Mirena IUD Lawsuits

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Published: September 1st, 2010
The Mirena IUD (Intrauterine Device) is a form of birth control that is placed into the uterus to prevent pregnancy. However, side effects of Mirena have been associated with a number of serious injuries. Users have reported experiencing problems with Mirena perforation or puncturing the uterus, migration of the device to other parts of the body and infections that may result in scarring that diminishes fertility or the ability to conceive.
MIRENA LAWSUIT STATUS: The potential for litigation is being reviewed and evaluated by Mirena IUD lawyers on behalf of women who may have suffered severe and permanent injuries or complications from Mirena IUD that may have been prevented if the manufacturer had properly researched the product and warned about the potential risks.
>>SUBMIT INFO ABOUT A MIRENA IUD LAWSUIT FOR REVIEW<<
MANUFACTURER: Bayer
OVERVIEW: The Mirena IUD, which is sometimes referred to as an IUS (intrauterine system) is a long-acting, hormonal contraceptive. The IUD is inserted into the uterus to disrupt the egg and sperm. Merina also releases levonorgestrel, a progestin, which helps keep the woman’s ovaries from releasing eggs.
Mirena was approved by the FDA in 2000, and use has grown in recent years amid heavy promotion of Mirena as a hassle-free form of birth control that lasts for 5 years or longer. The manufacturer has been attempting to promote Mirena IUD to appeal to younger and younger women and girls, despite serious risks that they may not be adequately disclosing or warning about.
MIRENA IUD PROBLEMS: A number of potentially serious problems and complications have been associated with Mirena IUD side effects, some of which the manufacturer may not have adequately researched or warned about, including:
- Uterus Perforation: Mirena may puncture the uterus or embed in the uterine wall. Mirena IUD perforation can cause internal scarring, infection or damage to other organs and may result in the need for surgery.
- Migration: Delayed detection of a perforation may allow the Mirena IUD to migrate through the intraabdominal cavity, potentially resulting in intestinal peforations, intestinal obstruction, absecesses or adhesions.
- Expulsion: Partial or complete expulsion of Mirena IUD may occur. It may be more common among younger women using Mirena IUD, women who have not had children or women who have the device inserted immediately after childbirth or abortion.
- Infection: As a result of infection from Mirena IUD, women could suffer serious scarring that may deminish fertility or their ability to conceive, and in severe cases infection may be life-threatening and result in death from Mirena.
BAYER ADVERTISING WARNING: In December 2009, the FDA issued a warning letter to Bayer over its promotions of Mirena. The FDA accused the drug manufacturer of overstating the efficacy of Mirena, presenting unsubstantiated claims, minimizing the risks of Mirena and using false and misleading presentations.
The FDA accused Bayer of organizing live in-home Mirena promotional events that claimed that the use of the IUD would improve couples’ relationships and sex lives. They also blasted the company for telling women that using Mirena would help them “look and feel great.” The FDA said that there was no evidence the device did any such thing.
The FDA also pointed out that at least 5% of Mirena IUD recipients reported decreased libido in clinical trials, which would certainly not help a couple’s intimacy or sex life. They also noted that women using Mirena had reported side effects including irregular bleeding, ovarian cysts, back pain, weight increase, breast pain and tenderness, and acne. None of those things will help someone look or feel “great,” FDA officials said.
Related Articles
- NuvaRing Lawsuits (12/28/2011)
- Mirena Lawsuit Filed Over Doctor’s Failure to Remove IUD Birth Control (10/11/2011)
- Lawsuit Over Mirena IUD Imported From Canada Filed By Texas A.G. (10/29/2010)
- FDA Initiates Program to Target Misleading Drug Ads (5/12/2010)
- FDA Calls Mirena, Byetta, Cymbalta Claims Misleading (1/14/2010)





Comment by Amanda on 11 November 2010:
I have had the Mirena IUD for about 3 years now. I went to my obgyn to get it inserted after being told that it was amazing birthcontrol with no side effects and that it was painless to insert. Getting the mirena put in was extremely painful for me! I could barely walk afterwards and had trouble driving home. I was bedridden for days bc the pain was so bad. The side effects i experienced initially were lower pelvic pain, lower back pain, extreme breast pain and awful migranes. Within months i gained 30 lbs with no change to my diet. The other side effects never went away but depression, moodiness, bouts of crying and acne were added to the list. It has been 3 years of hell. Im still 30lbs heavier and have extreme breast and back pain and have also been diagnosed with high blood pressure, joint and muscle pain and have had several pelvic infections that may have left enough scar tissue to not allow me to have any more children. I am a 30 year old mother of one child and i feel like this birth control has ruined my life.
Comment by Eboni on 13 November 2010:
I had the Mirena inserted December 2009 and after months of discomfort and irregular bleeding, I had it removed in May 2010. A month later, I began bleeding large amounts of blood along with blood clots. The following month, i found myself having to get rushed to the hospital where I received 2 blood transfusions, as well as being told that I was experiencing Progestin withdrawal, I was diagnosed with Dysfunctional Uterine Bleeding, and Anemia, and they have found fibroids in my uterus. The ER doctors put me on another form of birth control to try to counteract with the side effects of the Mirena, but the bleeding has not stopped. Now several doctors have told me that if this next form of birth control doesn’t work, the next step will have to be a hysterectomy (I am only 24). Since then, I have had to receive more transfusions, and have been told that I am bleeding to death every month. I am now bed ridden and unable to work to provide for my family.
Comment by M. Rodriguez on 20 November 2010:
I had Mirena inserted 1 1/2 year ago, I had many side affects, but worst off all i just found out
Im pregnant with IUD, and it canot be removed because of the risk of abortion. I’m scared to death because I know all the risk that comes with being pregnant with IUD in place, 50% chance of miscarrying or even perforation that can cause infection and even worse death. This is happening to many women not just 1/1000 there is absoultley a malfunction in this device!!
Comment by J Q on 21 November 2010:
I had the Mirena in for a year and 2mths. The Mirena was so pain I could not walk, play with my son, I was depressed all the time. I could not sleep unless I take pain medications. It got to the point where the Doctor that inserted the Mirena in for me to get a Hysterectomy to be done with the pain. I am now still dealing with pain and infections I got the Mirena took out back in October 2009. Someone Please Help me. GOD knows I need it.
Comment by Tracie R on 23 November 2010:
I had the Mirena inserted 8 weeks after giving birth. It dislodged in less than three months, was stuck under – and perforated my uterus. Had to have laproscopic surgery to remove it, which was another week off of work in addition to the fourth months off for maternity due to complications. Nearly lost my job over all the time off. Luckily I didn’t have it in long enough to suffer any of the OTHER side effects I read about.
Comment by J. Pierce on 23 November 2010:
I had Mirena inserted around April 2003 or sooner – not certain of the date. Like other women, I had severe abdominal pain after the insertion which made it difficult for me to walk without severe discomfort. My doctor told me that it was because the Mirena had to “settle” in my uterus. She took me out of work for 1 week so that I could have some recovery time out of work. I worked in corrections and standing for extended periods of time and excessive walking was unberable. Ultimately, the pain dissapated and I was able to resume normal activities.
I had the Mirena IUD removed around October 2006 with the hopes of becoming pregnant. As of January 2010, I have been unable to become pregnant. I decided to get back on BC again and decided to use Orthotricycline LO. I took this BC from Jan 2010 to March 2010. I decided to stop the BC because my husband and I wanted to try again to get pregnant. So far as of Nov. 23, 2010, we have still been unsucessful. I am so concerned now that Mirena may have caused me to become infertile and that is why I am now unsuccessful with conceiving. I mean it has been 4 years with no success. The only way to verify this is to address my concerns with my OBGYN and see if everything is functioning properly in order to rule out Mirena as a contributing factor. It does concern me since I had my daughter with no problems prior to Mirena.
Comment by Melissa on 23 November 2010:
I have have the mirena in place for nearly 3 years now. I have seveer night sweats, loss of libido, depsression and a genearl feeling of weakness. I have done considerable research online and believe that only the mirena could be the culprit. Again like many of the other posts I’ve read, After numberous tests with no results and feeling like you’re crazy., I have made an appointment to have mine removed. I do not feel optimistic for what’s to come. I have a sick feeling that at 33, Mirena has forced me into early menopuase. I don’t want money from a lawsuit. I just want my life back.
Comment by NLasher on 30 November 2010:
I had Mirena inserted in Mar 2007 and started having severe migraines in 2008. In Feb of 2010 I had it removed due to sever pelvic cramps and bleeding, not to mention still suffering with migraines. In May 2010 I was put on medical leave because my bladder was not working right and I had what they thought were kidney stones but were actually very large ovarian cysts. In July 2010 I ended up having to have a complete hysterectomy not by choice. I have never had female problems in the past and have 4 beautiful children. I truly feel that now at the age of 36 I am was put into surgical menopause all because I was told what a wonderful form of birth control Mirena is and how it would change my life. I didnt expect my life to change like this. Now I am on artificial hormones for who knows how long.
Comment by Lonese on 2 December 2010:
I was uneasy about getting the Mirena. I have always used the “pill” at the beginning, but I had to quite that because it made me sick. But after reading about Mirena I thought it would be the right thing for me to get. I had just had my 4th child and I did not want any more. I have had the Mirena since Feb. of 2007 and it is suppose to last 5 years. I have experienced severe migraines, lower back and pelvic pain, breast soreness, moodiness, depression, crying for no reason, weight increase, ovaries feeling like they are about to pop, just so much discomfort. Sometimes during intercourse with my husband he would tell me it would poke him. Not what I exspected at all from Mirena. I am running to get this out as soon as possible.
Comment by krystal on 9 December 2010:
i had the mirena put in in 2008 and it was very very painful going in , the cramping after nad the bleeding was awful. i had it until this year when i had enough of the pain , i had two misscarriges with it because part of it fell out and i got pregnant , i went to my obgyn and he tried to take it out in office and that was painfull and couldnt get it out , then had to do surgry to get it out and it left me with three scars because it was embeded in to my utrus wall and was stuck ! this is the worse birthcontrol ever !! i am looking in to a lawsuit for it.
Comment by Janiece on 11 December 2010:
I was on Mirena since January of 2010. By November of 2010, I was pregnant and Mirena is nowhere to be found. Dr. and I are now in the process of scheduling an Xray in order to make sure it has not traveled to my liver. I wouldn’t recommend Mirena to anyone.
Comment by Monica on 20 December 2010:
I have an appointment to have my Mirena removed in January after having it in place for three years. I was told when I had it inserted that 90% of women experienced no menstral bleeding whatsoever with MIrena – yet I bled for the first three months non stop. Then I had what I called “reverse periods” which were on for three weeks of bleeding, and a one week break. After a few months, I developed SEVERE acne that could not be treated with any prescription or over the counter medicine. Around that same time, I started to get migraine headaches (which I did not associate with Mirena until later). I also experience extreme breast swelling and tenderness for about 1 1/2 weeks out of every month. It gets so bad that I have to wear a sports bra over my regular bra, it hurts to lift my arms over my head, and I have to put ice packs on my breasts at night to ease the pain. The reason I have waited three years to get this removed is because my doctor told me most side effects are only temporary. The excessive bleeding and severe acne did go away after several months, but it has been a long time and the headaches and breast swelling persist. It’s time for me to get my life back. I just hope I don’t suffer as some of these others have with adverse effects after removal!
Comment by April on 21 December 2010:
i had the iud mirena put in 3mths after i had my child. I have had mood swings dizzines head pain ive gained 50 lbs i with no change in diet i had the iud removed and it hasent changed anything now me and my husband want another baby we have been trying for 2yrs with dr help with no sucess i fear that my child will be the only one that will ever have i feel like somthing has been stole from me
Comment by Nicole on 27 December 2010:
hi i have had mine for about 2 1/2 years now and i have not been to the doctor since they checked it the couple weeks after getting it i have multiple symptoms in which i do not know is the cause but they are as followed
very bad abdomanal pain like a full blown contraction,
rapid weight gain like a pound a week
headach like every day some worse then others
tired all the time
syrup smell down below and when i am peeing
hurts during sex
no energy
acasional harp pains in my butt that actually makes me jump up
spot after sex sometimes
blood in urine and stool at times
frequent peeing
stomach pains
lower and upper back pains
loss of breath
tender breast under the boob
sore muscles all the time
i went to the ER two times the past year first time i had a lump on my rib and they took x rays and said oh its probbably on infection and gave me penasillion and sent me on my way it help for a little while then a couple months latter i went in and they said all my syptoms are of MONO they did the test and it was neggative but said they come back negative somethimes we still think it is MONO and gave me penacillion to help with any infection and pain killers to ease the pain it helped for a couple weeks then the sypmtioms slowely started coming back
then about four weeks ago i had a three day epasode to where i went home i was in so much pain then i laid in bed and when i got up to go to the kitchen to get some water i calapsed to the ground i was in so much pain and couldnt breath. the pain not as bad but lasted for three days.
Comment by Sarah on 13 January 2011:
helllo out there! maybe someone out there can help me out i am 20 yrs old i have two beautiful children but i got mirena about a year and a half or so ago and since then i have had the worst stomach pain any one could endure lower back pain and pelvic pain and every time i go to my doctor they tell me nothing is wrong with you and send me back home and the pain continues im to the point that i dont know what to do or say..
Comment by Claudia on 16 January 2011:
hi, I had mirena insert on february of 2007, six months after the birth of my second child, i had some side effects like lower libido, mood swing,etc but the major thing was when I was diagnosted, with breast cancer on september of 2008, about 18 months after a had insert mirena , I was 35 at time, no family history of cancer.I just remember that after mirena i was not feeling so well, besides the side effects that i alrealdy mention. I was at de doctors almost every month with diferent litlle things , and I was always very tired. My OB and my primary Doctor were telling me that I had nothing to worry about, That the way that I was felling was normal for a mother with 2 young children, and at age of 35 they don’t send you for mamograms, I just thank God that a tumor pop out, with gave me a change to get treatment, and be to alive today .
Comment by Proud Momma on 17 January 2011:
The Mirena almost destroyed my life, but after TONS of searching, I found a natural detox that took my symtoms away (mine were AWFUL anxiety attacks, no libido, back pain, abdominal pain, mood swings…you name it.) I’m better now, but I’m on a “mission” to help as many women as I can find relief. I have all of the information on a blog that I’ve written. The address is mylifeafternirena(dot)blogspot(dot)com.
I pray that it works for you as it did me. This device is a MONSTER, and SHAME ON YOU, BAYER for doing it to so many of us….knowing this….and STILL not doing anything about it.
Comment by Sabrina on 19 January 2011:
Up until today, when I read this site, I thought I was loosing my mind and was ready to voluntarily commit myself. I got Mirena 25 months ago and my life has been a living hell all but the first 3 months.
Physically, I have experienced cramps, sharp abdominal pain, back pain, drowsiness, migraines, dizziness, blurred vision, spontaneous lactation, sore/swollen breast, drops in blood pressure, loss of appetite, nausea, pain and spotting after sex, metallic body oder, and hair loss.
