I had rectal surgery in 2011 had to go back in 2012 to have 2/3 of it cut away the pain I went through I thought it was in my head pain down my legs across lower abdomen and my back severe headaches loss of interest in sex and now I have developed a cyst in my ovaries bladder is more weaker sometimes no control and pain when making a bowel movement – really thought I was going mad

I had surgery on August 2003, after I was told that it was a simply procedure. That I would be able to resume my regular routine within weeks. Right before surgery I was again told that I could workout and return to jogging, that never happen it’s been 11 years and I thank Hod for still being here but life has been in and out of hospitals. Right after surgery I asked the doctor to remove whatever he put in me. I was told no that it would be better. I hate myself for not pushing for that because I have Boston scientific repliform And no one seems to believe that it cause harsh damage to the body. I had UTI’s from the very beginning, I was 36 yrs old and never experienced a UTI before this, which beginning my night mare for the next 6yrs I had infections to the point that I became allergic or rejecting antibiotics. The pain was just awful. The medications I’ve been on has caused my teeth to crack and break off, due to no been able to take antibiotics dentist would not see me. Finally after three surgeries the infections were under control. But the pain has continued we went for the forth surgery not count all the nerve blocks I’ve had over ten years things are not better. I get swilling wrist, fingers and palm turn red, my my neck and face and tongue swelled up. Life is been hard for me and my children have stopped breathing I can’t work I can’t do anything I have to have the kids help me. Has to be a solution to this problem I cannot continue like this

I had rectal prolapse surgery in 2010 with surgical mesh, I have been in HELL ever since. I have vaginal and anal pain, leg pain, thigh pain, and cannot fully empty my bowels. Some days I have not stop diarrhea and other times it takes all morning of running to bathroom before I can somewhat empty bowels. I cannot ride in car or truck for any length of time and I am in constant pain! I have been to numerous doctors, with no help in sight. I would rather be dead, than to live like this, but I have a teenage son to think about! I also cannot hold my urine anymore and haven’t even thought of having sex. I need help!!!

I also suffered severe mesh complications from TOT sling. In my case, it was mostly groin/leg/hope pain, that resulted in my needing a cane and later crutch to walk. I am one of the lucky ones who found a way to get to one of the few doctors experienced with doing full mesh removal. There are now over 70,000 lawsuits against 6 main mesh manufacturers… hundreds of thousands of reported complications – yet, they are STILL putting mesh in regularly. I started a blog, with a lot of links to FDA warning, support groups, and other info if interested: www.meshmenot.wordpress.com

During my last c section my doctor said I’m going to have to wrap your uterus in this mesh stuff that would disolve? After this I can not have sex horrible pain. Lots of pelvic pain. Diarrhea all the time 24/7. I have a hiatus hurnia to after all this and gastritis of the stomach all after this mesh crap. Please help the doctors all tell me its just stress. I’m only 29 and have 3 kids brining me down fast.

I had a cystocele and rectocele repair done using mesh products in 2008. Symptoms began a year later. The pain became disabling. I saw doctors about my symptoms, but no one made a connection to the mesh including me. Finally, after years of downward spiraling health, I decided to visit the urologist who performed the cystocele repair after seeing television commercials about mesh complications. I got the confirmation I needed and began investigating my options. I have been sick and in pain for so long that my life is now a backlog of missed opportunities and unattended personal business matters. I never leave the house. Walking is a luxury, and I’m unable to stand for very long. I have frequent fevers and am fatigued constantly. My situation (and the situations of so many others) is impossible. My life plans and dreams will never be realized. I planned, saved and prepared for my future, but in one day of surgery, all of that was stolen from me. Once again the greed of those we are expected to trust has outweighed the safety and protection we deserved.

(Revised) Monarch sling 2008. Now experience pain shooting down legs, groin , pelvic bones, bladder, vaginal, and intercourse pain. Urethra and rectal pain/bleeding. Feels like trying give birth to bowling ball. No you are not crazy! Been told need remove sling, but finding a Dr. to remove all of it NONE. They only want to remove part which by reading blogs find that makes it worse . Plenty of great info that answers most of our questions by a courageous lady: http://teapapers.com/bladdersling/2012/08/so-much-hope-for-mesh-removal-surgery/#comment-6575

I had the mesh implant in 2002-2003. I have never had any problems like I have read here. My problems started about 4 years ago when I was diagnosed with IBS and Diverticulitis due to constant diahrea. I did have a colonoscopy to convirm the Diverticulitis. For the past week I am having severe low back and low front pain to the point that I have been in bed for 3 days. I went to my family doctor and was given 2 anitbiotics for Diverticulitis. Day 3 I was able to get out of bed, but still having sharp low pains. I am wondering if my Mesh has started to create problems after reading all your post. The doctor that put the mesh in can’t see me for 6 more days. Is there a test, xray, that can prove what I really have. I feel that my family doctor is taking this too lightly. Any suggestions?

I am on cipro/flagl after the vaginal eroison allowed e-coli into my pelvis. I am very sick, had a mesh tape, which I now think is infected with the pseudomonas aerugionsa bacterial. As I have RA, I have thought the terrible back and hip pain was due to the disease..now to find..its probably the mesh. And I am very immunesuppresses..and the outcome is not straight forward. I hope I dont have to have surgery to try and remove all the infection..it would take most of my lower bowels. I have had pain and problems since the mesh tape surgery 2007, told I have eroison by the doc who did the surgery, but NO ONE said anything..no warning..nothing until I became ill three weeks ago with this uncontorable infection..all at once..I have been sent to a new doctor..and lots of worried looking medical folks.

I had surgery for prolapsing rectum/bowel October 2011. My husband and I were told that she was going to use a small piece of mesh and inch in size to tack things back up with. However I am now finding out 14 months later a mesh sling was used and attached to each side of my pelvic bone and slung underneith. Since the surgery I have been in and out of the doctors. Right after surgery I was experiencing very bad pelvic pain a rubbing/poking/sharpness by my pelvic bone. I was told things were probably not fully healed. Things have only progressed to get worse. I have seen the surgeon who did the surgery several time she told me to try pt that it might be spams. I did that it has not helped. For one thing I know what spasms feel like and this IS NOT a spasm. I am now experiences alot of groin pain also along with the pelvic pain and pain by my pelvic bone. I feel like I am being poked with pins/tacks in my vaginal area and pelvic region. Also feels like I am being pinched. It started out hurting when I would be walking. Now its hurting all the time. I have been crying in pain its been waking me up at night. I cannot get comfortable. Let alone doing things around my house or going to the store. I have had UTI’s was peeing blood and clots. The first set of anti-biotics didn’t help they had to give me an extra week of anti-biotics. My bladder has been leaking when coughing, sneezing. Intercourse is painful. I feel alot of sharpness,stabbing pains. We have had to stop. Right now it even hurts to wipe myself after using the bathroom. I am having alot of discharge. I was Not like this before the mesh was put in. I just found out I have a large hernia again also. And the same surgeon contacted me and said she could fix it with a mesh patch. I will never let this woman operate on me again. And I absolutely DO NOT WANT more mesh put in me!!! I trusted her, this is my body she should have informed me about what she was doing before she did it. I am 28 and am literally a mess with all of this pain. My g.i. doctor I have had since I was 12 believes its the mesh causing these problems. I have inflammatory bowel disease/UC also. He thinks my body is rejecting the mesh. And is sending me to the Mayo tomorrow. I take lortabs for pain and those are not even helping. This pain is debilitating!!!! I had to have a hysterectamy two years ago also and do not know if she placed mesh in there that time to. I just talked to a lawyer today and they suggested I request to see a uro,gyno. They told me it sounds like the mesh in me is eroding. So when I get to the mayo tomorrow I am going to request I see a uro,gyno asap as I am seeing a different specialist when I get there. What is wrong with doctors they could at least be honest to their patients! How would they like it if this stuff was put in them without knowing. This is a nightmare! I want this mesh gone!!!

