Humira Lawsuits

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Potential side effects of Humira may increase the risk of serious and potentially life-threatening injuries, including fungal infections and cancers, as well as a possible risk of permanent nerve damage that may result in multiple sclerosis, transverse myelitis, optic neuritis, neuropathy or other problems.

STATUS OF HUMIRA LAWSUITS: Product liability lawyers are evaluating whether individuals may be entitled to compensation through a Humira lawsuit for vision problems or nerve damage that may have been caused by Humira.

MANUFACTURER: Abbott Laboratories, Inc.

Do You Know about…

Spinal Cord Stimulator lawsuits

Spinal cord stimulator lawsuits are being investigated for individuals who suffered unnecessary shocks, burns or other problems, often resulting in the need for additional surgery to remove the SCS.

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Spinal-Cord-Stimulation-Lawsuit
Spinal-Cord-Stimulation-Lawsuit

Do You Know About…

Spinal Cord Stimulator lawsuits

Spinal cord stimulator lawsuits are being investigated for individuals who suffered unnecessary shocks, burns or other problems, often resulting in the need for additional surgery to remove the SCS.

Learn More
SEE IF YOU QUALIFY FOR COMPENSATION

>>SUBMIT INFORMATION ABOUT A POTENTIAL HUMIRA INJURY<<

OVERVIEW: Humira (adalimumab) is a tumor necrosis factor blocker, also known as TNF blocker, which is approved for treatment of rheumatoid arthritis, psoriatic arthritis, ankylosing spondylitis, Crohn’s disease, moderate to severe chronic psoriasis and juvenile idiopathic arthritis, which was previously called juvenile rheumatoid arthritis.

HUMIRA NERVE DAMAGE AND VISION PROBLEMS Adverse event reports have suggested that Humira may increase the risk of nerve damage, which could cause:

  • Optic Neuritis or Vision Impairment
  • Multiple Sclerosis
  • Transverse Myelitis
  • Neuropathy

Lawsuits over Humira have alleged that Abbott downplayed the risk of nerve damage from Humira, including a risk of Central Nervous System (CNS) demyelination and harm to the optic nerve. While other drugs in the same class, such as Enbrel and Remicade, contain warnings about the risks, Abbott has not provided adequate warnings to physicians and consumers, which could have prevented serious injury and permanent nerve damage.

During clinical trials, at least three cases of demyelination with Humira use were reported, compared to no reported cases among those taking a placebo. Of those nerve damage problems, two involved optic neuritis on Humira, which could result in vision loss or sight problems.

In addition, an analysis of FDA adverse event reports during the first two years Humira was on the market identified at least 9 reports of neurological problems with Humira, including two cases of optic neuritis. Since that time, a number of similar Humira problems have been reported. It is widely accepted that the number of such problems reported to the FDA likely only represent between 1% and 10% of all actual adverse events.

HUMIRA CANCER SIDE EFFECTS: A study published in the May 17, 2006 issue of the Journal of the American Medical Association (JAMA) indicated that Humira side effects could increase the risk of developing cancer. Warnings have been added to the prescribing information about the possible cancer risk.

In August 2009, the FDA announced a Humira black box cancer warning after investigating the potential association between Humira and Lymphoma and other cancers among children and young adults using TNF blockers.

Approximately half of the cancers seen in children and young adults taking TNF blockers were lymphomas, including bother Hodgkin’s and non-Hodgkin’s lymphoma, which is a cancer of cells in the immune system. Lymphoma is not a recognized complication of JIA (Juvenile Idiopathic Arthritis) or of Crohn’s disease. Other cancers reported included leukemia, melanoma and solid organ cancers.

HUMIRA FUNGAL INFECTIONS: A number of users who were receiving TNF blockers, such as Humira, have experienced fungal infections, such as histoplasmosis, blastomycosis and cocciioidmycosis. In several of these cases the infection resulted in death.

In September 2008, the FDA issued an alert to healthcare providers to provide new information about the risk of Humira fungal infections. At that time the agency also indicated that new information will be added to the Humira black box warning to ensure that doctors and consumers are aware of the risk, especially for those who live in or visit areas where fungus is prevalent.

Unfortunately, many cases of fungal infections from Humira go undiagnosed by doctors, since the symptoms are similar to the flu. Symptoms could include cough, fever, fatigue, loss of weight, sweating and shortness of breath.

