Remicade Lawsuits

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The arthritis drug Remicade has been linked to a number of serious and potentially life threatening injuries. In September 2008, stronger warnings were added about an increased risk of invasive fungal infections.

STATUS OF REMICADE LAWSUITS: Lawyers are evaluating research surrounding the potential safety concerns involving cancer and Remicade, as well as potential cases for individuals who developed fungal infections.

MANUFACTURER: Centocor and Johnson & Johnson

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OVERVIEW: Remicade (infliximab) is an autoimmune disorder drug known as a Tumor Necrosis Factor (TNF) Blocker. It is approved by the FDA for treatment of psoriasis, Crohn’s disease, ankylosing spondylitis, psoriatic arthritis, rheumatoid arthritis and ulcerative colitis.

It was the first TNF antagonist available in the United States, and has been used by more patients world-wide than the other medications in the same class, Enbrel and Humira, combined. It is a blockbuster drug for the pharmaceutical giant, Johnson & Johnson.

REMICADE CANCER SIDE EFFECTS: In 2004, a warning letter was sent to healthcare professionals indicating that Remicade had been associated with more cases of lymphoma among patients receiving the drug. A study published in the May 17, 2006 issue of the Journal of the American Medical Association (JAMA) found that Remicade side effects could triple the risk of developing cancer.

In June 2008, the FDA released an early communication about an ongoing safety review involving Remicade and a possible association with the development of lymphoma and other cancers among children and young adults and a Remicade black box cancer warning was added in August 2009.

At least 30 reports of childhood cancer were received by the FDA involving the use of TNF blockers. Other medications indicated in this early communication were Humira and Enbrel.

According to Johnson & Johnson, among children taking Remicade, most of the reports of juvenile cancer involved those treated for the bowel disorder Crohn’s disease. Approximately half of the cancers seen in all children and young adults taking TNF blockers were lymphomas, including both Hodgkin’s and non-Hodgkin’s lymphoma, which is a cancer of cells in the immune system. Lymphoma is not a recognized complication of JIA (Juvenile Idiopathic Arthritis) or of Crohn’s disease. Other cancers reported included leukemia, melanoma and solid organ cancers.

REMICADE FUNGAL INFECTIONS: A number of users who were receiving TNF blockers, such as Remicade, have experienced fungal infections, such as histoplasmosis, blastomycosis and cocciioidmycosis. In several of these cases the infection resulted in death.

In September 2008, the FDA issued an alert to healthcare providers to provide new information about the risk of Remicade fungal infections. At that time the agency also indicated that new information will be added to the Remicade black box warning to ensure that doctors and consumers are aware of the risk, especially for those who live in or visit areas where fungus is prevalent.

Unfortunately, many cases of fungal infections from Remicade go undiagnosed by doctors, since the symptoms are similar to the flu. Symptoms could include cough, fever, fatigue, loss of weight, sweating and shortness of breath.

Tags: Remicade, TNF Blocker, TNF Blockers
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233 Comments

