Humira Lawsuits

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Potential side effects of Humira may increase the risk of serious and potentially life-threatening injuries, including fungal infections and cancers, as well as a possible risk of permanent nerve damage that may result in multiple sclerosis, transverse myelitis, optic neuritis, neuropathy or other problems.

STATUS OF HUMIRA LAWSUITS: Product liability lawyers are evaluating whether individuals may be entitled to compensation through a Humira lawsuit for vision problems or nerve damage that may have been caused by Humira.

MANUFACTURER: Abbott Laboratories, Inc.

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>>SUBMIT INFORMATION ABOUT A POTENTIAL HUMIRA INJURY<<

OVERVIEW: Humira (adalimumab) is a tumor necrosis factor blocker, also known as TNF blocker, which is approved for treatment of rheumatoid arthritis, psoriatic arthritis, ankylosing spondylitis, Crohn’s disease, moderate to severe chronic psoriasis and juvenile idiopathic arthritis, which was previously called juvenile rheumatoid arthritis.

HUMIRA NERVE DAMAGE AND VISION PROBLEMS Adverse event reports have suggested that Humira may increase the risk of nerve damage, which could cause:

  • Optic Neuritis or Vision Impairment
  • Multiple Sclerosis
  • Transverse Myelitis
  • Neuropathy

Lawsuits over Humira have alleged that Abbott downplayed the risk of nerve damage from Humira, including a risk of Central Nervous System (CNS) demyelination and harm to the optic nerve. While other drugs in the same class, such as Enbrel and Remicade, contain warnings about the risks, Abbott has not provided adequate warnings to physicians and consumers, which could have prevented serious injury and permanent nerve damage.

During clinical trials, at least three cases of demyelination with Humira use were reported, compared to no reported cases among those taking a placebo. Of those nerve damage problems, two involved optic neuritis on Humira, which could result in vision loss or sight problems.

In addition, an analysis of FDA adverse event reports during the first two years Humira was on the market identified at least 9 reports of neurological problems with Humira, including two cases of optic neuritis. Since that time, a number of similar Humira problems have been reported. It is widely accepted that the number of such problems reported to the FDA likely only represent between 1% and 10% of all actual adverse events.

HUMIRA CANCER SIDE EFFECTS: A study published in the May 17, 2006 issue of the Journal of the American Medical Association (JAMA) indicated that Humira side effects could increase the risk of developing cancer. Warnings have been added to the prescribing information about the possible cancer risk.

In August 2009, the FDA announced a Humira black box cancer warning after investigating the potential association between Humira and Lymphoma and other cancers among children and young adults using TNF blockers.

Approximately half of the cancers seen in children and young adults taking TNF blockers were lymphomas, including bother Hodgkin’s and non-Hodgkin’s lymphoma, which is a cancer of cells in the immune system. Lymphoma is not a recognized complication of JIA (Juvenile Idiopathic Arthritis) or of Crohn’s disease. Other cancers reported included leukemia, melanoma and solid organ cancers.

HUMIRA FUNGAL INFECTIONS: A number of users who were receiving TNF blockers, such as Humira, have experienced fungal infections, such as histoplasmosis, blastomycosis and cocciioidmycosis. In several of these cases the infection resulted in death.

In September 2008, the FDA issued an alert to healthcare providers to provide new information about the risk of Humira fungal infections. At that time the agency also indicated that new information will be added to the Humira black box warning to ensure that doctors and consumers are aware of the risk, especially for those who live in or visit areas where fungus is prevalent.

Unfortunately, many cases of fungal infections from Humira go undiagnosed by doctors, since the symptoms are similar to the flu. Symptoms could include cough, fever, fatigue, loss of weight, sweating and shortness of breath.

Tags: Arthritis, Humira, TNF Blocker
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391 Comments