I had the bladder mesh/sling ? put in in 2007 . I was 41, I had been diagnosed with labial cancer and would need surgeryt of the labia, removing part of it, as well as a vaginal hysterectomy for years of abnormal paps. The Dr asked if I had any problems with stress incontincence, I replied not really, but maybe once in awhile if my bladder was full and I coughed hard, I had 3 children. she put a Qtip in my eurethra and declared “my muscles there were very weak and started promoting the insertion of this “new butterfly” type sling for my bladder that would make sure it didn’t progress. Since I had to have surgery anyway for the CA , I thought why not?. I was NOT given any literature on the sling. The sling was actually talked about very little. After surgery I was immediately in so much pain it was almost unbearable, I was given enough medicine that it went enough for me to sleep. When I woke again the pain was there again, just as intense, the odd thing was that the pain was in by low back and right hip. I couldn’t even feel where they had removed part of the labia. I assumed the pain was normal and just made sure I had enough pain medication.I was surprised when they released me from the hospital because Iwas having an extremely hard time urinating, and when I did I wasn’t able to empty completely. The first night at home I woke up and cried I hurt so bad, my whole house woke up because I hurt so bad and I couldn’t stand upright to walk, I chewed percocet and just curled into a ball until the pain went away. Each day the pain got a little better, my low back and right hip continued to hurt and I continued to have a difficult time urinating and retention. My back and hip pain were attrubuted to my profession and I took vicodin daily for the back pain. Every few months it seems as if there is something new, a lot of unprovoked low pelvic pain, UTI’s, painful sex, random sharp shooting pains down my right leg, Bladder pain when urine present, urethral pain/burning. I had GYN about the uring retention and pain difficulty starting to go at my 6 week check up. I never went back. Why? Cancer and any place cancer might be was gone, I assumed I just had to live with the urinary problems, the back and hip pain were attributed to my job. Its been in the last year or so that all the other symptoms have come on. I have an appointment with the GYN who put it in and we will see what she says. Do I need/want an ultrasound? to know for sure? Can it be seen on an X-ray or MRI? My pelvis and right hip hurt all the time now. I hate trying to urinate. Just wondering what I might expect from my GYN

In Feburary of 2010 I had the Prosima Gynecare procedure done. This has been the biggest nightmare and mistake I have even done. Please ladies never do this now matter how much your dr tells you that it is safe.

I had this type of surgery 20-years ago(rectoseal and bladder repair) and I have been fine with exception that now it has fallen again, but after reading all these comments, I will definitely not have surgery again. I had the best Doctor and had no problem with the mesh. The mesh that was used on me was anchored with something like the old rollers with the wires and anchored through my skin. Some came through the skin but Dr. cut it off and I never hurt, never bled or had problems like these poor people had. I just am complaining now that it has fallen again, but it’s been over 20-years. I will just tolerate my problem and not have surgery again.

I know my anger lashes out at everyone, but the bladder mesh , has never put me into a point of not having hope that this nightmare will go away with mesh. Those women that have waited as I have for a doctor and trying to find a doctor that will try to help, is almost impossible and very draining going from on urologist to another, and gynecologist, and being treated not the kindest to answer questions we want answered, Truth is, for them to just say , I don’t know, would be better than what women are getting. but at least the words I DON’T KNOW ,IS BETTER THAN LIES. THAT PROVOKE WOMEN TO ANGER, No one wants to be lied to, I know that is’t a damned if you do and damned if you don’t situation and decision, about taking the mesh out. anti biotics will weaken ammune system and cause problems that take your life, more surgeries , of pain is going to take you , and no hope that the pain and suffering will ever end. Those single , what man wants them for a wife, if married , look also at what their families have to suffer , their husbands , , would lead to divorce with some? I have had to tell possibilty good men wanting a good woman for marriage, and had to tell them I cannot be a comlete wife to you. and would not even try to start a relationship. , the pain of mesh is enough pain , than to go through , and losing a man that I might have fallen in love with. I cannot do that to him or me. Even though I do lash out at people, and sound most of the time , that people want to run away from me, I am sure, I am truly thankful, for those doctors that are trying and having to put up with women in pain with mesh. God love them, 99% of those doctors are not the ones that put the mesh in. They are not to blame or their staff. I know that. I am not getting counseling, because i DO NOT WANT TO BE DRUGGED UP WITH ANTI DEPRESSANTS, THAT COULD CAUSE DOUBLE TROUBLE, KNOWING IN THE PAST THE SIDE EFFECTS OF ANTI DEPRESSANTS DO HAVE SUICIDAL SIDE EFFECTS AND MORE, i do not need double trouble at this point, I would love to get back to the days , even when tired , could go outside and do work, you know those days with a burst of energy as I did before mesh, I do not have that any more, That first year, after mesh implant, I was having infections non stop, and bad, not knowing until a year later the mesh was protruding out in me, I went for months at the end of 2010, after mesh, through infections that caused bad scaring on me, the worst time, after those most severe months , I became so weak and have not got strength back, no energy at all. common sense tells you no one can live long with fighting these infections and anti biotics and times when you have nothing being given by doctors . we are guinea pigs for the rest of our life , for food and drug administration, and medical research. without volunteering. I am 1 that would never had said yes to this mesh, if I had been told of what it MIGHT DO. tHE WORDS GUARANTEE, GAVE ME HOPE THAT BLADDER LEAKAGE WOULD STOP, EVEN THAT HAS GOT WORSE, EXPENSES , FOR ACROSS CUNTER SUPPLIES, PADS THAT i THOUGH WOULD STOP SOME WHAT ARE EXPENSIVE FOR THE SINGLE WOMAN, AND MORE ASPRINS FOR PAIN, SINCE DOCTORS WILL NOT GIVE PAIN PRESCRIPTION FOR PAIN, AND ANTI BIOTICS, , PEOPLE DO NOT EVEN DO ANIMALS THAT WAY, BUT HUMANS THAT CAN SPEAK ARE TREATED LESS THAN HUMANS IN PAIN? OUR LIFE IS DESTROYED AND GONE , AS WE ONCE KNEW. tHE COMPANIES THAT PUT THIS MESH OUT, HAD TO KNOW IF IT HAD BEEN TESTED , THEY WOULD HAVE KNOWN EXACTLEY WHAT WOMEN WOULD SUFFER, the woman that mentioned the sharp pains, what is it? not long after the surgery, I had very severe sharp pains that would start at unexpected times, the pains very sharp through vagina at times, that lasted for sometimes a hour, before going away, and then same sharp pains through anal, that would take me off my feet , would make it to the nearest couch , or bed, and have to lay there in agonizing pain. also that lasted up to an hour. cramps at times in between even last night like menstrual cramp, the worse severe pains I haven’t had in a few months. hoping that does not start up again. People cannot live this way. The infection never stop, even if you have a few days , of none apparent , you can still feel what feels like glands swelling, like hemorrhoids , under the skin, down you legs and on you buttocks, etc. I had one doctor say he did not see hemorrhoids , I said you are not listening to me I said it feels like hemorrhoids up by buttocks and down the upper part of my legs. YOU WANT TO SAY WILL YOU PLEASE COMMUNICATE TO ME, SO YOU DON’T PUT WHAT I AM SAYING DOWN WRONG. YOU ARE THE DOCTOR, AND i HAVE TO LISTEN TO YOU, BUT COMMUNICATION GOES TWO WAYS. i AM BEGGING YOU TO HEAR WHAT I AM SAYING. PLEASE HELP ME. YOU ARE NOT WANTING TO GET INTO DISPUTES WITH THEM AT ALL. i AM WANTING A TO GET TO A SOLUTION TO THE MESH MORE THAN THE DOCTORS . POURING MY HEART OUT, AND THE WAY i FEEL, ABOUT THE MESH.