Becky
Remicade is the DEVIL! After 6 months of persistently going to the GI doctor and telling them something is WRONG, I went to the hospital, I literally hurt all over, I couldn’t lift my body out of bed. FINALLY a doctor tested me for antibodies and sure enough positive! I’m angry that I have been through so much pain. When the GI doctor called to tell me I was positive, he laughed and said it hurts don’t it! There is absolutely nothing I can do, no lawsuit, no relief, NOTHING! I’m a firm believer in KARMA and I hope he gets his 10 fold! I’m sorry for your pain and prayers. This medication needs to be taken off the market!
Jeannie
I was on Remicade and I now have MS. They have been sued for lupus. I wonder if anyone wants to sue them for my neuropathy or MS?
DAVID
I was on Remicade infusion for 2 1/2 years furnished by the VA for my Crohn’s disease. I started having symptoms in my feet numbness and tingling burning sensations. My right foot now after 13 years is half numb to the touch and I have been diagnosed with peripheral neuropathy. I am not diabetic. The pain is bilateral in my left foot as it is also starting to get worse, I have seen many many doctors, and none of them can do anything for me. Remicade was used by several of my friends and some of them have peripheral neuropathy as a result also. It is a rare side effect, and we apparently are victims of the side effect, and it is debilitating it takes me 3 to 4 hours to get to sleep with sleep medication because of the pain , I can’t walk around my block and I get a spinal cord stimulator to mitigate the pain so that I can live a halfway decent life.
Jessica
I was on Remicade for 3 years. Although it had me in remission, it gave me drug-induced lupus. Even though I have switched to a new medication, I am still having the symptoms associated with DIL. I’ve ended up needing to be on pain medications for some kind of relief.
Bridgette
I am amazed with these stories. I received the infusion in 2012. 2 weeks later I experienced severe pain throughout my body. I was hospitalized for 10 days with serum sickness. This was never disclosed as a possible side effect. And it sounds like so many others have had similar effects. Why has there not been a lawsuit against them?
Alan
My condition keeps getting worse
Kathy
I started Remicade infusions on June 6, 2023. After having 3 infusions I met with my Rheumatologist to check how I was feeling. I told her that I was feeling so much worse and in more pain in my hands, elbows, ankles, hips and overall fatigue. I had already been to see my PC. She wanted me to stop the infusions. I had never felt so bad in my life! I would wake up in tears from so much pain in my hands every night. Work was all but impossible and trying to do any “normal “ activities I had always done. I was researching whatever I could get my hands on because I felt so horrible. Was it Lyme disease? What the heck is going on in my body? Yes I have other autoimmune diseases but still had been able to live a somewhat normal life with my limitations. I’m at my wits end trying to figure out what is going on with me from one day to the next! What am I talking about…one hour to the next!! Things can change with me with no notice at all! This is no way to live! I lost my husband on 12/26/22 and trying to go through the grief process and depression missing him. Now to feel so bad and my person, my love is not here to help me. I feel like I will never know what’s happening inside my body. Any help or questions please . Kathy
Amber
My daughter was diagnosed with Crohn’s disease Aug 2022 we started remicade since then she’s developed psoriasis all over her body lost every piece of hair on her body losing weight can’t physically walk on her feet can’t work. It’s horrible.
Patti
I was compromised while taking remicade infusions, ended up in the hospital. They didn’t know what was wrong with me after many tests. From taking fluid from my spine to a bronchoscope where they found a fungal infection aspergillosis. Had to go on a high powered antibiotic and oxygen 24/7. This was in 2017, and I had been on remicade prior to this for years for rheumatoid. Since this was found I have had many CT scans, shortness of breath, and I also developed severe Osteoarthritis. I now have to have reclast infusions bone builder for the severe bone density. I am at great risk of fractures. My lungs are being watched carefully by my Pulmonologist. In fact I have a CT scan of my lungs scheduled in July 2023. This remicade is horrible stuff, I call it round up! Also remicade has been tied to skin cancer and I have had lesions of basil and squamous cell cancer removed from my forehead, chin, and hand!
Karen
I was on Remicade for 12 years. I had to fight with Dr’s to switch me to jak inhibitor. I was on it to treat UC and because of the remicade I ended up with Alopecia Universalis. It happened slowly for years ,coming and going from every part that grows hair. When I finally stopped taking it I lost all of my hair..everywhere….gone. Remicade has caused a plethora of problems for me even still. Something is always wrong. I don’t believe I will ever feel like my healthier self ever again. Remicade damage just keeps surfacing….anyone else?
Yesenia
Hi I was using remicaid got breast cancer by doctors I was getting poison n breast surgen said that caused the cancer