Mentally, I have suffered from anxiety attacks, violent mood swings, episodes of uncontrollable crying that last anywhere from a few hours to a few days and severe depression.
I visited my GYN more that usual in the past 2 years with complaints as the symptoms arose. She treated the symptoms and contributed them to the amount of stress I was encountering at work and school. I was prescribed pain medications and anti-depressants but not once did she suggest removing the device. Since then, I have had to leave my job, as a result lost my house and am more miserable than I would have ever imagined. I can honestly say that Mirena has ruined my life.
I was prescribed Mirena because of my very long, super heavy, painful periods and the promise of being able to live a full life without the worry of being bed confined 7-10 days of every month. Instead, I am an unemployed, walking time bomb with limited social interactions. I have no children and now fear that once this device is removed I will never be able to.
Comment by Tiffanie on 20 January 2011:
I had Mirena inserted about 8 weeks after I had my 4th baby. The procedure (insertion) was AWFUL and the pain from just having it put in lasted close to a week. It took a few months and some research to connect the dots and decide that my severe back pain, ovarian cysts, headaches, tremendous weight gain, hair loss, crazy new hair growth(in very embarrassing places), acne, depression and the list goes on, were connected to this HORRID device. I have had it out now for about 18 months and I am sad to say that I am still suffering from most of the effects. The back pain is the worst, almost debilitating, and I’ve been to several specialists and had MANY tests( 2 MRI’s, 2 CT’s, numerous X RAY’s, cytso, and even a colonoscopy) and no one can find the problem. I want my life back!! I can never get back the time I have lost with my babies because I hurt too bad to get off of my heating pad, and my kids will always look back on this time of their lives and remember mama being sad, crying, sick, hurt, and in their eyes lazy (b/c I CAN’T get up and play). The makers of this thing are responsible, however, we ALL trusted our doctors and they let us down as well. I believe that my OBGYN is as responsible for my problems as Bayer because not only did she push this on me, she dismissed every single side effect when I came to her for help. “That is NOT a side effect of Mirena.” “I can’t find any problem that would lead to your complaint.” etc. I would LOVE to know just exactly what kind of throw-back these Dr.’s are getting from the manufacturer. I want this THING off the market, I want more research done, and I want these people to publicly recognize and admit that THEY WERE WRONG and that this device and the Dr’s that push it are responsible for severly altering the quality of life for many, many women.
Comment by Shelly on 25 January 2011:
Hi I have had mine for about 3 years now and I have been to the doctor several times since they checked it the couple weeks after getting it and they have not been able to remove it without causing me serious pain and I need to have it removed via surgery. I am afraid that it may be attached to my uterus somehow. I unfortunately have not been able to have it removed yet due to no insurance. I like so many people on here have multiple symptoms which include the following…..
very bad abdomanal pain like a full blown contractions sometimes
weight gain (no change in diet or excercise)
headaches like every day some worse then others
tired all the time
hurts during sex
no energy
spot after sex all the time
abdominal pains
lower back pains
reverse periods (3 weeks on and 1 week break)
constant vaginal odor
very low sex drive
I need to get this out and don’t know how without insurance. If anyone has any ideas please shoot them my way……..I want my life back in every way!!!!
Comment by Kari on 26 January 2011:
I am finding that alot of women are reporting another issue with Merina. The issue being premature menapause caused by Merina. I am one such woman. I had Merina for five years and had it removed last March. I am now having the following symptoms;
headaches
heart palpations
night sweats
hot flashes
decreased libido
vaginal dryness
mood swings.
I went to my primary doctor and he stated I am in premature ovarian failure and I am only 38. I am finding alot of other woman who were put on Merian are also in full menapause at an early age. This side effect is not listed by Merina as well. I am wondering if there is a lawsuit in the works agaist Merina dealing with premature menapause.
Have any of you had this problem as well? I am going to my obgyn in three weeks to confirm this diagnosis.
Thanks
Comment by Deb on 27 January 2011:
I had the Mirena for 3 weeks back in 2008, and was perfectly healthy before having it. I’m a very athletic woman (44 yrs old). I had one previously with no problems, but the second one almost killed me. I felt like I had aged 40 yrs within a few days of insertion. I had severe backaches, muscle soreness and weakness, headaches, anxiety attacks, heavy sensation in my throat, extreme fatigue and tiredness, dizziness, etc… It’s been just over 2 yrs since I had it removed, and i still don’t feel 100%. The biggest issue I still have is muscle weakness, numbness and tingling in my hands and legs. I’m currently trying acupuncture and detox foot pads to see if it helps. My doctor still refuses to believe that Mirena could have caused all these problems. She referred me to an internal medicine dr, possibly checking for MS, but nothing came up. The acupuncturist could see that internally, my body was unbalanced and I had some horrible infection previously. To my surprise, many women I have spoken to about this IUD, they too had bad experiences.
Comment by Meredith on 30 January 2011:
The pain and suffering from Mirena use, as reported by the women in this site as well as others, is appalling. I had the IUD placed in Sept. 2010, approximately six weeks after the birth of my son. I have experienced EXTREME fatigue, upper back/shoulder PAIN, cramping, side pain, no period, and look five months pregnant. I have been to chiropractor for several weeks. In past week,TWO trips to ER for irregular heart beat, Blood tests are fine and no history of heart problems. I will have the Dr remove the Mirena ASAP!!!!!!
Comment by Jessica on 2 February 2011:
After seeing a commercial last night I was very concerned with the painful side effects I have had with the Mirena. I had mine put in a month after the birth of my third son, (feb 2005) in which I was not told about the very bad side effects I saw on the TV last night. I was never told it could cause infertility, Uterus Perforation, Migration, Expulsion, and Infection, along with all these things I have experienced cramping, shooting pains, migraines, loss of libido, spotting of a funny color after sex, cramps with no periods, tiredness, sharp shooting pains in both my ovaries area and my anus area that drop me to my knees and ect…….. I could go on forever most of which I have seen listed in all the woman above. I do not have insurance and have not been able to find anyone to take it out. I went to the ER last year with severe pains and cramping and discomfort and was told by the ER doctor it was not in his job description to take those things out, so I left in frustration. I do not have a job but now after reading this I am going to use my tax return to pay the 200 to get it taken out in the hopes that with all I have experienced with it they will be able to do so without surgery. If I am going to have to have surgery to take it out I do not ow what I am going to do. I am very scared and sick and tired of feeling this way but at least now I know it is not just me and I am not crazy these painful feelings are real and not just my imagination. I think these law suits are in most need and should be happening because if I was told all of the things they knew now about it I would have never never never taken it. I am also most concerned because me and my fiancée have three boys and since our youngest is in school we wanted to try for a girl after I finished school. Now I am afraid that will not happen. I am with you ladies I do not recommend this to anyone and feel very strongly about the fact this thing should be taken of the market!
Comment by Jasmin on 2 February 2011:
I had the Iud Mirena inserted in December 2007. It was a painful insertion, now I constantly get yeast infections. I have terrible mood swings, I feel depression, I also have punching feeling on both of my overies. The headachs don’t seem to go away and the lower back pain is annoying. Forget the sex drive that went out the door months after I had it put in. I’ve had it in now for almost 3 years and im thinking of getting it taken out. What should I do? Help!
Comment by Valerie on 5 February 2011:
I had it put in January 2009 and ended up having it removed by my primary care doc sometime in March, I think. I have never been the same. If there is a lawsuit going on, I’d really like to join in. I tell every female I know that is thinking about getting it NO, it will ruin your life, it did mine.
Comment by Amanda on 11 February 2011:
I have had my Mirena for about 2 years now. I have recently started having breast pain. I thought that maybe because of a round of antibiotics to cure strep that maybe it caused a disruption in my hormone level – I don’t have regular monthly periods anymore. This lasted for about a week then it went a away for about a week. I am now having the same symptoms and my breasts are full of cysts. I have also experienced severe cramping, fatique, insomnia, headaches, frequent urination (UTI-like symptoms without any actual infection), vaginal irritation, and now I am experiencing cyst-like acne, night sweats and hot flashes – I am 37. I knew the cramping was linked to the Mirena but it was not until googling “can mirena cause cysts in breasts” that I came up on this site as well as others that linked my other symptoms to my IUD. I have gone to the doctor of the last couple of years without being able to leave with any real diagnosis. I have been left feeling that it just is the way that you are supposed to feel when you start getting close to 40. Unfortunately, my insurance will not be in affect for another 2 months. I will definitely have it removed as soon as I am insured again. I will repost if there are any adverse side effects that may arise after removal. I am now very afraid of infertility and any other potential long term effects from this horrible device that needs to be recalled. I did my homework before the insertion and was told that it was very safe and that my gyno had been prescribing IUDs for years. At that time any IUD blogs were mostly for the coil and outdated information. Now, there is up to date blogs and far worse symptoms being mentioned than I could find before.
Comment by Kimberly on 14 February 2011:
I have had my Mirena since 2005. It did hurt when they put it in, the pain lasted a few days. It felt as if somebody had punched me as hard as they could a few times in my stomach as they were putting it in. I was approximately 135 pounds 6 months after I had it put in. I am now 175 pounds never have I weighed this much except when I was pregnant. My doctor and I have ran every text possible to see why it is I have gained all this weight and not been able to loose it. I look pregnant. My breast are tender and have enlarged by two sizes. I have back pain and migraines. Although the migraines I have suffered since a teenager they seem to have gotten worse. When I seen this thread I had to wonder if my issues were due to my mirena as well. I need to have mine removed but I am deathly afraid of thee pain I will feel when they remove it.
Comment by Lourdes on 16 February 2011:
I have had the Mirena IUD for close to 5 years.Finally removed it and although I am bleeding profusely (which was expected), I feel a better knowing Mirena is out of me.
I was told by my doctor that it was amazing birth control with no side effects and that it was almost painless to insert. It was not painless however, the problems were just about to start…
Some of the side effects I experienced were irregular heart beats, lower abdominal pain, lower back pain, breast pain, horrible migraines, total fatigue, lack of energy, loss of sex drive,, and extreme bloating. Within a couple of months, I gained 28 lbs that I cannot shed, no matter what I try.
In addition the above mentioned side effects, I was diagnosed with high blood pressure and I had deep depression, moodiness, bouts of crying, joint and muscle pain, had several pelvic and yeast infections and acne (at 48!!!). It has been 4.5 years of true hell. I’m still 28 lbs heavier and hope eventually to go back to my original weight.
Something should be done so the COMPLETE side effect information is communicated to women BEFORE the Mirena is inserted. There should also be a complete warning issued. I also think that doctors are educated and given ALL the information.
I am slowly going back to the way I was… an instant at a time. Still get bad migraines and some of the pains are still nagging. Hopefully once my system expelled all the hormones completely, I will feel better.
Comment by Sabrina on 17 February 2011:
I had the Mirena IUD inserted October 2009 and had it removed 10 months later. I have had quite a few of the same issues as the ladies posting here and on other sites. I never imagined when I had this device implanted that it would cause me to have mood swings and food cravings like being on PMS 24/7, that I would feel tired all the time, gain about 50 pounds, that I would have numerous problems with back, joint and abdominal pain, or that intimacy would be negatively impacted by lack of drive, dryness and pain/discomfort for both me and my husband. August 2010 we decided enough was enough and I had this god-awful thing yanked out and went right back on old-trusty Depo-Provera, what I should have done after the birth of my little girl in the first place.
Comment by Lourdes on 17 February 2011:
To Kimberly:
The Mirena removal did not hurt. It took a couple of minutes.
A day after, I started my period and it’s been heavy for the last week.
However, the bloating was gone immediately and the lower abdominal pain diminished.
Comment by Rachel on 19 February 2011:
I had the Mirena IUD inserted in November 2007 and removed in September 2009. I was told the insertion would be painless and I didn’t need anyone to accompany me as a driver. While the Dr. was inserting the IUD I told her how much pain I was in and that I was going to either be sick or pass out. I did get sick and she informed me that if I couldn’t handle the pain she would have to stop. Before I was even able to decide she continued inserting the IUD. I was in no condition to be driving 45 minutes by myself and was in so much pain I could barely stand. I later found out that the Dr. was supposed to offer me a local anistetic to help with the pain….well obviously that wasn’t the case for me.
In September 2009 I started experiencing horrible pains and felt like the IUD had moved and was pinching me. Shortly after having pains I started my period, which I had not had in over 2 years since I went straight from the Depo shot to the IUD. After having heaving bleeding and serious pains for two weeks I had it removed. When I went to the Dr. she did an internal ultrasound to see if it had moved as well as look for any cyst. The Dr. was unable to see my left ovary or the IUD. After searching for nearly 20 minutes, she decided to remove it by the string connected to the end of it. Thankfully it was still there but the pain was intense while she slowly yanked it out. In November of 2009 I started bleeding the first part of the month and continued for 28 days. Since my period was never really normal prior to using the IUD I wasn’t to concerned. I should have seen a Dr. immediately. It is now February 2011 and I have yet to have another period since November 2009. I did see another Dr. back in August 2010 and test were done to determine that I am no longer ovulating and will probably never have children. The IUD has reuined my life. I do not have any children of my own and want the experience for myself.
Comment by Jennifer on 24 February 2011:
I had mirena inserted Sept 2010, had it removed yesterday Feb 23, 5 months into having it, I felt like I was going to die. I wanted to die everyday for the past week. I was having continuous hot flashes, missed work for days. Pain in my abdomen and low back. Acne really bad despite many treatments. Depression got worse and worse to the point that I was so tired and just unhappy in general and disinterested. Unable to play with my 2yr old son because my body pain got to the point of just doing nothing really was even painful.
Once removed i was given premarin (conjugated estrogens) to help deal with the side effects of hot flashes, fatigue, etd, until the progestin levels come down to where I can just be on my natural cycle.
Comment by Tammy on 25 February 2011:
I got the Marina October 2009 because I had heavy periods. I was told there was no side affects besides puncturing your uterine wall when inserting it or that it could slip out. As of now I still hve the Mirena and am estatic that come March 2, 2011 I will finally have this foreign object out of me. It has been a disaster!!!! Extreme weight gain, I look pregnant!! My breast went from a 36 D to a 36G!! I am extremely exhausted most of the time. I have been spotting constantly since I got the Mirena inserted, oh yes they did say that could happen and not to call them until it went over a year. If I knew this would I would be spotting daily for a year and a half I would have bought stock in panty liners. I am now starting to have lower back pain, and I am assuming it is the enormous breast and weight gain that is putting to much pressure on my back. I just had a pap smear and hmmmm, I just got notice yesterday it is abnormal, and I am positive it is not vd. The V.A. can not remove this damn thing because if they could it would have already been out. If this appointment some how gets cancelled, I will flip out, I am about ready to rip it out myself!! I want my lfie back!!
