abilify in 2020 because I diagnosed myself with Tardive dyskinesia because of leg and foot movement that never stopped. I also developed compulsive sexual behavior and some gambling,, I also quit paying all my credit cards and then got new ones.. Three months after quitting the Abilify my world came crashing down. My hair broke off and started falling out, I developed sores in and around my nose and mouth which later I developed sores all over body. I started fainting and broke bones including a hip which required a partial hip replacement. I lost a lot of recent and past memories. Still unable to remember words or current events. I talked gibberish could speak right words. I had extreme fatigue. There's alot more things I suffered and am suffering. Forgot to mention the constant Tardive touretts that's the most embarrassing, oh and constant tongue movements, drewling. I have been able to wear my dentures in a year or more. Tardive dyskinesia is a brain injury. I have been diagnosed 4 times with TD from Abilify. I was prescribed this horrible med by at least 5 doctors in that 11 years. Not one doctor ever addressed the issue of TD with me until I started bringing it up and the doctor still didn't want to say that it was TD. Now I know why. All of us need to have our rights and day in court just like the people who had gambling issues. Ours is a brain injury and most cases our for life PERMANENT. Please someone help us Our lives are ruined.
TrenaJuly 14, 2022 at 4:16 pm
I have Tardive dyskinesia after taking abilify and haldol for a long period of time without being told the risk of getting Tardive dyskinesia sometimes I’m too embarrassed to go out in public
MichelleJuly 2, 2022 at 3:56 pm
I now have tardive dyskinesia, and yes it is embarrassing. Mine is irreversible and it controls my life. It's a very hard journey and I am always depressed.
TinaJune 11, 2022 at 4:57 pm
My name Lyle Stotz. I am assisting Tina with this after years of agony and embarrassment.
SarahApril 24, 2022 at 9:31 am
I got a drug induced tic disorder from Abilify including vocal and motor tics. There's a lesser known movement disorder called Tardive Tourettism. It looks like Tourettes. It's been awful. I also have a movement that causes biting so hard it cracked a tooth I've since lost most of. I was literally forced onto this med and with no warning of movements from the doc.
NancyApril 3, 2022 at 6:29 pm
I have been using Abilify for over 10 years for major depression. 2 years ago I started with my hands and legs shaking My GP couldn’t figure out the problem So I lived with it. This past summer I was introduced to a Nurse Practitioner that said it was Effexor making me shake. So he slowly took me off the Effexor and upped my Abilify to 15 mg. I got worse. By August I was uncontrollably shak[Show More]I have been using Abilify for over 10 years for major depression. 2 years ago I started with my hands and legs shaking My GP couldn’t figure out the problem So I lived with it. This past summer I was introduced to a Nurse Practitioner that said it was Effexor making me shake. So he slowly took me off the Effexor and upped my Abilify to 15 mg. I got worse. By August I was uncontrollably shaking my hands legs and feet. I finally found a psychiatrist in February that said it was the Abilify. So it took me a over a month of going through withdrawls and being sick and nauseous every day to get off of it. Now it is April and I have had TD of my tongue and mouth for over a month. It is so embarrassing and I am reading this could last a lifetime!!! No cure!!! I am furious!!!! And it could get worse from reading all of your stories. Where is a good lawyer when you need him?????
LorettaMarch 30, 2022 at 11:35 am
I have taken Abilify for about 5-6 years and never received notice that it causes Tardive Dyskinesia. I saw a neurologist that diagnosed me in March 2022. He gave me 2 weeks of samples of Ingrezza . This medication costs well over $8000 A month! As with most people I cannot pay that much and insurance does not cover this medication. The makers of Abilify should be responsible to provide the [Show More]I have taken Abilify for about 5-6 years and never received notice that it causes Tardive Dyskinesia. I saw a neurologist that diagnosed me in March 2022. He gave me 2 weeks of samples of Ingrezza . This medication costs well over $8000 A month! As with most people I cannot pay that much and insurance does not cover this medication. The makers of Abilify should be responsible to provide the money for treatment of this illness that has no cure and more!
