Remicade Lawsuits

The arthritis drug Remicade has been linked to a number of serious and potentially life threatening injuries. In September 2008, stronger warnings were added about an increased risk of invasive fungal infections.

STATUS OF REMICADE LAWSUITS: Lawyers are evaluating research surrounding the potential safety concerns involving cancer and Remicade, as well as potential cases for individuals who developed fungal infections.

MANUFACTURER: Centocor and Johnson & Johnson

OVERVIEW: Remicade (infliximab) is an autoimmune disorder drug known as a Tumor Necrosis Factor (TNF) Blocker. It is approved by the FDA for treatment of psoriasis, Crohn’s disease, ankylosing spondylitis, psoriatic arthritis, rheumatoid arthritis and ulcerative colitis.

It was the first TNF antagonist available in the United States, and has been used by more patients world-wide than the other medications in the same class, Enbrel and Humira, combined. It is a blockbuster drug for the pharmaceutical giant, Johnson & Johnson.

REMICADE CANCER SIDE EFFECTS: In 2004, a warning letter was sent to healthcare professionals indicating that Remicade had been associated with more cases of lymphoma among patients receiving the drug. A study published in the May 17, 2006 issue of the Journal of the American Medical Association (JAMA) found that Remicade side effects could triple the risk of developing cancer.

In June 2008, the FDA released an early communication about an ongoing safety review involving Remicade and a possible association with the development of lymphoma and other cancers among children and young adults and a Remicade black box cancer warning was added in August 2009.

At least 30 reports of childhood cancer were received by the FDA involving the use of TNF blockers. Other medications indicated in this early communication were Humira and Enbrel.

According to Johnson & Johnson, among children taking Remicade, most of the reports of juvenile cancer involved those treated for the bowel disorder Crohn’s disease. Approximately half of the cancers seen in all children and young adults taking TNF blockers were lymphomas, including both Hodgkin’s and non-Hodgkin’s lymphoma, which is a cancer of cells in the immune system. Lymphoma is not a recognized complication of JIA (Juvenile Idiopathic Arthritis) or of Crohn’s disease. Other cancers reported included leukemia, melanoma and solid organ cancers.

REMICADE FUNGAL INFECTIONS: A number of users who were receiving TNF blockers, such as Remicade, have experienced fungal infections, such as histoplasmosis, blastomycosis and cocciioidmycosis. In several of these cases the infection resulted in death.

In September 2008, the FDA issued an alert to healthcare providers to provide new information about the risk of Remicade fungal infections. At that time the agency also indicated that new information will be added to the Remicade black box warning to ensure that doctors and consumers are aware of the risk, especially for those who live in or visit areas where fungus is prevalent.

Unfortunately, many cases of fungal infections from Remicade go undiagnosed by doctors, since the symptoms are similar to the flu. Symptoms could include cough, fever, fatigue, loss of weight, sweating and shortness of breath.

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  1. Alison Reply

    My sister has been on Remicade for over two years and now is breast feeding her son. She was told it is safe. Can anyone tell me what you have been told about breast feeding while on this drug or your experience? Her son has severe food allergies and eczema. Thank you!

  2. Jackie Reply

    My husband has RA and about two years ago they talked us into him being infused with this drug. He took the infusion and immediately went into aliphatic shock. He now is unable to eat without being nauseated, has bad headaches, times when he has hives that cover his body and is very weak. This was after his first and only treatment. All I could think of that day as I drove to meet the ambulance at the hospital was I was going to loose him that day. Now from that infusion he not only suffers from his RA but also all the above.

  3. carolyn Reply

    I’ve been on Remicade for about 10 years now. In the last 3 years i noticed that i got seasonal allergies and trouble breathing. I’ve been given inhalers or breathing treatments and it seemed to help. However in the last yesr i accidentally found out i have pulmonary nodules. Alot of them in both lungs. They are not sure as of yet the cause but could be a secondary infection due to remicade. I am now questioning whether i should go off it. Its helped my chrohns so much though..