Comment by Katie on 27 February 2011:
I had a Mirena inserted in Dec. 2010. My doctor sold me on this “miracle” birth control. I have had continuous bleeding since. I have inquired many times only to be told that “bleeding” was normal. 7 days ago, I was rushed to the OR because I had an ectopic pregnancy and my fallopian tube ruptured. I lost both the embryo and right fallopian tube. My IUD – missing. I am now waiting on the result of my xray to find out if I will be need surgery again this Spring to remove it.
Comment by Quanitra on 2 March 2011:
I am a user of Mirena for about 1 1/2 yrs now and for about 8 mths or so I have been feeling exhausted, having night sweats, insomnia, headaches, nausea, anxiety attacks, depression, abdominal pain, pelvic and anal pain, weight gain almost 50 pounds that I can’t get rid of no matter what I do, back pain, chest pain, breast tenderness etc. I thought I was dieing from cancer or something. I constantly went from doctor to doctor getting tests done and not finding out what was wrong until I did further research about Mirena and saw all the side effects. I hope that to much damage wasn’t done to my body I am only 28yrs old I am getting this thing removed ASAP!! God bless all the woman who have dealt with this situation. I wish you all the best.
Comment by JD on 6 March 2011:
I am a 46 year young mother of one. Prior to Mirena I was in great shape, physically fit, slender working out with lots of energy and
Fertile, regular 28 day cycle.
I entered into a new relationship over a year ago and was extremely fertile. I was concerned about going back on the pill. My good friend who is a nurse said get the IUD it will be the best thing ever. I did not think to ask her what kind (now I know she has the copper one if I had only looked into this further!)
I had Mirena inserted in March 2011. By June I was suffering with bouts of what my OBGYN diagnosed as Group B Strep and Yeast.
The pain in my pelvic region was intolerable. I also was have foggy brain, extreme fatigue, heart palpitations, nightsweats, and blurred vision. In August 2011 I had the IUD removed.I had begun working with a Naturopath in August to help alleviate the symptoms.
Post IUD I have fought infections for six months, been on countless rounds of antibiotics and antifungals treatments. I continue to have foggy brain, extreme fatigue, mood swings, night sweats, heart palpitations, memory issues, blurred vision, phantom pains in my pelvic region like cramping and most recently have developed severe bloating that makes me looks like I’m pregnant. The worst is now the OBGYN is saying I am Premenopausal. My Naturopath was able to give me supplements three months out in November which that my period back and we tested and I was not premenopausal. Yet one month later no period again for the last three months and my Naturopath is thinking I am premenopausal . This devastates me because I was healthy and fertile pre Mirena. I have always wanted another child. Now thanks to Mirena, I may not ever get that opportunity. MY OBGYN got so fed up at not being able to control the infections she sent me to a Infectious Disease Specialist. He put me on a month long supply of antibiotics!
I have another very close friend who is much younger who has lived through the same ordeal and nightmare. Although she suffered extreme depression in addition to all the symptoms I described. She luckily had her IUD taken out within three weeks, yet even today and testing and detox she Is not better and possibly premenapausal.
Comment by Misty on 6 March 2011:
I am so appalled at finding this site and reading all of these horrific experiences because what my OB/GYN also told me was an incredible form of birth control. I feel for every woman who has ever used Mirena, it is life altering and Bayer as well as the MD’s pushing this contraceptive as a “great” form of birth control should be held responsible. I had Mirena put in after the birth of my last child in July 2003, I didnt know the small changes that began shortly after such as the start of migraines, depression, and anxiety were possibly from my Mirena, as these were never side effects I had been informed about. I didn’t realize how this intrauterine device would change my life until my major problems began in January 2007. It started with excruciating lower abdominal and back pain that truly felt like labor contractions and the pain did not ever seem to let up. I went to my OB/GYN who did an MRI, he thought he saw a kidney stone. He sent me to a Urologist and here began the many months of painful tests and surgerys. They started by putting a stent in my ureter to dilate it and help me pass the supposed stone he found, two weeks later still in excruciating pain and no stone passing they removed the stent. So they then figure out the “stone” was just a calcification outside the ureter and not the cause of my pain. I was sent back to my gyno, I was given more MRI’s and ultrasounds and when nothing could be found and my IUD was seen to still be in the correct position on ultrasound I was given narcotics and told to go home we do not know. From January 2007 until April of 2007 this was my life narcotics and a heating pad, I like the rest of these women could not do my job as a nurse and was on medical leave. I could not take care of my kids because I could not move, I was depressed and in pain 24 hours a day. Finally I went to another gynocologist in another town and he decided to go in Laproscopically, amazingly he did start finding the root of the pain. He first found a blood filled tumor on my left fallopian tube the size of a baseball, as well as large cysts inside and outside my left ovary. He had to remove my fallopian tube and ovary on the left side due to the scarring and damage that was done to them. After this surgery, pain still occurred, so this gynocologist wanted to take out my Mirena and test it for infection, up until this point my own gynocologist had not simply thought of this as an option. The results were shocking after testing the contraceptive he informed me it came back positive for Ecoli and that my entire uterus was full of Ecoli as well and I had to be on a series of antibiotics to cure this infection. As a nurse I am well aware that over time Ecoli can cause potential death, just astounding that this product is still allowed on the market. Everything seemed okay after both these treatments until the winter of 2009 and then the pain began again. In March of 2009 I finally did not have any other choice left but to have a full hysterectomy due to the fact that I had so much scarring on my uterine walls and the cysts on the outside and inside of my right ovary had gotten so large it was best to remove the ovary as well as my uterus. I was only 31 yrs old at this time and I want Bayer to know that I never had fertility problems or female problems before having this intrauterine contraceptive implanted as a choice of birth control without obviously being given all the serious side effects. Sadly my choice was taken away as to whether or not to have more children, I am so thankful that I did not have this put in before I gave birth to the two beautiful children I do have. This needs to be taken off the market so that there does not have to be anymore posts added to websites such as these.
Comment by Audrie on 9 March 2011:
I have had the Mirena in for 25 months now, Dr. Recommended this bus birth control after my 1st daughter was born. Approximately 3-6 months after having it inserted the Sharp unbearable lower abdominal pains began. These pains are daily sometimes three times a day lasting a painful minute to two minutes each time. I have been to the WE three times regarding these pains, one time they stated the reason was scar tissue from my c-section, next reason was unexplained, and last they say was from a yeast infection. I know there is something seriously wrong with me and glad to know thst i am not going crazy! I was healthy with no medical problems prior to using the Mirena. I still have it inserted and am looking to remove it soon. So scared that it ain’t be found or i will have horrible side affects after removal. I have the weight gain. fatigue, moodiness as well but more seriously is tge sharp pains that at times have caused me to stop in my teacks and drop to my knees!
Comment by Melissa on 12 March 2011:
I had the Mirena inserted in 2008, recommended by my OB/GYN. She said all her patients were extremely happy with it and had no complaints. I was doing okay until 2009 when I had SEVERE abdominal pains and the DR found a grapefruit sized ovarian cyst. Had to have surgey to have it removed, six months later the pain returned. I knew it was another cyst and refused to go through another surgery, so I decided to have the Mirena removed. When the DR tried to remove it, she could not. It was lodged in my uterus (which she said was another reason for the pain), so she needed to insert a scope to take it out. That procedure was a quick 30-second procedure and I was much better afterwards. But now my Insurance refuses to pay for the IUD removal. The DR charged my insurance $5000! For this simple procedure, a procedure I HAD TO HAVE, because she suggested I get this IUD. I’ve already paid to have it inserted, have surgery and to have it removed. The Mirena has caused me so much financial and physical distress. And the DR continues to push it on her other patients.
Comment by Lisa O'Brien on 14 March 2011:
I have a friend that has an IUD that’s traveled and embedded itself into her Uterus, which brought me to this site; after reading many of your comments and some other research regarding IUD’s; specifically the one’s made of “Copper” it appears to me that many of you may be suffering from Copper toxicity symptoms which include:
•Acne
•Allergies
•Hair loss
•Anemia
•Anorexia
•Anxiety
•Attention deficit disorder
•Arthritis
•Asthma
•Autism
•Candida overgrowth
•Depression
•Dysmenorrhea
•Male infertility
•Prostatitis
•Fibromyalgia
•Migraine Headaches
•PMS
•Chronic infections
•Insomnia
•Racing thoughts
•Neuralgia (nerve pain)
•Sciatica
•Hypertension
•Hypothyroidism
•Schizophrenia
•Bipolar (Manic Depression)
Comment by Keisha on 15 March 2011:
My story is a little different than others. I got my first 1ud (mirena) after my daughter was born in 2007. Got if removed December 4, 2008. I got pregnant 26 days later Dec. 31. I guess I must have ovulated twice cause I got pregnant with twins. WOW. 6 weeks after the twins were born I got a second IUD put in. I was going to physical therapy cause my pelvic bone hurt so bad I couldn’t even push a laundry basket across the floor with my foot without horrible pain in my crotch/pelvic area. My husband came home one day from work saying they had a discussion on the radio about mirena and he thought I should look into it. Now I have found all this info. YIKES…now thinking about what to do. I also have a pinching feeling in one of my ovaries every so often. WEIRD.
Comment by sarah on 17 March 2011:
I had the mirena inserted in Oct of 09 and was told it was amazing. Yeah right! Never had a cyst in my life until I got that, and would have these pains right before my period was about to come where they would send me to the floor in so much agony that I couldn’t breathe and my bf had to rush me to the ER where they told me I had a bunch of cysts, and that they were rupturing! I gained like 50lbs and hated to have sex! I had it removed in June of 2010 for two reasons, 1 bc it was hurting and two bc we wanted to have a baby. In those 8 mos the mirena had already decided to attach itself to my uterus and caused a tiny scar. After getting pregnant they found that I had gallstones which I blame solely on the mirena as well because I never had a problem until I got that thing!!!
Comment by Aleida on 27 March 2011:
I am in total shock reading all of these stories! This is actually my second Mirena IUD. I had one inserted six weeks after my first child because of some of the reasons stated prior, my doctor recommended it saying it was a great alternative to the pill and it had no real side effects. I now know that everything I experienced then and am now experiencing all over again have to be due to this thing. I am extremely moody, any little thing irritates me and I have fits of uncontrollable anger. I remember when I went to my OBGYN the first time I had the IUD and told her about my symptoms she immediately prescribed Prozac and said it was post partum. But it all is so clear now. I have the same moodiness now and the same uncontrollable anger! I have also had lower back pain that I would go to a chiropractor for due to the fact that some days it was hard for me to even walk. I have not gained any weight but I attribute that to being in the gym five times per week for almost two hours and that is just to maintain my current weight, I cannot any weight. I have also experienced sharp pains in my crotch/pelvic area and extreme fatigue. I have no problem falling asleep but staying asleep is unlikely. It is hard for me to make it through the day without wanting to go home and get in bed. I have taken B12 supplements but nothing helps. I have had the current IUD in since January of 2009 and tomorrow first thing, I am calling my OBGYN to get an appointment to have it removed. It is so weird how I never attributed any of these symptoms to the IUD, I guess I trusted my doctor instead of researching it further.
Comment by Petrina on 27 March 2011:
My Mirena was inserted in 2008 and I wouldn’t recommend it to others. I think the side effects far out-way the benefits. I’ve been suffering from mood swings, backaches, headaches, pain in the nerve of my tooth, acne on varies parts of my body, and again did I mention the ridiculous mood swing I have for what seems to be no apparent reason. I am overwhelmed by the smallest things that didn’t use to overwhelm me.
Comment by Jacquely on 29 March 2011:
I got the IUD placed 2006,when it was placed I experienced awfully bad cramping,it feels like you are in labor that went on for 3 monthes,I went in to see my doctor he said everything was in place so I left it alone the pain eventually went away.So know here it is 2011I went to get my IUD removed last Monday my doctor could not get it out,so he rescheduled a appointment for next week which was yesterday,know I am told I have to have surgery because they still could not remove it.they did the ultra sound and said it went through my uterus and its possible I would not be able to carry anymore children so I am forced to get my tubes tied
Comment by Rosa on 4 April 2011:
I had Mirena put in after my 4th child about 3 months after giving birth about 5 months ago. I first started with the heart palpitations and headaches. Went to the doctor and she said just to give it some time for my body to get used to it so I did. a couple months later I feel worse and my mind is cloudy and can’t even think straight every single day. Then then the past few weeks I have been having pain in my heart like someone is squeezing it and last night it got worse and the left side of my face got numb I swore I was having a heart attack. I went to the ER and they ran a bunch of tests and still they came out normal but I sure didn’t feel normal. The Dr. said it could be related to anxiety and/or indigestion which I NEVER experienced in the past and was always able to handle my stress levels. I have an appointment this week to have it removed along with going over my ultra sound for bad pelvic pain I was having which I also believe was due to the Mirena.
Comment by Kim on 6 April 2011:
I had the Mirena inserted after my second son in 2008 at the advice of my obgyn because of the limited side effects. I also had the side effects of headaches, back pain, severe pelvic pain, and lack of interest in sex. My husband also would be uncomfortable during sex because it would stick him. In 2010 I went to the Dr and had the Mirena removed because of the pain and because I was ready to try for a girl which was one of my biggest dreams. About a month after having the Mirena removed I began bleeding profusely and after visiting my obgyn we found that the uterus lining was over 3 times the thickness that it was supposed to be so I had to have a dnc and scope put in me. The found 2 pollips and removed them and started me on birth control to regulate my continued profusive bleeding in which did not work so in Jan this year I had to under go a total abdominal hysterectomy. I am only 27 yrs old and the chance of me ever having a daughter of my own has been robbed from me!! When they done the hysterectomy they left my ovaries because of my age but only a month later I began having severe pain and after visiting the er they found a huge cyst on my left ovary. I have never in my life had any type of cyst or female problem prior to this iud! The Dr scheduled me for laposcopic surgery to remove the cyst but when he got in with the scope they had complications and had to again cut me hip to hip because the cyst was entwined within my intestines. They had to remove my left ovary and cyst at that time. I still have my right ovary but I’m so scared of the damage that I know this Mirena has caused me mentally and physically! I have had to be cut hip to hip twice in just 2 1/2 months! I have lost my job, my car, and my life!!!! It has caused such a strain on my family and between me and my husband because I am in constant pain and he has to pick up all the slack! The Mirena has ruined my entire life!
Comment by kelly on 10 April 2011:
I’ve had the mirena for 4 years. The insertion was pretty much painless. I had 3 to 4 months of irregular bleeding and spotting. Off and on I have had spontaneous period with the exception of the last 8 or 9 month in which I’ve had none. I was in love with the mirena! But in the last several months I have had an increase in anxiety to the point in just about resigning from my supervisory position. I have also had an increase in weight and fatigue that is unpredictible from day to day. I have an increase in muscle aches that feel like I’m getting the flu. While my symptoms are not to the severity of some on this site. I am certainly going to see if I am in menopause. I just turned 41 about 3 weeks ago. I do not have a family history of early menopause. I am glad that I do not want anymore children, but not happy of the idea that I may have to begin worrying about osteoporosis and breast cancer sooner than expected. I have a family history of breast cancer and have been getting my mammograms now for several years. Guess it’s time to see my GYN!!!