Marthea
I was on Remicade for along time I was also on Embrel and Humira years later was diagnosed with stage 4 metastatic colon cancer could it have been caused from these drugs
Michael
I am so sorry to hear all these stories and my heart hurts for all of you that have experienced loss. I too took Remicaid from March 2021 until my insurance co made me switch to Inflectra because it would not cover Remicaid anymore. I developed antibodies in Feb 2022, which were tested again and were higher in June 2022. I ultimately developed non hodgkin’s lymphoma this past June 17. I also have optic neuritis, presumed from the drugs but it is hard to prove.
John
Remicade gave me systolic heart failure. Cardiologist can find no other reason for it. My life will be cut short from trying that medicine. I received no warnings about it from arthritis dr.
Rose
I did 12 remicade infusions and ended up with cataracts in both eyes at the age of 42. The eye Dr said she was almost positive it was because of the treatments and I was told it would be to difficult to prove. I was seeing triple in my right eye and double in my left.
Jennifer
My husband was on Remicade from 2011 to 2022. He died in June of a glioblastoma, a very aggressive brain tumor. This was after he got skin cancer in 2020. Skin cancer is a known side effect of Remicade. Also a 2016 scientific journal article showed Remicade is associated with a much higher rate of glioblastomas than other ulcerative colitis medications. There is not a warning about this nor regular scans required if on this mrdicine. I don’t understand why this poison is on the market and why there isn’t a class action suit against Jassen. It has caused much suffering. BTW, my husband was 57 omwhen he passed and had run 55 miles in a race in December 2021 and 100 miles in a race in October 2021. He was in good shape.
Louwanda
Been on remicade 12 years. Got my first infusion in little rock Arkansas. Had strokes. I had lupus and peripheral neuropathy.
Linda
On Remicade and later the bio similar Renflexis, I was diagnosed with drug-induced lupus [DIAL]. I had to stay on Remicade because the cost of Humira on Medicare Part D is thousands a year. Thankfully, the DIAL resolved. In autumn 2020, severe osteoarthritis struck one knee suddenly. I had experienced no knee trauma or falls. Scabs developed on my scalp along with intense itching, as well as early psoriasis plaques on one forearm. [I have no history of arthritis or psoriasis.] My right leg also began to feel heavy, and I had bilateral upper arm spasms. All this for a mild/moderate case of CD with no bleeding — and no diarrhea? Fed up, I finally built the case with my GI and we agreed to stop the drug, especially given literature that perhaps an autoimmune disease can lessen with advancing age. The last infusion was in Jan. ’21. A scope in Apr. ’21 showed no visible inflammation. Since it takes about six months to fully clear the drug, I’m hopeful to see some of these adverse events resolve. For now, I’m not on any treatment; calprotectin levels are being monitored quarterly. The FDA needs to do 10 or 20-year longitudinal studies for adverse events for those on these horrible biologics!
Lorelei
My husband died from Remicade. We thought that he was doing ok, but a short while after his third IV of it, all of a sudden he got really sick! He told me that he hadn’t urinated since the day before, and had a weird feeling in his arm so we rushed him to the hospital. Even the hospital couldn’t figure out what was happening to him. It wasn’t a heart attack, his organs were failing. They said that he was in such bad shape that he couldn’t be taken to a hospital in Seattle by ambulance, he was going to have to be airlifted. We stayed at that hospital for days, then a doctor came in to talk to me. He asked when he first had kidney failure, I said that he’s never had that. When did he have lung failure? He’s never had that. What about his heart failure? He’s never had any of that, I don’t understand, how can he have all of that? His body is shutting down, and they said that it was time to let him go. I’ve been with this man for over 40 years, and they said to let him go. I told the doctor that he had gotten 3 Remicade IV’s, could that have caused all of this? He had been fine before that, just had Crohn’s Disease, and he said that that must be it, Remicade does have bad side effects sometimes. He put Remicade on the death certificate. My husband was finally going to retire, and we were both looking forward to being together more. Now I’m heart broken and alone, and I am so sorry that all of the people above me have had to go through so much too. God bless you all.
Myrna
Iam started remicade on may 2020, I am positive to lupus now. Waiting to see what the doctor said.
Debra
I was on remicade for six years and I got breast cancer. In spite of all the tests being clear of lymph nodes and low grade cancer, during surgery it was discovered the cancer completely invaded my lymph system. It shouldn’t have done that and only because of remicade it made it a hundred times worse.
Kim