Tags: Arthritis, Humira, TNF Blocker
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391 Comments

Nancy
I have RA and was exposed to 3 types of mold so I have been sick since last September. During that time I was not allowed anything for my RA. The pain was so great. None of the doctors I saw wanted to say I no longer have fungi in my body. I have Alternaria, Chronic Sinusitus, Asthma, Dysphonia all from the mold and RA all along. I started on my Humira 3 weeks ago again because I can’t wait a lifetime for someone to decide if its in my body still or not. After two injections I feel okay but still coughing alot. We will see how this goes. I realize the side affects and all but you know I am 49 years old and I refuse to live what I have left in pain. I think alot of these stories have common issues which I think goes back to the doctors themselves.
Marty
I have been so saddened to read all of these comments the past hour. I was getting ready to take an injection of Humira today but decided not to after reading. I was diagnosed with psoriasis and ulcerative colitis at age 17; I’m now 47. I was using everything imaginable to clear up the psoriais from creams t ointments to light therapy all to no avail. The UC was a different situation. I had been taking sulfasalazines and the occasional prednisone with only marginal relief. One day I just stopped both of them and I went into remieeion. Go figure! I still have an occasional flare-up and a yearly colonoscopy but it is under control. I went to see a rheumatologist because a dermatologist recommended it. He (the dermatologost) was treating me for psoriasis with creams, etc., but I started having all this knee pain. The rheumatologist said I had psoriatic arthritis and put me on Humira. At first, everything was fine. The psoriasis cleared up and the joint pain wasn’t so bad. But, then came the side effects. I kept getting sore throats, clogged ears, extreme shortness of breath and pain in my chest. When I read further on the side effects listed in the medication insert I realized I was having all of these symptoms. The worse has been the extreme fatugue and depression. Before I started using it I could wake up and jump out of bed and have lots of energy. Now, I can barely wake up and when I do I am in constant joint pain. I have decided to stop taking Humira. I had been contemplating it anyway; the comments here just confirmed my decision. I would rather have the plaque psoriasis back and treat it with creams than suffer what I’m going through now. I start a new job next month and I’m in constant fear I’ll lose it due to all of these symptoms. I wonder if I have MS or lymphoma. My heart goes out to all who have written here. I’ll never forget one lady’s comments: the pain is better than death.
Lisa
I am a Humira user for many years and previously used Enbrel way back when you were on a waiting list to get it and needed that credit card looking thing to take to the pharmacy with you as well. At any rate both of these medications have saved my life for both my psoriasis and my multiple forms of arthritis, don’t get me wrong I don’t like to hear of people suffering or of people losing loved ones under any circumstance, but to stand on the soap box and thump your chest and say humira ( or any drug ) did this to me when you KNOW what the potential side effects are is just wrong! An then to try to make a civil lawsuit over it is just a slap in the face to the potentially millions of people out there using this medication that is does work for that risk having it taken away, case in point Raptiva. I am willing to bet the majority of you with the fungal infections are living in the areas they are now warning about. I myself have to worry about that as I lived in one of those areas, but I don’t walk around everyday thinking am I going to get cancer today is that a fungal infection? I could sue the makers of Flonase for damaging my nasal lining but did I complain about it? No in fact I still use it! So what I am trying to say is…… I understand your pain and frustration, but when you sign on for something and you read the potential side effects and they do include the words cancer, lymphoma and life threatening please stop the chest thumping and get down off the soap box if that is what you are complaining about. Sorry this got to be so long.
kristy
Well we ended up at the local ez care then the emergency room last night my fiance’s back pain and and rash that came up now. He has a severe case of shingles. Which if the doctor would have even checked would have recognized the rash we thought was a reaction to icy hot on his backache was shingles. Needless to say that doctor recomending remacaid now is not going to happen as an option with him having a severe case of shingles for quite sometime. If my fiance’ decides to even go that route which right now we are terrified of trying and wanting to go for a second opinion someplace.
gail
my rheumatologist wants me to start this drug humira and give up my plaquinil that ive been on for twenty yrs. im alllways careful of drug changes and i did not like their pushiness.. i have ra oa fibromyalgia reynauds and hyperparathyroidism. they didnt tell me humira is experimental either. from reading the above id rather continue with two problamatic fingers then risk my life and what little health i have for a mere chance of being better. i thank you all in helping me make my decision not to take it.
kristy
My fiance’ went to see his gasterenterologist yesterday. That doctor did not thrill me none. He never even checked him over his assistant pushed on my fiance’s stomache neither even bothered to acknowledge any of the other complaints he had just ignored them like he never said a word about them. When the doctor pulled his chart he said you had this area and this area cut and fixed. You need to start remacaid treatments. We will be starting them here in my office. If this attacks your small intestine you will be done. It is the one that does the digesting. Hardly any surgeon will touch it. Well needless to say my fiance’ told the doctor umm no I had all of my large intestine but a foot and a half removed. And voiced his concerns and stuff. Well he has an appointment to go back in 2 weeks. And in between we are going for a second opinion and talking to his surgeon again. Funny part is his surgeon already sutured small holes all through his small intestine as well even the area close to his stomache which he said he hated to mess with but i had to be done. Makes my opionion of this gasterenterologist even worse. And considering he is doing these treatments in his office he wants my fiance’ to start after not even taking the time to concern himself with his complaints or his charts fully.