Oh yes, I am but another victim of this horrible nightmare. I am 54. A nightmare is what I call my life now. It will be 4 yrs soon. My life has been ruined and I have been forced to come to terms with the fact that I will never, ever be the same as I was before the surgey. The constant searing stinging pain in my lower back, hips and tailbone, the painful intercourse, painful sitting, standing & walking , the constant stumbling, the slightly funny gait is now the new normal for me. Climbing up the stairs on my hands and knees has become my nightly ritual. Epidurals that don’t help and leave me with near heart stopping rectal & vaginal spasms and restless leg sydrome! What I have discovered is, no one really knows WHAT to do for us. Sadly, I can barely remember my life before the pain, it is so consuming. I have heard that the cases for our state will not even begin to be heard until July 2013. And time marches on. Go to work, come home, and crawl up the stairs every night, July 2013 is just a date. Funny thing about constant near debilitating pain, it doesn’t really care about July 2013 and I will never trust another Dr again as long as I live.

That was sorry, an icon flashed up saying my first post was not going to be posted, and they did post it. I tried the second and both posted. 4 years disputing with doctors and nurses , is getting to me, for sure, and so long no answers or hope of getting mesh out until next year. This is truly the most cruel medical fields people with F.D.A. AND MEDICAL RESEARCH HAS EVER DONE. i will know before next year, IF THEY DON’T FINISH, MY DEATH, the way I have made a lot of enemies speaking out as I have and I KNOW IT.. i HOPE WOMEN WILL GET THE ANSWERS WE DESERVE TO KNOW AND ARE BEING AVOIDED , KNOWING IT SEEMS, i DON’T THINK WOMEN ARE BEING RELIEVED OF ALL THAT COULD BE DONE, AND TOLD, i AM SURE THEY WOULD ALL WISH WE WOULD JUST DIE ATTORNEYS THEY ARE GOING TO GET THEIR MONEY FOR SURE, DEAD OR ALIVE. AND DOCTORS GET BACK THE REST YEARS OF PERMANENT DAMAGE IF WE LIVE, THAT COST, AND GO INTO MILLIONS, SO THE ONES THAT LOSE ARE THE WOMEN ,

These attorneys and courts careless of what the women are going through, as did the vast majority of doctors and nurses that put this mesh in them , that destroyed their lives , with infections and this mesh sticking out of them. I want answers , as I just read the fda are telling medical field to do more studies more women as guinea pigs, no answers to the women, what in hell are we fighting with the bacteria caused by this mesh, was that implanted too in chosen women that is truly killing so many women I believe and will before it is over with. . I WAS TOLD AFTER REMOVAL, NO ASSURANCE OF INFECTIONS STOPPPING. and no assurance that my health will be restored. no answers of more damage, more surgeries , nothing good have I heard yet from the many doctors and nurses , They knew they had to, that women were chosen for this mess without telling them that it was a permanent damage , that will cause death, according to a person’s ammunity. I want to know what bacteria the women are dealing with, as doctors do not want to take blood test and tell , what women have and are fighting. this is one one the sorriest things that has ever happened in the usa , to human beings, and those in medical and rich knew , medical research needed human guinea pigs. as one attorney said the other day, she didn’t care what women were going through with doctors and cruel treatment given to them, all they wanted to know was about surgeries, for more money, more money for more damn medical research women still being used for medical research , damn their evil souls to hell. 4 yearts of trying to find a doctor that would do something and some doctors lying and some avoiding questions, and no answers, and sarcastic remarks from even medical boards , like you deserve to die and be used for medical research, let me butcher them and see how they like it. as one said , are you going to donate your body to medical science , I said hell no, medical science , and evil people have you used me enough for their damn evil research , I WORKED AND HAD GOOD DAMN INSURANCE YEARS AGO i PAID, AND TRUSTED DOCTORS YEARS AGO , FINDING NOT ONE , GAVE A DAMN IT WAS THEIR SORRY GREEDY MONEY . AND THE REST OF MY STORY PROVES IT. THE WOMEN DESERVE HONEST ANSWERS SINCE DOCTORS AND EVIL PEOPLE HAVE PUT THEIR PLACE IN GOD’S PLACE, , NOT TELLING WOMEN THEY WERE CHOSEN AND LIED TO. EVEN WORDS OF i DO NOT KNOW, WOULD BE BETTER THAN THE LIES AND CRUELTY OF THOSE IN MEDICAL FIELD. SINCE ATTORNEYS LIKE ONE TOLD ME, WE DON’T WANT TO KNOW ABOUT WHAT YOU ARE GOING THROUGH WITH DOCTORS AND NURSES , WE ARE AFTER THE COMPANIES MONEY, BUT WHAT ABOUT THE SARCASTIC CRUELTY OF THOSE DOCTORS AND NURSES THAT ONE EVEN SAID THAT NO SHE WOULD NOT SEE ME, AS DOCTOR UNLESS THE SURGERY WAS COMPLETELY SUCCESSFUL, WHICH SHE KNOWS WOMEN HAVE MORE AFTER SURGERIES. . WE ARE JUST ANIMALS TO SOME DOCTORS AND NURSES, i WANT ANSWERS , AND EVEN WOMEN THAT HAVE DIED FROM THIS MESH, HOW LONG, AS ONE DOCTOR LIED AND SAID IT WAS NOT STICKING OUT, i HAD TEARS RUNNING DOWN MY FACE, WHEN i LOOKED AT ANOTHER DOCTOR THAT CAME IN THE ROOM, i SAID HE IS LYING, i SAID YOU EXAM ME, ANOTHER WOMAN , ASKED IF SHE WOULD, SHE SAID YES, AND i SAID THE METAL HE WAS USING AND INSTRUMENTS OF TESTS ARE NOT GOING TO FEEL THAT MESH, IT HAS TO BE FELT BY HUMAN BEING NOT A MACHINE. SHE SAID SHE FELT IT, IN 2 PLACES TO HIS LIE, THIS IS MORE HELL WOMEN ARE GOING THROUGH THAT ATTORNEYS DON’T CARE ABOUT, UNNECESSARY CRUELTY, GOVERNORS , SEN. CONG. REPS , NEED TO KNOW WHAT IS GOING ON TO HUMAN BEINGS IN THEIR STATES , BUT i WOULD SAY THEY KNOW AND DON’T CARE. this brings out the anger in me, LIKE NOTHING EVER HAS . FDA NEEDS TO HIRE PEOPLE THAT WILL NOT SLAM THE PHONES DOWN TO AMERICA CITIZENS , i CALLED MANY TIMES TO PEOPLE THAT JUST WOULD NOT LISTEN YEARS AGO, EVIL PEOPLE, WHAT ELSE WOULD YOU CALL THEM? 4 YEARS IS TOO LONG FOR ANYONE TO SUFFER TRYING TO FIND SOMEONE IN MEDICAL FIELD TO DO SOMETHING.AND HAVING DISPUTES ,OVER SOMETHING THEIR MEDICAL COLLEAGUES DID . knowingly!