KathleenMarch 29, 2022 at 2:59 am
I have severe side effects from 7 years of abilify. The Tardive Dyskinesia is severe and I have to tape or hold my eyes open in order to drive. But I’ve still had two accidents because of it. I also have gambling problems and compulsive shopping My face is a mess and my neurologist has tried Botox and meds but nothing seems o help much I’m am desperate to file a lawsuit because I can’t get dis[Show More]I have severe side effects from 7 years of abilify. The Tardive Dyskinesia is severe and I have to tape or hold my eyes open in order to drive. But I’ve still had two accidents because of it. I also have gambling problems and compulsive shopping My face is a mess and my neurologist has tried Botox and meds but nothing seems o help much I’m am desperate to file a lawsuit because I can’t get disability because of not working during the pandemic. Please help me
PeteMarch 21, 2022 at 3:56 pm
Do you handle tardive dyskenesia cases
CarmenJanuary 8, 2022 at 3:22 pm
This comment is in response to Rachel that thinks that all the people that took Abilify and now have TD should have known. I doubt Rachel suffers from depression or bipolar disorder. When your sitting with your Doctor and you have suicidal thoughts, and can't hardly care for yourself, and consequently not your children. You will take just about anything. Your doctor telling you "well it may ca[Show More]This comment is in response to Rachel that thinks that all the people that took Abilify and now have TD should have known. I doubt Rachel suffers from depression or bipolar disorder. When your sitting with your Doctor and you have suicidal thoughts, and can't hardly care for yourself, and consequently not your children. You will take just about anything. Your doctor telling you "well it may cause some involuntary muscle movements", as they race to treat the next patient, That won't have much of an impression on someone desperate to get relief from depression. That's the reason people didn't google immediately. If it works, and it often does, Why are you going to question? If you have been taking it for over 15 yrs as my loved one has the stories of TD in users wasn't out there as it is now. Have some compassion, Rachel.
KristinaNovember 5, 2021 at 10:46 am
My doctor prescribed Abilify for depression well after it was proven to cause TD, which I now have. Wish I could sue him!!
ReneeOctober 20, 2021 at 4:07 pm
My son is has been taking Abilify when he was 10 years old as a youth to control his behavior, he now 25 years old and has developed TD, he was diagnosed in August 2021, by his Neurologist. I am so upset that I was not warned. I feel like I failed him.
JessicaMay 8, 2021 at 4:44 am
I started abilify in 2015 for bipolar disorder through tricare at the military pysch clinic. (My ex husband was in). I was on it for about 5 years until last year when I couldn’t stop blinking and clinching my eyes shut, I went to a different pysch I was no longer a dependent, her and a colleague diagnosed me with TD due to the abilify. . Sometimes it feels like they don’t want to open. I have a h[Show More]I started abilify in 2015 for bipolar disorder through tricare at the military pysch clinic. (My ex husband was in). I was on it for about 5 years until last year when I couldn’t stop blinking and clinching my eyes shut, I went to a different pysch I was no longer a dependent, her and a colleague diagnosed me with TD due to the abilify. . Sometimes it feels like they don’t want to open. I have a hard time driving, having conversations face to face with people l, getting a new job right now is difficult, I look like a tweaked in my interviews from all the movements. I’m afraid one day I won’t be able to open my eyelids myself. Sometimes I have to hold one eye lid open to drive and walk and watch a movie. :( I have involuntary movements all over my body. I’m 31 years old. My neuro said this could be for life and get worse. This was never mentioned. I just wanted help for my bipolar and I had tried other meds but this had worked the best but with insane side effects. I ended up having an affair and divorcing my husband due to other side effects mentioned above.