Kimi
My doctor put me on Humira for my Crohn’s disease in November. By January I was experiencing painful swelling in my wrists. I went back to my GI who insisted on another colonoscopy to rule out a Crohn’s flare.Everything looked good so he referred me to a reumatologist. He told me to keep taking the Humira after I asked if the pain and swelling could be because of the Humira. It took 4 months to get an appointment with the specialist. Meanwhile my symptoms were getting worse and included swelling of the hands, feet, arms, legs, and knees. And pain in many other places like my wrists, shoulders, upper and lower back, and fingers. I also have absolutely no energy and I throw up at least 3-4 times a week. The specialist gave me Celebrex for my “aches and pains”which made my throat close up. He told me to keep taking the Humira because the initial blood tests didn’t indicate lupus. I told him that I had been looking on the Internet and found something called drug induced Lupus. He said that was an interesting theory and how would I feel about stopping Humira. I finally had to go to the emergency room because my forearms were so swollen they looked like Popeye. The ER Doctor gave me a couple of Percocets which barely even take the edge off of the excruciating pain that I am in most of the time. My next visit to the Doctor prompted one more blood test. It was positive for drug induced lupus and still a maybe for lupus. I stopped taking the Humira of course, but that was two months ago and my symptoms have been getting worse, not better. I’m turning to acupuncture and alternative medicine now and will never take a biological medicine again. In the mean time I feel like a junkie trying to get pain medicine. It’s like the doctors don’t believe me or just don’t care.
Peggy
My 34 year old son was taking embrel shots and then humari total of about 5 to 6 months he seemed very fatigued and slept a lot. It was 9 pm on may 7 2012 that I went to give him some of his medication and I found him dead on the floor. The coroner said he had a heart attack and himself was surprised because of his age. I blame Abbott the makers for his death and if I find a lawyer I will sue and if I don’t find one I will file a wrongful death suit on my own on behalf of my son. I know I won’t win but these drugs need to be off the market so are loved ones don’t have to pay. Peggy
Matt
I have a painful and debilitating disease named Hidradenitis Suppurativa and was having a cyst removed about every two weeks for about 4 months. This was a painful way to live and there is no know cure for this. I was seeing a dermatoligist since I was about 15 and diagnosed in 2009 with this. I have had to take just about every know antibiotic since. I was very desperate to have this contition releaved, the dermatoligist told me that they could try Humira and that they have heard of cases that relief was found, not a cure, but relief. I was at a bad spot with this so I agreed to be a guinea pig. I took the injections for a month and had a reaction, not sure it was the Humira, I was taking other medications also. I stopped using it for a month, the symptoms went away and started using Humira again. I was seeing the dermatoligist every month to moniter my vitals, used it for 6 months. During the time I used it, I felt sick most of the time, started getting a spot on my left ankel that the skin looked to be infected or something, the doctor gave me cream of some sort for it. After 6 months of using it with the dermatoligist wanting me to hang in there, I stopped the injections, there was no relief and nothing was getting better with my HS. I lost faith in the dermatoligist. I about a month or so I started getting the lumps on my ankels that were itchy, and if I scratched them the skin would just fall off, I developed a rash in my groin that will not go away. I had to visit a total of 4 different doctors to help me with this new condition and they prescribed antibiotis, 6 or so different types of creams, and nothing is helping me. I now have what look like cherrys from sliding into home plate in a baseball game all over my legs and now its spreading up to my stomach. They have now become painful as hell. I also have finger nails on my left hand that have deteriorated and are not growing back right. I have had a numbing feeling in my left are and hand since I was taking the Humira, I need help for this and no doctors have been able to help as of yet, I anybody else is experiencing these symptoms, please let me know at mca1967@gmail.com. I am ready to call an atorney to help me get the the bottom of this, the doctors seem to act as if they don’t want to help, HELP !!!!!
A Wright
I have been on Humira for RA for about 3 1/2 years…I have been having problems with walking gait and balance. I now also am being treated for toenail fungus.
Lisa
I have been on Humira for 3yrs now. I have severe Psoriasis I started with Raptiva then when that drug was stopped they placed me on Humira and the drug worked 100% There no no signs of psoriasis at all but when I get sick or have surgery I have to stop the use. When I stopped the use of Humira, I noticed I was getting joint pain. The Dr did blood work and found out I had Arthritis forming. **This past Wed my Dr was upset with me because I couldn’t keep my appointments. I lost my job, I had no money to pay for a phone card, I had no gas to travel to a different city to see him. His office was booked in my city (he visits wed only). I did have a ride down there but called in and re-scheduled because a woman with a newborn baby had the front drivers tire actually snap off the car so we assisted her. Now I am filled with hives.
Jenali
I am a Crohn’s disease patient and the only drug that has ever worked for me is prednisone. I was diagnosed at 12 and am now 33. I have been on EVERYTHING with no success. Remicade helped but is outrageously expensive for me. My doc recently put me on Humira. Eight days after my initial dose, my scalp, neck, chest, back and behind my ears broke out in a severe rash of blisters. I was told to stop the Humira immediately and did but now a month after my first dose I am still getting blisters. I started having mild right sided chest pain today. This is a dangerous drug in my opinion and should not be taken lightly. I am supposed to start back on Remicade but I am very reluctant at this point.
Kate