Comment by Louise on 11 April 2011:
One major symptom that I have not seen much in the comments is pelvic floor prolapse, which I swear I have. It’s causing me to want (and need) to go the bathroom again, right after I just urinated but just a dribble comes out. Also pelvic pain and fullness that is sometimes severe. I just read that one of the therapies for prolapse is estrogen replacement theory, which makes sense if the Mirena is causing my hormones to be unbalanced. But who wouldve thought that hormones and urination would be linked? I would liked to know if other women have also experienced this. It’s like I can never quite pee completely, always feels like there’s “more” but it can’t come out because my bladder is collapsed so a lower area is closed off from the ureter.
I believe this has contributed to the numerous UTI’s and yeast infections I have suffered.
I have also had the following problems while on the Mirena for the past 6 months: severe crying bouts, can’t stop crying for a whole day which is debilitating and embarrassing; severe anxiety attacks that nearly ruined my entire life; difficulty sleeping theough the night, (I wake up in a sweat and anxiety a lot, can’t go back too sleep); blurred vision, especially at night; headaches that were so strong it knocks me off my feet and I can’t do anything until it passes. And I have never had migraines before this! I was willing to put up with the constant bleeding, but with all the side affects added together, I want to take this thing out. After reading the post-removal horror stories though, I’m anxious about the cysts and heavy bleeding. At this point it would still be better knowing it was out! I wish I had known this expensive device would make my life miserable.
Comment by Maria on 12 April 2011:
It appears that some of the information above couldn’t possibly be correct. A woman who had the Mirena put in in August of 2005 should have had it out by now (it’s been over 5 years) and any side effects she’s experiencing may be due to that fact. There is also another woman who is quoting dates from 2011 that have not occurred yet (August?). It is hard to take this blog seriously when seeing information like this!!! There could be other reasons why some women experienced loss of fertility. Just because you got pregnant easily before doesn’t mean that you will the 2nd or 3rd time. Kidney stones or gallstones are very common also and they can cause similar pain as what some of the women are describing. STD’s are more common than one would realize and Mirena certainly won’t protect against those. Personally, I have had Mirena in for 4 years now (after having 2 children) and have not had any problems. I did have spotting for 6 months after it was inserted which I was not happy about, but then my periods stopped (was told this may happen) and I’ve been thrilled not to have them. I am currently doing my research about the newest and best birth control methods out there… Will probably go with Mirena again, but still trying to decide. The info on this website certainly concerns me, but it needs to be taken with a grain of salt.
Comment by Glenna on 12 April 2011:
Thank goodness I was smart enough to do my research on this thing! I had my Mirena in for just over 18 months and I too had all the same symptoms. Zero libido, extreme fatigue, foggy headed and dizzy all the time, pubic acne (never had acne in my life!), brittle thinning hair, pain and a weight gain of 25 lbs with no change in diet or exercise. I too was attributing the symptoms to being a mom of two small children. I thank God that others cared enough to post, otherwise I never would have thought it was the Mirena. I had it removed yesterday and like many others my doctor (whom I’ve seen for years and said Mirena was “living the dream”) was suddenly rude to me and acted like I was crazy. I told her that I was 100% sure i wanted this thing out and she must have asked me at LEAST six times if I was sure. What is the deal with these doctors??? NEVER in my life have I told a Dr. I was unhappy with a perscription and they tried to talk me into continuing to use it!! Did these doctors get some kind of kick back that they now have to return because it was removed??? I don’t get why she was so insistent that I keep it. Something’s rotten here and I sure hope that someday they get to the bottom of it!!
Comment by Denise on 15 April 2011:
Just so we’re clear… I will be specific with my dates:
I had the Mirena insterted on July 25 2008. Aside from the mood swings, no sex drive, pain during intercouse, acne, lower abdominal pain.. etc… In January of 2011, my hair started coming out in HANDFULS! I went and had blood work done immediately thinking i had leukemia or thyroid cancer.. My blood work came back normal.. Two days later, I went to the gynecologist and discussed my situation with her, and she confirmed that it was my Mirena that was causing it… She immediately removed it. She also said that my hair should stop falling out within 10 to 14 days.. It did’nt.. I now have about 10% of my hair left.. With no sign of it ever stopping.. I go back today to see what other damage this has done to my body… Take this with a “grain of salt” if you will… But you’ve been warned!! I cannot tell you how depressing it is to have no hair:((
Comment by Ashli on 17 April 2011:
Gosh!! This form of birth control has definitely impacted many woman in a awful way! I have only had the iud for 3 months. Luckily I had my yearly pap and when I did my Dr. Checked for my string and when he did he could not find anything. I since then have had a xray and it is in my abdomen. I would not recommend this to anyone! I too was told that is form of birth control was the way to go! I wish I was informed more!
Comment by n on 17 April 2011:
i had the mirena put in on jan 28th. asked my doc twice to remove it- she said no and instead gave me seasomale birth control to take in addition to help with spotting. I said i really did not feel well. she said it would pass. well i ended up in the local hospital last week and it was subsequently removed by my doc and have been ging down hill steadily since. I feel like i’m losing my mind. I am weepy and desperate all the time. i feel hopeless. is there any detox anything i can do ? I am seriously suffering the mirena crash. please help- anyone
Comment by Rachel on 20 April 2011:
I have had the mirena for almost 2 years, i have been experiencing left sided weakness in my upper extremity, tingling, cramps so bad that i feel as if i am giving birth to my mirena. Recently i found out that i have a “low lying cecum” where my colon has enlarged and is now sitting on top of my bladder and uterus. iam not if sure if it was caused by the mirena, but i didn’t have any issues before the mirena. i almost have been experiencing depression, shortness of breath, generalized weakness, hair loss, and hair growth on my face, an increase in acne and oil on my face; and i have never had acne. i have made an appointment with my ob and will be removing the mirena on wednesday in hopes that some of the problems will be alleviated. i will be having surgery on my enlarged colon in a couple weeks, is there anyone else out there that has experience anything else close to this? thank you!
Comment by wes on 26 April 2011:
My wife had to have hers surgically removed last yr and the doctor told her she will never had kids again. She is 24 yrs old. She recently got pregnant after a yr and just had an emergency DNC after 3 months of pregnancy this past Easter. Strongly convinced this product has put a burden on our lives. Angry.
Comment by Britney on 28 April 2011:
I had Mirena in for a few months and then found out I was prego…. I must say we were very shocked and I was VERY depressed about it… I was losing my insurance at my employment and I thought having this would be great and NO WORRIES!!! Guess I was WRONG….. I called doctor and the didnt believe me… but I made and appt anyways and I SURE WAS pregnant!!!! Ok so what so we do??? leave it in or take it out… I choose to have it removed and doctor thought that was the best decision.. So I did a few days of pain and bleeding and thought I was gonna miscarry I didnt.. NOW THE STRESS WAS FINDING INSURANCE!!! I have to have c sections so i needed to find something I cant afford to pay for that…. I ended up having to quit my job and get medicaid for pregnancy… I ended up having my son June 28,2005 and i wouldnt change it in the world I LOVE HIM TO DEATH… But it sure did make things very hard!!!! This device when i hear people talk about it I SAY DONT DO IT!!!!!! My friend this week had to have hers out do to problems with it… Serious problems!!! Please take this off the MARKET!!!!!!!!
Comment by LBishop on 2 May 2011:
I have had the mirena in for a llittle over a year now. I started the weight gain approximately 4months after having it. I have tried every diet possible and seems I gain more everyday. I recently went to the doctors for an annual exam and made the decision to have the mirena removed. I was asked by the doctor is it was possible that I lost it along the way. I was in disbelief, then wondering could I be pregnant and thats why i’m gaining weight. I had to have an ultrasound in order to ensure it was still there. It was just embedded in the wall of my uterus. Now I have to have surgery to have it removed. Im not sure how long its been there but all the papers of side effects and things that could possibly go wrong depending how long its been embedded. Not happy with this birth control and would not recommend it to anyone.
Comment by Sarah on 3 May 2011:
In Aug of 2010 I woke up to find a huge bald spot on the right side of my head the size of a hand. Freaked out I went to the doctor. I have been losing weight ever since. Originally at 130 pounds I know weight 103 pounds. I have had memory issues, night sweats, menstrual cycle every two weeks for the last 4 months, mood swings, high anxiety, and cramping on my right side that felt like my ovaries where gonna pop. My hair has continued to fall out. Having 10% diffusing along with 4 bald spots. My doctor ran every test in the book he could think of until this last Friday he said maybe its your IUD. Now Im convinced because my boyfriend told me that ever since I had it put in he noticed my hair shedding more and the aggressive mood swings. This whole experienced ruined so much for me. I quit school even though I was so close to graduating because of the stress and my job was put on the line as I kept missing work due to feeling disoriented or like I was going to pass out. I literally thought I was terminally ill and the doctors just couldnt figure it out claiming that it was just stress. I rearranged my entire life to be “stress free” to no avail. I’m trying to have it removed but it will be two months before I can see an OB. I hope my hair will grow back and I cant get back to normal.
Comment by Clare on 4 May 2011:
I am in the third year of my second mirena. When it was time to have the first one out, my obgyn said my symtoms couldn’t possibly be from my mirena. She even gave me a spendy prescription for facial hair. She also told me I should consider leaving my boyfriend if I didn’t want to have sex with him, it must be his fault. I went ahead and got the second one put in, and have gotten much worse since. Same story, different woman with a ruined life. A couple of weeks ago I collapsed at work, and was having terrible chest pain. ER doc said acid reflux. The follow up doc said stress and anxiety. After seven years of headaches, nausea, chest pain, depression, anxiety, joint pain, weakness, no sex drive and my beautiful woman beard, I did my own research. I am shocked. I can’t believe none of these “medical professionals” would make this connection. I plan to have mirena removed as soon as I can. I now have to tell my 18 year old daughter, who I forced to get a mirena a year ago, that mommy has probably helped mirena ruin her life. How many of these symptoms are irreversible? Do I get to spend the rest of my life being a giant bearded lady? Will I ever stop hurting? Will the damages to my relationships be forgiven? These people must be stopped. That can’t be unaware of what they’re doing to people with their “miracle birth control.”
Comment by n on 5 May 2011:
Sarah- go to urgent care at your local ER and they should be willing to take it out.
I am fine now, a month after removal of the mirena the ‘crash’ effects have gone- I thought they never would! It really was a complete nightmare. I did everything I could think of- flushing my system out will lots of water, eating lots even when I had no appetite, lots of exercise and my life saver I believe- accupuncture! I even went to church.i was never religious but it gave me a ‘safe’ place and a feeling that I would come through this.
My poor husband and children that they had to endure this.
Comment by jennfier on 10 May 2011:
I have had it put in twice the first time at 19 years old and had removed within 6 months because of horrible mood swings and lower back pain. I just had my second daughter in september and had it put in within 2 months and nobdy told me that increased my chances of it going through and now at 21 it has gone through the wall of my uterus partially. i also have horrible mood swings and migranes that are so bad i am having to go to the doctor and she said it will probably take surgery to get it out.
Comment by Monica on 12 May 2011:
I had my last child on June 26,2008 the iud was placed inside me in august of 2008 it was a very painful procedure and was very discomfortable months went by i gained weight cycles became heavier and irregular with clots and i had severe migranes and pelvc pain. My skin change leaving me with blemishes and acne in Feb.2009 my iud came out on its own in this huge clot that looked like a 4mo. fetus it felt as though i was going in labor i didnt feel any better until it was passed after that my cycles were worsening thick and slimy at time and running like water ranging from 7-25 days i kept getting sick blood count kept dropping no matter how many iron pills i took in march 2010 i discovered i was pregnant 2wks later i had a miscarriage my health kept declining in Nov2010 i found a new doctor that ran tests and found out i had fibriods, cysts, and really bad scar tissue i was told i cant have any more kids i had surgery in nov2010 to help with the cramping and bleeding it didnt work so in Feb2011 i was given another procedure called an abilation that was suppose to work it didnt also so now i have to go back in July2011 to have a hysterectomy and im only 25.
Comment by Melissa on 14 May 2011:
I had Mirena put in Jan. 2011. I have had several symptoms but thought it was always from something else. Night sweats, no energy, waking up in night, stiff neck, low back pain, sore muscles and joints, thinning eyelashes and recently a random sharp, breath taking pain in middle of back near spine that feels like bee stings and now very rapid thinning hair and hair loss which is very stressful and depressing. I had my anual exam yesterday and told my Dr. about the thinning hair loss and she said I bet its your Mirena. We did blood work to rule out other things. Get results Tues. I have done nothing but research since my appt. and I believe I will be getting this removed asap no matter what blood work says. I did research before having it inserted but never came across this website. Really upset I didn’t. I have history of ovarian cysts always with surgery, so am worried about getting them when this is removed. I also have migraines and am on daily medicines for these so hope removal doesn’t make them worse. Thanks for your stories. I hope the best for everyone.
Comment by Hyperfatigue on 19 May 2011:
I too, have experienced the fatigue, eye twitching that was way too frequent and lasted over a month, hot flashes, night sweats, 20 lbs. Weight gain, shortness of breath, heart palpitations, rapid heart rate/pulse, trouble sleeping, etc. I requested a TSH and T level testing, despite how much my NP tried to convince me I was depressed and not suffering from Hyperthyroidism as I suspected. My feeling, as usual, was right-Hyperthyroidism, I mentioned that my family history did not include any Thyroid problems, and that I suspected it was the Mirena IUD. She assured me it wasn’t. I went home and googled if the mirena could cause Hyperthyroidism, and came across several forums, blogs, and posts describing exactly what I was experiencing. I brought it up to my Endocrinologist at our first appointment, and she assured me there was no corralation between the two. I mentioned how it was odd that many women were going through the same symptoms as I was, and asked if there was enough research done on this device. She mentioned how the internet only provides you with a lot of misinformation, and shouldn’t be used as a reliable source for medical advice. I again tried to explain to her that I found it odd that she could dismiss it so quick, and she said that most of these sights are competitors trying to make money by spreading false accusations. I let her know there was too many sites, too many women, and too many of the same stories for that to be the case, and she tried to talk me into a scan. I let her know that I would have my IUD removed the following day and have my TSH and T levels tested after 6 weeks again. She made me a follow-up with her at the end of July 2011. I will try and update with good news then, God willing. Best of wishes to everyone out there receiving the same quality of care, or lack there of.
Comment by Stacey on 27 May 2011:
Have been trying for almost a year to have a 2nd baby and think it is from the damage caused by the Mirena I had. Frequently had baseball size cysts that ruptured for months!!!! Ever since I had that I struggle to orgasm during intercourse and now I am afraid I cannot have another baby! I have no insurance and have been taking ovulation tests and do not think I am ovulating because of the damage from the bursting cysts which were caused by the chemicals in the Mirena. So angry and heartbroken!!! Tell every woman you meet NOT to have a Mirena!!!