JulieMarch 27, 2021 at 10:16 am
I was on Abilify for four years for depression. I I was going to a free clinic and my student doctor gave me free samples because I couldn’t afford anything. When we couldn’t get the samples anymore I had to go off of it. I have been diagnosed with Parkinson’s disease and I am permanently disabled with parkinson’s disease, dyskinesia, restless leg syndrome and other of the symptoms. My toes cur[Show More]I was on Abilify for four years for depression. I I was going to a free clinic and my student doctor gave me free samples because I couldn’t afford anything. When we couldn’t get the samples anymore I had to go off of it. I have been diagnosed with Parkinson’s disease and I am permanently disabled with parkinson’s disease, dyskinesia, restless leg syndrome and other of the symptoms. My toes curled so badly that I could hardly walk. After stretching them 12 times a day every day for a year they are better but I have to wear braces overnight and every morning I have to re-stretch my toes and many muscles in my body and it takes hours for me to get ready for the day. Then I need naps. This is ruined my life. . Some thing that helps The muscle cramping if I can get to the YMCA and go in the warm water pool but that’s temporary. I live constantly coping with the symptoms of my cramping muscles. I would like to do a lawsuit against Abilify
AngelaNovember 9, 2020 at 11:45 pm
I was diagnosed bipolar in 2004 and prescribed ABILIFY as a mood stabilizer. Immediately I gained a lot of weight and after 10+ years, my General Practitioner said I need to change to something other than ABILIFY due to my blood pressure and weight gain being very high. After a slow transition to stop the ABILIFY, I developed Restless Leg Syndrome. My GP put me on ROPINIRole, as a drug to help [Show More]I was diagnosed bipolar in 2004 and prescribed ABILIFY as a mood stabilizer. Immediately I gained a lot of weight and after 10+ years, my General Practitioner said I need to change to something other than ABILIFY due to my blood pressure and weight gain being very high. After a slow transition to stop the ABILIFY, I developed Restless Leg Syndrome. My GP put me on ROPINIRole, as a drug to help but advised me that the RLS would get worse with time. It’s been 5 years from stopping ABILIFY and my RLS is so bad that even with increased ROPINIRole amounts, I’m starting to have pain associated with my RLS. I even woke up during a recent surgery because my legs started twitching and somehow was asking my surgeon questions. The anesthesiologist had to intubate me for the surgeon to finish the surgery. Currently, I set my phone alarm for every 4 hours to take the ROPINIRole or I’ll not be able to sit or lay down for about 2 hours, when the medicine is in my system. I just learned of TD and that ABILIFY has caused my pain and constant leg and feet movements.
SheriAugust 18, 2020 at 11:32 pm
August 2020 Olah: Used this drug pre market trial. Had obsessive need to gamble, wild sex, uncontrollable cleaning with tooth brush. It's was horrific. Its use should be stopped entirely.
DontiAugust 9, 2020 at 12:26 am
I am so sad reading this. I too have TD. Like others, I had to diagnose this myself. I think I took abilify for 4 years or so. I'm not sure of the dose because I broke it into little pieces as it was very expensive at the time. I was told by my psychiatrist that abilify was an adjunct therapy for antidepressants, which I took while caring for my dying parents and mentally ill son. I lost my a[Show More]I am so sad reading this. I too have TD. Like others, I had to diagnose this myself. I think I took abilify for 4 years or so. I'm not sure of the dose because I broke it into little pieces as it was very expensive at the time. I was told by my psychiatrist that abilify was an adjunct therapy for antidepressants, which I took while caring for my dying parents and mentally ill son. I lost my ability to write legibly while taking it, but did not connect the problem. After my mother died I insisted to be taken off the drugs and suddenly I could write! But it didn't take long for the mouth and feet movements to begin. I chewed gum constantly trying to "hide" my mouth movements. I have recently started going to a dentist who specializes in jaw problems and pray he will save my teeth. I have already ground through two heavy mouth guards. My toe movements can be controlled by Lorazepam, but doctors will not write a script for it, apparently it too addictive. It is impossible to sleep when your feet are constantly moving! I found this site hoping someone had sued and won against these monsters and I'm going to look and see if this fellow won! Abilify MUST carry very STRONG warnings. As I said, I have a mentally ill son, and I know how difficult it can be to treat. But a lifetime of this, without warning, is cruel. I am sorry that others suffer as I do. Now there are drugs to treat TD (with a host of side effects and warnings). Hopefully it will be affordable in a few years for those of us desperate enough to take a chance on another pharmaceutical "cure".