I have read ALL of the above. I am concerned. My hubby was diagnosed with AS in 2009 after years of mysterious pain. He tried Humira, but it didn’t last long for him. He now takes Remicade (the highest dosage the home nurse (who comes and gives it to him every 6-8 weeks) has ever seen. He told me about a month ago that he felt a couple of lumps in his neck but they didn’t hurt. After pestering him for a month, he told me they went away on their own and he didn’t think they were “anything” because they didn’t hurt. To those out there who know, do the lumps that your loved ones felt hurt or go away? Thanks! God be with all of you.
PEGGY
I NEED SOME GOOD ADVISE. I HAVE BEEN ON HUMIRA SINCE APRIL 1 2012 FOR PSORAISIS THAT I HAVE HAD SINCE I WAS 12YEARS OLD. I AM 35YEAR OLD FEMALE WITH NO MEDICAL ISSUES EVER IN THE PAST. I TOOK MY FIRST BLOOD WORK YESTERDAY AND STATED THT MY MY WHIT BLOOD COUNTS DID GO DOWN BY 7POINTS FROM LAST TESTING-SO AS WELL ALL KNWO HUMIRA BRINGS DOWN UR IMMUNE SYSTEM. IN MY PHYSICAL MY DR ALWAYS PREFORMS AN EKG TO MAKE SURE HEART IS GOOD-ALL MY EKG HAS ALWAYS CAME BACK NORMAL BUT YESTERDAY HE STATED ABNORMAL BUT NOT TO WORRY BC I AM OK WITH BLOOD PRESSURE AND ETC, HE THAN SAW HOW UPSET I WAS AND ORDER AN ECOGRAM TO BE DONE???-WHY WOULD U ORDER AN ECOGRAM IF I AM OK???? I AM MORE NERVOUS THAN USUAL BC I AM A WORRY FREAK. I AM TORN BETWEEN WANTING TO CONTINUE HUMIRA VS NOT. MY SKIN IS MUCH BETTER BUT INTERNALLY SOMETHING IS WRONG. I AM PRAYING TO GOD THAT THIS IS NOT GOING TO HURT ME LIKE THE NEWS I HAVE HEARD FROM ALL OF YOU. I AM GOING FOR SECOND OPINION SOON. MY CHEST DOES FEEL DIFFERENT.. I AM NOT SURE WHY WHY I EVER TOOK THIS MED KNOWIGN THAT I NEVER TOOK MED FOR A HEADACHE, THERE ARE MANY GOOD NEWS ON IT BUT NOT SURE IF THE GOOD OUTWAY THE BAD
Linda D
I was diagnosed with crohns in 1995 after years of mystery problems. I started humira in January 2010. Within a month i had a severe sinus infection, I ended up having surgery the following month and the doctor said it was full of a fungal infection. Months of sinus problems followed, then I got hives, first in the folds of my arms, then my neck then under breasts and down legs, but they were not itchy, just red and hot and inflamed.I came off Humira for a break, and had another opinion, was told lucky to get such a great drug, and as crohns symptoms come back so quickly went back on humira. Took antihistamine for hives. Then followed months of ok but not ok, I had tingly arms, weakness in legs.Terrible Hayfever. Then pain started in toes, the toes would go bright red and hurt like burning pain, then in my big toe, then my ankles and knees started hurting like they were on fire, I couldnt sleep thru the pain, nothing took the edge off it, then pins and needles from knees to toes, then freezing icy cold pain. Went to GI, she couldnt understand it (dont doctors learn about side effects?), then GP, then Rheumy, who said didnt know what it was, ANA titre had been 1:320 for some time, but was told this was ok. Blood tests for all sorts of things, no diabetes, nothing untoward. Now waiting for MRI, as cost is so high, and then to see neurologist to find out if this is Transverse Myelitis? I have pain in my lower back, I am not paralysed, the pain is mainly from my knees to toes.Soles of feet hurt. I have no idea what is going on, and I just want this to end. I just dont know if I could say to anyone that the few years with Humira were worth it, I had many side effects and now this. The icy pain in my legs drives me insane during the day, then the sensitivity of my skin and pain in my legs drives me nuts at night, I am taking Cortisone and low dose endep 20mg, for pain breaking. I read all of above, and I dont understand how the drug maker has not been told to stop making and selling.
Daiquiri
I am writing on behalf of my son Luke, who is 15 yrs old. He has been diagnosed with Ulcerative Colitis and has been symptom free for a number of years after loosing the majority of his colon to this disease. He has recently been placed on Humira for the past 7 months due to Crohns- like symptoms. The odd thing is, is that he now cannot go under general anesthesia due to problems w/ his heart & blood pressure. His heart looks fine but is now undergoing a number of tests to find out what the problem is. He has not had any pre-existing heart problems. The only change has been the Humira. Word of caution…do not take this drug unless you truly have to. I am fearful of the negative side effects this drug can cause.
jody
My husband had ra. He was on remicade until he had a severe skin reaction. He was then put on humaria. He developed nerve damage in his arms and legs eventually leading to using a cane, then a wheel chair. A fungal infection that eventually lead to the removal of his toe nails. Several bouts of broncitus and phemonia. His hair fell out, his feet and legs swelled. He had rynards syndrom. He went from no cancer in april to in oct (6months) terminal lung cancer that had spread to his liver. Dispite chemo and radiation, he died in 6 months.
chuck
The name of this site is about law suits…
Steve
I’ve been on Humira for a little over 2 years now for chronic psoriasis with associated arthritis. I’m very pleased to report it’s changed my life, I’m free of psoriasis for the first time in 20 years (arrived with a vengeance when I was 21, I’m 41 now) and pain and swelling free in all 9 joints affected. I had days I couldn’t push past the pain to even stand up, I really thought the rest of my life was going to be that way. At risk of sounding fatalistic, I feel the quality of life and the living I’ve crammed into the past couple of years thanks to Humira outweighs any and all risks. I was already the living dead, And for however long it remains effective, I’ll always be very thankful for the life it’s given me.
Michael
My wife has been on Humira for almost a year now. She is 24 and beautiful. This medicine is destroying her. She has the energy of a 65 year old and now the entire left side of her head is balding and looks like some kind of nasty chemical burn. We’ve only been married a months time and I hate to think we don’t have much longer if she continues down this path.
Dawn
All of you who have been getting side effects from the Humira and want to get off the drug, please find a Homeopathic Doctor who can help you. A Homeopathic doctor has as much education as your regular MD, they have just gone into a field that looks to treat your illnesses with more natural products that don’t harm you like the big money making drugs that Big Pharma puts out to kill you. Many thousands of people have been using Colloidal Silver for their ailments with great success. It is anti fungal, antibacterial, antitumoral, antiviral. There is so much more out there to really help you but you have to do your homework. God bless you all.