  4. Dorothy Reply

    My husband died dec 31 2012 he was on remicade I know the remicade killed him.We were married ickifor 48 years Imiss him so much my life will never be the same.He had so many of the sideffects from remicade.He did not desere to die like he did.He was so sick couldnot breath his lungs was full of a fungal infection.I need a lawyer to help me prove that Remicade killed him.He started on Remicade in 2003 till 2012 we were never told about the BLACK BOX WARNINGS.Who was suppose to tell us?Please don’t take Remicade.

  5. Deb Reply

    My mom had leukoplakia on her tongue and had been followed for 15 years by an ENT doctor. She also suffered from rheumatoid arthritis. Both her ENT doctor and her arthritus doctor felt that it was safe for her to take Remicade infusions. She developed squamas cell carcinoma on her tongue and endured 2 horrific surgeries, radiation, tracheotomy and a feeding tube. She was never able to eat normally again, and succumbed to the cancer on May 11th, 2013, 11 months after the cancer was first diagnosed. The pain and suffering she went through was beyond words.

  6. kim Reply

    I\\\\\\\\\\\\\\\’m sick of reading all these cases and what is being done. I was on it for two years and was told everything would be ok. But Aug. 1 2012 I was kicked, and a small Bruse opened up like a hot dog and my whole leg flesh eating diseases. died,induses coma, woke up to the whole front of my thigh missing. In bed for months rehab and monthly visits to hospital. After a year and a half still not ok.

  7. Carmen Reply

    I have been on REMICADE for 15 years now and it has done wonders for me. to anyone that is scarred know that these risks are there but they really aren’t that common. If you look at the percentage of people who develop cancer while using remicade it is about 1-2%. which really is small. I am sorry to all of you that had to be apart of the 1-2% but in reality the drug doen’t cause cancer it only can progress a predisposition which is unfortunate.
    The other thing I might note is that if Remicade can prevent the use of corticosteroids your risk for side effects is greatly reduced! more than that of the use of remicade.
    I am PRO REMICADE 100%

  8. Jackie Reply

    You are foolish to believe that the percentages reported for developing cancers, other complications or deaths from Remicade or any other drug is accurate. Most deaths by prescription drugs go unreported as many doctors don’t report a connection with the drug. The reality is that drug companies and doctors have a vested interest in not alarming you.
    The loss of our mother from cancer was due to Remicade. It has been stated by many of her doctors and specialists in the field that they believe it was a direct result of Remicade. Undeniable. However, I know that her cause of death was not reported as such.

  9. Kevin Reply

    I was put on Remicade and had 3 infusions. Right before my fourth infusion, I came down with flu like symptons. It was discovered that I had Histplasmosis. I was air lifted to a regional trauma center where I spent the next 5 weeks in their ICU. My wife was told by doctors that it didn’t look good that I would make it. I was put on continuous dialysis for three weeks after my liver and kidneys shut down.
    I also had to have a tract put in. In addition, my heart went into AFIB, so I had to be shocked to get it back in rhythm. I was transferred back to my local hospital for 4 weeks while trying to recover. I caution anyone about trying remicade, especially if they live in the OHIO Valey region.

  10. Brian Reply

    I feel Remicade caused my mother to get brain cancer and die at age 67. Mom started Remicade in 2002 and had injections every 8 weeks for 5 years for arthritis treatment. She was diagnosed with GBM Brain Cancer, had 5 surgeries, radiation, chemo, and died 6 months later. My family blames the Remicade.

  11. Bukhtiar Reply

    I was given Remicade on October 4th 2013 and the second dose was given to me on October 18th 2013 for the ulercertive colitis to control the diahria flariaton. I started to have headaches vomiting and tremors and I can’t get rid of it

  12. Tina Reply

    I have crohns disease since I was 9. Removed a foot and half when I was 37. Been in remission since 1997. The past 3 months I have been to the ER 3times. Diagnosed with crohns….its back. I have heard of remicaid only thru my aunt who had Arthritis. I went to visit my new crohns doctor, did colonoscopy. Inflamed and returned. He suggested remicaid so I took my 1st treatment in may. No immediate side effects. However I did have a bad tooth where I had broke it in half eating due to a cavity. Within 5 days… INTENSE PAIN!!!! Took amoxicillin for 7days before the dentist could pull it. Extremely painful before and after. Please fix anything before taking remicaid. I called the office and cancelled any further treatments. I will manage my diet and pray. Any feedback greatly appreciated.