Was on Remicade for 6 years and had sinus surgery done because of it. Then I built up antibodies against it and have been on Stelara. At the same time I was on Remicade I was taking Ranitidine for stomach acid issues but stopped it and took Famotidine instead after a short trial of regular antacids that did not do the job. At the time I started Famotidine I was on Stelara for the Crohns. Well, now I have cancer in my neck and at the back of my mouth. All I can say, is be proactive and take your health into your own hands because doctors don’t always watch what they are doing. Yes, I did smoke but quit in 2008 and I did drink but quit in 2004 but the doctors all want to pin my cancer to the smoking and drinking. I don’t think so!!!!
Kathleen
I have been taking Remicade since mid 2000’s. I have been experiencing brain fog, general weakness, anxiety and now learned after I went to the emergency room this lasts July for a Crohn’s flare up that there is a node on my lung According to the records it has been there since 2015 but now in 2019 I am aware of it. A specialist I was referred to advised me it is histoplamosis caused by the Remicade. I am waiting to have a bronchoscope to help determine what treatment would be best for me.
Raelene
I was out of Remicade infusions and also give 15mg of Triximac back in 2017/2018 for treatment of Chronic Crohn’s disease. Then in 20july 2018 I was diagnosed with APL Leukaemia.
Dhari
I was given Remicade against the recommendation of a Mayo Clinic doctor in 2017. After the second infusion, I developed Lupus Markers and contracted full blown Psoriasis which ended my competitive career as a Dancesport athlete. I lost my ability to work, earn a living, perform and compete as I’ve only ever wanted to do from the time I was a little girl. I couldn’t wear clothes, shower, go out in the sun, keep up my training as a dancer because sweat and clothing would cause my skin to come off in bloody patches and leave me in horrible agony. I have had three trips to the ER for various infections- I have to carry an Epi- Pen around all the time in case I have a reaction to hell knows what because the doctors were unable to tell me what I was reacting so badly to. I was hospitalized for infected (suspicion of sepsis due to injection) Bloody and Open Psoriasis rashes all over my back, chest, arms, neck, face and scalp. I lost a good chunk of my hair. It is still growing back after two years. Not only that, but I was only formally diagnosed with Psoriasis in August of 2017 after being miserable for two months because the Derma clinic wouldn’t see me (due to so called appointment backlog or full schedule or something) despite of a referral from my PA at the time. All of this because of Remicade. this stuff is poison and did away with my life. I now wonder if I will be able to return to University in the Fall on scholarship or be able to teach children to dance. This is awful! I am currently dealing with another Psoriatic rash on my face, neck and eye. I have severe depression and do not want to leave my house when I have a flare of this! This is ridiculous and heartbreaking!
Shirley J
I began remicade infusions in the spring of 2011. I have Ankylosing Spondylitis. I was 62 and had never gone to a rheumatologist about it. I just saw my chiropractor every week and was satisfied with the results. But being retired I wonder if there was something more I could do. THAT WAS THE BIGGEST MISTAKE OF MY LIFE. She started me on Remicade infusions. I trusted her. I should not have. At that time there were warnings sent to dostors about the effects of remicade. A black box listing. She gambled with my life and I lost. I now have Microbacterial Avium. There is no cure. I need to be on 3 antibiotics for the rest of my life. I have no energy, my lungs are being eaten away by the bacteria and I will slowly suffocate. She knew it was dangerous but my best guess is she wanted the pharmaceutical kick back added to her paycheck when she enlists another patient into the Remicade program. Now, in 2018, I sit at home, to tires to ride a bike, go shopping with friends, or even have lunch with them. I dreamed of vacations but now if I went it would be just a series of naps of countries I am too tired to see. I imagine she is touring the world , first class not worried at all about how she ruined my life.
gerald
my dr. put me on REMCCADE for my CROHN’S … after my second injection , I got a infection on my RT.SIDE rib area, starts as a small pimple but opened up to a 1/4 inch wide by 6 inch long , deep enough that DR. STUCK his finger in. if this lawsuit is still open please put me on it … if you need any more information please email me thank you
Crystal
I have been on remecade infustion for over two years until I got antibodies and had to stop. During which time I was on remecade iravenous at the cancer ward for over 6 hours at a time. I became very dizzy, severly nauseas. I have bowel problems. I eat something and it goes right through me. Ulcertive colities. Remecade infusion damages healthy cells and tissues. I have had nausea so severe I had to go to emergency room many times. My eyes were yellish, balck around the eyse. I looked and felt like I was dieing slowly. I got monoelonal antibody.Pain and swelling around the injection site for the IV. I have been deatly ill after taking remecade intravenous, I have been sick 6-7 times a year. It’s horrible. Im sick right now. This drug destroyed my immune system. I have a migraine headache every day, I stomach pain all the time, major nausea. My face flusing and red and constantly runnin a low