I live iin Ohio close to Clev.Clinic and Toledo – Does anyone know of a good Dr. to take the mess out? This is soooo frightening!! Like everyone else – I need to get the mess out and but who does the best job for sure not my Dr.!!

I am a 35 year old. I recently went through the operation and got the sling. It has been a week and I have occasional stabbing pains on the groin area that seem to be occasional and when I am walking around too much . I am still spotting as well. I am hoping this is just due to the recent nature of the surgery and that it will go away soon. I have to say that I should have done my HW as after reading the comments I am extremely concerned. I Asked my doc many questions and she reassured me that the complications were minimal and about 10% suffered a few symptoms but it was uncommon. I am concerned about the trust I placed on my doctor. If I would have done my HW I probably would have not done this. Please pray for me and those still suffering. Thank you for sharing your experience. I have learned my lesson. I just pray that the consequence of my lack of education does affect my health, life, and marriage.

My urologist has suggested that the Monarc sling would be a low risk solution for me for SUI. He also said ‘this is not the mesh you may have been reading about in the news’. Is there any possibility this is a different product than the Monarc sling referenced in so many of the posts above? After reading the posts here and the FDA warnings, I am amazed that a compassionate and competent doctor would recommend and perform this surgery.

Judge Goodwin if he is an honorable judge needs to know some women suffering are being lied to by attorneys and doctors and nurses and getting no help, as the greedy get more on their merry go round, doing nothing for mesh sufferers. I thought by letter of attorney i had a case filed in Judge Goodwin’s court over a year , found out a couple of weeks back no case was ever filed in federal. and again lied to by the attorneys and no help and also being lied to and treated cruelly by medical doctors and nurses. This is evil , to use humans as guinea pigs and the rich , powerful and greedy are the only ones that will benefit from this evil being done to humans . medical research as evil as hitler , saddam, and in america . I AM NOT AN ANIMAL, I HAVE A MIND, CAN SPEAK, BUT EVIL IN POWER , SEE THEIR SELVES AS GOD TO MURDER . OBAMA IS NOT GOING TO DO ANYTHING, JUDGE GOODWIN PLEASE HELP THOSE WOMEN THAT ARE BEING TREATED SO CRUELLY BY YOUR LAW COLLEGES AND THOSE IN MEDICAL FIELD. SOME SHOULD LOSE THEIR LICENSE AND PRISON TERMS, FOR LYING TO WOMEN SUFFERING. INTERVENE AND STOP THIS ABUSE OF WOMEN ALREADY SUFFERING, AND NO HELP OR HOPE.

I am 43 years old and had a bladder neck suspension in 2004. I have had blood in my urine for the past three years and i keep UTI’s. I have also had surgery to dilate my urethra tubes. This has also ruined my marriage as I cant have sex now due to the pain. I am trying to get a doctor to see me now to solve the problems and they act as if they do not want to get involved after my primary care doctor linked the mesh to my complications. This has ruined my whole life. What can we do??

I don’t know if this is what this is about I was just told today about this and am a little concerned. I had 10cm cysts on both of my ovaries and had surgery in December 2010 they removed them and then they came back again August 2011 and again had surgery. Now I am knee deep in medical bills from this and my pain is back again. Can anyone help me?

I too had this mesh sling procedure done in 2008, and have had multiple problems similar to all that the other persons experienced. I have recurring bladder infections (I have kept all of my antibodic medical bottles which total to about 50 bottles. The antibodics were prescribed in an alternate/repetetive manner. I also suffer from a bloating feeling in my right side along with an unusal kind of pain. I believe it is associated with the retention of urine in the bladder, whereas the bladder does not empty competely. I also suffer from lower back and pelvic pain. I too have had the back pain injections and physical therapy and none has given relieif. I am hesitant to go back to the doctor (Urogynelogist Specialist) who did the procedure because he has betrayed my trust. I also suffer from incontinentance day and night (as many as six or eight time nightly) and must wear depends daily which is very costly, being that they are not reusuable.

I had a bladder lift in May of 2005. I had problems almost immediately that were treated conservately. I was implanted with a Perigee patch and a Monarc sling. In July of 2011 I had the Perigee patch removed as I was advised that it had come “undone” (whatever that meant), plus I was STILL bleeding after dealing with a nonhealing granuloma for 6+ years. Add to that, abdominal pain and bloating, excruciating pain in the lumbar, right hip/flank area now radiating down the right leg and causing periodic numbness. Oh yeah, I am having to carry catheters with me when I leave the house because that part of me isn’t working either. When the Perigee patch was removed, it caused a hematoma and permanent damage to my sphincter and pudendal nerve. I have had extensive testing that shows permanent fecal incontinence with limited chance of reversal. I am advised to work with a neurolologist to see if electrical stimulation will help. In addition to that news, the difficult removal of the Perigee mesh patch caused a rectocele and cystocele which must be fixed in a subsequent surgery — but not the next surgery because that is reserved to remove the Monarc sling (there wasn’t enough time to remove it in this surgery). In December 2011 I had lumbar back surgery and have been recovering from that. Now I am facing my second mesh removal surgery. I cannot work and am now on permanent disability at age 56. I was advised by my attorney last week that my personal injury case is being prepared for Federal Court. Thank God. I will have my day! Don’t give up Ladies!!

‘@ Creagle who wrote on April 20th. What did you mean when you said your “stuff” was falling out (bowel etc.)? Were you referring to rectal prolapse? Since my surgery that has happened to me and I have lost all muscle tone to the sphincter. This creates one hell of a problem. Your post was the only one that seemed to mention anything about this. I believe a nerve to my rectum may have been compromised during the initial sling surgery. Any thoughts? Has anyone else had any issues related to fecal incontinence after transvaginal surgery?

