It has been almost 2 months since I had the treatments with Dexamethasone and I am still feeling horrible. I am seeing a specialist soon regarding the effects I am having from this drug. Right now I can’t function normally. I am swelling and am in terrible pain everyday. I can’t work and can hardly get through the day. I firmly believe it is from these treatments. It all started after about 6 treatments but I had 7 total treatments. I put a stop to them before I knew anything about the recall. Like I said I have a recalled bottle. I wish the company would come forward with more information about the adverse effects this drug is causing. I’m VERY SICK from this drug and am looking for HELP. My Doctors are taking this very seriously that’s why I am now going to a specialist. I just want to feel good and normal again. I am quite afraid of what has happened to me.

Part of my physical therapy was dexamethasone mixed with a gel and applied with ultra sound on my ankle. Any danger there?

The specialist I recently saw is an immunologist. He tested me for everything and determined that my symtoms are from the Dexamethasone. I am still swelling in my neck and it is very painful. The doctor has me on antihistamines but they don’t seem to be working very well. I want to know what the company plans on doing about this. I have been suffering since December. I had the ionopharisis treatments. That is when they inject into a pad and electrically administer the Dexamethasone into your body. Mine was injected this way into my shoulder several times until I knew something was very wrong and stopped the treatments. Then I found out I have a recalled bottle. I am looking for others to come forward so we can get together and talk about a possible law suit against this reckless company. I can’t even go for job interviews because I’m in pain and can hardly sleep because of this swelling. I am searching for an experienced lawyer that specializes in these kinds of cases. Is anyone else out there with me on this? I am in fear of the long term effects of this adverse reaction I am still having since December. I have no idea if this is going to go away and how long it will take to subside. Any assistance would be appreicated.

This is definitely scary. Is there a forum or blog for people adversely affected by Dex? We need to talk. I had severe swelling of the tongue (something I never had in my life); still having terrible sleeplessness, pain t/o body, arthritis conditions in hands, feet, neck, etc. I want to know what are some common diagnoses for Dex recall affects and what is the treatment.

Dear Nicki, I can’t find a forum or blog for this but we need to do something about this. I’m Lori and have written a few times now. I to have terrible sleeplessness and pain and swelling in my right hand and horrible swelling and pain in my right shoulder and neck from the treatments I received with dexamethasone. I contacted the company and they won’t even give me and information . I’m going to a specialist again next week and going to give him the names of the people I contacted at the company that makes this drug and ask him to contact them for some help. He has come to the conclusion that my problems are all stemed from the Dexamethasone. I am unable to get a job or function with out terrible pain everyday. I need answers and find out how to conteract this drug. It has now been 5 months since this started and I’m really nervous about how long this is going to to on and what the effects are long term. The company is trying to brush it off but I am not going to let that happen if there is anything I can do about it. Are you with me on this? I am seeing an Immunologist and he already did a full work up on me with the conclusion that my problems are comming from the Dexamethasone. I will continue to update my progress.

It is now August and I still have the same horrible swelling on the back of my neck and shoulder from dexamethasone. My doctors don’t know what to give me to stop it. I never had this serious problem until I had the treatments last November! No one has helped me. I KNOW THAT THIS IS FROM THESE TREATMENTS. I WISH I COULD GO BACK TO BEFORE I HAD THE TREATMENTS AND JUST PUT UP WITH A LITTLE SHOULDER PAIN I WAS HAVING WHEN I DECIDED TO TRY THIS TREATMENT. I AM LIVING WITH SWELLING AND EXTREME PAIN EVERYDAY!! DOES ANYONY HAVE ANY SUGGESTIONS OR WHERE TO GO FOR HELP. I CAN’T WORK OR DO MUCH OF ANYTHING. I TRIED WATER THERAPY AND EVERY OTHER KIND OF THERAPY BUT NOTHING HAS WORKED. LIKE I SAID I WAS NOT LIKE THIS UNTIL AFTER THOSE STUPID TREATMENTS AND THEN I FOUND OUT MY BOTTLE WAS RECALLED ON TOP OF IT ALL. HELP

I am writing again because I am still suffering from the effects of a recalled bottle of dexamethasone that was used for my treatments on my shoulder. I received iontopheresis treatments last December 2010. Please if any of you out there have suffered or are still suffering (as I am) I urge you to call the FDA. You can find their phone number on line. You should fill out a formal complaint against the company and the drug dexamethasone and state your injuries stemming from the treatments you have had especially if you had a tainted bottle as I did. I spoke to the FDA yesterday trying to get more information as to what to do about what has happened to me. I’m still suffering and my doctors now know it is from the Dexamethasone treatments. I need help in finding out what to do to remedy my adverse side effects. I have seen every specialist and tried all kinds of medications and therapy with no relief. I can’t function normally, I am in pain 24/7 and have extreme swelling that goes up and down a very little bit only to flair back up again constantly but never leaves my body. It effects my nerves, my brain and my muscles. I still have insomnia from this drug which is horrible in itself. I URGE ANYONY ELSE THAT HAS BEEN ADVERSELY EFFECTED FROM THIS DRUG LIKE I HAVE TO COME FORWARD AND REPORT IT TO THE FDA IMMEDIATELY. THERE IS STRENGTH IN NUMBERS. I KNOW THERE ARE MORE PEOPLE OUT THERE SUFFERING LIKE ME.