kristy
I haven’t posted since March on here and my fiance’ has not yet returned to work he had more problems arise with his chrohn’s and never took anymore of the humira than the first 4 injections to get started. He had numerous hopitalizations. And has since had major surgery in May. He ended up having all of his colon but a foot and half removed and they took over 25 lbs out of him some like cement. None of which appeared as bad as it was in any cat scans or xrays or tests doctors had done. He also had to have many holes repaired with sutures though out his small intestine. During his post op he had congestion in his lower right side of his right lung again. Other small set backs. And now is suffering with anxiety attacks, sleeplessness, and just recently lower back pain just to the right of his spine. I noticed a small bruised area just this evening I never noticed before not much bigger than the head of a pin. I am concerned with that now. He goes to see his gasterenterolgist tommorow . I am not sure they will do much though my guess is they will just put it off as nothing. He has still had problems with congestion and aches in his chest. Which they say is nothing now. I believe with all of my heart though he has only went further and further downhill since taking these injections. I only hope the doctors and the pharmaceutical’s making a killing in profits from these drugs they are using all of these sick people to test them on as guinea pigs one day find themselves facing judgement for this. I can say this because the doctor who prescribed my fiance’ his injections of humira grinned big and said those cost over $1000 an injection. After he had told him to start the injections then had him come into his office for test results for a BE with air in which it pretty much showed his only true option to help was surgery. That doctor told him to try these for a few months anyhow to see. Needless to say he got the phnemonia and pleuresy and has been steadily getting sicker since. And ended up stopping the humira after the first injections and side effects. Only to have to have the surgery after all. And still have problems. Before anyone takes these injections I will say this anyone in as much pain as my fiance’ was and has been I understand from daily watching him you would try anything to feel better to stop the pain. I saw this 37 year old man I love suffer in so much pain he was curled in fetal position in tears and couldn’t walk he crawled through our house and I understand how he wanted a miracle cure or for it to just stop hurting. Just please way all the side effects and consequences first. The demon you know is sometimes bad but what about the ones you do not know. In the end of this situation I can say he wishes he had never taken those injections. And if he had continued them as that doctor wanted to try for a while he would likely be dead. the surgeon who did his surgery never imagined he would see what he found when he went in. A few more months waiting and trying those injections and maybe fighting more lung problems along with other side effects his insides would have likely ruptured.
Robert
Have been on Humira for 2 years , my back is 100% clear from Psorisis Plaques and my body has never felt better . I did suffer major side effects on my first year even landed me in the hospital with a major infection that took me out of work for a whole month . I just had to continue and belive on this drug , before Humira my face was a sad thing to have to see , Ive never felt better in my life , sorry to hear about the bad cases , Best Wishes God Bless
Sonia
I found out i had crohns in 1974 three days after my wedding I ended up having surgery to have some of my intestines removed. I tried remicaid and humira. I now have a rash that i have tried everything to get rid of but it will not go away everyday a few new spots show up. I have Liver issues which i tried to talk to my doctors about but the did not believe me and told me not to go of the humira. well i stop going to that doctors office and got off of humira. I now have chronic liver failure thank you to the makers of humira and of remicade that both your drugs hav very simular side affects. I am now on asacol and a group of others for my Crohns, RA, Ostioparosis, and Liver. Who knows Miracles happen everyday. Thank You JESUS!!!
Rich
Three years ago I was diagnosed with Prostate Cancer. I had my Prostate removed. On April 6 of this year I went for a physical and my PSA was 0.1 meaning no cancer detected. On April 29 I started Humira. On June 3 my PSA went up to 0.3 meaning cells where the prostate was are now cancerous meaning I have prostate cancer again after three years clean. Coincidence or Humira?
Steve
I have had psoriasitic arthritis since 38. I’m now 58. I tried many things, including Enbrel. But thank God, not Humira. But PLEASE trust what I am about to say: read “The China Study” and change your life. You WILL get better. I did. Completely – to the astonishment of all of my doctors. I do have residual symptoms, probably a result of the drugs. But they are minor, and controlled with NSAIDS.
Sharon