Kawsar
I have Ra and Chrone. taking humira now, previously embrel, seems nothing works. I do not know what to do?
Janet
I have been on humira for almost a year for Crohn’s and started developing fatigue, weakness and small hand trimmres. The tremmer got much worse. after several test, MRI’s and almot two weeks in the hospital, all the doctors are pointing to humira. My vision has gotten much wose, seeing double and blurred. I have been off Humira for over 30 days yet the affects are still there. According to Humira they have no idea how long it will take for the affects will last. Has anyone else had these types off side affects. I am not able to walk on my own, using a walker due to the dizzyness and blurred vision. I am not able to go to the bathroom on my own. Steroids have been increased to 60mg to kick start my brain to talk to my body like it used to. This is so frustrating to not have control of my body.
JAMES
Back in Feb.2011 I was admitted to East Alabama Medical center with what I thought was Plurasee.. It turned out to be Pneumonia in both lungs with the Deadly Pneumonia as well.. This resulted in being in ICU for a total of 20 days, in which 15 of those days was actually on a respirator/vent.. during that time my kidneys began to fail, with constant loss of blood,, with swelling along with all limbs.. After 20 days of ICU I had a Trach put in and moved to a room.. There I stayed in an additional 47 days with them fighting a bacteria that had set up in my left lung,, it was fought with every anti-biotic old and new,, but would not go away,, which resulted in a thoracotomy with a partial left lung removal(lower left lobe).. I am now disabled.. Although Humirra did the things it was suppose to due with both psoratic and R.A. along with my Psoriasis,, I had no idea the grenade it was developing in my body’s immune system…
Kristine
Mu husband took Humira from February 2009 – June 2009- 7 shots in total for psoriatic arthritis. On July 6, 2009 he went to the hospitali for what seemed to be a heart issue. After several tests done in the emergency room, he was hospitalized because a chest xray had revielved a mass on each lung that was not present in a chest xray done in the beginning of May. After a bronchoscopy coming back negative, he was told he needed a lung biopsy. He came out of the hospital in July 21, 2009 oxygen depended- 2 short weeks after the first initial complaint. He had his lung biopsy on July 28, 2009. He received his results on July 31, 2009. His diagnosis was Interstitial Lung Disease- Idiopathic (no known cause) Pulmonary Fibrosis- Moderate. Doctors knew he was on Humira. He was told it was irreversable and that a lung transplant was not in the immediate future, if ever. It would be years, if not decades before he would need something like that. On August 2, 2009, he was put into a rug induced comma and placed on a respirator because he was unable to oxygenate from the canular or mask at 100%. August 7, 2009, I was told if he wasn’t transfered immediately to a lung transplant facility- he was going to die that day. He was air transfered to the University of MD Hospital and placed on ECMO (heart- lung bypass). he was never put on the list for a lung transplant even though he needed one to survive. He was never strong enough to be put on an operating table. The entire time he was in a drug induced comma. August 31, 2009 he woke up from under the aesthesia he was on while undergoing another bronchoscopy to check for infection. The hospital was having a hard time oxygenating him on a respirator. He was still not placed on the lung transplant list, even though at the time he was the sickest man on the eastern seaboard. On September 7, 2009- My husband died! An autopsy was done and the cause of death came back acute interstitial pneumonia- the most severe form of pulmonary fibrosis- Still considered idiopathic.
Cece
My sister was on Humira approximately 4 years. Diagnosed with fungus in one lung and cancer in the other lung. She lived for 8 months before she died. Did not smoke. I blame HUMIRA for her cancer. Please be cautious with this toxic drug! Please post this comment!
Kelly
I tell you all these stories scare me. I dont know what to do. I am on humira and have been for 4 years. I was diagnosed with chron’s in 99. I am worried because in the last year I have found out I now have deteriating disks. Spinal stenosis, palmers pustular psoriasis, trimmers, studdering speach. I have had to start today on heart meds because I have been having chest pain. Extremly high blood pressure, fatigue, I have been getting infections in my knees. I have numbness and tingles in my hands and feet. I wake up drinched in sweat. All my mussles hurt. I have trouble walking it is so bad and in january I had to have a hystorectomy. I am only 33. This couldnt be how I am supose to spend the rest of my life. I need help and like everyone else I am sick of feeling like a ginny pig
Angie
This is my 3rd time posting on this page. The first two times I wasn’t sure if I wanted to try this drug or not. Now I’ve been on Humira since Nov. 2011, for psoriatic arthritis. Since then I’ve had a constant stuffy nose and deep quad muscle pain. Everytime the muscle pain lets up, it’s time for another shot and it seems to ache and get a shaky feeling all over again. I’ve also experienced a strange sensation of cold, wetness, and tingling in the bottoms of my feet. My hands hurt for a short time too, but the feet are the worst part. Last month when the Abbott nurse called I told her about these things. She proceeded with a list of questions from the FDA about side effects. It was then that I realized how strange it is that the drug company has to call you once a month to see how things are going. More like they are wondering if we’re still alive!! My doctor doesn’t believe that any of this is from Humira, but what else is it from? I wish I knew what to do. I want to be done with it, but I’m feeling pressure from the doctor. My skin is perfectly clear from psoriasis and I’ve been feeling more energy. I’m just scared that these things could turn into something much worse. I HATE meds!! God Bless you all.
Liz