I had prolapse surgery nov 2011. After surgery I was unable to pee. My gynecologist who did the surgery had me wear a foley catheter for 8 weeks..obviously that was very painful and humiliating. Once a week I would go into his office and have it removed hoping to be able to pee on my own. I would end up going to hospital or emergency room in the middle of the night to have the foley inserted again. Had a lot of infections during this time. The doctor kept telling me this was ok just taking a while to heal. I had told him I was concerned about using the mesh because of all the tv commercials. He had Assured me the mesh he used was not the same kind. After 8 weeks of sheer misery with The foley catheter a friend who is a doctor told me I needed to learn to self cath. I told my gynecologist I wanted to learn and he showed me how. I did not go back to the dr who did the surgery. I got a referral to a urologist. He did several tests and said the mesh was the problem causing the pain and and pelvic spasms. I have undergone numerous painful and embarrassing tests and I am schedule for another surgery June 5 to remove the mesh. I was told I will need weeks mabe months of therapy after surgery to get rid of the pain. Have not been able to have inner course with my husband of almost 44 years. The gynecologist also said the prolapse surgery had shortened my vagina. Not sure what can be done about that. He is sure that is definitely causing me to be unable to have inner course. He said we can talk about that after the surgery to remove the mesh. Scary. I just want to have my life back and be able to enjoy my grandchildren without paying the price in pain later. I would like to know if any of you have sued or are considering suing you dr or the company who made the mesh. I have never sued anyone in my life and not sure if I am willing to now. But I am so frustrated that this was done and my life has totally changed and theirs is going on like nothing has happened. And how many other women are going to be hurt so the drs can have a quick fix and the mesh company’s can make millions at our expense. Please let me know what you can. Not sure what to do..

Pelvic floor repair I wanted to start this blog so other women can talk about their experiences on this issue. I struggled to find information before and after my surgery. I want to know things like complication and “is this normal” after surgery. So I hope this helps someone that is looking for answers and information. Are you like I was trying to find out info on the Pelvic Floor Repair surgery? I searched and searched and couldn’t find anything. I wanted to talk to other women who have had the surgery and find out the out come. I wanted to read about the issues they may have had. I just wanted to know. I was referred to a Gynecologist by my MD. He is highly rated. I went in for an appointment and discussed my problems and solutions and was told he could fix everything and not to worry after the surgery I wouldn’t have the problems any more. And oh yeah I was talked into a hysterectomy. I didn’t make the appoint that day for the surgery because I had to get things in order because you need to be pretty much a do nothing for about 2 months. And as we all know we as women have a lot to do everyday. Thanks God for my family and friends I had support. My husband was amazing. So about a month later I got a call fro the Doc’s office wanting to set up the surgery and I asked would I be seeing the Doc again before the surgery and her response was, ” I guess you can if you want.” Well yes I wanted to see him again because I had a ton of questions that I wanted answered and I had only met him once. And I didn’t have any luck on the internet looking for the answers after several attempts. My friends also tried to find some info on the matter with little or no luck. So I took my husband and a sheet of paper with my questions and concerns a list of my meds and allergies. I asked all my questions and a few more I thought of while there. He told me he that he had done several hundreds of this type of surgery. And I asked if there any complications and he said he had nicked a patients bowel. I asked about the commercials on the mesh and he said something like, one in ten thousand women have and issue with the mesh and because of that one person they blow it out of proportion. So that lead me to believe there were no other complications. Only later after the surgery did I learn that there are lot more things that can go wrong. My problems include very painful sex and the doc knew that even after 35 years of marriage my husband and I still had a lot of sex because I told him that fact. I still leak when I cough, laugh, sneeze, I feel like I need to have bowel movement all day long almost every day of the week and shortly after the surgery I had bee sting like hives and uncontrollable itching for which he prescribed Xanax and a couple other drugs one that threw me for a loop and I have to work so who can be trashed and work or drive. None of drugs gave may any relief. I started taking Zyrtec on my own which helps about 95% of the itching. Also I had a severe pain in my left butt cheek. It feels like a railroad spike jammed in my butt cheek. He believes he may have caught a nerve and as of right now after my second surgery I still have the problems. Not sure about the sex issue because I can’t have it for about 4 to 6 more weeks. The nerve damage may be permanent not sure yet. And trust me it’s painful to sit, ride in a car, mow the lawn. It hurts when my jeans just touch the skin. So I went to the Doc because I was leaking when I coughed, sneezed and laughed and my stuff (bowel etc.) was falling out due to childbirth and gravity. He fixed the falling out part, ” NOT ” the leaking and I have 4 new problems. Does anyone have any idea where to go next?

I had the TVT sling procedure done along with rectocele, enterocele, cystocele in Jan/2009. I fell in June 2011, and in July I started having lower abdominal pain and 4 UTI’s. the pain has gradually gotten worse, until Feb this year, my family dr put me in the hospital to do tests. right when they were about to send me home, i stopped being able to urinate on my own, so they transferred me to a larger hospital. after 8 days total in hospital, no answers. I have gone to a urologist and the gyn that did the surgery. they both think it is coming from my back, yet my gyn did say that the rectocele was back, but only a grade 1. the fact that the same bulge in my vagina has returned meant nothing. i can no longer function. i can’t wear jeans anymore because of the excruciating pain it causes. i am scheduled to have a cystoscopy which my gyn said don’t do because he did one during the surgery where he repaired a bladder defect. i’m doing it so i can say i did EVERYTHING to find out what is wrong. i’m disabled so i don’t work anyway, but if i weren’t i would have lost a job long ago. i thought it may be adhesions because i’ve already had 3 open surgeries, not including POP surgery which was done laparoscopically. the reason they think it is my back is from an injury i sustained in 1981, i ruptured two discs in my low back, one which is linked to the nerve that services our bowel, bladder and entire abdominal area. i’ve had back surgery and a back fusion. i just don’t think that is it. i can’t see that causing this much pain to where it leaves a person completely unable to drive any distance, shop for groceries… can’t even go out. i would appreciate any comments or helpful information or similar stories from anyone thanks so much, rhonda

I too, had surgury almost a year and a half ago supposedly would make my life “new and wonderful” again. Let me say up fromt- I take some pretty heavy pain meds for Fibromyalgia and 2 kinds of arthritis. Have taken them for years. So, I know I would have feel MUCH more pain if I were not on these meds. But just a few weeks after the surgery I thought things were going better and we waited the 6 weeks to resume sex. Been married with a healthy sex life for 30 yrs. I knew something was wrong immediately! It was VERY painful and I could feel like what felt like a “stitch” in my vagina, so I returned to Dr. She said “oops, seems like one stitch DID flip back over itself” so she clipped it and and gave me a script for bladder spazms as by this time I had started to leak again and vaginal cream. A couple of weeks went by and I could still feel the stitch inside (so could my husband) so I went back. She apologized and clipped the “stitch” again and carterized it, I was bleeding so badly. I told her the med wasn’t helping- she said it would. After a few days- I could STILL feel the stitch inside which she says SHE cannot. I now have one coming outside my body right below the pubic hair line. I tried to pull it out with tweezers. It won’t budge. Just hurts. As you could imagine at this point- I had lost ALL confidence in my Dr, so I made an appt with a Urology surgeon here in town. He freaked. Said he thinks it’s the mesh and has referred me to Duke University Hospital, Head of Urology surgery there. It’s five hours away! But, he won’t touch me, so what do I do?!?!? He did say “she was not exactly forthcoming with me”. Great…. Like the others… I would give ANYTHING to have my “old” life back. But, I know- really.. it’s gone. I don’t know WHAT is going to happen, but, let’s face it.. it can’t be good. I would give anything to be able to go back to just peeing when I sneeze or cough. Now, I wear a huge pad 24/7 and have to go through who knows what. I will repost after my appt at Duke in May. I feel SO much for all of you here. I’m SO sorry all of us have had to go through this. God Bless you all.