My husband took his first shot of Humira on June 8, had no adverse reaction at the site, just said he felt weird. On June 9th he was taken to emergency back pain, stomach pain, eyes sensitive to light and kidney pain. The pain from ankylosing spondylitis is about 30% less, however he will not be taking this again. He continues to have various pains that he never had before and I just pray that this stuff gets out of his system fast and does him no further harm. Funny the things you will take when you are desperate to be out of pain. Never again no matter what his Dr. says. If there are any adverse affects you can be sure we will be contacting a lawyer. My husband is 55 and was diagnosed with AS when he was 38. He can not take NSaids due to ulcers developing so we have pretty much been using alternatives, natural meds etc. Wish we had continued with those. Seems he has had flare-ups for most of the time in the last 3 years.
Melissa
Less than a month ago I got pnemoninia was put on the stongest meds and now I have it again. I also have a hard time raising my right arm up as my shoulder is very sore. It is a new joint affected by my RA, I stated that i had not has my Humiria in a month as I was afraid of the sideaffects and , I was reminded that this was the last med I could try and not taking my meds was going to be worse. They wanted to do shots to the shoulder but I get migranes within 24hrs of the steriod shots.
Jenn
I have been on Humira for almost 18 months. I was upped to once a week injections after 6 months due to iritis.uveitis flare-ups associated with AS(ankylosing spondylitis) and lots of joint pain. I began having severe neurological symptoms about a month ago. My rheumatologist did not know of Humira causing neurological problems and possibly MS. My symptoms are pretty classic for MS and if I can get a dr. to actually take me seriously, I”ll hopefully be getting an MRI soon to see. I don’t know if I blame Humira for this, or if perhaps I was already at risk for getting MS, now that I look back and see some warning signs that go back years, but now that it looks like I have to go off anti-tnfs. I am allergic to sulfasalazine, am diabetic so no steroids, how is my AS going to be treated? Even on Humira, I was barely functioning to care for my 4 children. I was having flare-ups of uveitis/iritis and lost some vision too. The only thing that got my inflammation in my eyes under control was upping HUmira to once a week. I’m very scared what the future holds. I’m only 33 years old.
Sarka
Hi. I’m on Humira for over 18 month. At first I felt good, it was helping with my Spondilitis but recently I started to feel different. I’ve got bruises all over my body, have night sweats, have hot flashes during the day,feel tired and sick all the time and lossing weight. I’m very worried that it could be Leukemia or Lymphoma. My blood test are o.k. so far but aparently sometimes you can have normal blood test is that correct? My dr said it’s o.k. and I shouldn’t worry but I do now after reading all your comments!
Kim
I was on Humira for 3-4 months. I had swelling in my ankles. When I went back to my skin dr. he told me to keep taking the shots. I forgot to mention I have Psoriasis. Which the Humira cleared it up. Now, I have problems with hand swelling, arms hurting. (arthritis). I won’t go back to the skin dr. he probably will tell me to keep taking it. I won’t go back on it. Sometimes my legs are stiff and sore too. I wasn’t like this 3 months ago. I am worried I do have the side effects.
Debbie
I have been taking Humira for 6 years and apart fron the occasional irritation around the injection site have experienced no problems. Before going on Humira I was virtually housebound, I have not experienced a flare up since taking it, 7 months ago I reduced my Humira to one monthly injection and so far I am still feeling good and very fortunate that I haven’t experienced any problems so far, although reading all the problems on this site has got me more than a little concerned
Melissa
I am 35years old I have had JRA since I was 2 yrs old. I now have 3 kids and married. I have been on many meds with almost deadly effects. My parents choose to do the best for me when I was young used meds with few sideffects. When I was 18 I was told that I could choose, make a long story short, after going down hill quickly I took a very drastic methods for pain and joint swelling relief. 5years ago I started Humira with in 5 months I had been hospitalized and with a IVport in my hand for 2 weeks due to severe Infections in my lungs. I also had to go on permentant disability, I thank God each day that I have a husband who loves me and knew this would come sometime (just not at 30). I still take Humaria and now have many sideeffects such as constant cough(pneminoia if anyone is ill by me) Fibroymalsia, Had a Hystrecimy in January got infection that Iam stilll battling, pins and needles that go down the left side of my body from hands to feet, a foot fungus that has not gone away for 4 years( had toenails taken off many times), forgetfulness( which is being said for a sleep med that I take) and as of January my skin is very sensitve ( can barely handle hugs from my kids or to take my shot ) just to name a few. I also have had an infection of the stomache since January( can not eat anything but can drink milk tea and water all I want) great weightloss program. Ha Ha . I had Today I was at my Dr.office when I learned with others there that people were having very deadly sideffects from Humira( I have a call in to my Dr for an ER Appointment to get off this crap!!!! I am not ready to die yet). It sucks cause my options of meds are running out and I already feel bad that my kids and husband have to help me change , get into and out of bed and showers, and many other things. I also have to take 90mg of predinzone and then taper down each month and you all know the lovely sideffects of that med. Not sure where to go and what to do so that I can make it through a few more years.
Dee