  13. Cristina Reply

    I had Crohn’s for 45 years and decided to use Remicade because any other medication worked for me. Since I received the first Remicade infusion, I start suffering for terrible sinuses headaches and allergies to this day and this with only three infusions. This had been bad but is not comparable to the peripheral neuropathy I am suffering now. I do not feel my extremities and from being very active I am now very limited. I have fallen 5 times and the nerve pain is not fun. I decided to have surgery instead of Remicade even though my GI insisted my symptoms were not related to the infusions. My life is miserable to say the least but I decided to live with the pain and not use any other medication and definitely never again another sugary. My advice:
    No Remicade
    No other medication
    No sugar
    No wheat
    No gluten
    No processed food
    No bread, no nuts, no vegetable only natural juices that I make myself
    No fruits specially apples
    I know…life is not worth living this way and finding what to eat is not always easy.
    Good luck and remember NO REMICADE

  14. Nancy Reply

    My son was on Remicade and then Humira for Crohn’s from July 2009 to June 2012. He passed away from metastatic colon cancer 10/21/2014. He had a complete colostomoy of the large intestine and rectum in Sept 2012. He carried a bag attached to his small intestine ostomy. All medications were discontinued. But it was too late. He had stage II cancer in his colon at the time of his surgery they thought they caught it. Not so it metastasized after the surgery to his liver and the lymphnode on the bottom of his stomach. This surgery should have been done in 2009 rather than him taking these toxic medications!!!

    Can I prove the Remicade and Humira gave him cancer and later a lung issue. No I can’t but based on his long term issues and the timing I believe it did. He had intestinal problems from the age of 13. Treated with low dose prednisone and immodium until he was 18 with no complications. It wasn’t perfect but he could function. He had no treatment from 18 to 21 except immodium due to no insurance. There was no cancer.

    He was diagnosed with PSC 6 months after he started Remicade in June 2009. He also suddenly had serious bone problems. But he continued the remicade because he could live without a bathroom ruling his life. It was a bad choice but he wasn’t fully informed of the potential consequences.


    May my wonderful son now rest peacefully.

  15. Keff Reply

    I was under the impression that remicaid was a treatment that would cure me after a few treatments. I have RA with psoriasis which is a result from peg interferon treatments. Every time I have remicaid treatment I have headaches and feel like I have the flu..I am on disability which pays less than I’m able to live with..It doesn’t make much sense for me to continue to live like this. There has to be a better way.

  16. Cathy Reply

    Its possible I’ve posted a comment before but is there an attorney out there in the Bergen county area who is willing to sit down with me about my experience with Remicade. I have a big issue with the doctor who knew the side effects of Remicade and said nothing and once the damage was done she took off like a speeding bullet!

  17. Dave Reply

    My wife was on Remicade for several years. In September of 2014 she was diagnosed with Acute Myeloid Leukemia. There is absolutely no history of Leukemia in her family. The type she has is MLL and it is extremely high risk. We will go to Stem Cell Transplant in March to basically save her life. She has had a myriad of other issues while we go through treatment including heart failure, renal failure, liver failure, two strokes, and a fungal infection in her lungs which the doctors are still trying to figure out. She will face GVHD for the remainder of her years if the Stem Cell Transplant is a success, not to mention the residual affects of her strokes and the infection the doctors still cant identify past it is fungal. I want to pursue legal action but do not know where to start. We need a good National lawyer if anyone can recommend one.