Comment by camellia on 9 June 2011:
I had the IUD put in 6weeks after my little girl was born in 2009. I have had pain the whole time it has been in but I thought it was normal. Then in june of 2010 I had about three weeks of real bad pain, I have no health insurance so I waited thinking it would go away. Then it got so bad I could not wait anymore so I went,and they could not find my IUD so now I have been to the doc about 4times and they put me on meds of infection well five days after being on the meds my mouth started getting sores all over,one night I was having trouble breathing so my husband took my to the ER and i was told it was a reaction from the med and that my mouth my not heal. So I am having the IUD removed june 10 and 2:45 and I was faced with the fact that I may never be able to have more children at 25 yr old how can you deal with someone telling you that you may never be able to have kids. please help this is not something anyone should have to go through
Comment by Elizabeth on 15 June 2011:
I had the Mirena IUD put in in Jan 2010. I immediatly experienced a bloated feeling and gained 10 pounds. I also spotted nonstop. I went to the Dr. who told me it can take time to get used to it. I spotted for 6 months strait. Finnally it stopped and I had what seemed like cycles where I spotted for a few day in place of a regular period. At 3 months after insertion I started having a very strage illness that caused me to wake up tingling in my hands and feet that would be follow by very severe nausea and throwing up for around 3-4 hours. I have had aver GI test known to man and am completely normal. 12 months post insertion I started having severe migrains during my “cycle” I have gained a total of 30 lbs without change in diet in the past 1 1/2 years. I have hair loss, cystic acne, extreme fatigue, loss of sex drive, joint pain, shooting pains up back and down legs from lower back, very low blood pressure, mystery nausea illness, dizziness. I had Mirena removed 6/8/11, I have experienced very eavy bleeding and blood clots for 2 days so far. The whole time I have been told by my OBGYN that Mirena can’t cause these symptoms. After doing research I have found he is either lieing or ignorant. These things are dangerous and I fear I am still in for a lot more problems with this thing. DON’T GET ONE.
Comment by Adrienne on 20 June 2011:
I had Mirena put in march 2011. I previously had been using the nuvaring which I thought was great but relatively expensive. I had talked to my dr about switching to Mirena and she thought it was amazing having it herself for 3 years. The pain during insertion was bad and I vomited in the office. After a few hours the pain went away and I was feeling better. About 10 days later I started having extreme “cramps”. I was having a hard time walking and standing. I had called the dr office and they told me my body was still getting used to Mirena and I shouldn’t worry. I wasn’t able to locate my strings either. But she was not concerned. I had my six week checkup and she was also unable to find my strings. I had an ultrasound and they could not locate the iud. They sent me for xrays where they found it in my lower abdomen. It had perforated my uterus and had to be removed asap. I had to have laproscopic surgery July 2011 to have it removed. And now the bills are coming in. This is not what I had signed up for! I thought I wouldn’t have to think about birth control for five years! Nice! But after having surgery I will tell everyone I know not to get Mirena. It’s not worth it.
Comment by Adrienne on 20 June 2011:
Sorry. I got my dates incorrect. I had surgery June 2011. Last week. I’m still on some pain meds after surgery. Oops.
Comment by Christina on 29 June 2011:
I went to my obgyn last week to have my mirena removed (at the end of the 5 years). They could not remove it (it was stuck). The next week I had to have an ultrasound where they took a ton of pictures to see where the IUD was/is. Going to the exam room I still thought the doctor would be able to remove it that day. Unfortunately, I have to have surgery to remove it. They’re not exactly sure where it is (it is embedded in my uterus) but they’re not sure if it has adhered itself to anything else. I would not recommend.
Comment by Ali on 30 June 2011:
I had a Mirena inserted 4 years ago. Prior to that I was in good health…fit, running marathons, no medical issues to speak of. After the Mirena was inserted I started developing cystic acne, several dermatologists suspected the Mirena but I was told by the nurse practitioner who inserted it it was not. So I have been on antibiotics as well as tried tons of products to get rid of it since then without success. About a year after it was inserted, at my annual exam I told the nurse practitioner that I had what I thought was a gallbladder attack and described it to her. She said I did not fit the profile and she felt strongly that it was a bad gas attack, so I left it at that. Around that time I also had an unexplained weight gain (15 lbs or so) and saw an endocrinologist who diagnosed me with insulin resistance (no family history) and he put me on Metformin. A few months later I ended up in the ER with a severe gallbladder attack, 3 weeks later it had to be removed leaving me with all kinds of fun bowel issues now. A couple of months ago I gained 12 lbs in 2 weeks and am now up to a total weight gain of around 16 lbs…again, no idea why. And the weight gain is all around my mid section, hips and my breasts are sore…to the point that I asked my doctor to give me a pregnancy test (it was negative). I have an appointment later this month to get it removed.
Comment by Stephanie on 7 July 2011:
I got the iud in 2008 I was bleeding for three striaght mths sixs mths after started exp. backpains when I wake up in.the morinings then.it seems as if every thing went back to normal no heavy periods no backaces till the begining of this year my period stay on for two weeks at a time my backaces are back there worse then before not only do I wake up with them it’s hard to sleep at night because of them if im standing in one position for a while like washing dishes it’s painful and not to mention the other side effects( headace ,fatige, low iron tender breast, and moodswings tired all the time went to doc they said it has nothing to do with iud I dn’t knw if it’s true dn’t knw what to do someone help me please sooo…. tired of going through tthis oh yea and weight gain
Comment by CORTAEY B on 12 July 2011:
I got the mirena inserted monday june 13,2011 it was painful my ob/gyn told me the pain should only last about 30 mins and feel like menstrual cramps, which i didn’t know what that felt like b/c i’m one of the few woman who don’t have menstrual cramps the whole process took about 5 mins when he was done i barely could move it hurt so bad that he had 2 come back 2 the room and check 2 c if i was ok after he left out the pain continued for two days i returned wednesday june 15,2011 for an ultrasound to make sure everything was ok which it wasn’t. He couldn’t find the string i was sent to a near by hospital for an xray then a ct scan and the mirena had perforated my uterus all within a two day period of time that is crazy and unheard of today is tuesday july 12,2011 i had 2 go through surgery yesterday to get it removed and been bleeding ever since the day i got it inserted i feel weak and sore all over i have a 4 month and 3 yr old child that i have 2 push off on all my family member b/c of the pain i can’t take care of them myself i been out of work 4 about 4 weeks now and on the verge of losing my job and apartment …. i wouldn’t recommend this method of BC to anyone
Comment by Kelli G on 17 July 2011:
I had my 1st Mirena insterted in January 2008 after my daughter was born (Sepember 2007). I was 19 and in college planning to continue to get my degree. I experienced many of the symptoms described (emotional outbursts, weight gain, fatigue, etc..) but attributed it to being a new mom and the stresses that go with it. When my daughter was 10 months old (7 months post insertion) the Mirena expelled itself. I decided to take a home pregnancy test before calling my OBGYN to get a new one inserted, and much to my shock it came back positive. I had not had a period for almost 4 months at that point and had no clue when I may have become pregnant. I turned out to be only 5-6 weeks (based on a blood test), At the time my insurance had changed and the OBGYN I had used for my daughter did not accept my new insurance, so I was seen by a new doctor for this pregnancy.
The pregnancy was a nightmare. Crazy morning sickness, no weight gain. Preterm labor starting at 23 and continued to have issues so I was placed on bedrest and was able to contiue the pregnancy to approx. 34 weeks when my water broke. My son was born in March 2009 weighing 4 lbs 14 oz and spent 2 weeks in the NICU on breathing/feeding tubes. One of the most difficult times of my life…
I decided I was not ready for a tubal ligation, but wanted something long term. After being convinced by the doctors of the great results and feedback of Mirena and that I was likely improperly inserted.not checked properly, I had a second Mirena inserted.
Again I got the much loved side effect of not having a period (my main reason for going with Mirena again) and life continued as normal…until October 2009. Deja Vue….My Mirena again was expelled so again I took a test, positive instantly, and called the doctor to schedule an appointment. My OBGYN was shocked! aparrently the odds that happening to me (twice) were apperently astounding. So I had an ultrasound to see if it was in the uterus and it was…again at about 5-6 weeks gestation. My doctor spoke with their “Mirena Rep” and told them about my situation and the had no answers. Of course…
The third pregnancy was less eventful and my second daughter was born full term at 37 wks 1 day weighing 6 lbs 4 oz. I love my kids and wouldn’t change a thing now but it was not in my plans to be a mom of 3 under 3 at 21 years old.
My husband and I decided it was time for sterilization since we had had so many failures (my 1st daughter was concieved on Nuvaring and was growth restricted so I was induced at 38wks, she weighed 5lbs 12oz).
At my postpartum check-up my OBGYN said she had another Mirena pregnancy who was at 9 weeks. So I know I am far from alone. Mirena is far from the wondering-drug it is advertised as.
Comment by April on 17 July 2011:
Hello. I am a mother of two beautiful baby boys who are 3 and 22 months. I had mirena put in during my 6 week post partum appt. It was painful going in and i bled for several days after. A few months went by and everything was fine. Then I started having severe migranes to the point that I would be huddled over the toilet because it would make me so sick. I could not even go to sleep because they were so bad. Then in the fall of 2010 I started cramping really bad and had tenderness in my abdominal area to the point that I could not even wear jeans so I made an appointment with my obgyn. When i went in she did an ultrasound and found a cist on my right ovary. She told me there was nothing that could be done and it would go away on its own. Since then I have had more cists and one time I was in town I started cramping so i came home to lay down hoping that it would go away but the pain only got worse. I was huddled up into a ball in the floor and had to be rushed to the hospital. It hurt so bad to move and walk and even worse to breath. When i got to the hospital they gave me a shot and the pain decreased a little. They sent me home. I have gained over 30 pounds and have had the moodiness, crying about EVERYTHING for no reason, breast soreness, migranes, bleeding for long periods of time strong and heavy, and now I have an infection. The string that is supposed to hang down is gone but yet they still say that everything is in place and it scares me that when I get it taken out, how are they going to get it out if there is no string? Something needs to be done and bayer should have to pay for what they have done to all these women and their lives. They can give them their money from their doctor appointments back but there is no way that they can give them their lives back. I plan on having more children with my recent boyfriend and if I am unable to have kids I will be furious. it is not fair to him and he should not have to pay for their mistakes. They are fake and misleading and it is rediculous!!! Something needs to be done to stop this and take it off the market. It is NOT SAFE and it defenitly IS NOT “the best” form of bc. I am so scared that this infection is going to get worse. I have to take care of my children and they need me! I want every one of these women to have their lives back and I know that I want my life back not only for me but for my family!
Comment by Vicky on 18 July 2011:
I am 24 years old and just had to have sugary to have this AWFUL Merina IUD removed in trun I had to have my tubes tied because of all the scar tissue and infection that this nightmare caused me. I had awful nightsweats and insomnia. I also had bad mood swings some of witch got violent and others where I was so depressed I could not take care of my family. I had awful migranes and body aches and massive bleeding spells with sharp pains to my pelvic area and overys. I can not believe that I am 24 and have had to have this operation and now can not have have children with the man I plan on spending my life with.
This Merina IUD has caused me much pain and suffering and my hope is that this product be taking off the market so it can not ruin anyone elses life.
Comment by Christina on 18 July 2011:
As the others that have posted on this page, I am a mother. I got my IUD in six weeks after my first child was born in 2007. I was told that I should still have my period but with less cramping. WRONG! I experienced a extremely lite period that same week. After that did not have another period and explained this as one of the side effects. As of the end of the year in 2008 me and my husband decided to try to have another child. Once it was removed I have only had 3 periods on my own. When they are on my own I bleed for close to a month before it stops. I go to my doctor often to get a prescription to force my body to have a period. Which means that I pay close to $30.00 a month to have what should come naturally. Before Mirena, I had the perfect 5 day period, same date every month.
My doctor is now testing my blood to see if I am even ovulating anymore; and to check my harmon levels. So now, I fear that the “choice” that I thought I still had to have another child has been stolen from me and my family. Where I did the responsible thing to prevent pregnancy till my husband and I where back on our feet; is what has broken my heart now. I feel as if someone has robbed me. I have been also put on depression meds, due to my up and down mood swings. If I try to pick up my now four year old I feel as if my uterus is going to rip apart. At the age of 26 I have lost hope.
Comment by Sshelly on 20 July 2011:
I have kids already always wanted a big family already six…i come from a big family so does my husband..after my forth child I got mirena put in was told totally safe and I could get pg as soon as I got it removed…wel we decided to get it removed after having it almost a year started trying right away it’s now ben two and a half years stiil no baby…even did a few rounds of clomid!!! I’m only 27 and have gotten pg so fast in the past…i know clomid has made me infertile and I’m so angry!!!i wish I would have known.this bc is the devil..I’m so sad and sorry for all the women affected by this..i read all your stories and cried…i hope we can save o ther womenfrom this heart ache.
Comment by Shelly on 20 July 2011:
There was some typos in my last comment..i have four kids wanted six..and mirena made me infertile not clomide sorry
Comment by jessie on 20 July 2011:
I had mirena implanted in the beginning of 2008 at my six week checkup after my c-section. i left it in for 2 years before having it removed. i gained 40 lbs and still have not lost it and had severe cramps the whole two years along with other complications. mirena should be taken off the market
Comment by Sarah on 22 July 2011:
I had an IUD inserted in November 2010. After 6 months of bleeding on and off, I went in to have it checked. After doing a vaginal check, ultrasound, and x-ray, the IUD was found in my abdominal cavity. I had to undergo laprascopic surgery to have it removed, and I am EXTREMELY frustrated that I 1- was not warned about this risk 2- am paying for this surgery. I think that this happens more often than told it does. I don’t know whether this is a placement issue with the doctor, or a malfunction of the IUD itself.
Comment by Alyssa on 28 July 2011:
I was 20 when I got the IUD put in Feb. 2010.Even while I was pregnant my doctor talking like the IUD was the best birth control to have. After having my daughter, I was put on Iron Pills because I was anemic. After my 8 week check-up, my doctor put the IUD in. He told me it would only hurt for a day and should only feel like cramps and was only supposed to bleed for a few days. I bleed for 7 MONTHS after having it put in. I went back for a 3 month check up and told him I had really bad headaches, bad mood swings (the mood swings was so bad my husband and I could be talking normally and then all of a sudden I would snap and go off), unbearable cramps that would result in sleepless nights, back pain, weight loss (I am usually around 120 to 125lbs and I got down to like 108lbsish) and depression (I had never been depressed in my life but I didn’t want to get out of bed, play with my daughter, clean, cook or anything). He told me it was just because I just had the baby 3 months before. I thought post-partum usually lasted the 8 weeks. He also told me that the bleeding should stop. I went home…sad, depressed, cramping and a awful headache. I went home and googled side-effects of the mirena and got forum after forum of woman with the same problems as me. I went back to the doctor 3 months later for my yearly and told him to take it out or I would find someone else too. He tried to talk me into keeping it in and saying all this was in my head and he had never heard of any of this or had any other woman complain about it. Needless to say, he took it out and that was in the July 2010. A year later I feel like my old self. I do believe bleeding, headaches, cramps, and etc that I had was a result in the mirena.