ChrisMarch 8, 2020 at 12:57 am
I am suffering from body movements I can’t control . This drug gave me pendant damage to my body . I need help finding a attorney to take my case .
TerryFebruary 11, 2020 at 9:08 pm
I was on Abilify for over a year and I have had this incessant teeth chattering problem ever since. It is so subtle that no one but myself notices it but there are days that I do it all day long and it makes my jaw so sore as well as the constant foot movements while watching television. My doctors are reluctant to prescribe any medications because they fear the side affects may be worse than m[Show More]I was on Abilify for over a year and I have had this incessant teeth chattering problem ever since. It is so subtle that no one but myself notices it but there are days that I do it all day long and it makes my jaw so sore as well as the constant foot movements while watching television. My doctors are reluctant to prescribe any medications because they fear the side affects may be worse than matters already are. HELP SOMEONE!!!
AlexisJanuary 19, 2020 at 5:35 am
Im on abilify and my tongue has been twitching non stop. I googled it to see why and I find this!!
margaretMay 8, 2019 at 7:42 am
My husband has been on abilify for about 7 years. After he was on it for about a year he came down with all the symptom s of Parkinson. In fact he was told by neuro that he has Parkinson. has been taking all those drugs for all this time. His shaking and walking was getting worse so his neuro sent him to neuro who is specialist in Parkinson and does the deep brain stimulation sygery. The speci[Show More]My husband has been on abilify for about 7 years. After he was on it for about a year he came down with all the symptom s of Parkinson. In fact he was told by neuro that he has Parkinson. has been taking all those drugs for all this time. His shaking and walking was getting worse so his neuro sent him to neuro who is specialist in Parkinson and does the deep brain stimulation sygery. The specialist sent him for something called a datscan to see if he would qualify for that surgery. Test results came back that he does not have Parkinson at all that the abilify is causing all the problems and we have been told he may be permantly damaged for life.He had to quit his job give up driving just to name a few things that has changed his life. Has been and continues to be a nightmare.
NaomiMay 4, 2018 at 7:21 pm
I also have TD from taking Abilify and trazodone. I was told there's no known treatment for this disorder. I'm embarrassed to be around my friends and my family. This on top of my anxiety and depression is driving me crazy. I don't know how much longer I can go like this. I'm thinking about going for a lawsuit against this.
CathyApril 14, 2018 at 6:10 pm
I would like anyone to contact me that is experiencing tardive dyskensia from taking Abilify. I have permanent damage to my teeth and permanent thrusting of the tongue. I live with this pain every single day. No attorneys are willing to take my case around here. They only want to take the ones associated with the gambling issues. I cannot get my neurologist to put in writing that Abilify caused th[Show More]I would like anyone to contact me that is experiencing tardive dyskensia from taking Abilify. I have permanent damage to my teeth and permanent thrusting of the tongue. I live with this pain every single day. No attorneys are willing to take my case around here. They only want to take the ones associated with the gambling issues. I cannot get my neurologist to put in writing that Abilify caused this even though she told me this the entire time I was seeing her. Same thing with the periodontist. Nobody wants to get involved I guess.
RachelNovember 30, 2017 at 4:48 pm
While I feel bad for those of you who have TD, you need to take responsibility and educate yourself BEFORE agreeing to take ANY drugs! Potential side effects are not only listed on thousands of websites, they are also written on the information sheet the pharmacy gives you when you pick up your medication. Do you read those? Do you bother to ASK the doctor or pharmacist prior to taking medications[Show More]While I feel bad for those of you who have TD, you need to take responsibility and educate yourself BEFORE agreeing to take ANY drugs! Potential side effects are not only listed on thousands of websites, they are also written on the information sheet the pharmacy gives you when you pick up your medication. Do you read those? Do you bother to ASK the doctor or pharmacist prior to taking medications what the side affects are, or do you just expect to be told all of this? Do your own research! Abilify is an anti-psychotic medication also used for various other diagnosis like bipolar and depression. The potential side effects have been listed VERY CLEARLY on all their literature for the past several years - INCLUDING TD. Do your due diligence!