Just updating my condition. I am now going to be referred to Doctors in Boston, MA. I have been injured by the drug Dexamethasone and the doctors in my area do not know how to help me. I am exhausted of all the tests and therapy I have been through. Ever since I had these treatments with Dexamethasone my condition is unchanged. I’m suffering every minute of every day. I have to put lidocaine patches on my neck to get a small amount of very temporary pain relief. The swelling does not go away and the pain is horrible. The sleeplessness is unbareable. I have notified the FDA of my injury from my RECALLED BOTTLE OF DEXAMETHASONE. I had already notified the company and they don’t seem intrested in helping me. Their only concern was getting my bottle back. I did not send my bottle back. An attorney I recently spoke with told me that I was very smart in not returning that bottle to American Regent. I am waiting to find lawsuits against these companies because I will be filing my own soon. First I will take the trip to Boston in hopes of finding a remedy to what has happened to me. I’m sick and I’m scared. I was not like this until I had those treatments. I wonder why this site will not let me put my email address so others can contact me regarding their injuries from this drug. I tried to post it but they won’t allow it. So please write to me on this forum. I can’t believe American Regent first said that there are no injuries from this recalled drug. B— S— I am injured from the treatments with DEXAMETHASONE…………

Dear Holly, Thank you for sharing your experience with DEXAMETHASONE. I am going to see a Neuro/Muscular Specialist on January 26th. I have been suffering for a year now. I had the ionophoresis treatments last November/December 2010 and have been suffering ever since. My pain increased I am still very swollen in my neck and muscles. I have already seen several specialists. The only relief I get is by placing lidocaine patches on my neck and top of my shoulders for a few nights in a row. It’s like giving myself novacaine on a regular basis. It’s CRAZY. I get headaches from the patches but it’s the only thing that gives me SLIGHT TEMPORARY relief from the horrible pain I feel. It does not take down the swelling though. I also have horrible insomnia from this drug. I’m so gald you notified the FDA. More people must come forward and report their injuries from this drug now. I am constantly looking for a law suit against the companies responsible. Even the pain management specialist I was seeing told me to get on the internet and look for information regarding this drug and a law suit against it. He can clearly see that something terrible has happened to me from the treatments I received and no one has been able to help me. Please keep in touch through this site and let me know if you find any more information. I will do the same. I was hoping it would just leave my system but it has been 12 months and I still feel horrible and am swollen. It’s a NIGHTMARE………. My family is so upset and are praying all the time. They know I was not like this before these treatments. I just had a women email me from another site and told me her husband was injuried from treatments with Dexamethasone. Their story is similar. Was your bottle recalled? The bottle that was used in my treatments was. I did not know I had a recalled bottle and stopped my treatments myself because I started felling horrible after 7 treatments and haven’t felt right since. A week later I got the letter telling me my bottle was recalled and to stop any treatments but it was to late. I want to get well first and foremost and I also want the companies involved to PAY…..
Regards, Lori

Dear Holly, I’m so glad that you are keeping in touch. I too just went to another Neuroligist/muscular MD. He asked me if I had spoken to the pharmacutical company about the recalled Dexamethasone. I told him they will not talk to me or give me any help. He understood why. This is rediculious. All these symptoms started after my 7th treatment with DEXAMETHASONE. I clearly have all my medical records in order. I was treated with a recalled bottle. This Doctor is going to take an MRI of my neck. I am praying that someone of importance will finally put together a lawsuit against this company. I have been suffering and I mean suffering for a litle over a year now. All I can do is novacaine myself to get temporary relief. It’s just not right. I do hope other people effected by this drug will PLEASE come forward before it’s to late. I strongly believe we have a case against them. I can’t work and am lucky to have one good day out of a week. No Doctor can find any other reason for my pain and symptoms. It narrows down to the treatments I had with this horrble drug. Please keep in touch……………..

Hello…has anyone had any luck finding an attorney for this? I have been in contact with 3 and all told me they couldn’t help. I received my injections in my ankle and about a month later had swelling and inflammation that eventually turned into large draining wounds that were the most painful thing I have ever experienced. I went for several months of wound care and in March of 2011 I had surgery to remove a granuloma formation from the wounds in my ankle. The drug company keeps replying that I had an infection caused by the dr office where I got my injection, however, all the bloodwork and cultures tell a different story…I never had an infection….I too, had a reaction the the particulate matter…and I had all of the results listed on the recall notice…in order…right down to the granuloma formation! I am so frustrated…this has resulted in lose of motion in my right ankle, I drive cars for a living, so it has affected my ability to do my job, a year after surgery, I still have pain…and I have a pile of medical bills about 2 feet tall…I am told that I have about 15 days left to start a suit before my statue of limitations runs out. Any advise???

I’m still enduring swollen lymp nodes and pain from this medication,has anyone found a lawyer who will help us out.

Does anyone have avascular necrosis of the hipfrom decadron. I am suffering from this and will need a hip replacement. Does anyone know of a lawyer?

I was given this medication Dexamethasone in March 2011 after three treatment I had a Stroke. This medication was suspose to help my Elbow with an injury, but instead I cannot cope with anything.i am in pain, lost my balance, memory loss, vision, cannot enjoy Life like I used to. I am also angry, fatigue, speech problem, moody, don’t enjoy sex,. What can we do?

Had a steroid shot December 2012 and have not felt right since. I recently lost my vision only for a few seconds but it prompted me to get brain and neck MRI it showed 40 % brain shrinkage of the frontal lobe in 2 years has anyone that had the shot experienced this? The doctor are saying that a 45 year old woman with this much shrinkage is extremely uncommon and they have no explanation of why its happening. The only thing I have done in 2 years time is that shot. I did receive a paper in the mail stating my shot may have been contaminated with the fungus. I did not have any symptoms at the time and threw this away does anyone know anyone who has similar experience that I have?

It pains me to see these comments and know that not only have they not ended the use of dexamethasone but instead they have furthered it and catapulted this front and center as a treatment for covid-19!!!