Comment by Lisa on 30 July 2011:
My IUD was placed in May of 2007, just 6 weeks afer my miscarrage. I agree with the rest of the women who say it hurts when the doctor is putting it in,however it hurt because your uterus was contracting and that’s to be expected. I did have some discomfort and spotting for a few days after insertion but it went away. My periods subsides ,I did have some headaches and migraines but I have always had problems with headaches in the past. Myself, getting the mirena IUD was the best thing so far. I have to say that this was the best birth control method for me. I will be calling in a few months to schedule my appt. to have it removed and a new one placed. I’m hoping all goes well with the removal- although reading some of these post really scare me.
Comment by Jeannie on 31 July 2011:
Well…I had Mirena put in ablout 4 months ago (6 weeks post baby). I reall didn’t experience many side effects other than headaches, severe abdominal cramping, lower back pain, shooting pains in my vagina and but areas, acne! I bled for 5 weeks and when I went back for my check up on the Mirena my doctor couldn’t find the strings to the device!!!! I went for an ultra sound and they couldn’t see it anywhere! After a series of procedures to find the IUD (hystoscopy, CT scan) the only logical conclusion they can come up with is my body expelled the Mirena! I was content with that! Until about 2 months ago I have started cramping again. Still having shooting pains in my vagina and butt area, lower back pains and really bloated feeling!!!! I am really starting to wonder….all the tests that they ran on me to look for the Mirena..could they have missed it somehow and it still be there imbedding itself in my uterus or worse my liver or something???? Could someone talk to me about this and ease my mind alittle bit on this situation? Do you think I should go back to the doctor and have more tests ran? Or do you think its just all in my head??!!!
Comment by Marlee on 1 August 2011:
This is in response to Jeannie’s comment about Mirena – I have had this device in for almost three years. I have experienced only the lower back pain during ovulation each month. Other than that I almost forget it’s there. I would however be concerned that a scan done did not pick it up — hard to believe it was missed. I do know that they sometimes are expelled by the body but my doctor assures me she has not had this occur wih any of her patients. My advise to Jeannie is go to a different doctor and get another scan and opinion before relaxing about this. I would want to be sure. The one GREAT advantage of Mirena other than preventing unwanted / unplanned pregnancies is no heavy periods just light spotting. I haven’t had to use a tampon or pad in almost 2 years. Love it!
Comment by Monica on 3 August 2011:
I had the Mirena for almost a year, I have never had problems with migraine before. It didn’t hurt to have it put in but I always had migraine or headaches that never seemed to go away, I was tired all the time moody and had abdominal pains. I had to fight with the dr to remove it I would never consider recomending this birthcontrol to anyone ever. Now that I’ve had it removed I feel 100% better tylenol works for any kind of headaches I get now, I’m no longer tired no pain like when I had this IUD. I hate the mirena and would like to see it removed from the market!
Comment by melissa hall on 3 August 2011:
i had mirena put in after my first child. had it in a little over a year and had it removed in dec, in hopes of having another baby. by august my periods completly went away and a couple af months later and after many test i was diagnosted with premature ovarian failure. from everything i have been reading many many women have had the same outcome after using the mirena. now i have to go to a fertility specialist with no insuranse. my chances of having another baby are very low even with fertility treatments.
Comment by CHERIE on 6 August 2011:
I had the IUD placed for the use of birth control in Aug 2008, so I could not have children for a while. About four weeks after placement I begun to have many complications. I continually had severe abdominal pain. I went to the same doctor in which he said that the IUD was not in my cervix and then continued to order an ultrasound of my abdomen to make sure it was not in my cervix. They did not see it in there. But did say that I concurred pelvic inflammatory disease(PID) from having the IUD. They prescribed me medication and placed me on the depo prevera so I could continue to have birth control. But even though I finished all antibiotics for the infection I continued to have abdominal pain. In which I was seen several times for. After that they begun to tell me that I was having pain due to the depo shot I was on. But the pain never got better, it seems as though it gradually got worse and even though I seen the doctor many times they would tell me they could not find anything wrong except for the fact that the depo can cause the issues I was having. I have been very depressed, crying for no reason, back pain, pelvic pain, abdominal pain, really bad headaches, irritability, angry, and just plain not myself. So I then decided that the pain was not worth being on birth control so I then decided to get a tubal ligation so I could stop having all the problems I was having. So in Dec. 2010 I got the surgery done which was a permanent form of birth control but I couldn’t help to think that I could finally live my life without the pain I was having. But guess what, I was wrong. The pain begun to get worse and worse. On July 20, 2011 I went to my doctor with sever abdomen pain with sever back pain, nausea, vomiting, fatigue, dizziness, and unable to eat or drink causing dehydration. The doctor that thought I may have something wrong with my appendix, so she sent me to the emergency room to get blood work, IV fluids, and a CT scan to find out what was wrong. So after seven in a half hours of sitting in the emergency room waiting to find out what was wrong and why I was in so much pain I get told something completely unexpected. I have an IUD jammed in my intestine and there is nothing they can do until I got see my OD GYN. So I got home stress all night about what was going to happen next. I go see the OBGYN the next morning for him to tell me that I have to have surgery to remove the IUD immediately. WOW!!!! Now I have many questions in the back of my head the first of which is, “WHY ME”! Why did they not try to find this 3 years ago when the pain first began. All the times I went and seen the doctor why did he not look into it more? Why did they not see it when they did my tubal ligation in December? Why didn’t they do a CT scan or X-Ray in the first place to make completely sure? Now I have to go in have the surgery and miss work that I cannot afford to miss. Plus be in this sever pain because they couldn’t be more couscous. This is not fair to me and I think that this was an issue of negligence on their part. If they would have taken the time out to actually look into my pain in the first place would I be going through this now? Now I got my tubal ligation done and will never have children due to you misleading my thoughts. I knew there was something wrong and you kept making me feel that I was wrong. That there was nothing wrong with me. My life has been miserable due to your un willingness to say that patient comes first. Due all possible to make sure they are comfortable. ” I WAS NOT COMFOTABLE” I was in constant pain and you made me feel like I was crazy. I now know I was not and it will be fixed. But it is not fair for me to have to go through this. You should make more time for your patients and make them feel like you care. Or how about this why don’t you try to ACTUALLY CARE. Thank you for listening to my story and the questions that I wish could be answered and even the things I would love to say to them.
Comment by April on 11 August 2011:
Has anyone been contacted by a lawyer yet?
Comment by Robyn on 12 August 2011:
The Mirena was inserted on June 27th, an ultrasound was given to make sure it was in the proper place and it was. That evening I was having sharp pains and lots of blood but it had stopped. Checked strings and they were long and I could feel them. Later that night, I felt them again and this time they were much shorter. I checked them around lunch time on June 28th and couldn’t feel the strings at all. I called my doctor and made an appointment for 9am on June 29th. My doctor checked for the strings and couldn’t find them either. She then gave me an ultrasound and saw a white line but wanted to make sure and sent me for an X-ray right away. All this time, my boyfriend is supposed to be at work. The X-ray showed that it was in my body but didnt clearly show it’s location so an MRI was ordered. After 30 plus minutes in the MRI, it was seen that the mirena was in my uterus but had migrated into the muscle of my uterus and needed to be removed. I then went back to my doctors office, it was now after 5 pm, to have it removed. My doctor tried numerous times to pull it out and after a lot of pain and blood, it was seen that it was not coming out easily and it was causing me great pain. An appointment was made to have an operation that consisted of a camera into my uterus for the removal and that I would be put to sleep. I called my mother who lives 4 hours away to come so that she could watch my children and that my boyfriend could be with me at the hospital this also means she would be missing two days of work. I wasn’t able to eat or drink anything after midnight that night and I had to be at the hospital at 1pm and the operation was at 3pm. Without food and drink, this made it difficult for me to properly breastfeed my 6 week old baby. The operation was unsuccessful because the mirena and perforated my uterus and was now in my lower abdomen. Another operation was made to go through my belly button and my lower abdomen to remove the iud. I was told that some of possible complications could result in more bleeding, infection and possible hysterectomy. Also, because of the anesthesia, I cannot breastfeed my infant for 12 hours now. A specialist was called in to assist my doctor in this removal. The operation was successful and I woke up in recovery at around 11 pm. I was offered to stay the night and declined due to my boys needing me home. I was told that i cant lift over 10 pounds for 3 weeks, meaning I cant pick up my three year old and give him a hug. I will now have scarring in my belly button that will never go away and an experience that I’ll never forget.
Comment by Jackie on 13 August 2011:
I am 24. I had my son at 18. The doctor said I should get an IUD because it was the “best new thing”. I had it in 2 years. It was painful sometimes where I couldn’t sleep, couldn’t have sex, I couldn’t MOVE. I had to find one spot/position to lay in that didn’t hurt. I finally had it removed. IN THE ER. Now I have that unpaid medical bill. Then every once in a while I can’t have sex because the pain gets worse and worse. I went to the doctor 5 times in the past 3 years. Now I have all those medical bills. Each time the doctors said they couldn’t find anything and tell me why I was in sooo much pain. For the past week my lower stomach hurt so bad I cried everyday and night. I didn’t know what was wrong. Yesterday the pain started at 3am. I figured it would go away if I could sleep. I went to class, sitting in class the pain started to get so bad everyone around asked if I was ok. My teacher said either I get someone to take my to the ER or she was going to call the paramedics. I spent the next 6 hrs in the ER. The doctor told me I am pregnant. It is an ectopic pregnancy. I would have to get rid of it before it ruptured my fallopian tube, which I could die from. I was then told that it is because of having an IUD. I might not ever be able to have another baby. I have never been so depressed in my life. I really hope that this wont happen again. I learned that 1/3 of women who have ectopic pregnancy will have it occur again and again. 1/3 might be able to get pregnant again. and 1/3 will never be able to have a baby again. IUD needs to be taken off the market!!! And doctors need to actually CARE about their patients and tell them the truth instead of “selling” what can cause more harm than good!!!
Comment by Ariana on 15 August 2011:
I am a 21 yr old single mother of 2. I had the mirena put in May 2010 after my daughter was born. I cannot take the pills and i had the nuva ring before but it broke.. The mirena was kinda my last option since condoms aren’t fool proof either. In aug. i stopped getting my period which i thought was a good thing until i got bacteria infections every other month around the time i would be due for one. I started having severe pains daily from my stomach to my back and legs. I could barely handle intercourse as well witout bein in pain. In dec the pains kept gettin worse and more constant. I went to my obgyn and found out i had cysts ony ovaries more on the left though he gave me pain pills and sent me home saying “they’ll go away its normal”. well from dec to feb 2010 the pain kept on worsening then i started to bleed randomly and it rush out like nothing. I went back to the hopsital and they couldn give me an answer. I made a follow up apt with my obgyn and had gotten an ultrasound. i found out i had 4 cysts on my right ovary and 5 one my left with fluid all around my ovary from one bursting. I was givin beyaz birth control to take for 2 mths to suppress them. Well in april i go back to find out my right side was ok but my left side wasn’t. The cysts had conjoined with one other to form a a cysts the size of quarters and my ovaries are the size of walnuts! thats not a big difference. On the 29th of april i had surgery for the removal of the cyst and scar tissue from a c section. Only a mth n half later went by til i was bask at the er for bleeding n severe pain. They ended up finding yet another cyst on my left ovary again! They say i may have had on burst. I was in so much pain they had to give me morphine which didnt help that much. This pain was worse then contractions. To this day i have em sometimes i cant move my legs and my back cramps up to my shoulders. in july i went back to dr for bleeding yet again and the pain i was having. He wanted to make sure my iud was in place and it was. During the internal ultrasound they found 3 more cysts on my left ovary and one was a bigger then usual now i have to do the beyaz process again. Its been a month and honestly its gotten worse i hardly sleep from that pain and my back pain is gettin horrible. The dr had said as far as the pain goes it could be the iud or my cyst or both.. I wanted it removed at the time but he talked me out of it esp since i really didnt have options.. I said ok maybe ill ok its just the cysts. a couple wks later i i kept going through pain and painful intercourse to the point to where im afraid to do anything.. It hurts like hell! I made another apt in then end of july to remove it but he talked me out of it again.. i started doing more research and realized almost everything physcially and mentally i been through the past year may have been caused by this damn iud! I made an apt july 26 to have i out and had to wait 3 wks to do so. well las thursday i went to get it out and couldn’t!!!y? well he treid for 5 mins and used different tools with out any lucky because the strings weren’t visible. They’re embedded into my cervix so i think.. i didnt get sent for an ultrasound or nething jus goin by what he says. The funny thing is he said he needed to reach my uterus.. but for what?? now i need to have this surgically removed friday.. i have a feeling my dr knows its not in my cervix but in my uterus! the crazy thing is this damn thing causes more problems then sovling them! when i was at my drs there was a woman at the desk with bc pills and a pamphlet in her hand for the mirena, and two mirena iud boxes sittin on the nurses desk.. Im starting to wonder if drs offices profit from woman having this inserted. Is that why they didnt want me to take it out?.. i am in the process of filing a lawsuit against the company who makes the mirena and my dr for Mal practice. I have been through more problems then explainable. i pray for all you women that have been through what i have or worse! if you still have it in you get it out!! I’m tired of the acne , swollen feet and hands,migraines,mood swings and bacteria infections!! i am a very clean person that makes me feel disgusting!
Comment by LaChic on 19 August 2011:
Hello gang, Im a 31 yr old chick, I have a 5 yr old mini me. I got the Mirena on Dec.20 2007, I thought it was gonna be great, not gonna have to take a pill everyday…whoohoo!!! everything was working out fine them BAM!!! im on the bathroom floor with paramedics around me, Im “coming to” speaking to everyone, saying hello, hi. IM totally confused as to what the hell happened. The doctors are describing to me that I just had a SEIZURE. Im thinking to myself “where the hell that come from”…I’ve never had one in my 31 years of living. The docs wanted to medicate me and send me home.(i didnt want it). A couple more months go by…and here goes another one(daydreaming out the window)back to the hospital we go again. they hook me up to the machines to try and cause a seizure with all the flashing lights…NOTHING!!!….WHY because im not epeliptic…hhhmmmm. this time I take the med’s. Now im feeling tingling in my fingers, im feeling slow..a little stupid and cant concentrate at times, and forget words that Im liiking for while talking…very frustratng!!!!. Now a year later everything is cool then BAM!!! POW POW…I hit a car and a light pole due to having a seizure while driving(tear)!!! Then it hits me…all this CRAP starting after I got this DAMN IUD!!!! but these damn shitty ass doc’s wanna say its irrelivant??? really??? oh im crazy huh??? this thing is cummin out!!!! bet that!!!