  18. Lori Reply

    Remicade is an amazing drug. I was psoriasis free for the first time in 30 years. The drug is so awesome it caused disseminated Histoplasmosis (in my brain, bone marrow, pancreas…). I experienced kidney and liver failure. I almost died. My immune system was shot. I contracted Cdiff and became septic. I almost died. My appendix ruptured. I almost died. I needed a picc line for IV antibiotics. I got a pulmonary embolism from the picc line. I almost died. My pancreatitis has caused me to become diabetic. I haven’t worked for 2 1/2 years because I am constantly at the doctor’s office or hospital. My life is forever changed from this drug. I know I signed a consent form to take the drug, but I didn’t know I was signing my life away.

  19. Deb Reply

    Dont waste your time searching for a lawyer. I tried for 1 1/2 years and now we are close to the statue of limitations to file a lawsuit. My mom died from remicade too. She had a history of leukoplakia on her tongue but once she began a high dose of remicade for psoriatic arthritis it exploded into oral cancer. She endured 2 horrific surgeries, a trach, feeding tube, radiation, etc, etc. I took care of her till the end and still have nightmares about all she went through. Granted, she did sign the consent to get Remicade infusions, but her doctors should never have allowed her to take it with her history of leukoplakia. If you are on the fence about taking this powerful immunosuppressant, think hard about the possible consequences. By the way, Remicade did cure her psoriatic arthritis.

  20. Nikki Reply

    I was on Remicade for about 5 years for Crohn’s Disease and everything seemed to be ok for a while. My last infusion, however, left me with drug induced lupus. That was about a year and a half ago and my rheumatologist has told me that the drug induced lupus should have been gone now and I am now looking at permanent lupus from it. I saw him again earlier this week and now it looks like I am going to have psoriatic arthritis on top of that as well. I’ve read that Remicade is used to treat psoriatic arthritis AND I recently learned it can also cause it. At this point, I don’t know yet if this arthritis is caused by Remicade or not, but I’m fearful of whatever else could show up in my future health as a result of having taking it. I developed some neurological issues about a year ago or so, and had an MRI done to rule out MS, which can also be caused by Remicade. I don’t have MS, thank goodness! Before going on Remicade, please, please consider the risks! I did get one severe infection while I was on Remicade which landed me in the hospital for about 4 days–I recovered from it, however, thank goodness!!!

  21. Cathy Reply

    All the warnings about Remicade are true and I can’t seem to find an attorney to take my case. The doctors should be held responsible for their negligence when treating a patient with Remicade.

  22. Deb H Reply

    my husband was on remicade for7years. He contracted a Microbacterium avium complex bacteria in his joints which led to osteomyelitis in the bones. Over the last two years he has had surgery 20+ times he also had his lower left leg amputated. I think the FDA and courts have given the drug maker the ok to kill people. We try these drugs because we trust our DRS. Don’t take them read about them first and beware if your over 60…..

  23. Jenny Reply

    Hi there,
    I had been on remicade for 2 years for my crohns, after this time I was told that my scar tissue of my lower bowel had doubled in size and I’d need surgery to remove it and I came off of the treatment after about 8 weeks I started to get servers joint pain from my neck all the way down to my toes, I couldn’t walk. I’m 29 years old and I’m a single parent to a 8 year old girl who has started to become my carer it’s one of the hardest things I’ve gone through. I should b looking after her so I’ve packed up our home and moved back to my parents so we can both be looked after but what is like to know is has anyone else developed arthritis after having this treatment as I have never had this in the whole of my 12 years of living with crohns.

  24. Les Reply

    I was diagnosed with Ulcerative Colitis on October 4, 2013. My GI suggested that I go on REMICADE and started the infusions in December 2013. I was on the infusions until December 2014, when GI stopped them after blood work showed that the REMICADE wasn’t working. Instead it was producing anti-bodies that caused microscopic blood clots. In February 2015, I was taken to the hospital three days in a row, doctors said it was frostbite. Doctors didn’t know what to do. Middle of February, I was taken to Hamilton General for a month and a half. So many doctors looked at my hands and feet which by this time had gone necrotic. They didn’t know anything either. Then I was sent home again with hands and feet bandaged. Had VON coming every day to change dressings. On July 16 2015, I had both legs and 6 fingers amputated. My GI admitted twice that the REMICADE caused my problems but won’t put it in writing. Has anyone else lost limbs due to REMICADE?