Posterior prolift put in 2/9/2012 with no improvement in my pain. Had MRI in Nov 2011 showed pelvice floor prolapse; had mesh put in; had another MRI still showed pelvic floor prolapse with no improvement plus other bad stuff like rectal tip below line and recommended barium study. I want it out the prolift mesh that is. I’ll deal with whatever the problems were before it was put in, but I want it out. Do you know a doctor that will take it out?

I had a TOT put in by my gynae in 2007, but it was too tight. Three months later I had a histerectomy and my gynae “loosened” the tape as much as possible. I still had signs of the tape being too tight (difficult to void) but, as my gynae said he loosened it as much as possible, I left it at that. Six months later I started getting chronic pain in my legs & arms as well as severe “knots” in my upper back. After numerous tests I was diagnosed with Fibromyalgia by a Rhumatologist and spent the next four years trying to find a cure. I even went as far as having nine teeth with root canals extracted in my unrelenting quest to get my life back. I eventually battled to walk as a result of the severe pains in my hip, running through my groins into my legs. Two months ago the pain on the sides of my pubic bone became excruciating. My Urologist was convinced it was the TOT that caused all my problems and offered to remove it transvaginally. I went to two other Urologists who refused to do the surgery as it was too risky according to them. I had the surgery done by my Urologist. He couldn’t remove the entire tape, as the part that goes into the obturator cavity is impossible to remove according to him. After two weeks the pain in my pubic bone was increasing day by day. I knew something was wrong. At my follow up, my Urologist said he doesnt understand why the pain was increasing, but that it was still post operative healing and I shoulkd be patient. I flew to another city to see a Spesialist Urologist for a second opinion, and he diagnosed it as Osteitis Pubis. His opinion was that the TOT has been placed too tight all along, and has caused chronic inflammation at the sides of my pubic bone where the tape folded around the pubic bone into the obturator cavity. The chronic inflammation could according to him, have been responsible for all my fibromyalgia symptoms of the last four years. It now turned into a bacterial infection (not sure if that was introduced during the removal surgery or if it was still a result of the inflammation turning into an infection). He put me on a strong course of antibiotics (for bone infection). After a week the pubic pain subsided, but my entire pelvic floor went into chronic spasm as a reaction to the pubic pain. He put me on a three month course of Trepilene and Rivotril. My pubic pain has never been completely gone and I presumed it would take some time to heal. It has been two months since the removal, and my pubic pain (on the sides) is getting worse again as well as my fibromyalgia body pains. It seems like the Fibro pain always coincides with increase pubic pain. I am at my witts end with this. I have severe pain running down the insides of my legs, throbbing pain at the sides of my pubic bone and stabbing pain higher up on the one side. I am wondering if the infection has never been cleared up totally & maybe needs more antibiotics, or whether this is a normal part of the recovery from TOT removal. Has anyone had anything similar or know of the connection between Fibromyalgia body pains & a TOT that was placed too tight, causing constant friction on the pubic bone? The sad thing has been that I went back to my Gynae who originally inserted my TOT, numerous times with the same symptoms and he refused to look at the possible link to the TOT even after I asked him about it.

I had the TVT sling put in on Nov 6th, 2007. I had a complication with bleeding during the surgery and had to spend an overnight in the hospital. I was a bit taken aback by that because it was supposed to be a “simple procedure”, right? I was told I would be able to go right home after it.I started having complications within a few months after the surgery, starting with a tight pulling feeling in my vaginal area. It felt as my pubic hairs were being tugged on, even when I was wearing no panties. I thought nothing of it, thinking it was all in my head. I started to notice sexual intercourse was painful, but shrugged it off because I have a tilted uterus. It did fix the incontinence, (the reason I had the surgery to begin with), but almost too well. I had trouble emptying my bladder. Again, I shrugged this off thinking it was supposed to be like this. I have always had very painful periods since the surgery, but because I also had a sterilization surgery done at the same time (also a “simple procedure”-Essure), I always thought it was because of this. I have also had lower back pain for years and hip pain as well. It almost feels like sciatica pain and that is what I was diagnosed with. I now, after reading these comments, think it has EVERYTHING to do with the TVT sling. I never had back issues, sexual pain, extremely painful periods, bladder voiding issues, a tugging or pulling sensation in my pubic area or any other issues related to this prior to this procedure. The Dr. I see now says she cannot see any mesh material perforating anywhere, but I know there are complications that cannot be seen. For the past year, I have dealt with blood in my stool and the incontinence is back as well, to the point where I am now wearing incontinence pads and taking prescription medications again. I want answers! I am so frustrated. I do not trust the Dr I went to to have the procedure so I do not see her anymore. She had no business pushing this on me and not letting me clearly know the risks! I am sorry you ladies have had issues as well. Can anyone relate to my story? I am so annoyed because I am only 30 years old and had the surgery when I was 26.

Courtney, after my 4th surgery february 6,2012 removing the last mesh which, on September 2, 2011, I only had other removed and another kind thinking the same thing as you . that after all these years it probably would be safe and it would work. Ghee that was a horrible mistake foe me from the return of the surgery room until a top specialist removed it on Feb. 6, 2012 i felt better by the time i woke up from surgery. I did not even realize how bad i was until it was removed. It was already fibroid in and eroded again just since september. i don’t feel as tired and sickly. i had mesh put in first time to lift bladder, mini arc next so i would not wet on myself evertime i moved which i wasn’t even doing before.. then it eroded into my vigina and the mesh rubbing was verrrrrrrrry painful . so immediately he removed that and put the new in sept. and now it is out again inFeb6, 2012. i am so far so much better still wet when cough, laugh, run, sneeze and better be there when i really need to go , BUT i am not hurting like i have been since may 5, 2007. Ruth is right your grandmother needs to check it out and with others that has or has had it?? GOD BLESS YOU and best wishes what ever you decide!!

Courtney: DO NOT DO IT!!! You will regret it the rest of your life. Your grandma is a wise woman, listen to her, do more research. Google the website Mesh Medical Device News Desk for the most recent information on the procedure. You will see that this procedure has gotten WORSE as it has become more common and promoted as being “safe”. It is not, the complications people write about in the above posts are extremely common, and most often nothing can be done about them.