Comment by Carrie on 20 August 2011:
I have been married for 7 years and have two children. I received my Mirena in April of 07′. I don’t recall any issues with the insertion or side affects until my last year. I started noticing mood swings, back acne (not normal), cramps, and breast tenderness. When I went to the doctor this last week, she told me it was probably because it was coming to the end of the Mirena’s “life cycle” and the hormones being released were dying down. I decided to have it removed and a new one put in (yes, dumb) and that is when things got worse. She could not find the strings (which I was NEVER told to check…..I found that out when I researched my symptoms). She informed me that the strings either retracted or the device expelled itself. If the strings were retracted she told me that they would have to put me under and find them with a camera. I was moved to ultrasound where they did locate it, BUT it had embedded itself into the wall of my uterus. I now have to go get it surgically removed at our local hospital. I will not be getting another IUD again. Not to mention that I have since found out that the Mirena produces a synthetic hormone……no thank you. I would advise against the Mirena…..I have no idea why this would not happen agian or to anyone else???? I have read about SEVERAL cases like this now.
Comment by Jene on 20 August 2011:
In June of 2006 I had the mirena put in 8 weeks after my daughter was born, my doctor helped convinced me this was the birthcontrol for me due to the fact that I was young and was not at all ready for another baby anytime soon. Three and a half years later, my husband and I were finacially ready to have another baby so we decided to have the mirena taken out, here I am 2 years later and no baby. I have started going to the doctor for fertility testing and so on. I am terrified they are gonna tell me I can’t have anymore babies due to the fact that I chose to be responsible when I was 18. I am only 23 years old and can’t have a baby with my husband. My daughter deserves to have siblings and it’s not fair. I felt I was cheated out of my family and will not stop until I find out what is going on with MY body. I dont know what else to do….
Comment by charlene on 29 August 2011:
I was on the mirena for over 3yrs. I gained over 30lbs and became very sensitive. I asked my doctor to remove it several times & she always had an excuse even blaming weigh gain on my thyroids which I have no problem with. Finally, I demanded it be removed so I was told my insurance may not pay for it. I gave them days to respond then I call doc office & said I had contacted my insurance so they removed it. She begin to tell me how the mirena & depo can make you gain weight & suggest a diet plan. They dont care about your health just making money. This weight is making me miserable.
Comment by jennifer on 31 August 2011:
Im a mother of 2 and when i heard about the yasmin recalls and i went in to see the dr about an alternative to yasmin first thing he jumped on was the iud aka mirena and i told him no way in h*ll will i get one not after the research that i did into bc before i went in. Also a friend of mine had mirena and it killed her twin babys because she got pregnant with it in and i had another friend who had it and it left her so scared inside they said she could never carry again. She did have a miscarrage but awhile later she did succesfully have a little boy. Now that i did some more reading i am glad i didnt get it. For furture reference do some research before u make such a big choice it could save u alot of trouble.
Comment by liz on 8 September 2011:
I have had the mirena for 3 years. I just went to my gyno today to have the normal yearly pap and to have the mirena taken out. I had to go thru two different doctors and they had to put their tools in and poke around two different times to only find that they are unable to take it out due to the strings on the mirena going up into my cervix. now apparently since i didnt have either one of my children vaginally my cervix is too small for their tools to go up into my cervix to try to fish this thing out. I am currently waiting for my doc to call me back so that we can go to the operating room to have them surgically remove this. . . now i wonder what wouldve happened had I waited to remove this “wonderful contraceptive” until my 5 wonderful years had been up.
Also my sister who just had her 2nd child naturally had her mirena put in 8 weeks after her son had been born. It had been put in on Thursday by Sunday night she was going into the er with intense stomach cramps. They couldnt figure out what had been going on so they sent her home with antibiotics. The pains continues. Eventually she complained to her doc enough about the pains so he had her go to the hospital. They put air into her stomach so that they could find out what was going on;. She ended up needed emergency operations…thanks to the mirena it put a hole into her fallopian tube which was causing internal bleeding, cysts on her cervix which irritated her appendix, so the appendix had to be removed among other issues that had happened all thanks to this great little miracle device and for having it for less than a month. This device needs to be taken off the market and if there are any lawsuits against the manufacturers of this device please contact me because we would love to join that.
Comment by Janetta on 8 September 2011:
i had the mirena inserted in Jan of 2008 6 weeks after having my 2nd son. my doctor said it would be best for me, the first month was hell! i wouldn’t stop bleeding 10 super pads full in an hour and it wouldn’t stop. i contacted my obgyn and asked him o remove it and he decided to put me on yaz birth control pills as well as the mirena. i took the pills at the same exact time everyday and it stopped the bleeding but if i missed a pill be an hour i would instantly start bleeding again. after that month i asked my doctor to take it out again and he told me to give it another month so i did. it had been 2 months and if i didn’t take the pill exactly at the same time it wouldn’t stop. finally by the end of the 2nd month i made him take it out i couldn’t handle it anymore. its been over 3 years that I’ve been trying to have another baby and have yet to conceive. i am 23 years old and i can’t have anymore babies,. IT RUINED MY LIFE!!! i would NEVER in a million years allow a doctor to talk me into getting in again!
Comment by SLW on 9 September 2011:
I had my Mirena inserted two months after my pregnancy in 2006. In the summer of 2010 a dermoid ovarian cyst developed on my right ovary. My doctor had to remove my ovary but I still have my left ovary. Here it is a year later and I’m having the same exact symptoms a little worse this time on my left side. I am scared to death that I may lose my left ovary and won’t be able to have anymore children. While I thank God for my beautiful little girl it breaks my heart to think I can’t have at least one more child. I have an appt set up with my OBGyn. I see that Mirena says the ovarian cyst are a side affect but “they go away”. They left out the part about they go away with surgery.
Comment by Jessica on 10 September 2011:
So many problems,it would be just a repeat of most of what you have read on this site.This thing should be taken off the market.If all the side effects had been given to me back in 2008 I would have had to have been out of my mind to get it,but I was told and given info that it was perfect for me.The one concern they had was that putting it in she could poke through my uteris but that was rare and she would know instantly.She said all went well so I was not worried.Now it is 2011 and I am sick of all the problems I am having.I went to have it removed and they were unable to get it,they have now set me up with an entirely different doctors office to see if they have better luck, with all of my (rare) side effects it would be best to have it removed now.I do not think this device is a healthy choice for anyone. I am 33 and feel like I am in full blown menapause and about 43 or older.I pray my life gets back to normal when they get this thing out of me!
Comment by Samantha on 13 September 2011:
I am 22 year old female i had my IUD Mirena inplanted in 2008 after the birth of my second child with in 14 month time period. with in 2 weeks after the iud was inplanted the pains n cramping never went away. I always have pain in my lower abdominal area. keep getting infections in the uterus all the doctor will do is treat me for the infections. Then was told i have ovarian cyst which started about 3 years ago they come n go doctor hasn’t dont anything about it. with in 6- 1year after having the IUD when i first was told i had a ovarian cysic the ER told me i had PID which i never had before having the IUD. i know all these are side effects but it is making me lose my mind with pain all the time cant have intercourse with out wanting to scream out in pain. was told my uterus has dropped doctor dont want to do crap about it. I asked to have the IUD removed n to be honest he acts like he really dont want to do anything about it. about every two months have vagianl discharge from having the infection in my plevic or uterus area. come on now whats is really going on with this IUD. Another thing is my other half claims he can feel it when we can have intercourse and the doctors claims that it is inserted fine has’t not moved n has cut the string short as it can go. in my opinion i think there can be something done.. anyone else having issuse with this?
Comment by Rosemary on 15 September 2011:
! had the Iud mirena inplanted in January 2009 and got it removed in March of this year.I never thought my stomach problems, headaches,no interest in sex and skin discoloration would have been caused by the Iud. After I had it removed my stomach was still hurting. They did a ultra sound and I found out I have veins around my uterus.They wanted to wait to see if I started producing estrogen again because it was a major surgery if not. Well it’s getting worse and I can’t deal with the pain any more so I have a appointment with the obgyn for a consult on Tuesday. I don’t think this should have even been but on the market with all the horrible side effects it has. I know everything has side effects but if I knew all of them I would have thought twice about getting it.
Comment by Katherine on 15 September 2011:
I had the Mirena IUD inserted in June 2011. It was extremely painful and I bled for six weeks straight afterwards. It was at that point I became extremely depressed one morning to the point of thoughts of suicide. I figured I would give it at least six months to level off but after repeated bouts of depression, back pain, lack of a sex drive, foul smelling discharge, headaches, nausea, chest pain, sharp pain in my left breast, a constant need to urinate, anxiety attacks coming in waves (I am becoming increasingly dependent on my Xanax which is something in five years I have NEVER done), insomnia, dizziness and a host of other problems I called my doctor yesterday (09/14/2011) and am scheduled to have it removed next Wednesday. While my doctor covered the basics I don’t feel I was given as much information as I should have been to make an informed decision. How can I make an informed decision regarding my health with only half the truth? The last four months have been a nightmare and I am just ready for it to be over with.
KDH
Comment by amber on 16 September 2011:
I am 24 yrs old I had the iud placed in 2008 six weeks after my son was born. It has been three in a half years and I feel like crap. It hurt so bad getting it out in I almost passed out. I have had the same symptoms as everyone else. I tried sep 12 2011 to get the iud removed the doctor attempted three times and with that a vaginal ultrasound to make sure it was still in place. It was so painful trying to remove it I could not take it any more. Well from what he said the “strings that are suppose to hang down has wrapped their self around the iud.” But I talked to a nurse and she said they r not strings its little metal wire that hangs from the end of it. So there for Monday Sep 19 I have to have it surgically removed. So if I continue with problems headaches, hot flashes, pelvic pain and bleeding I’m going to try hard as I can to press for a law suit, I want another baby and terrified after reading it may damage me fertility wise!!! And i have not stopped bleeding since he attempted to take it out.
Comment by Kara on 18 September 2011:
I am 22 and had my 1st child in November 2009. In Jan. 2010 I had mirena inserted. Four months later I ended up pregnant and my OB couldn’t find the IUD and still to this day I have pelvic pain, pain during sex, hip and back pain. In the progress of trying to get the doctors to help me find out what is causing the pain.
Comment by Emily on 19 September 2011:
When I first heard about Mirena, and did my “research” (which consisted of reading the brochure and going to the Mirena website), I thought “what a dream come true! A birth control with the least amount of side effects and you don’t even have to think about it! Yay!” …Little did I know it was going to be one of the worst decisions of my life. Since I have had it inserted in December of 2010, I have had:
constant panic attacks,
terrible depression,
I’m always in a daze with my head in the clouds, I feel like I am going crazy! A lot of disassociation is brought on with this, and it is driving me nuts.
My temper is out of control,
I have numbness in all my limbs and face,
debilitating headaches and migraines,
blurred vision and spots in my eyes,
heart palpitations,
pain in my lower back and abdomen,
no bleeding (but that is due to the fact that I am still breastfeeding, which I pray has no direct impact on my son…if it did, I would probably kill somebody…)
EXTREME exhaustion coupled with over-sleep during the day and insomnia due to paranoia at night,
….basically everything terrible that everyone has been talking about.
I am disgusted and hurt, and getting this horrific thing out of me as soon as possible. I am terrified now knowing what can happen while getting it removed and after removal, and I am so angry at myself for ever having made this stupid decision. I am scared I will not be able to have anymore children, or I will end up getting a terrible infection that can lead to things such as type 1 diabetes, or constant yeast infections. I don’t want a hysterectomy………I don’t want anything! I’m so scared!! I hope it all goes well…but after reading everything, I doubt it will. This is a terrible device, and I am amazed that doctor’s are still offering it. If this causes irreversible damage, you better believe I will do everything in my power to get Bayer to fix it. I can’t believe this. I am disgusted, and really, really hurt
I feel like I could cry, which wouldn’t be a surprise since I burst into tears randomly anyways. Ugh.
I was not well informed on this decision, only the positives. And the brochure made it sound like nothing could go wrong at all, or if it did, it was a very slim chance, and it was nothing about these terrible side effects. I feel deceived. I hope getting it removed will end this nightmare….if not….then I don’t know what I’ll do. I just want this to be over
Comment by sherry on 22 September 2011:
I had the mirena put in in April 2011because of serious bleeding and cramping just one month later i was rushed to the hospital because i couldn’t breath and my heart was racing i had a pulmonary embolism. the funny thing about that was the blood work said there was low lickly hood of a blood clot because the numbers were to low but sure enough with a cat scan i had one and spent several days in the hospital. my primary doctor said we should have it taken out but the ob/gyn refuses to take it out swearing the mirena isn’t the problem. i still have it in and and i am still bleeding from it being placed. the ob says it is because i am on blood thinners and still refuses to take it out. i just don’t know what to do.
Comment by Kelsey on 24 September 2011:
I had the Mirena inserted after my second child, November 2006. This November would be my 5 year mark, and it has been amazing. I had a little discomfort after inserting it, but after that I didn’t have too many side effects- I didn’t gain weight like I did with other birth controls, my periods lightened up to 4 times a year, and I didn’t have to do anything with it, never felt it- it was easy!
Then, last week I started have horrible pains in my pelvic area, and when I went to the hospital they told me I was pregnant. So I knew it was most likely a tubal pregnancy, and I had to get emergency surgery. They thought that the IUD may have punctured my uterus too because there was a lot of fluid in my abdomen. But after surgery found out it was an ectopic pregnancy up near my ovary. They said I was about 1 1/2 months pregnant, the placenta started forming & since the lining is so thin in the fallopian tube, it ruptured. I had 1/2 gallon of blood in my abdomen. So they removed my IUD (which was still in place & my uterus was fine, no puncture or anything), and they also had to remove my fallopian tube as well.
I always loved the IUD, and Im considering getting it again, but Im a little scared. I mean it worked great for 4 years and 10 months, right?! The Doc just said that I would need to get it taken out at 3 years instead of 5 cause apparently our eggs/sperm is too strong for the lower hormone levels. Last year I asked my OB if I could take it out a year early because we are super fertile, and if there is a higher chance of getting pregnant in the last year, I WOULD. But she told me it was safe for 7 years, but 5 years is the limit. So that was just great.
I’m a little scarred to get it again, but I don’t trust any other form of birth control…
Comment by Bonnie on 25 September 2011:
I had the mirena fitted in January last year, I suffered the usual pain after having this fitted and continued to have pain. I became pregnant in August 2011 with the mirena still fitted, only to find out that the coil was now on top of my bowel. I have had to undergo a termination as my family is complete, following this I had a mini stroke and was in hospital, it could have been related although i don’t know for sure. I am now scheduled in to have more surgery to remove the coil. The consultant who saw me has advised that he believes the coil was never in my uterus but had been pushed through the wall of my womb at the time of fitting! Not only that but because the hospital would not xray me while pregnant to see if the coil was still in place I was advised to use another form of birth control after the termination, I therefore had the contraception injection, so I now have two lots of contraception in my system which is causing tiredness, spots, and the most horrendous night sweats meaning that I get little or no sleep whatsover.