  25. Crystal Reply

    I was just curious if c-deficile was part of that fungal list. 3 years ago I caught a nasty sinus infection that ended with cdef. I had a minor heart attack because of the stress my body was under. I thought I was dieing. Now I suffer anxiety attacks when ever I get sick.

  26. Cathy Reply

    This is my 3rd comment on Remicade. Not one lawyer will take my case but they all have the same line, my case is not without merit. That’s great but where are all these attys who say they’ll go after doctors who are negligent when it comes to remicade. I suppose if I want to get anywhere to prove my case I’ll have to go as far as I can, and hope there’s some place where Im taken seriously.

  27. Laura Reply

    I have been on remicade for 10 years now. Remicade has made it possible for me to leave my house everyday. I have been through nursing school, coached baseball, soccer, and basketball with my 6 year old son. It has given me a life. I cannot express in words how thankful I am for the research and for my Dr. suggesting this medication! It has been life changing. I am in complete remission. I have had colonoscopies that show absolutely no signs of Crohn’s Disease. This is HUGE compared to not being able to eat a saltine cracker or drink a sip of water before running to the bathroom!! Remicade has given me my life back… even for a few years… even if I develop cancer. I am thankful for this time with my son and the ability to go to school and continue my education so that I can help make a difference in the lives of my patients.

  28. Anne Marie Reply

    A lawyer will not take the case because you cannot sue a drug company once a drug is approved by the FDA. Thus, it makes it difficult to sue a doctor for prescribing the drug. I was on three doses of remicade and had issues. Recently I went onVedolizumab the new Crohn’s drug and it caused two Stroke Like Episodes and two seizures. I have seen 7 neurologist at a Prominent University Hospital and they think the drug gave me chemical meningitis. I have seen the dark side twice now with a bio logic. I am not going to eat any processed foods. I only hope I get my life back. Now on two seziure drugs and hope I can get my life back…

  29. Lorri Reply

    My daughter with neurosarcoidosis has had two remicad infusions, while getting the infusions, her neck tightens and has a different breathing feeling. A week after the second treatment, she quickly got dizzy with tingling in front of brain and pressure in back and now has double vision. Anyone out there having the same issues. Thank you.

  30. LaTisha Reply

    Nancy how old was your son when he passed?

  31. Crystal Reply

    I am 30 I have been on Remicade for 7 years now
    list of systems:

    Low-grade daily fevers for over a year

    Cold hands and feet, loss of ability to maintain body temperature

    Monthly abscesses on multiple parts of body requiring antibiotics

    Immune system unable to heal sprang or other injuries without steroids 1 to month healing process

    Wide spread nerve pain labeled fibromyalgia

    frequent falls resulting in hitting my head

    severe muscle weakness in upper extermines

    severe daily fatigue

    pain in hands back, legs, neck

    asthma returned after 20 years

    constant low red blood cell count

    protein in urine although diabetes is under control

    large amounts of white blood cells found in all exams when no infection is present

    I have a child that is now 6 and has immune issues fighting bacteria too. She received the start up session while in the first trimester and continued the treatments during her entire pregnancy. I was told by my doctor Allen Peck who reports to Remicade that it was completely safe and that if I stopped treatment I would risk losing her or myself due to the state of my Crohn’s disease I breastfeed her after my doctor told me it was, but stopped when the nurse at the infusion center brought me paperwork that read it would be in my breast milk too.
    She has had constant bacterial infections including, throat, ear, eye, foot. She needs steroids after all infections. Infections start with one and go to 3-4 bacterial infections in a 3 day period. When she got the FLU it turned to pneumonia which was the 4th time for her. She has also had strep that turned to scarlet fever 4 times.