In 2007 I was suffering from recurring intestinal infections, diarrhea, and went on to develop a perirectal fistula. I had a colonscopy on Nov. 1, 2007 and was diagnosed with Crohn’s Disease. My GI doctor prescribed Asacol, and along with watching my diet, the intestinal problems improved to where they were bearable. Unfortunately the pain and drainage from the fistula became severe. I took flagyl and loratabs for about 8 months and when this no longer worked I reluctantly agreed to begin Humira in Feb. 09. The Humira did a excellent job clearing up the fistula and seemed to put the Crohn’s in total remission. Until October 2011 the only side effects were fatigue, nausea, and eczema, which seemed worth it, considering. Suddenly it seemed I developed a severe allergic reaction to something, it affected my whole body. The worse part was I couldn’t breathe. I felt like I was drowning, spitting up mucus constantly, muscle soreness, pain in my knee joints, blurry vision, and memory loss. I waited for things to possibly clear up on their own since I hate going to doctors. I went to an urgent care clinic on Dec. 31, 2011 to receive treatment for my breathing difficulties, and received steroids and antibiotics..Since I took no other meds except benadryl and mucinex to help me breathe I suspected the Humira and took my last shot of it in early Jan. 2012. I am feeling better every day now, although I still have some shortness of breath, mild pain in knee joints, forgetfulness, and blurry vision. I will go to a doctor again when I HAVE to.
Slynns
I am 28 yrs old andwas diagnosed with crohns disease when I was 17. I was initially out on sterroids and Pentasa which worked for a few months but I gradually got sick again. Then they put me on remicade which did wonders! I gained some weight back and was able to eat anything I desired until I started having reactions to the treatment. Afterwards, the drs tried everything from steroids to 6mp to imuran and many many more untold they ran out of options and had to remove 3 ft of my sm and LG intestines. They thought that taking out the affect Ted parts would resolve the problem but the disease just attacked more parts. So they started down the list of meds again. Nothing seemed to help so they recently started me on the Humira. At first I was so scared BC I have developed severe reactions to several drugs. I took 2 shots on day 1 and 2 more on day 2. I thought everything was gonna be OK and had high hopes it would actually help until day 4 when I had an unexpected severe grand mal seizure! On top of that I lost my short term memory for 2 days! They weren’t sure if it was from the seizure or from the fall during the seizure which caused a severe concussion. Needless to say, I’m never allowed to take Humira again. Now I’m back to square one with this painful, miserable le disease and no meds to take for it. The only thing left is another surgery which I refuse BC now the drs said my entire abdomen is full of scar tissue which is causing even more pain. So if anyone is thinking about starting Humira, please be very careful for the 1st few weeks. The seizures are uncommon but def possible. If I were doing anything nut washing dishes that day, there’s a great possibility I may not be here 2day. Good luck to all of you! One more thing! Does anyone know how long it will take the Humira to get completely out of your system?
Kim
I should also add that my daughter also developed strange skin lesions 3 different time while on Humira. A mosquito bite turned into cellulitis and all 3 lesions caused her limb to become red and swollen. She needed to be on antibiotics each time and dermatology could not identify what caused the lesions. They were cultured and all negative for organisms, and biopsy came back negative? I feel these lesions were directly related to the Humira.Also, my daughter has had pretty aggressive CD and required a bowel resection at age 13 for an obstruction secondary to a stricture. Kim
Kim
My 16 year old daughter has had CD since age 10 and was treated with 6MP for most of that time; until it was no longer effective for her. In April 2011, her GE started her on Humira. In September 2011, she was diagnosed with thyroid cancer. Of course the doctors wanted her off the humira while they were treating the cancer (including her GE). Now, her gastro is insisting that she has to go back on the humira because recent tests show she has alot of inflammation in the gut.I am scared to death to put my child back on this med…doctors can’t confirm if the med caused the cancer, they just don’t know. (I have had 2nd, 3rd and 4th opinions). GE tells us the CD flare could be worse than taking the risk of developing another carcinoma!???
Lyn
Ignore Dusty from September it was probably a big pharma scum making a last ditch effort to make a horrible drug like Humira look good and people look dumb. Typical. Anyways…. I was diagnosed with chron’s 5 months ago, the specialist put me on Entocort Which was doing pretty good, I for once, in many years started to feel better. But all of a sudden the specialist wanted me to try Humira. I said okay not knowing any better. All I can say is “what a mistake”! First, The injections for me are extremely painful, Second it’s been a month and a half and I am not getting any better I actually feel worse. Side note: when I was taking the Entocort I felt really good after one week. Third I now have two itchy bumps where I gave my self my last injection. It won’t go away. Third I have a constant stuffy nose…..shall I go on! Humira is junk! I have read all the post! 9 out of 10 people complain! That should tell people somthing! I have an appointment with my doctor next week and I am going to tell them what I have told you here and if they don’t take me off Humira and put me back on Entocort I am leaving and finding a Specialist that will listen and that cares about there patients more than themselves. I suggest anyone having similar troubles with Humira and with a Doctor that doesn’t listen to leave! Find a better doctor, they are out there!
Angela
I was put on Humira for a first-time flare up of what was diagnosed as Crohn’s disease in late spring of 2007. By around June, I had begun to loose my vision and was diagnosed with uveitis and iritis. Steroid injections in each eye restored my vision. Then, about a year later, I was diagnosed with ovarian cancer. I had surgery and chemo to combat the cancer in 2008 and had to undergo more surgery and chemo to combat a recurrence in 2011. I stopped taking Humira in 2008 immediately upon hearing of my cancer diagnosis and have not suffered the return of any Crohn’s symptoms since. My current gastroenterologist (who is not the GI doctor responsible for my having taken Humira) immediately reported my having developed ovarian cancer while on Humira to the FDA when the news came out. I have absolutely no family history of gynecological cancers and suspect this drug.