Hi everyone, sorry to hear about your problems and my heart goes out to everybody. I know how all of you have been suffering and that is very sad but when i was reading ya’lls post I noticed most of you have been on them for years and have to wander if that wasn’t alot of your problems. Because like with any meds it tears down your ability to fight off any infections.I do know i was told to take a vitamin d supplement while on humaria.I was on embril about 7 years ago for psoriasis and psoriatic artheritis took for about a year didn’t do nothing for me I have been a sufferer now for 30 some yrs in april i started the humaria and 3 shots into it I was about 50% clear and I had the best shower in 30 yrs not stinging or burninng also i’m not itching of course i think it;s great but I’m gonna agree you have to br your own advocate .I have 3 more shots before I go for blood work the only thing that has happened to me was I did get dizzy and fell face firt and frature the bridge of my nose but i had a couple of drinks while playing darts.but that was the only time that happened I had just taken my 2nd series of shots .now i noticed yesterday that a blood blister showed up on my arm (Small one )other then that i’m enjoying the relief. but i will tell you this if my blood work comes back not good then to hell with what the dr:s say I’m am taking my self off the humaria.I can’t advise you all to just stop it that’s something you all have to decide what’s right for you.but for me as of right now it’s working for me and I’m happy with it . but that doesn’t mean later on I’ll be happy I’ll let ya’ll know.best of luck to everyone and I hope you all find some comfort. god bless and take care.
Heather
After being convinced by rheumatologist (that i did not want to go to in the first place) that I was stiffer and in more pain than I realized from the Ankylosing Spondylitis I’ve had for 17 years with only occasional bouts of severe pain after initial onset I went on Humira. After my 1st shot I felt fine, after the 2nd my muscles started feeling a little weak and I felt a little queasy, after the 3rd shot I was in a full blown flare of Crohns diseases which had been in remission for around 5 years. Was taken off the Humira and began treatment for the Crohns. Not only am I now dealing with a flair of Crohn’s, but my ankles have swollen to approx. 2x their normal size and am in horrible pain. Wrists are also beginning to hurt but no swelling in them yet. Never had problems with either my wrist or ankles until the Humira. Wish i had never even heard of Humira.
Dewayne
My wife got sick in 2006 while taking humira she was in critical care over a month when she got out she had to start useing oxygen, in Feb. of 2009 her left lung collaped and in march of 2010 her right lung collaped and on April 2nd at the age of 52 I watched my wife die we would have been maried 33 years May 28.
Kelly
Comment to Michelle: Yes. Unfortunately Humira can cause MS because I was diagnosed as getting MS from Humira. I dont have RA but I have Crohns disease. I took Humira for just a little over a year and started getting the numbness and tingling symptoms. Other Anti Tnf drugs can also can serious nervous system disorders as well.
Michelle
I was diagnosed with RA eight years ago. (I am currently 40) Took methotrexate along with various NSAIDS over the past years. I started Humira injections two years ago and took them twice a month for one full year then stopped due to too many UTI’s. I have not been on Humira for one year now but I am developing several symptoms of MS. After reading some of these entries, I wonder if anyone else out there has RA and then developed MS after taking Humira???
Judith
I was diagnosed with RA almost 3 years ago. I was put on Enbrel, which worked beautifully for me for 2 years and then suddenly stopped working. I was recently put on Humira. I immediately had mild reactions, including joint and muscle pain, headaches, ringing in the ears, urinary tract infection, forgetfulness, crying easily, pain at night, pins and needles in feet. My MD said to stick with it, that I haven’t given it enough time, and that the only side effect that I have is the UTI…that the others have nothing to do with Humira. It is true that RA can also cause many of the symptoms I have; that’s what sent me to the doctor in the first place. The differecne is that after my first injsection of Enbrel I felt better. After my first, second and third injection of Humira I feel worse. After reading all of the above comments I wonder if I should be on this drug?
Joe
My doctor recently prescribed Humira by my Doctor for mild ankylosing spondylitis. I’ve only received one injection. It seems to have relieved the stiffness in the morning and tendonitis in my shoulder but after reading this site, I’m not sure if should continue with the treatment. A lot of scary stuff on this site
Dianne
Humira is responsible for the dead of my sister on April 2, 2010. She was 52 years of age and will be dearly missed.
Deirdre
Hi… I have been on Humira for 3 years now and in the process of Kindney Function Testing.. !!! I was told by my Nephrologist my kidney’s have been declining since October… I have been on TFN blockers for almost 7 years now… I have Crohns… I hear & feel so much of what all of you are saying and I am sorry for your losses… I wish you well.. Has anyone else had ANY KIDNEY ISSUES WITH HUMIRA?? WHERE ARE THE WARNINGS ABOUT THIS HORRIFIC SIDE EFFECT? ! IT IS TRUE I liked humira.. it was the only drug that ever helped with my crohns. ALTHOUGH i probably have had every side effect and just have not noticed since i have lupus & fibro & cant tell one from another anymore… i have not had a FLARE IN 3 YEARS and that is amazing considering i was diagn. with Intercranial Hypertension in Oct and got Menengitis from local hosp …Humira has been super for my Crohns but KILLING ME SILENTLY…. i am stopping (after finally going taking my health into my own hands and finding a nephrologhist on my own…all my DRs” said my Labs would always be a little off since i was on HUMIRA”!.. NO SHIT… I IT IS TOXIC )… i have no choice… i am 40.. with 2 beautiful little boys … i want to watch them grow up, well … i will keep checking in… i am grateful i found this site as well.. get your blood work checked and don’t let any doctor tell you just because your on HUMIRA or any TFN your Labs will be off…. make them tell you WHY… You are paying these doctors… They work for YOU…. Also…Make sure your doctor tells you if You STOP REMICAID than RESTART IT YOU MAY HAVE A SERIOUS ALLERGIC REACTION to it..NO ONE TOLD ME & i learned the hard way…. the call my husband get here quick hard way… after my 4th infusion… it only took 4 min into the infusion for anaphalxis shock …hence the intro to HUMIRA