grade fever 101 plus. Swelling of feet and hand’s. My right eye lost pherifea vision and I could not see colors. I almost lost my right eye sight. I got MRSA, more than once and I am a very clean person. I get confused, and have muscle weakness. I also have irregular heartbeats on medication from my heart doctor. I got a horrible rach over my back arms, . I have a cough and sore throat. NIght sweats. Hard time breathing because I am so prone to bronchitis, also have a vaginal discharge. Remecade infustion has done more damage to me than my disease. I had to stop because I got antibodies. Besides my family told me I looked like I was dying. I was weak had to go to bed for days and rest after each infusion by intravenous. In the cancer ward. Please help me. I deserve a settlement for what I have been through. Thank you in advance for reviewing my case and I will waiting for you to contact me. God Bless
Robert
Had a severe reaction to Remicade and still recuperating from symptoms. Developed severe arthritis joint and muscle pain. Chills, fever, fatigue and confusion that has lasted weeks. Out of breath, gained weight and still have numbness and tingling in my arms from the elbows down. Had to stop working and haven’t yet returned. Remicade has taken months of my life away.
Brian
2015 I was on humira then remicade was tried neither did anything but nearly killed me I never recovered have ankylosing spontilitis and median arculate ligament syndrome a excruciating vascular disease, because I lost my job then forced on disability I cannot get treatment or surgery. Trapped in my trailer because hospital will do nothing but tell me assisted suicide is my only option only if I can pay in cash. Waiting for end to come there is no doubt these drugs caused this and a possible deadly fungal infection I can get no treatment for not even the deadly pain, doctors I saw gave me this medication with a smile was never informed how deadly they are was exposed to deadly large amounts of it was all about these companies and doctors profit off of my death no doubt I have proof now. Can’t do anything but die in most excruciating pain how long can’t even get a answer there but being that I’m trapped unable to move in pain now it’s looking pretty soon.
Karen
I was on remicade from 2000ish to 2008, my Dr stopped doing infusions at his office was what I was told, in 2010 I was fine 1 minute and then every muscle in my body tensed up and I sounded drunk,pouring sweat and it passed as quickly as came? 1 time thing didn’t think about it,2011 I was sitting on my couch the only one awake got my headphones in,my husband popped up out of no where and again I froze so I thought well maybe it’s anxiety,went to a therapist,but beginning 11/2013 the freezingame or seizing muscles has turned from that to falling down out of nowhere, I would be walking around on my knees because I couldn’t stand on my own feet,and muscle jerks everywhere on my body lasting 5 days or more, I’m seeing a neurologist who’s thinks it’s some kind of nueropsychological side effect of remicade? Idk but it’s not moral how because I didn’t know what the damage really was remicade in time for the class action lawsuit against them, what about us?
DiAnn
I was my drs. First remicade patient. In all these yrs, I’ve never been told my remicade could cause lupus…that’s where I am now..I knew something bad was wrong because of symptoms…it’s hard enough learning to live w chrons, fibro, RA, ..and all the other things..but, too have to tell my dr. That I thought I had lupus from the symptoms, and be told that it prolly was because remicade cause lupus..this has taken my life from me …
John
I began Remicade treatments for Psoriatic Arthritis in August 2001. I was diagnosed with Pancreatic Cancer in May of 2003. I survived (just barely) the surgery and continued with Remicade until 2012 when I contracted MRSA. Since then I have made dietary changes that appear to work better than the Remicade. I have been on an anti-fungal diet for five years and have very few symptoms of the arthritis which in 2001 were severe. The big things to avoid are wheat, corn and legumes. I am convinced there was a connection between Remicade and the cancer I suffered from.
Jimmy
I started Remicade when it was first approved by FDA around 2001. There were no camcer warnings at the time. I had Crohns that would not quit. I took it for 10 years. It worked for Crohns. Did have some weird reactions that the doctor blew off. Fever and swelling in nodes near groin. I would take Benadryl or Alegra to stop reactions. In 2007 in was diagnosed with squash cell carcinoma ( tongue cancer). Never smoked or chewed tobacco and was only 35. So rare. Since if had throat cancer and all kinds of issues from surgeries and treatments. I am typing this while waiting on a neurosurgeon ro talk about my lose of movement in my arm and shoulder. Been hell for last few years. My doctor at Hopkins said it was most likely from the Remicade. I didn’t fit the profile to have these re-occuring cancers at ayung age and non tobacco user. So if I could do it again, I would try a different treatment for Crohns. Crohns is no picnic either, but not being able to speak, eat ,smell, lift arm and conic face swelling is much worse.
Kevin