Liz
After reading all of these posts. My 20 yr old son will stop his Humira for Crohns. After his first 4 shots one week later he was vomitting for 3 days. felt hot with chills but tempeture was always under normal like 97. They said it was flu. After next 2 shots got sick feeling nauseated 7 hrs later and threw up again. Missed school. Doc says still take shots ? Took one shot with no symptoms and feels fine however were not going to wait for something worse to happen. Medical Pot it is, and Alhoe juice, and coconut macaroons helps prevent diareah. I wish you all good luck as well !
Fred
I was diagnosed with RA in 2003 and after generally unsuccessful treatments with Methotrexate, Remacaid, and Enbrel I started on Humira in 2005 which has been very effective in slowing the progression of my RA symptoms. Over the past six months or so I’ve noticed a decrease in Humira’s effectiveness and lately it doesn’t seem to be helping very much at all. After reading many of the comments posted here I”m now very concerned that continuing with Humira could prove to be harmful to my health in the future. My question is this: has there been research on the consequences of continuing to inject Humira after its effectiveness has decreased significantly?
Danielle
I have been on Humira for 6 months for Chrones Disease, in December I got pancreatitis and was in the hospital for 4 days with a fever and rash as well. The doctors said the rash was just viral and that it would go away after some time. I am 25 and I don’t drink, smoke and I eat very healthy in fear of flare ups. In January I ended up back in the hospital with the rash being severe and pancreatits. I ended up having to have my gall bladder removed. Whether or not this was the answer i am unsure. Since leaving the hospital the rash has gotten worse. i am covered from scalp to toes. I saw a dermatologist who said it was psoriasis, and then went back and another said that it was not psoriasis and that it was extreme dry skin. The rash is raised and looks like pimples, it is very itchy and sometimes can burn. I have doubts about the dry skin diagnosis. i have tried all of the creams I have been given and nothing has worked. Now I am having ligament pain and my lymphnodes are swollen and sore. I am fearing the worst and am praying for the best. I truly believe that the humira has caused this. My GI doc told me to stay on it because they are trusting what the dermatologist has said. Knowing my body, I have taken myself off of it and I believe that something very serious is going on now from it. Very scared 🙁
Megan
HUMIRA, killed my father. September 16th 2011. He was on his way to come see me & my family for my daughters 2nd birthday, he said his chest hurt very badly, so they went to ER in terre haute & was in the iCU for 9 days & died… Still doing a toxicology report on what exactly it was, they know some infection because the PEricardium was full of green fluid! My dad was still an acting Judge helping children with dead beat dads & juveniles, whom where on drugs get their act together.. He was only 68. He & my mother loved each other like they where still teenagers & loved to travel all over the world. I miss his advice, he always knew exactly what to say!
Shar
My daughter has RA. She took Humira for 4 years and the drug initially worked so well she thought the diagnosis was incorrect! She then had surgery on her leg and was given Cipro for an infection that resulted. She broke out in seeping “hives” all over her body. She was given numerous ointments, steroids several times, and sent to a variety of doctors (allergist, dermatologist, RA doc, and others) none of whom could find the cause or cure for these rashes. She experienced many other problems that are mentioned on this site including the extreme itching, extreme temperature changes, loss of sleep, depression, lack of energy, and finally nearly lost all of her hair. Her RA doc took blood tests to determine if she had Lupus and on September 27, 2011 she was told that it was not Lupus but a reaction to Humira! She has been off of Humira for 4 months and is still experiencing the rashes. She became so bad that she was on medical leave for 3 months. This drug has ruined her life! If there is a class action suit out there somewhere, please let me know!
William
I have just had this drug prescribed to me by a neurosurgeon… some claim he is the foremost neurosurgeon in the world for my type of genital pain. I had surgery from this doctor in October 2010 to try to help the pain which he said, after reading my MRIs was due to pudendal nerve interference from piriformis syndrome. Well, after resecting the piriformis, the pain did not improve much (he claims that since I said the pain was reduced from a high amount to a lower amount, that I was “better”, even though to me that kind of subjective reading is crap). For one thing, for a period after the surgery and immediate recovery, I was walking a lot, not sitting as much (which aggravates the condition) and had no job related stress, since I was out of work. Once I started working and sitting a lot, things got worse again. In my opinion basically the surgery did nothing. No other surgeon will touch me. So rather than admit that he has a failed surgery, he now wants to say I have other factors such as nerve pain in other areas, that he “thinks may” be getting affected by TNFs. So… he is prescribing 8 weeks on Enbrel (or Humira – whichever my HMO will approve) as a test to see if I get better under drug therapy. And now I read this site, and I am out of my mind with worry. Given what *might* be the risks, even with a short term regimen from this/these drug(s), it sounds like he is taking a huge roll of the dice with my medical future. And I signed something saying I would submit to arbitration, not lawsuits… and he is in California and I am in New York. I am thinking I better get a second opinion from someone local saying I NEED THESE DRUGS before I go forward with any course, no matter how short. Anyone concur? OMG I am so nervous now.
Lisa
Hi, I just want to know if anyone can help us out. We live in Ireland and my husband has Ankylosing Spondylitis. He was on Humira for 5 years and thought it was a wonder drug until last year. He started experiencing numbness and tingling in different parts of his body and his vision started to go all blurry. He was investigated by a Neurologist who says he has a condition very like MS which has been brought on by the Humira. His spin has several lesions, his right arm is damaged peramenently and his right eye has constant blurred vision due to the damage to the optic nerves. Has anyone out there ever been told they have permanent damage for which there is no treatment. If anyone has any comments, advise or help we would greatly appreciate it. My husband is suffering from depression and fatigue associated with this new disease. It is hard enough being told you have one disease but now to have two and to try to manage both is very hard.