    List of my diagnoses
    Chronis disease – 12
    Fibromyalgia – age 25 right after starting treatment
    Diabetes – 15 diet controlled for 8yrs
    Restless leg syndrome- age 29
    epilepsy- age 19
    IBS with constipation- 17
    Cronic headaches- 30
    Asthma- childhood reoccurring at 30

  32. Helen Reply

    I had two remicade treatments. I was allergic to the medication so the infusion was stopped, years later I went near complete liver failure. The crohns doctor I was seeing failed to tell me my liver enzymes were high and my liver was damaged. I sought out a second opinion at U of M and was told I had autoimmune hepatitis and it just did not occur over night. I was told by many lawyers the doctor was no neglectful in caring for me, I was never told remicade can cause liver damage or failure. My liver has a hepticellular appearance with cirrhosis. I never consumed alcohol. I take tacrolimus for the rest of my life to help control liver enzymes. Still not sure if a liver transplant will be needed. All I hear is statues ran out, and the point of discovery was 6 months after I sought out a second opinion. U of M had to run all kinds of test quickly. I have endured 2 liver biopsies thus far, plenty ultrasound. Weekly to bi weekly blood draws. I suffer greatly from this liver issue.

  33. Terri Reply

    Hi I started remicade in 11/2015 I had reactions after each treatment but not for days. After infusion #3 started throwing up so bad and sever headaches like the top of brain was on fire. I had bone and muscle pain. The horrible chest pain was the worst 3 trips to ER and many doctor appointments along with 2 MRI and XRAY of leg and ultrasound. Doctor told me he would make sure to give me extra meds to help not have a reaction because I did not one another treatment of remicade. He did not think I had a reaction of the drug, So as soon as the infusion started I turned red had head pain and chest pain throwing up. The infusion was stopped but I am steel sick from it. I was never given any warnings. I should have been put into the hospital.

  34. Mary Reply

    My condolences to those who have lost a family member or who are suffering the effects of a very dangerous drug. In 2000 my rhuematologist told me there was nothing more he could do for my r/a. My prognosis was to be totally bedridden. Days later he told me of this new drug….Remicade. I was hesitant due to the side effects. But I had 2 choices: be bedridden and in severe pain and a burden on my family or take Remicade and try and get a few good years out of it. I have been on it for 16 years and am so grateful to my doctor for his advice. I am now 75 and feel I can go now should God call me. I have lived my life. Hopefully I can get a few more years….who knows. Love and prayers to you all.

  35. k.t Reply

    Took remicade for crohn’s for 3 years, in sommer 2015 I was diagnosed with histopladmosis. Is there any glas act lawsuit against johnson and johnson.

  36. Phillis Reply

    My heart goes out to all who have suffered ill effects from Remicade. I’ve been on this therapy for over 20 years, I am 64 years young, I’ve had both knees replaced and will soon have my right hip replaced. I thank GOD every day for being on Remicade for my RA. It has suppressed the damage to joints although my right wrist is “frozen”. Reading some of these comments not only scares me but breaks my heart. I want to and will continue with Remicade injections — it seems to work for me. I make sure I get my blood draws every two months, PPD shots and every other measure taken to try to insure the best health possible. I don’t watch what I eat but know I would probably feel better if I did — and loose some weight. I did have a very bad cold recently but attributed that to being in the company (church) of folks who wanted to shake hands and kiss. I try to limit that and always keep antibacterial with me. Anyway I’ll continue with Remicade and keep my prayers out to all of you — and myself. I know this drug has plenty of side effects but I think it’s a good drug. I just wish it didn’t cost so much — and by the way the price is continuing to go up!

  37. Rose Reply

    Treated with Remicade for Rheumatoid Arthritis for 7 to 8 Years. I now have Congested Heart Failure and Asthma. I changed Doctors and was diagnosed with Osteoarthritis. Today I visit the ER every 6 to 8 weeks.

  38. Judy Reply

    My son was diagnosed with rheumatoid arthritis when he was 50 yrs. old and was put on Remicade. After 5 years he is dying of cancer from taking this medication every 6 weeks. There is a black box warning so please take heed and weigh whether it is worth the chance. No one thinks it will happen to them but is it worth it? My husbands first wife had RA and the medications (not Remicade) caused her death many years ago. RA is a terrible disease and the meds have to be so strong to combat it. Please be cautious. It is heartbreaking to watch my precious son lose this battle.