TinaSeptember 20, 2017 at 2:37 pm
My 9yr son has autism. His psych put him on abilify 2 1/2 years ago for mood and sleeping which did not seem to help So dr weaned him off late august by 1st week of sept he developed tardive dyskinese. Due to being weaned off. Its horrible and nothing helps it. As a parent i feel terrible that i allowed him on this medicine and that no one told me what the side effects could cause.
MichelleSeptember 8, 2017 at 1:51 am
I was on Abilify for 3 years to treat depression. I was never informed anything about TD as a possible side effect. After beginning to have strange side effects , I decided to gradually go off Abilify. Within 2 weeks , I began moving my tongue across my teeth, or grinding my teeth in addition to moving the toes on my right foot every waking moment! I have actually worn holes in the bottom of some[Show More]I was on Abilify for 3 years to treat depression. I was never informed anything about TD as a possible side effect. After beginning to have strange side effects , I decided to gradually go off Abilify. Within 2 weeks , I began moving my tongue across my teeth, or grinding my teeth in addition to moving the toes on my right foot every waking moment! I have actually worn holes in the bottom of some of my shoes due to the constant toe movement. I had to have a dentist make me a guard to wear while awake to protect my teeth. My family can hardly stand to sit near me because of the noises I make with my toes and while clenching my teeth. One of the most frustrating facts is that I had to diagnose myself online. My doctor could hardly believe Abilify would cause TD. After 2 years of this nightmare , my Dr. will finally admit that it must be TD. I made my own appointment with an involuntary movement specialist. I tried cutting out caffeine and discontinuing my ADD medicine per his suggestion, but neither helped the movements. Recently this Dr. offered to put me on zenazine, but the side effects list was so long I refuse to risk taking it. I am stuck living this nightmare the rest of my life!!
MaryJuly 11, 2017 at 8:50 am
Ever since I've been on Abilify (for about 7 years now, give or take), I've had occasional tardive dyskinesia while taking it, but very severe tardive dyskinesia if I miss a few doses. My doctor has prescribed me Cogentin, which I have to carry with me everywhere, to help stop the attacks whenever I get one. The muscle spasms are different each time, but always horrifically painful and SO embarra[Show More]Ever since I've been on Abilify (for about 7 years now, give or take), I've had occasional tardive dyskinesia while taking it, but very severe tardive dyskinesia if I miss a few doses. My doctor has prescribed me Cogentin, which I have to carry with me everywhere, to help stop the attacks whenever I get one. The muscle spasms are different each time, but always horrifically painful and SO embarrassing. I have to run and hide until it subsides about an hour later. I almost always take my medicine every day - only once in awhile I'll miss a few days due to monetary reasons. I tried every other bipolar drug for my condition before trying Abilify. It is the only thing that works for me, but I hate knowing that I will probably have these muscle spasms for the rest of my life. I'm terrified of them happening more often. They should have made this side effect more known.
MikeJune 13, 2017 at 12:49 am
I have grimmacing facial movements,Grinding of teeth,clinching of my toes,and constant feet movement.I've been talking Abilify for at least 5 years. Do I have a case?