Christy P
Dermatologist suggested I take Humira for Psoriasis last year, didn’t do it. I flared up again and he suggested it again this year. I am going to my family physician to discuss it this week. I’m really scared. I’m only 48 – but I have had Psoriasis for 43 years and I am so sick of it!
Christine
I have suffered with severe psoriasis for years. IThanks for everyone sharing their stor have tried health food stores for creams, been to many dermatologists. The Humira I got from the pharmacy is sitting in my frig for the last two days. I have nail fungus and wondering if I should start Humira. I’ve decided to not take it. Yes psoriasis is embarrassing and annoying, but I don’t want lung cancer or other horrible problems.
Tainky
First off.. The info has just been put in with the meds and second, i don’t think the docs know or are misinformed about the drug. If a person says, this is whats going on, then its the responsibility of the dr. To step up.. They are not sure how long it is the system or if the immune system will ever get back to normal. I took it for 2 years for P.A. And psoriasis and ended up in a mess.. I wish everyone well 🙂
Nicholas
I have suffered from severe psoriasis and athritis since 1997 and in 2007 was also diagnosed with Ankylosing Spondylitis. I am now 47 and started Humira in December 2010. It has been miraculous so far….psoriasis all gone and AS much better. I do exercise and keep my salt intake down which is critical for arthritis. Keeping your waistline thin is also critical. You must have a holistic approach even if you are taking hardcore drugs like this.
Deborah
I have been on Humira for over 2yrs for RA. The first year was wonderful felt as though I was disease free but the drug became less effective after a year so I began weekly injections. This past March I began experiencing hive like symptoms which began as small circular patches that would grow into large patches which would peel off and then return. Have been to two Derm Doc’s had biopsy came back as chronic eczema. I have been prescribed so many potions without success. I have stopped injecting and have been off humira for 10 weeks now. No improvement in skin. Does anyone know how long it takes to have this med leave your body?
CINDY T
I have suffered from Crohns Disease since I was 15, I was finally diagnosed in 1999 & psoriasis appeared shortly afterward. I have taken Amevieve for th psoriasis and Enbryl. Then I had a flare of my Crohns so the Derm. Dr. and GI Dr both decided I should start Humira. Crohns has been very well under control. But I get constant sinus infections, (but w/Crohns it affects mouth to anus as the Dr’s say). My ears constantly bother me. I recently had a bout of pancreatits & the GI Dr says she will remove my Gall bladder if it happens again. Just yesterday i was diagnosed w/staph infection, horrible pimply sores all over my legs. I ache so bad i can barely get out of bed in the morning. Worst part? My son was diagnosed in 2009 Remicade didn’t work for him & now he’s on Humira. I am SOOOO scared. He’s only 14. What did I do?????????
Melissa
I also have taken humara for about five months. I began having symptoms of numbness in my right leg and then spread to left leg, lower back and some times radiates up my back. Incredible head aches and shooting pain. Went to my dermatologist, primary care and neurologist. In that time was in the ER twice. I have had complete blood work up including limes disease and vitamin B 12. Everything came back normal. I had three CT scans. One of head, neck and back all normal. I also had a spinal tap. Again nothing. So frustrating! After reading this web site I felt I was not losing my mind any more. The symptoms have not subsided or gotten any better. As far as some comments people are making that we are responsible for taking the medication is some what true, but doctors jobs are to take the time to explain the medication and how it works as well as the side effects. On the Humara web site all is says is possible neurological side effects. That’s it! No specifics. Health care has certainly gone down hill as far as quality care, time spent with their patients and actually caring about finding a solution to the problem. It gets pushed off onto other doctors. Not to mention the money paid into the insurance, co pays, ER visits and medication. My next step is an EEG and another visit to the neurologist. I wish ever one the best in the quest in finding answers to the side effects.
VES
I was put on Humira about 4 months ago for crohns—-I developed increased shortness of breath, chest tightness, chest pain, tingling in arms and legs, increased fatigue, and even some depression—I took myself off this drug 3 weeks ago and the symptoms have decreased somewhat—I am wondering how long these symptoms will stay? when does this stuff get out of your system? How many have had identical symptoms?
Donna
I took Humira for Psoriasis about 3 years ago and began having several muscle and joint pain as well as swollen joins in my wrists hands and feet and many other problems like migrains and extremely low platelet counts. The dermatologist took me off the medication and I began seeing a rheumatologist. My bloodwork never showed signs of any arthritis only that I was ANA positive which explained the psoriasis. I was diagnosed about 2 years ago with medicine induced Lupus from the Humira. The “Lupus” was treated with Methotrexate and steroids for the severe inflammation and after taking these meds for a couple of years I am symptom free and do not have to take medication at all. I pray I stay in remission and the Lupus does not come back. Hopefully, for someone who may be experiencing the same symptoms this can be some comfort to know that if it is medicine induced there is a possibility of it going away. God Bless!
Traci