  39. liv Reply

    after one year of being on remicade for Crohns , I lost all my hair after the last infusion. Now been diagnosed with alopecia universalis and severly disfigured and deformed.

  40. Sarah Reply

    My life will never be the same, after Remicade. After my first infusion, I was doing pretty well. I went back for the second dose, and developed major problems. I had disseminated histoplasmosis, then in the hospital, I had Hemophagocytic syndrome, e-coli, a staph, and strep infection. It has been two years and I continue to struggle with health issues from it. The histoplasmosis is still at a positive number, and I will need to be on treatment for the rest of my life. I strongly suggest that anyone considering this drug be informed that the serious side affects may be posted as rare, but truthfully, we don’t know for sure how many cases go unreported each and every year.

  41. Carrie Reply

    I have had 2 loading doses ther called…with my chrones the Remicade seemed to be working but not lasting as long in between my 3rd loading dose my doctor upped it from 5.0 to 7.5 and alls i can say is from my experience with this iv noticed my breathing is different (harder to breathe)..noticed im more nauseas now..also more headaches…and def. more problems with bodyaches…i have fybro…diagnosed in 2003…and the aches of my arms falling asleep n feet falling asleep in greater now..also have developed a boil….in which ive never had one a day in my life…now that i am reading these i am thinking it is caused from the infusion…also having issues with my sinuses n teeth….not sure if ill get any more treatments.

  42. Carrie Reply

    I was diagnosed with chrones a couple months ago…but dealing with pain ans suffering from flare up for years first it was ibs…then ibd…then i ended up in the hospital with ulcerative colitis on my death bed…vomiting diahrea.. Massively dehydrated… N then had colanoscopy n was diagnosed with chrones…..i had it so bad…nothin orally was workin so the doc talked to me about remicade so im on my loading doses still i found them to be working but this one he upped and the experience i am havin with headaches dizziness nauseas alot more joint pain…n the sweating im having is all starting to mak me wonder if its working or not…got diahrea bk…n stomach gurgles n slight pain…but i also cant breathe lately… Hard time with dizzyness….and balance and a little confused i am goin to call my doctor…

  43. Ciara Reply

    Crystal, please take your daughter and yourself to see a naturopath….you need to stop the cycle of illnesses that are obviously caused by all of the drugs. It’s a systemic thing that needs treated holistically. God bless

  44. Carrie Reply

    I was diagnosed with chrons disease when I was 25 in 2005. I started Remicade that November. The side effects for me was the feeling of being unable a car accident. A hard numbing pain in the back of my neck, I guess it was like arthritis. Which I don’t have but that’s what Remicade was made to treat. I was always given benadryl intravenously with the Remicade. It worked well for two years, I’d get sick a week or so before my next treatment. Well in 2007 I developed diverticulitis I was sick for 3 months before they could find that out. The doctors kept me a month and sent me home to be with my family for Christmas, thinking I was going to die. I went back and a new Dr. Found a tumor in my colon the size of a orange, they operated the next morning. And thankfully found no cancer. Remicade stopped working and probably caused my diverticulitis. I received a colon resection and part of my intestines removed. I have been on Cimiza, Humeria, Asocal, Entyvio, Prednisone etc. Humeria worked but made me lose a lot of my hair, and gave me a mild case of vitiligo that stopped when I stopped taking it. Well back to Remicade I tried to take it again being the thing that helped with no real side effects, so I thought. As soon as I was infused I broke out in hives from head to toe, and I hyperventilating and had to be held and patted. I will never try it again. I hope this helps someone.

  45. Patrice Reply

    I was diagnosed with Crohn’s 22 years ago. It spread from my descending colon from throat to rectum over the years. I just had my second loading dose and have experienced no side affects. I have this intuition that Remicade is for me. Total remission, appetite is back and gaining weight and working out with weights & doing cardio. It’s been 13 years of being sick and tired. I’m listening to my gastro doc and I’ll keep you all informed of how it all plays out.