I’m supposed to get the procedure to put the Mesh Sling under my bladder because it has dropped. My grandma told me just to get it tacked because she knows a woman that had the sling done and has had the same problems the above women have. Any suggestions? What should I do? Has anything chnaged with this procedure over time? Please help me decide. I’ve not been able to sleep since talking to my grandma. I don’t know what to do.

I had bladder prolapse surgery in May 2011 with mesh being inserted in the vaginal walls and a sling for the bladder. Eight week recovery was good. Felt so much better. Then a green vaginal discharge began in June and has not stopped to date. Has anyone else experienced the green discharge? Had another surgery by different doctors in December 2011 to remove the mesh. Still have the green discharge and a hole at the apex of my vagina. Urologist and Gynecologist are baffled by the hole that they say is causing the green discharge. They aren’t sure if it was caused by the mesh from the first surgery. Haven’t had intercourse since June 2011. Thank goodness for a patient husband. He only wants me better and well. So frustrated by this. I just want to be back to myself.

HELP! My 73 year old mother has been having pain throughout most parts of her body (literally from head to toe depending on the day – some days better than others, but most of them are not very good). Over the course of the last 13 years, she has had (3) different surgeries due to pelvic organ prolapse and some urinary incontinence. I am not sure what devices or methods her surgeon used for her first vaginal surgery, but she felt very good and had great recovery however, eventually the prolapse happened again. Surgery #2 used some type of sling but not sure of type or brand. She did pretty well after that for a number of years, but then one day she said it felt like it “broke loose” on one side. Hence, Surgery #3 – this one done in November 2010 using the AMS Elevate Prolift and MiniArc Sling kits. The same urologist did all of her surgeries. Since the 3rd surgery using the AMS mesh kits, she has had nothing but 1 problem after another. In her follow-up visits which took place the first 6 months of surgery, she has had alot of pain, several bouts of yeast infections, and an area that her surgeon claimed was “taking longer to heal”. She had been on various antibiotics to “prevent infection”. In post-op month 7 or 8, she felt very ill, almost like she came down with a terrible flu-like illness (this is not in the normal flu season either.) Her family doc discovered she had extremely low potassium level, had her get 4 bags IV potassium in hospital right away, and continued to monitor her levels via bloodwork over next month. About 3 days after IV potassium, she had SEVERE burning in her esophagus (described it as feeling ulcerated), lost a great deal of her ability to taste anything, had strange nerve type sensations, burning, and itching in her scalp, arms, hands, legs, feet – you name it, she felt it everywhere. She described it as though her body felt like it was “gaulded or burnt inside” and her skin became so sensitive to touch she could hardly stand to wear clothes or let the water from the shower hit her body! She was so weak and frail at this time, I was very concerned that she had some rapid onset of cancer or other ravaging type illness. She would take pain pills and sleep so much that it was hard to believe it was my mother. She was aging very quickly right in front of our eyes. She could hardly walk (this was a woman who seemed just fine 2 months prior other than still healing from her 3rd bladder surgery. Her protein levels were very low as she lost her appetite and couldn’t taste her food or drinks. A coffee lover by heart, she was not even drinking that as it burned her esophagus. Several months of this and she finally seemed to be getting on the mend. She also saw an infectious disease specialist who was a good listener and ran every blood test you could think of but the only thing that turned up was evidence of past cytomegalovirus, an elevated white count, and that her body seemed to have signs of inflammation. She did NOT seem to feel it was a reaction to the mesh until I convinced her to do an internet search. By the end, she suspected this as a possibility and even filed a complaint with the FDA. She referred us on to a female Urologist in Pittsburgh, PA, who just did a cystoscopy exam under anesthesia. She said she did not see any mesh erosion and that the bladder looked fine; however, she wants to have a fellow gynecologist do an in-office exam to see what she thinks. My mother is dreading this horribly as she has been in SOOO much pain since the cystoscopy and is again having strange nerve sensations throughout her body. The one thing that has been a constant is she has vaginal pain, a very strong “AMMONIATED URINE” smell, some discharge with a little brownish blood in it, very painful to have sex or even for a doctor to examine her in this area. She has not been able to sleep and is just miserable. I feel so helpless on what to do because she has such random, strange pains and the doctors aren’t finding any answers or taking her seriously. I certainly understand after reading all these posts what she means how you go to one doctor after another and no one seems to know how to help you or thinks it’s all in your head! Doctors need to be taught extensive lessons in med. school about empathy, honesty and basic skills in HUMANITY! Anyway, I have been researching all about this mesh problem for the last 5 months and came across the website for Atlanta Urogynecology Associates, Drs. Miklos and Moore. It looks like they are the top experts in this field and am wondering if any of you have consulted them or had surgery there or know anyone who has? What was the experience like and were they successful in removing the mesh and alleviating pain? I’m wondering if the mesh is pinching on a main nerve that may be causing her to have all these strange symptoms? Please, anyone who can offer any feedback or has these type of nerve pains or other symptoms like hers, please post and possibly put an e-mail address if you can be of any help to us. WE ARE DESPERATE AND FEEL LIKE SHE IS RUNNING OUT OF TIME! Thanks to all who read my post – sorry it was so long, just had to get it all out there!

I had a cystocele and rectocele repair in May 2003. A year later my uterus and bladder had prolapsed again. In 2008 I had a partial hysterecomy and mesh was placed. I have read all about the problems others have had, the pain and such and it is terrible. I’m happy to report that I have had no problems at all except for the occasional stress incontinence accident, which I can live with. My doctor was a uro-gynecologist out of Indianapolis and she was fabulous. I feel so lucky that I have had not problems compared to what others have gone through.

In December ’08 I had a complete hysterectomy and a bladder sling done at the same time. When I returned home from the hospital I could barely walk and the pain shooting through my back and hip was just awful. After months of constantly icing my back and hip and taking loads of pain killing narcotics, it eventually went away. A few months later, I went to my colon doctor because I was having trouble going to the bathroom. At that point he wanted to send me to a specialist about 90 miles away because he noted when doing my colonoscopy that my rectum did not respond as it should. I was already leery of more surgeries so I just passed it off as a effect from the narcotics I was still taking. Just recently I noticed that my incontinence was back and so was that horrible pain in my back and hip only now that pain also causes numbness in my hands and down my legs. I used to be a fairly active person and at the age of 52 I think I still should be, but I’ve had to stop doing several things I used to do because of pain and “accidents” that I now have. I’m ashamed to say that my son is embarrassed of me because I’ve gone down hill so rapidly. He thinks it’s all in my head and I’m here to tell you that it isn’t. This pain is REAL…These symptoms are REAL.

November 28, 2011: I am thinking of having the mesh surgery due to a prolapsed bladder. My Urologist gave me the impression that his was an easy surgery and that it would resolve my problem. I have Cystocele with having pain when emptying my bladder and feel like my insides are going to fall out all the time. I feel like someone is stabbing me in the vagina area. Any suggestions on what to do besides surgery?