I did also want to say to those that come on here and feel the need to blame everyone for their own pain and suffering for not making an informed decision, I’m sure most of us did make an informed decision but the pros were far more beneficial than the cons. Remember there are naturally alot more success stories than negative ones otherwise this drug would not be available. The frightening thing that needs to be addressed, is how many of the above stories have been told by their Doctors that the Humira is not to blame?? So best of wishes to those that have been successful, I do hope that you will never need to post a negative affect of this drug and that it continues to be your answer. A suggestion for those suffering with phoriasis – please look into Hazelwood. I am not a hocus pocus person, but I heard recently about this from a couple of people now that have had amazing results. Of course natural remedies have been around alot longer than pharmaceutical remedies. Best of luck!
Traci
I was diagnosed with Ulcerative Colitis in May 2010 at age 39. I tried many drugs, inlcuding Remicade which I had an allergic reaction to, prior to be recommended to take Humira. I did look into the side affects and read as much as I could find on Humira before deciding to try it in Mar 2011. It was great, initially. After 7 months I experienced stiffness in my neck, then shoulders, knees, wrists, fingers – all within a one week period my entire body ached where it had never ached before. I didn’t link this to Humira at first, just went to the GP and he sent me for blood tests. Nothing came up so he attributed it to possibly a virus and to take some joint and muscle pain relievers. I hate taking any medication of sorts so after another week of pain started looking more into Humira and the side affects. I looked back at the package insert and saw “joint pain”. I’ve been experienceing alot more than “joint pain” as I could hardly move at times. The internet is a wonderful source of information so started looking further into this and came across Drug Induced Lupus. I went back to the GP and asked to be tested for Lupus. It came back positive so I’ve been referred to a Rheumatologist – appt isn’t until Feb 2012! Needless to say, I will not be taking my next shot of Humira. I am seeing my specialist later this month and will be considering surgery as the alternative. One interesting point – over the past 40 years there has been little to no diseases cured. The previous 40 years prior to that, there have been many, many diseases cured. In this day and age with the knowledge and technology available, you would think someone would be able to cure some of the common diseases that many people experience. Instead, the pharmacutical companies are busy making drugs to mask the pain so that people would need to continue to take their drugs. If they were cured, there would be no money it for them. Makes one wonder who the government and health officials are in bed with.
Kendrea
I was diagnosed with Crohn’s Disease about 2 years ago. I took Humira for about 7 months. I have been on a walker since June of 2011 and had tremors in my legs for weeks. That would last from 15 to 45 mins at a time. I would have faint scoping spells and tingling pains.The neurologist from where I live in Dothan, Alabama believes I went toxicity from the humira shots That I might possible have permanent nerve damage. I told my GI in Dothan, Alabama several times about the dizzy spells that started after I started the Humira. He just shrugged me off and I was told to conitune taking the drug. I reacted very bad to the last few shots I took. I broke out in a weep on my skin from the injection site and keep getting more and more dizzy almost completely going out. The last one I took the last week of May of 2011. My mom had to rush me to the emergency room within 30 mins. I went into leg tremors and my legs shaked uncontrollable and my blood pressure shot up to like 200 over a 100. Since that last injection I have been unable to walk without a walker and I have to use a shower chair to bathe. I have no insurance so had to go through a long process of being approved through a charity program to be able to go. He is referring me to a neurologist in Birmingham, Alabama November 7th. I guess I will find out then if there is permeant damage. My heart goes out to everyone that has suffered from adverse side effects from this drug. God bless you all!
Jeanne
I was diagnosed with AS (enclosing spondylitis) in spring of 2011. I spent the winter before this diagnosis on Humira for Psoratic Arthritis. I had been previously diagnosed with Chron’s which I lived with for years, taking Flagy when I had to. I took Humira and did not feel better, i felt worse instead. Now I am experiencing miserable MS symptoms. MRIsolutionssinflammationn on brain. In the process of diagnosis for MS. I may have had MS beforehand, but I can tell you I was not near as bad off as I am now. It’s been six months and I still can’t shakesymptomss, memory is awfulcoordinationn requires a cane when on uneven surfaces, legs and feet have lost sensation and are numb. Cannot think well enough to work full time, my heart rate is screwed up and stays above normal all the time nowdiarrheaa is worse than ever, pain oh…. the pain is worse, I can’t stand the heat – spent the summer inside, fatigue is awful, and vision is blurry occasionally. The worst part is neurologistist told me not to take anymore biologics such as Humira of Enbrel and my Rheumatologist is still suggesting that I should take Enbrel, even though my brain scans came back with MS looking issues.
Angie
Dusty….we have all read the information detailing possible side effects. Anyone who has even had their doctor breath the word Humira in front of them has been bombarded by the list of possible side effects. This cannot change the fact that anyone who has even considered such a potentionally horrific drug is desparate for relief from their disease. To come on a site where patients are venting about their experiences and basically blame them for taking this drug is just plain rude and uncalled for. My heart goes out to each and every person affected by this or any other drug that we’ve trusted the government or`our doctors enough to take, God bless.
Dusty
Sorry so many people have developed so many side affects from Humira, but as with all drugs most if not all of your side affects are in the information packet that comes with your first dose as well as every dose that follows. Everyone should read the information that is widely available before taking this or any medication. You can’t blame others (doctors, humira makers) for your not reading and being responsible when taking medication. You are responsible for taking this and all medication and the information is available you have to take responsibility for not reading the included warnings!!!
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