  46. Mark Reply

    I was first diagnosed with Crone’s in 1978. Since that time I had 3 major surgeries, and was treated with large and small doses of Prednisone, and a host of other things. The Prednisone did a lot of damage. 2 cataract surgeries, and Glaucoma in the left eye. When Remicade first received FDA approval about 15 years ago I went on it, and have been on it ever since. It was a godsend. I quickly went into remission, and except for the occasional flair up, I have been in remission ever since. Even the flairs are not as bad.
    Make no mistake, I understand Remicade is potentially dangerous. My Gastroenterologist had me undergo a battery of tests before starting it. He had been treating me since the initial diagnoses was done by a different doctor, so he knows me well. I have had infusions delayed just because I came in with the sniffles. My Gastroenterologist is extremely careful. I have known him for almost 40 years, and he is one of the top doctors in the field. There are many people who are not good candidates for this medication, and it has to be administered correctly. I consider myself fortunate that it has worked well for me.
    To blindly suggest to people reading this page that they should not take Remicade is doing a disservice. Everybody is different, and the indications and counter indications for this are complex. There are even parts of the US, and the world in which the use of Remicade is not recommended. The key is finding a good Gastroenterologist, and healthcare facility.

  47. Bob Reply

    I have sever RA & Osteoarthritis have tried many med’s for the last four year that did not come close to working & a lot of side effects This disease has taken so much away from me.I also had total knee replacement on both knees neck, back & hand surgery due to this disease. They finally started Remicade after four year thank to my insurance company you have to try all the cheap drugs before you get the good stuff. Like I said it took four years I go for my 9th infusion tomorrow this med has done wonders for me. I still have my bad days but not as bad” before then I could hardly get out of bed & I hate life most days I didn’t want to be here anymore but now I fill like doing things that I couldn’t do before Remicade…..Thank you for reading this & God bless

  48. Amanda Reply

    Remicade has destroyed my life. I decided to take it for my psoriasis. I never had a severe reaction to methotrexate and figured I would be okay with Remicade. My liver enzymes were sky high after 4th dose and nobody acted alarmed or gave a crap. It was myself that actually got off it and not my docs telling me. Within in months, I have had hair loss, restless leg syndrome, arthritis, and fibromialga. I am kicking myself because all I had was psoriasis and I’ll take that anyday on top of everything. I feel like my liver is damaged and I pray I can reverse it. Do not try Remicade!! It is not worth the risk! I thought I would be great because I tried the other biologics and meds with no problems! I pray I don’t diefrom this stupid toxic drug! Find a better way! The anti inflammatory diet cleared up my psoriasis! But now, I constantly worry I have screwed my liver and will suffer because of my poor choice and lack of guidance from the medical staff.

  49. Kevin Reply

    I have crohns since my mid 30s .I’m soon to turn 60 can’t believe I made it this r far! In 1989 I was very sick lost 30pounds constantly in the bath room and sleeping in the warm ,bath tub wrecked my

  50. Jimmy Reply

    I started Remicade when it was first approved by FDA around 2001. There were no camcer warnings at the time. I had Crohns that would not quit. I took it for 10 years. It worked for Crohns. Did have some weird reactions that the doctor blew off. Fever and swelling in nodes near groin. I would take Benadryl or Alegra to stop reactions. In 2007 in was diagnosed with squash cell carcinoma ( tongue cancer). Never smoked or chewed tobacco and was only 35. So rare. Since if had throat cancer and all kinds of issues from surgeries and treatments. I am typing this while waiting on a neurosurgeon ro talk about my lose of movement in my arm and shoulder. Been hell for last few years. My doctor at Hopkins said it was most likely from the Remicade. I didn’t fit the profile to have these re-occuring cancers at ayung age and non tobacco user. So if I could do it again, I would try a different treatment for Crohns. Crohns is no picnic either, but not being able to speak, eat ,smell, lift arm and conic face swelling is much worse.

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