MarkApril 4, 2017 at 11:04 pm
I started on Abilfy in 2006. I told my G.P. I thought I had Tardive Dyskinesia from the Abilfy in 2008 and he told me "probably". I have had worse problems with it when taken off due to cost. I grind my teeth 24-7 all the time. I went on the Bristol Myers free Abilfy. It has since been closed so I'm back to falling aprox 2 times a week, Hand problems, and teeth grinding. I will be needing dentures[Show More]I started on Abilfy in 2006. I told my G.P. I thought I had Tardive Dyskinesia from the Abilfy in 2008 and he told me "probably". I have had worse problems with it when taken off due to cost. I grind my teeth 24-7 all the time. I went on the Bristol Myers free Abilfy. It has since been closed so I'm back to falling aprox 2 times a week, Hand problems, and teeth grinding. I will be needing dentures in the near future. Who is paying for that? Even my Dr bills and Gas, and whos paying me back for that?
GeorgiannaFebruary 6, 2017 at 2:06 am
Forgot to mention the osteoarthritis
GeorgiannaFebruary 6, 2017 at 1:57 am
I have charged up three credit cards and live on disability. Can't even file bankruptcy. Can't hardly afford to buy groceries over the month because of the high credit card balances. Making the lowest payment on all three still over two hundred dollars. Bought a newer car can't hardly afford. Over two hundred dollars a month in payment alone. Gained over a hundred pounds. Got diabetes. Uncontrolla[Show More]I have charged up three credit cards and live on disability. Can't even file bankruptcy. Can't hardly afford to buy groceries over the month because of the high credit card balances. Making the lowest payment on all three still over two hundred dollars. Bought a newer car can't hardly afford. Over two hundred dollars a month in payment alone. Gained over a hundred pounds. Got diabetes. Uncontrollable high cholesterol on abilify and high cardiac risk. High blood pressure. Huge hair loss. And after I got them to take me off the abilify years later after starting this drug went through horrible depression for about two months where I couldn't get out of the bed but about three hours a day then I noticed my jaw was getting to where I could hardly unclench it then went through a stage where I was constantly flossing and brushing because all I did was run my tongue all around my teeth and open my mouth with weird movements. Then the feet constantly moving and the arms and torso moving and could not stop all this movement even trying to and before I was taken off I kept having these muscle spasms and pain in the middle of my back. My provider put me on klonopin 1 mg three times a day. Wasn't telling me what was causing all the movement til I did some research and outright asked. They tried to make me go back on the abilify to try and titrate me off this time. I refused. So the put me on Latuda with the klonopin and my viibryd for my depression and are going to try and titrate me off the Latuda to try and get rid of the tardive dyskinesia. This drug has cause me physical and financial hell!
StaceyOctober 17, 2016 at 5:49 am
I took Abilify for several years. I stopped taking it October 2015 and that's when the Tardive Dyskinesia started. I repeatedly tap the fingers on my right hand. I also tap my teeth together. The tapping has to feel a certain way or I have to keep doing it until it feels 'right'. I usually hold my breath while tapping. My restless leg syndrome has gotten worse and I recently noticed that my f[Show More]I took Abilify for several years. I stopped taking it October 2015 and that's when the Tardive Dyskinesia started. I repeatedly tap the fingers on my right hand. I also tap my teeth together. The tapping has to feel a certain way or I have to keep doing it until it feels 'right'. I usually hold my breath while tapping. My restless leg syndrome has gotten worse and I recently noticed that my feet/toes move a lot. Also, if I take my hand off of my mouse I have to wipe my desk at least twice and I have to wipe the mouse at least twice. I also move my mouth to a weird position and my breathing is constantly affected. There has to be a way to fix all this. I don't know how much longer I can take it.
GlennOctober 8, 2016 at 6:25 pm
My name is glenn and I have been on abilify for 6 yrs. I never had the leg twitching or difficulty swallowing until I started the abilify. My symptoms are very difficult to handle. I have since stopped taking it but the symptoms are still on going. I'm really getting sick and tired of being sick and tired.