I have crohns since my mid 30s .I’m soon to turn 60 can’t believe I made it this r far! In 1989 I was very sick lost 30pounds constantly in the bath room and sleeping in the warm ,bath tub wrecked my
Amanda
Remicade has destroyed my life. I decided to take it for my psoriasis. I never had a severe reaction to methotrexate and figured I would be okay with Remicade. My liver enzymes were sky high after 4th dose and nobody acted alarmed or gave a crap. It was myself that actually got off it and not my docs telling me. Within in months, I have had hair loss, restless leg syndrome, arthritis, and fibromialga. I am kicking myself because all I had was psoriasis and I’ll take that anyday on top of everything. I feel like my liver is damaged and I pray I can reverse it. Do not try Remicade!! It is not worth the risk! I thought I would be great because I tried the other biologics and meds with no problems! I pray I don’t diefrom this stupid toxic drug! Find a better way! The anti inflammatory diet cleared up my psoriasis! But now, I constantly worry I have screwed my liver and will suffer because of my poor choice and lack of guidance from the medical staff.
Bob
I have sever RA & Osteoarthritis have tried many med’s for the last four year that did not come close to working & a lot of side effects This disease has taken so much away from me.I also had total knee replacement on both knees neck, back & hand surgery due to this disease. They finally started Remicade after four year thank to my insurance company you have to try all the cheap drugs before you get the good stuff. Like I said it took four years I go for my 9th infusion tomorrow this med has done wonders for me. I still have my bad days but not as bad” before then I could hardly get out of bed & I hate life most days I didn’t want to be here anymore but now I fill like doing things that I couldn’t do before Remicade…..Thank you for reading this & God bless
Mark
I was first diagnosed with Crone’s in 1978. Since that time I had 3 major surgeries, and was treated with large and small doses of Prednisone, and a host of other things. The Prednisone did a lot of damage. 2 cataract surgeries, and Glaucoma in the left eye. When Remicade first received FDA approval about 15 years ago I went on it, and have been on it ever since. It was a godsend. I quickly went into remission, and except for the occasional flair up, I have been in remission ever since. Even the flairs are not as bad. Make no mistake, I understand Remicade is potentially dangerous. My Gastroenterologist had me undergo a battery of tests before starting it. He had been treating me since the initial diagnoses was done by a different doctor, so he knows me well. I have had infusions delayed just because I came in with the sniffles. My Gastroenterologist is extremely careful. I have known him for almost 40 years, and he is one of the top doctors in the field. There are many people who are not good candidates for this medication, and it has to be administered correctly. I consider myself fortunate that it has worked well for me. To blindly suggest to people reading this page that they should not take Remicade is doing a disservice. Everybody is different, and the indications and counter indications for this are complex. There are even parts of the US, and the world in which the use of Remicade is not recommended. The key is finding a good Gastroenterologist, and healthcare facility.
Patrice
I was diagnosed with Crohn’s 22 years ago. It spread from my descending colon from throat to rectum over the years. I just had my second loading dose and have experienced no side affects. I have this intuition that Remicade is for me. Total remission, appetite is back and gaining weight and working out with weights & doing cardio. It’s been 13 years of being sick and tired. I’m listening to my gastro doc and I’ll keep you all informed of how it all plays out.
Carrie
I was diagnosed with chrons disease when I was 25 in 2005. I started Remicade that November. The side effects for me was the feeling of being unable a car accident. A hard numbing pain in the back of my neck, I guess it was like arthritis. Which I don’t have but that’s what Remicade was made to treat. I was always given benadryl intravenously with the Remicade. It worked well for two years, I’d get sick a week or so before my next treatment. Well in 2007 I developed diverticulitis I was sick for 3 months before they could find that out. The doctors kept me a month and sent me home to be with my family for Christmas, thinking I was going to die. I went back and a new Dr. Found a tumor in my colon the size of a orange, they operated the next morning. And thankfully found no cancer. Remicade stopped working and probably caused my diverticulitis. I received a colon resection and part of my intestines removed. I have been on Cimiza, Humeria, Asocal, Entyvio, Prednisone etc. Humeria worked but made me lose a lot of my hair, and gave me a mild case of vitiligo that stopped when I stopped taking it. Well back to Remicade I tried to take it again being the thing that helped with no real side effects, so I thought. As soon as I was infused I broke out in hives from head to toe, and I hyperventilating and had to be held and patted. I will never try it again. I hope this helps someone.
Ciara
Crystal, please take your daughter and yourself to see a naturopath….you need to stop the cycle of illnesses that are obviously caused by all of the drugs. It’s a systemic thing that needs treated holistically. God bless