Shelley
I am feeling very sad as i sit and read through everybodys stories which I have also one to add. I had been on humira for 6 months with fantastic results. Blood test showed that I am in remission until the 6 month mark i had afew small white lumps like mossie bites appeared on my right shin. Showed my gp each time i visited he looked seemed interested but that was it. Bumps became very itchy then turned into small sores which slowly spread up my shin. I then got a row of the same bumps under my right breast and the back of my neck a day after my last injection. I was going insane and sleeping with ice packs agross my body as it was the only way that i could settle the itching down. Gp contacted RA specialist and he asked me to come straight down which was impossible due to 6 hour return trip so had to send photos by email. Next day had a biopsy and was to visit him the next week. By then I was going totally insane itching which had now spread to small areas of my face left wrist and hand and behind my knees. Told to stop humira which I was intending to and go on high does short course of prednisone. Took a ton of blood from me which i dont know those results yet till i see him in two weeks. Meanwhile stitches out after biopsy and ended up with infection a few days later resulting in wound bursting and wearing special bandage that cost $7 each and needed changing daily. Gp looked at wound yesterday and needs to re cut and stitch again next week. I only came on this site wondering how long the humira will stay in my system after i stop using it and I wish I had seen this site before starting it. I am now still itchy, dont know what the heck is going on and really shit scared of flaring up or even worse ending up with some of the things that other users have got from this drug…what a shame as it really did work for me. I have been off it since end of Feb 2010 and have not yet had a flare up and hoping I dont as I dont know how I will handle it with all this other crap that is going on. I already have thyroid probs, high blood preassure, restless leg syndrom all brought on from ill effects of other drugs that I have trialed on my 15 year journey with RA i am turning 45 soon and feel as though i have more illnesses than a 70 year old…sad but true…
Kristi
comment for Kristy from the March 13 comment I was treated for pleurisy twice and I had the conflicting x-ray results. I was finally diagnosed with Chosta-Chondriitis. Steroids and heat helped me although I still have flares occasionally. I don’t know if this is what your fiance has but I thought I would throw it out there.
Kristi
I was on Humira for nine months to treat my RA after Methotrexate was not successful. Three weeks after my Humira was increased I had a mini stroke and then two months after that I had a massive stroke. I was only thirty-two at the time. I’m thirty-five now and I still have lingering neurological problems. I also have had ovarian cysts some of them have actually ruptured. I haven’t had Humira in three years. I have been blessed to find good pain management some of the time but my disease has progressed leaving me disabled. I developed RA after my son was born. He is seven now and I get to sit on the sidelines and watch him grow up. I would love to find a new treatment. I feel so sad that so many people have struggled with Humira. After reading these comments I am grateful that I am alive.
Sonja
I started Humira 6/09 for psoriasis. It was wonderful to be 80% clear, but then in January 2010 I was hospitalized for kidney stones. In a incident of inserting a stint in the bladder, they found preliminary stage of bladder cancer. At first they didn’t not believe it was cancer because of my age and the fact that I never smoked. But then after the pathologist report came back it, the first question was could this be caused by the Humira. Two months later, I had to have byopsies on enlarged lymphnod and tonscils. But they noticed that within 1 month of stopping the Humira shot, the lymphnod and tonscils started to shrink.
Jennifer
38 yr old female, got P when I was 21, got first signs of PA 5 yrs ago at age 33. Started Embrel 40mg every 2 weeks in 2007, took it for a yr with moderate improvement, then Dr. switched to Humeria 40mg every 2 weeks, P completly cleared up, yet didn’t help with PA, so Dr. uped dosage to highest approved amount…so for last 18 months I’ve been taking Humeria 40mg every week, this summer added Metho for 3 months & dropped it after having severe chest wall pain, which then led to all sorts of symptoms, left body is numb & tingles from head to toes, dizzy spells & blackouts that are increasing, pain every where, terrible headaches, Iwhenever I turn my neck I get the sensation of driving on a hilly road too fast, I’m falling & dropping things, always freezing…finally after 3 months of this just got the Dr to give me an MRI, results came back this week with MS lesions on the white matter of brain, go to see a neurologist this week, went yesterday & filled my arthritis Dr. in on the MRI results, she told me to stop taking the Humeria & acted really strange & started asking all kinds of questions about my symptoms & if I had ever had any of these in the past prior to starting the Embrel or Humeria, she was taking documented notes like crazy, yet I don’t ever remember her being so diligent prior to the MRI results, as if she was covering her ass. My blood test have always come back perfect. No family history of MS or anything neuro. My MRI prior to Humeria start was fine also. I am freaking out, what should I be asking the neuro, to make certain that I don’t have a fatal fungal infection of the brain from this TNF poison? I would strongly urge anyone to not start on any the TNF meds…having the P clear up has been wonderful, but not worth the possibilty of going blind or not being able to walk….I want these meds pulled & some lawyers to take action & start the documentation.