I have to ask again, what surgical approaches were GYN surgeons taking decades ago? My mom had a hysterectomy in 1978. I know she didn’t have mesh. Is it possible to have a hysterectomy but request that your doctor not use mesh? Very leary to go to my doctor, he will no doubt say it’s time for me to have this mesh surgery and I will say – no way. The failure rate is very high I’ve read. Certainly not less than 1%, more like 15-20% of women requiring post op surgeries to remove the recently installed mesh. Julie, I related to your concerns for your sister, and a twin at that (I’m sure your connection is very powerful). I don’t think I’d want to take a 80% chance my mesh wouldn’t erode. No way.

I had a partial hysterectomy (removal of uterus and left ovary) when I was 22, after 8 years of cyst problems they finally decided it was time to remove it and start HRT. We also discussed MINOR stress incontinence, laughing, jumping, sneezing, light leakage. When going in for surgery we had discussed removal of right ovary and a bladder suspension…but when I came to, the Dr told me they did a Urethra sling instead. Went home from the hospital with a cathedar to be removed the next day…I was completely black and blue and could not sit at all without shooting pain…2 days later when I climbed out of bed, I peed all over myself with no control, just from standing up- it bottomed out. Went in to see the Dr, told me not to panic, to just wait it out, trauma and swelling could be culprit…this went on for 6 more weeks, I couldnt stand up without spontaneously peeing on myself- Here I was 30 yrs old LIVING in DEPENDS. (Not to mention the humiliation and despression that takes a toll) My Dr. finally got tired of me complaining and handed me off to a Urologist, we did extensive testing, Biofeeedback ect to find my pelvic floor was completely shot and that the mesh was not working, just some useless foreign object left in my body. So after 6 months of being COMPLETELY incontinent we scheduled the 2nd surgery. I wasnt peeing on myself anymore, but now it was done too tight and I couldnt pee at all…it took 4 days to finally pee on my own (without cathedar) and after recover it still felt too tight and sex was out of the question. After months of therapy to build up the pelvic floor muscles, sex became more enjoyable, but the ability to climax was no longer there, this led to more therapy…stimulant transmistters hooked up to a metal tampon inserted and linked to a computer ( I call it electro-shock therapy for your who-ha) it worked and climax is better, but not at all like it was before 2nd surgery. Now to todays problem…severe cramping off and on for the last few weeks…my entire pelvic area (who-ha) goes numb and its been 2 years and I still cant sit a certain way without that shooting pain I experienced right after the first surgery…Im not sure what to do and Im terrified to have another surgery when it took a year to learn how to pee semi normal again….I hate that I didnt research these procedures more before i just said ok, fix it….cause to this day….if I could go back, I would not have had these surgeries. It was minimal stress incontinence that led to “bottoming out” all over myself for months, to losing the ability to pee properly and climax during sex with my husband, Id take peeing on myself a smidge when I sneezed every time over what Ive had to deal with. SIMPLY DONT DO IT.

JULIE, I spoke with the nurse after I told her of my concerns and she said the Dr. is very confident in the procedure that I am going to have. I’m SURE the Drs are all aware of the “bad mesh” so I’m at ease with it! She told me to ask the Dr. tomorrow before I go to surgery about the % of these kinds of surgeries that DON”T work! I feel much better about having this done tomorrow, now I wish it was just OVER WITH! I will update this message and let everyone know what the progress is!

My Twin Sister has had 4 BIG Children born naturally.She is getting ready to have a rectal , vaginal(something) surgery that u all r talking about on MONDAY. I Woke up last night and felt something bacd about her having this done. ALOT OF TIMES WE CAN FEEL EACH OTHERS PAIN OR THINGS THAT R GOING TO HAPPEN TO THE OTHER ONE. I DON’T KNOW WHY. I GUESS CAUSE WE R TWINS.Anyway they want to put some kind of (MESH) in her. i have heard some about the mesh, but I think I know ALOT MORE NOW FROM U R STORIES. OMG DO I EVER FEEL FOR U LADIES. I WILL SAY A SPECIAL PRAYER ASKING OUR GOOD LORD TO TAKE TTHAT NASTEY PAIN AWAY. BUT, WHAT DO I DO ABOUT MY 56yr. TWIN SISTER. I TOLD HER TO GET 2nd & 3rd opioins. HELP THE SURGERY IS MONDAY!!

56 colon cancer survivor, hip to hip, navel to pelvic area, I’m a road map and a mess (nearly 2 feet of my lower colon removed 12 years ago but cancer free to this day). That said my GYN doc has been watching my uterine prolapse for years now, long before my colon cancer. My cervix is now very low somedays and I am afraid to see my GYN. Why? He’s been saying “someday” I will need a hysterectomy and my colon doc has always said if I had a hysterectomy (tucking everything back up where it should be), my colon probs (chronic, multiple bm’s, for life) would improve (guessing by now all these organs are resting on eachother? All I know I am freaked out. Are there any GYN’s performing hysterectomies w/o mess, w/o slings? Just curious. For now I am putting up with this prolapse and doing my kegels. Trying to lose 10 lbs too, I know that helps with a uterine prolapse. Sorry to have droned on and on, but so many of you want to warn those of us who may need these surgeries in the near future. I do not want this surgery! Thanks for reading and I wish all of you were not in lifelong pain from this horrid mesh.

I’m sorry to hear about all this grief! I understand because. I have witnessed it too.. in 2008. I had a total prolift. the sling & mesh surgury.my infection & pain started only 3 day’s later.which ended me in up in the emergency Rm. since then I have been on antibiotics on & of for 3 yrs had a surgury in 2010 to remove corrouded mesh & a blockage in my vagina now in 2011 the pinching & burning is back. I am on antibiotics for constant infections. I have been to the emergency rm. 3 times in the last 3 yr’s now my primary Dr. has found corrouded mesh in the mouth of my vagina again. an as soon as the antibiotic’s take care of the infection I am skeduled for surgury by my urologist in a few wk’s I am so tired of it. I wish I could go back & do it the old fashioned way.& just get this unnatural thing out of me. I feel nervous all the time. hoping thr doctor can make it right once an for all. pray for me. I will pray for all of you to be healed also . love Sissy!

i had this surgery about 4 or 5 years ago after the sling was put in i could not pee. I went in and out of the operating room every week for five weeks until it was removed. Then a urologist came into my case and dilated my urethra then i could pee. I had to self catheterize for 5 weeks. I was absolutely devastated and in pain.

I had a monarch mesh sling put in about 3 years ago. I have had some leg pains but other than that no problems that I know of. I guess my question is should I be worried about the sling shifting and not being were it is suppose to be? I have read posts of woman finding out it was to close to another organ by going in for another problem. I am thinking about checking into when I had it put in exactly and other information.

I came to know that i experienced endometriosis complications when i was diagnosed and undergone surgery back in 2008. It is severe that caused infertility in me till today despite the IUI and IVF procedures i have tried after the removal of fyborid tissues from my both ovaries. I wish to know any suppllements which are scientifically proven that is effective on endometriosis. I heard about veve gel and progene melIlea. Do both helps? Any side or adverse effects? Or any other recommended supplements? Really appreciate if someone could help me on this. Thousand thanks in advance.