Carrie
I was diagnosed with chrones a couple months ago…but dealing with pain ans suffering from flare up for years first it was ibs…then ibd…then i ended up in the hospital with ulcerative colitis on my death bed…vomiting diahrea.. Massively dehydrated… N then had colanoscopy n was diagnosed with chrones…..i had it so bad…nothin orally was workin so the doc talked to me about remicade so im on my loading doses still i found them to be working but this one he upped and the experience i am havin with headaches dizziness nauseas alot more joint pain…n the sweating im having is all starting to mak me wonder if its working or not…got diahrea bk…n stomach gurgles n slight pain…but i also cant breathe lately… Hard time with dizzyness….and balance and a little confused aswell..so i am goin to call my doctor…
Carrie
I have had 2 loading doses ther called…with my chrones the Remicade seemed to be working but not lasting as long in between doses..so my 3rd loading dose my doctor upped it from 5.0 to 7.5 and alls i can say is from my experience with this iv noticed my breathing is different (harder to breathe)..noticed im more nauseas now..also more headaches…and def. more problems with bodyaches…i have fybro…diagnosed in 2003…and the aches of my arms falling asleep n feet falling asleep in greater now..also have developed a boil….in which ive never had one a day in my life…now that i am reading these i am thinking it is caused from the infusion…also having issues with my sinuses n teeth….not sure if ill get any more treatments.
Sarah
My life will never be the same, after Remicade. After my first infusion, I was doing pretty well. I went back for the second dose, and developed major problems. I had disseminated histoplasmosis, then in the hospital, I had Hemophagocytic syndrome, e-coli, a staph, and strep infection. It has been two years and I continue to struggle with health issues from it. The histoplasmosis is still at a positive number, and I will need to be on treatment for the rest of my life. I strongly suggest that anyone considering this drug be informed that the serious side affects may be posted as rare, but truthfully, we don’t know for sure how many cases go unreported each and every year.
liv
after one year of being on remicade for Crohns , I lost all my hair after the last infusion. Now been diagnosed with alopecia universalis and severly disfigured and deformed.
Judy
My son was diagnosed with rheumatoid arthritis when he was 50 yrs. old and was put on Remicade. After 5 years he is dying of cancer from taking this medication every 6 weeks. There is a black box warning so please take heed and weigh whether it is worth the chance. No one thinks it will happen to them but is it worth it? My husbands first wife had RA and the medications (not Remicade) caused her death many years ago. RA is a terrible disease and the meds have to be so strong to combat it. Please be cautious. It is heartbreaking to watch my precious son lose this battle.
Rose
Treated with Remicade for Rheumatoid Arthritis for 7 to 8 Years. I now have Congested Heart Failure and Asthma. I changed Doctors and was diagnosed with Osteoarthritis. Today I visit the ER every 6 to 8 weeks.
Phillis
My heart goes out to all who have suffered ill effects from Remicade. I’ve been on this therapy for over 20 years, I am 64 years young, I’ve had both knees replaced and will soon have my right hip replaced. I thank GOD every day for being on Remicade for my RA. It has suppressed the damage to joints although my right wrist is “frozen”. Reading some of these comments not only scares me but breaks my heart. I want to and will continue with Remicade injections — it seems to work for me. I make sure I get my blood draws every two months, PPD shots and every other measure taken to try to insure the best health possible. I don’t watch what I eat but know I would probably feel better if I did — and loose some weight. I did have a very bad cold recently but attributed that to being in the company (church) of folks who wanted to shake hands and kiss. I try to limit that and always keep antibacterial with me. Anyway I’ll continue with Remicade and keep my prayers out to all of you — and myself. I know this drug has plenty of side effects but I think it’s a good drug. I just wish it didn’t cost so much — and by the way the price is continuing to go up!
k.t
Took remicade for crohn’s for 3 years, in sommer 2015 I was diagnosed with histopladmosis. Is there any glas act lawsuit against johnson and johnson.
Mary
My condolences to those who have lost a family member or who are suffering the effects of a very dangerous drug. In 2000 my rhuematologist told me there was nothing more he could do for my r/a. My prognosis was to be totally bedridden. Days later he told me of this new drug….Remicade. I was hesitant due to the side effects. But I had 2 choices: be bedridden and in severe pain and a burden on my family or take Remicade and try and get a few good years out of it. I have been on it for 16 years and am so grateful to my doctor for his advice. I am now 75 and feel I can go now should God call me. I have lived my life. Hopefully I can get a few more years….who knows. Love and prayers to you all.
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