BobSeptember 29, 2016 at 9:37 pm
I was on ablilfy from 2008 to 2015. In the beginning first year or two my hand shook slowly and by 2015 had increased 2 to 3 times as fast. I stopped taking abilify July 1st, 2015. I have been to several doctors and no one would diagnose the Tardive Dyskinesia. Finally a few months ago after repeatedly going to my primary care doctor with the problem, sever pain and blisters he started looking int[Show More]I was on ablilfy from 2008 to 2015. In the beginning first year or two my hand shook slowly and by 2015 had increased 2 to 3 times as fast. I stopped taking abilify July 1st, 2015. I have been to several doctors and no one would diagnose the Tardive Dyskinesia. Finally a few months ago after repeatedly going to my primary care doctor with the problem, sever pain and blisters he started looking into the problem which my wife had already researched and told him what was wrong. We are now going to Neurologists but he does not give me much hope, He did give preliminary diagnosis of Tardive Dyskinesia. It could clear but could take up to 7years or it could be permeant, I constantly Clench toes, clench teeth, mouth moves and tongue moves also. Speech is impaired, mouth blisters and burning. Activity does make it worse. I am on Effexor 150mg twice a day but have found that the Ativan does help. This is truly a living hell!!! If any one has anything that will help please get the word out. I have read that Vit E and some of the amino acids can help but nothing has been proven. I do get a little relief from the blisters using Lysine and Folic Acid. Ativan has given me some relief,
JoanSeptember 28, 2016 at 12:49 pm
I stopped using Ability over 2 years ago and have had the most terrible jaw clenching 24 hours a day. It took me a while to realize that Ability is ? the cause. I have gone to my primary physician tried different drugs, muscle relaxers, antidepressants, as well as valium and now I take Ativan. I get Botox injections every 3 months. I still have strong muscle tension but do not clench as bad. An[Show More]I stopped using Ability over 2 years ago and have had the most terrible jaw clenching 24 hours a day. It took me a while to realize that Ability is ? the cause. I have gone to my primary physician tried different drugs, muscle relaxers, antidepressants, as well as valium and now I take Ativan. I get Botox injections every 3 months. I still have strong muscle tension but do not clench as bad. Any type of activity makes it worse so my life has been changed forever. This has been a living hell!
MerrySeptember 11, 2016 at 8:52 pm
My husband has tardivei dyskinesia terrible. His head bobs up and down,his feet do the same. He had to stop driving because his foot on the gas on off on the gas and worse the hesitation like stuck on stupid. He gets his meds from the VA had asked for 2yrs to be taken off.They got a new dr overthere and they had him try zyprexa then took him off of everything. Now he lays on the couch all day
Mary AnnAugust 30, 2016 at 2:58 pm
My 11 y/o son has autism have been on Abilify for over a year, doing better with behavior. My concern was obesity and being high risk for cardiovascular disease, so our plan was to wean him off, to make it easy for this transition, he was placed on low dose lexapro until he's completely off, He wouldn't sleep at night, the doctor prescribed Tenex at bedtime to decrease energy and help sleep. N[Show More]My 11 y/o son has autism have been on Abilify for over a year, doing better with behavior. My concern was obesity and being high risk for cardiovascular disease, so our plan was to wean him off, to make it easy for this transition, he was placed on low dose lexapro until he's completely off, He wouldn't sleep at night, the doctor prescribed Tenex at bedtime to decrease energy and help sleep. Now he's presenting tar dive dyskinesia. The pediatrician thinks it's Ability, I stopped it in a heartbeat. The dyskinesia decreased by 30-40% occurrence. On my way to bring him to a neurologist today.
DonaldJune 6, 2016 at 8:58 pm
Developed tardive dyskinesia while taking abilify. No longer taking however this drug has made me medically disabled
VickiJune 2, 2016 at 2:05 am
I have tardive dyskinesia from being on Abilify for over a year. I'm no longer taking Abilify but the symptoms continue. My doctor has tried to calm it down with two different meds of which neither worked.
MaryMay 21, 2016 at 5:52 pm
I have been on abilify. It has contributed to me getting diebetes. Tardive dyskinesia. Compulsive spending insomnia. Emotional distress. I have stopped abilify my compulsive spending is less but my uncontrollable leg movement has continued