troy
ive been on humira now for two years, is started getting numbess annd tingling in my exremeties from feet to my face, coldness there as well and when i go outside i freeze. possibility i have lupas and reynards. my energy is gone and my thinking to recall is wipded out. im very scared and im a nurse. im scared to death and the fda should take the heat for this drug its just as well to take rat poision.. hoping somebody can help me my dr;s all idiiots and dont believe me and im a rn, bs…
cindy
I had done much soul searching before starting Humira. My RA was very high, I tried many different drugs, nothing seemed to work. I tried Humira. I took only two shots. After the 2 shot, I had a large red rash at the injection site. My husband and I went out on Saturday to do our weekend chores. When arriving home, I was very exhausted, and my right shoulder hurt very bad. I was also having pain across my chest and back right shoulder. I assumed it was from lifting and walking alot. During the early morning hours, I had such pain in every joint area of my body, and could not walk. I had to call 911. I felt like I would be crippled for the rest of my life. I ran a slight temperature. The ER stated I was having some type of reaction, including swelling in my throat. They treated me for pain. I then visited my doctor and determined I had a servere reaction to the humira. I was basically swollen throughout my entire body. My feet were swollen like ballons. I am currently home in bed, waiting for this Humira to go out of my system. Taking Pain medication, preisone and whatever will work. I understand all these problems well. I hope everyone finds something that works for them, and protects them from other bigger problems. I don’t know how long this is going to take. I was glad to hear someone else is having a temperature issue. My temp since this situation occurred has been 96.1 to 96.8. No more Humira or any type drug again.
Kaz
My son was taking Humira for severe Chrons Disease for two years but was left totaly unmonitored for the second year (no tests at all), he now has Reumatoid Arthritis, Lupus and Multicentric Castlemans Disease which is incurable, he is now terminaly ill, all thanks to Humira and negligence. M.y statement says it all, DO NOT TAKE HUMIRA unless your pain is worse than death.
Karen
I was on Methotrexate and Humira last year and developed two large accessory spleens, an ovarian cyst, a large goiter with nodules and some kind of brain cyst. I also appear to have a few other things on pet scan that are mildly hot, and my uterus is consistently enlarged. Some of the things I mentioned grew larger or from nowhere while on Humira and Methotrexate (was on this longer and then with Humira), as they had been imaging me for the accessory spleens. Resolution was I stopped all meds to have three surgeries last year to have endometrial ablation and remove 1/2 thyroid, ovary and tube, two large accessory spleens. After being off all arthritis drugs for about six months, my last brain MRI shows empty sella with fluid – no cyst (I don’t know if this is an imaging issue or if somehow the cyst broke or dissipated). I also was getting lost in my car close to home, couldn’t think of words to say and hadn’t finished a book in a very long time. My neuro exam is good. After being off all RA drugs for the six months, these things are better. Downside, I can’t quiet my eye down and am in a lot of pain. I am trying something else starting next week. It says not to take if you have any tumors or growths… It’s a hard choice whether to sacrifice growing tumors, cysts or having enlarged organs (so far benign) or doing further damage to my eye, muscles and joints from my arthritis.
kevin
I have taken humira for 5 years. It helped for awhile but i began developing what appears to have developed sqaumus? cells.when i quit humira at my Dr’s request,the lesions seemed to ease up,however after about a month,they returned with a vengence. I’m taking predisone as a maintenace drug and it seems to do a better job,however as i go along,i’ve been needed to increase my dosage.I’m concerned about it and i feel like lupus like effects and elbow and joint pain.worried….
Kristy
My fiance was released on the 12th from the hospital his x rays now show nothing that was there when he was admitted on the 7th. They treated for phnemonia an d pleuresy. He is still on antibiotics and pain medications. The pain in his right side has still not went away. His dr. seems to be unsure what is wrong and has him coming back in a week or two to check him. And has put him off work for the next 10 days.
Kelly
I started taking Humira on June 08 for Crohns disease. I did fine for about 1 yr, but the drug actually did not help me much past 5 or 6 months in terms of maintaining a remission. I am now much worse off than I ever was to begin with in that Humira has given me Mutiple Scelrosis disease in Aug 09. By the time my symptoms appeared it was too late. I have developed several lesions that now has me very disabled. I have seen several Neurologists at the Cleveland Clinic and in my home town. These doctors have all told me that Humira is too blame. In my opinion, any of the Anti tnf drugs is not safe to take. If and I mean if you have to take these drugs then take for the shortest possible time to induce a remission and then off the drug. I would love to talk with others who have been diagnosed with MS from humira.
Ian
I have suffered with Psoriasis for over 35 yrs and tried almost every thing avaliable, now my consultant wants me to try Humira, after reading comments on here think will give it a MISS, it seems possible that it creates more problems than it solves,I wish you all well Psoriasis at the end of the day is not fatal.
kristy
I read through the rest of the comments on this page and I am even more concerned now even though my fiance only took the fist 4 injections for his first does of humira so far and since he is already in the hospital after only weeks. After reading Kathy’s comment of her husband dying and only after one injection of humira. I am just wishing with all my heart my fiance never took this medication. My heart goes out to everyone that is suffering with these diseases and the side effects of these drugs. My fiance is only 36 years old and we have 2 children together 11 years old and 7. So many of the comments I have read are by so many people that are so young. The more and more I read I keep wondering what other symptoms he has could be side effects of this drug. I know the phenmonia and the pleuresy could be, the bruisng and muslce weakness. He has also been having severe headaches and also high blood pressure. I was thinking the high blood pressure probably caused the headaches. Both seem to be worse the past few weeks though.
kristy
I forgot to mention he was also showing signs of bruising and muscle weakness before his episode with the phnemonia and pleursy. I called in and they had told me that was common for the muslce weakness and not to worry abut the bruises unless they got bigger or we noticed tiny pinprick bruises.
kristy
My fiance has Chrohn’s diesease. he has been on steroids, and other medications they started him on Humira the 25th of February which was just a few weeks ago his second dose would be due on Friday the 12th. He has had to ER visits one for more stomache problems with his Chrohns and this last he was diagnosed with phenmonia and pleursy which is all on the right side. He does not smoke. Has never had any breathing issues or problems before. They are treating him with iv antibiotics again. And he is still in the hospital as of today. March 10th. When I calledinto the humira hotline. They passed me along 2 more times. The last lady I spoke too wanted to call his gasterentoroligist and see if he thought it could be caused from the humira injections. After looking online I have come across more instances with his exact symptoms after others took this medication. As of right now he is not going to be taking his second dose of the humira as his family dr. is against it at this time. But we re not sure what his gasterentoroligist will advise next. After some of the things I have read I am terrified that this may only be the begining of side effects from this drug. We have yet toi wait and see.
marion
I have pa and have tried metho – no work and now I have been on Humira for 3 months. I have diffivulty breathing and have had a urine infection which has been treated with antibiotics and is not getting better. My ra wants me to try enbrel next – after reading all you comments I think I will just tough it out with my pa and hope I have not done serious damage taking the Humeria. Good luck all from this very scary drug and I agree it should be pulled from the shelves. PPS My pa is so much better after being on Humeria but the rest of my body is not.
freddie
My mother participated in clinical trials and was diagnosed with non-hodgkins lymphoma and was dead in a year. The shortness of breath, body aches and many of the other symptoms discussed were among her symptoms. She suffered multiple symptoms and extreme pain. I wouls suggest not taking the drug despite what the doctors recommend because they are not experiencing these devastating side effects. It is hard to find a lawyer who will except the case because no one has broken ground yet but the class action lawsuit will come it will just be to late for those who suffered first. But you know there are many blogs out there with people saying the same thing may be we should unite and a lawyer will take us all on or at least take it to our politicians and make them listen.
Katie
I have scleroderma, raynaud’s phenomenon, blood clotting disorder and maybe have lupus.I have had iritis for over a month now.The Rheumatologist wants me to go on Humira he said that is the only medication left to cure the iritis.I had my doubts about the meds but when i called abbott to hear the side affects of the drugs ,i cried just thinking about taking this dangerous and deadly meds. I think i would rather lose an eye as to take this killer drug. Thank you all for your comments and the vital information on the page.
Jovial
About 9 years ago I was diagnost with RA and have been on different kinds of medications to treat this disease. Kineret,methotrecate,steroids and Humira. The first three medicians did not work and my doctor put me on this Humira. At first it seem to work but at times I would feel alot of pain in my knees and have swelling around my ankles. Then I broke out in hives, itching all over my body then find out I got this fungal infection and could hardly breathe and was hospitalized over night from not breathing. All this took place after being on the Humira
shirley
I GOT VERY ILL IN JUNE 9,2009. IN FOR A TOTAL KNEE REPLACE,ENT. THE DOCTOR FOUND OUT THAT I HAD DEVELOPED AN INFECTION. SO I WAS PLACED ON ANTIBIOTICS FOR 8 WEEKS, BEFORE THE 2ND SURGERY OF THE KNEE. IN JULY 24, 2009, I HAD SURGERY. THEN AROUND AUG. I DEVLOPED AN EYE INFECTION. WENT SEVERAL DOCTORS NO CURE. THEN I WENT TO PALMER EYE INST. HAD TWO SURGERIES. HAD CULTURES TEST , TBS TEST AND ALL OTHER TESTES DONE. DOCTOR COULD NOT TELL ME WHAT WAS THE CAUSE OF MY SWALLON LEFT EYE. FINALLY THEY CAE UP WITH INFECTION CALL GRANDUAL IMFORMATION. I WILL GO BACK TO PALMER EYE INT. IN APRIL. BUT THE LUMP IS STILL THERE.
Katrina
Linda- I was on Prednisone (steroid) and was put on Humira. I have been taking both for about a month now and my GI believes it to be safe & I have not had any odd reactions with the 2. I hope this helps.
John
I have been on humira 2.5 yrs. every other week dose, severe pain in feet and various other places since last summer. Problem walking general moving at times, nite sweats at times too and lump in throat hard to swallow. Struggle through work. Noticed extreme problems few days before next dose. Doctor says: must be an increase of my crohns symptoms so now on weekly dose since last November. Now, feet pain, swelling ,wrist hurts, hands hurt, feet numbness. asked to see neurologist. I have noticed 1 website saying humira can lead to MS. Scared of my future and ability to work. 49yrs old
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