Comment by Kimberly on 5 October 2011:
I had the Mirena inserted in March, 2008. When I went for my follow up visit shortly after, I was told that the device had moved and that the strings were no longer visible. I was sent for an ultrasound which found the Mirena was still in my uterus and not to worry – but that I would need surgery to have it removed when I was ready. On Monday I spent the entire day in the ER with MS-like symptoms. Numbness and tingling on my entire right side and face, headaches, etc. A CT Scan and MRI as well as all bloodwork came back normal. I googled my symptoms and found literally hundreds of other women with my same symptoms. I immediately called my Gynecologist and have scheduled the Mirena to be removed via hysteroscopy next week. I will also be requesting a blood test for Silicone poisoning. I can not wait to get this device out of me and hopefully have my symptoms relieved.
Comment by cherie on 7 October 2011:
Has anyone heard anything about this. Or have any of you found help?
Comment by Melissa on 9 October 2011:
I have had the Mirena for over a Year and have never stopped bleeding, I actually bleed about every 10 days now, have horrible PMS, no sex drive, suffer from depression and worst of all I have developed migraine headaches that I am
Having to see a neurologist for now. I am seeing a new Gyn to see about getting it taken out now. It has been the worst thing I have ever been through!!
Comment by Carrie on 9 October 2011:
OMG!! I’ve had the same thing going on and have been to my OBGYN, FAMILY, GASTROINTEROLOGIST, and the ER doctors..I was told it wasn’t my MIRENA!! My OBGYN office was the first place I went. They are now sending me to Charlottesville in December. I’m having all the same symptoms as everyone else! It’s very painful and I’m about to go crazy..I feel like I’m not getting anywhere and I’ve been in pain for far too long. Medical bills are piled up sky high and I’m a single mom so I’m working and feel like Hell! It’s been a NIGHTMARE! And December is too long to have to wait..it’s been almost a year! They keep trying to give me all these pills that don’t work. I DON’T want pills that mask my symptoms..I WANT them FIXED and GONE!! I will be in my OBGYN’s office ASAP and I’m telling him I want it removed NOW! WTF!! THANK YOU ladies for your post!! Has anyone gotten a Lawyer yet?
Comment by jessica on 11 October 2011:
Got mine removed,had to use a camera to find it and was put on some good meds had a shot to numb the cervix,felt better 4days after and after 2 weeks I was almost back to normal…now at 3 1/2 weeks I’m great!Posted back on Sept.10,2011….It is not a good choice for all of us,my problem was how it had my hormones all out of whack.I guess some women need more and some need less, I needed less.So glad it is gone along with all my problems!My husband even saw the difference in me after.Oh and another thing I lost 8 lbs with no change in my diet.I was not out of my mind after all!Best wishes girls.
Comment by Vanessa on 12 October 2011:
Wow!! After reading all the comments I’m really starting to freak out…I got my mirena placed in Jan. 2010 2 months after my daughter was born…thought it was the best thing ever I mean I got my periods regularly for about 3 months till it finally went away some spotting every now and then but I never had any side affects until now…it’s been in me for over a year and it started about a month ago I get shaky, I haven’t been sleeping, I’m always hungry I’ve gained about 10 lbs, I feel bloated, tender breasts, almost like if I’m pregnant again I’m starting to really worry I was told I have a tilted uterus so I figured that’s why i could never really feel the strings…I’m really worried now because I am getting to the point were I look, act, and feel like I’m pregnant i feel like I’m going crazy like I’m just make believing all these things idk what to do anymore I need help…
Comment by Regenea on 16 October 2011:
I had the Mirena put in Sept. 2009, my Dr said it was my last option before hysterectomy. I didnt have any insurance so my Dr. “donated” the mirena to me. The insertion itself was pure agony, after about 20 mins, plus 30 mins rest time I was sent home. Since then I have been in constant lower abdominal pain, lower back pain that is almost more than I can bear, headaches, hair loss and uncontrolable mood swings. I bleed for the first 6 or 7 months and then didnt have any periods until Oct 2011, and it was worse than before I had this horrible device put in. I have been to the ER several times and am dismissed with “unexplained” stomach pains. Had I known I would be going thru all this I would never had let my Dr talk me into it.
Comment by Therese on 17 October 2011:
About 6 years ago, I also had to have a hysterectomy to take out the Mirena IUD. INo strings were visible and the only way to take it out was with a hysterectomy. Unbelievable!!!
Comment by therese on 17 October 2011:
I also had to have a hysterectomy to remove the Mirena IUD.
Comment by Alesia on 18 October 2011:
I got the Mirena in 2008 after I had my first child and it was the most painful thing I have ever encountered. The doctor said I would have cramps for about twenty minutes, boy was he wrong. I had a menstrual cycle every other week or two weeks. I know why you can’t get pregnant…because all I did was bleed. The doctor gave me medicine to stop the bleeding, that worked, but when I used the 30 day prescription the bleeding went right back. I always cramped and felt exhausted, but I guess when you are loosing that much blood you will feel tired. I had it removed in May of 2011 and I got a call from the doctor’s office that I had gotten the Pelvic Inflammatory Disease and had to take a round of strong antibiotics. It took me three months to start a cycle after having it removed. If I had known this was going to be the result I would have never gotten the Mirena. I am now taking Yaz and just saw what was happening with it…I can’t win for loosing with birth control!!
Comment by Leigh on 18 October 2011:
Just wanted to pass along my Mirena story…Summer of 2008 I had my mirena put in. In April of 2009 found out I was pregnant and doc did an ultrasound which found no IUD in my uterus. She said it must have fell out. Never thought anything of it. After the birth of my daughter in the winter of 2010 had the Paraguard put in as I didn’t care for the Mirena. Well last week I start feeling something poking, thinking my paraguard shifted position. Had an x-ray yesterday to have the guy say to me you have 2 IUD’s in? Low and behold my mirena has been “hanging” out all this time. Never had a problem or even felt it till now. Ugg, surgery is on the horizon for me
.
Comment by Nancy on 24 October 2011:
I had my Mirena put in January 2010 by the nurse practitioner at my ob office. It was very unconfortable procedure not to mention I was always bleeding I was advised that this would control my irregular bleeding but, this never go under control I called my dr office and they would perscribe me birth control pills. I finally got sick ofthe dr makking me feel like I was over reacting that I went to another dr and I leared that My mirena was out of my uterus and in my ilium per a xray as we were unable to locate with a ultrasound. I went in to have it removed n friday which was a week after the x ray and the dr had to get another xray due to the fact that it had traveled to my Pancreas, not to mention that my uterus is split open from where I believe the iud was pushed through by the Nurse who incerted it. I am not sure if I can have any other children at this point
Comment by Stephanie on 29 October 2011:
I have been researching this as well and was shocked to find I am not the only one out there having these “unexplainable” side effects. I also found a website where literally like 100 women were saying they just removed it themselves. I understand the risks of that (unlike when I had it inserted), but I think if I’m careful and listen to my body while trying self removal, all will be okay. I plan on trying it tomorrow. Here’s the link: http://community.babycenter.com/post/a5600795/self_removal
Comment by Stefanie on 30 October 2011:
I have had my mirena for 3 yrs. It was extremely painful going in and my dr…like the otthers did not inform me of all of the side effects but made it sound like the greatest birth control in the world. At my 1st annual after having it my dr informed me that she could not find the strings. She said this was not a big deal sometimes they curl up into your cervix but sent me for an ultrasound and xray..which my insurance did not cover…just to tell me that it was in the right place and I should leave it in (it may take a scope and anesthesia to get it out). I told my dr about severe pains I had after having sex with my husband that had me doubled over. She stated that it may have been an ovarian cyst that ruptured…as if that was a common thing to not be concerned about. I have recently been having cramps(feel like contractions) abdominal bloating and depression and mood swings. When I called my dr to have it removed the nurse was rude to me and called me back saying that the dr refused to take it out and that i have to wait the full 5 years. I am going to schedule with a new dr..even tho I’ve been with the same 1 for 10 yrs. I am terrified of what’s to come.the pain of removal, possibly having it surgically removed(I have NEVER had surgery in my life) and not to mention infertility or worse a hysterectomy…I am only 28 yrs old, mother of 2 girls and only been married for 4 yrs n would like to try again…as soon as this lawsuit is underway please post!!
Comment by stephanie on 5 November 2011:
First i started having sharp pains after two and of half years. My ob did ultrasound said i have small fibroids.Doctor said Not to worry as of now This spring finally started taking meds for severe mood swing. Still having them..Lately i been feeling as if my iud has shifted. Well last night things changed went from a scratchy feeling to my what i think is my uterus falling through my vagina wall. Its the weekend so will be taking it easy til i can get to the doctor. Thought mirena was the best thing for.me after four years may turn out to be the worst thing ever. Will repost after results.
Comment by Jessica on 6 November 2011:
I got my iud back in sept 2008. All its been is trouble ever since. I have bad cramps all the time sex is painful, I dont have the urge for sex anymore. When I do have sex I get bad cramps, one time it hurt so bad I was curled over for hours, almost went to the er. I have had bad mood swings and just havent been the same since I got this horrible device. My obgyn is the same, gave me no warnings about side effects and made it sound like it was the best thing. Its nice to know that there are others. I also have had quite a few yeast infections from this.
Comment by Jade on 10 November 2011:
I had my mirena put in 6 weeks after my 3 year old was born in 08. It was very painful to insert. I bleed for six months after with only a couple days rest in between. I gained weight I couldn’t lose. In dec, of 10, I went to have it removed and they could not find it. So the next day I had an pelvic ultrasound and it was not there. They finally found it by my right kidney. On January 5, 2011 I had to have surgery to get it removed. It was very painful. Would not recommend it to anyone!!!
Comment by Amberley on 11 November 2011:
I had the IUD put in after my second child, after only 6 months I had to go to a different Dr to have it removed but the Dr who put it in refused to take it out after only that short a time. I had to have it removed because I had literally been on my period for 6 solid months. It took my husband and I 3 years to get pregnant again, and we have decided that we wanted to expand our family and try one more time for a little girl, after almost a year and a half of trying I went to my Dr to find out what the heck was going on, only to find out that I have polycycstic ovaries and now have to take fertility drugs to try to temporarily fix this problem, if I am able to get pregnant again it will be my last because my Dr will be doing a hestorectomy afterwards so I will no longer be in so much pain from the cysts bursting. I pretty much live in pain everyday and it does alot more than just irratate me that it could have been avoided if my Dr at the time had not talked me into getting this form of birth control.
Comment by latasha on 11 November 2011:
i had the iud for four years. and it have been giving me problems like dischargin and having ordor behind it and i tried to get it out for three years and they wouldnt get it out for all that time
Comment by beth on 12 November 2011:
I had the IUD After i had my first son and I had heavy bleeding and cramping so I got the IUD removed about 3 Years later i had my son and I went through so my birth control and my doctor said i should try the IUD one more time becasue the IUD is a great birth control so i got it after the first 3 days the IUD had fell out and i was in alot of pain the T part had turn a whole 360 so after i went to the doctor and she pulled it out.So i was spoting here and there for about 14 weeks the first 3 weeks i was bleeding and cramping and each week after the pain go worst. So i went to the doctor because i was so weak and was not my self the doctor told me well your pregnant i said what how can i be pregnant if i been bleeding she said the baby fine after she took test then i was still not feeling well and about a week later my baby was growing in my left tube and due to being 14 weeks my tube was not able to save. so i got pregnant 3 times after that and i had 3 more Ectopic Pregnancy in my right tube i think when the IUD had fell out had damage my tube is there any one out there that went through the same situation please commet
Comment by Ashlea on 14 November 2011:
I am 22 years old. I had the Mirena placed in Oct 2008 at my 6 week check up after having my son(which only took me one month to conceive). I had non stop bleeding, cramping, back pain and terrible pain during intercourse and bleeding after intercourse. It hurt to walk, change my sons diaper or even bend over to pick something up off the floor. I had it removed in Jan of 2010 because I was tired of the pain it was causing me and wished to conceive a second child. I still have not become pregnant and suffer from ovarian cysts every month. I do believe Mirena has made me infertile. In March of this year I went to my OBGYN to try and figure out why I hadn’t became pregnant yet; he had bloodwork ran on me and it showed that I am not ovulating because my progesterone levels are too low. My doctor then put me on Clomid for a month which made my progesterone levels drop even lower. We did not continue with the infertility treatments because of the costs so we are continuing to try naturally with no infertility drugs, but it doesn’t seem to be working. I would give anything for just one more child. I feel that the Mirena has robbed me of that privilege.
Comment by KIMME on 14 November 2011:
I had my Mirena placed in Nov 2008 and just had it removed today 11-14-11. I experienced the heavy bleeding for months after it was placed (3 or 4 months) and was told by the doctor and nurses that it was normal. I have read hundreds of women who have had horrible out comes from this devil IUD….Two weeks before I had it removed I have had heavy cramps with no bleeding, headaches, acne, mood swings, back pain, sore breast, dizzy, lightheaded, nausea, weight gain 40lbs, swelling in my joints, symptoms of HBP. My husband and I are going to me trying for another baby soon so I hope this hasn’t messed anything up for us. Is there a time limit on this law suite? Being that I just had mine removed and have yet to see any side effects yet beyond what I have listed above. Please contact me with this information as soon as possible.
Comment by Claire on 15 November 2011:
AFter 4 months of having the Merina and suffering severe side effects of depression, mood swings, anxiety, weight gain, acne, dizziness, lethergy- I found these sites and put everything together and had it removed yesterday.
I had been complaining to my doctor that I had experienced these things and he denied them having anything to do with the Merina. One day after its removal I am so relived this horrible thing is out of me. I was just about ready to beg for anti-depressant medication and see a therapist- I did not understand what was wrong with me. I ahve not been myself since I started taking this and I wish I realised it was not me, the stress of life or anything that was causing this than the damn Merina. I have reported this to the TGA. Please report your negative side effects of this drug – 1800 020 653. I have also made a complaint to Bayer, its manufactor. I encourage other women to do the same- only with formal reports can you make a difference. I am so angry and sad this has done this to me.
Comment by Aundria on 16 November 2011:
I got Mirena first in July of 2007. It came out in January 2008, so I had another one in. I still have it, but the strings are gone, and a catscan and xray show that they are in my uterus. I no longer have insurance so no one will remove this thing! I have pelvic pain constantly, and sometimes I have to be seen in the ER for it it gets so bad. I just want it out! If I could dilate my cervix I would remove it myself!
Comment by Maria on 19 November 2011:
February I gave birth to twins. I begged to have my tubes tied during the cesarean. Dr. Refused. She pushed and pushed Mirena oh don’t tie ur tubes u will regret it Mirena is amazing and would be perfect for u. It was all BS! But I had it inserted inApril anyway. I have Hashimotos disease (hypothyroid), so when I started having all these absurd symptoms I attributed them all to my thyroid. I personally didn’t have too much trouble with insertion. Was fine at the 2 week ultrasound apt and as far as I knew Mirena was all it was cracked up to be. Now its November and my thyroid is pretty much under control and my symptoms are worse. (Hair falling out, severe back ,shoulder, abdominal, and pelvic pain, weight gain, numbness/tingling in arms and hands, twitches in my fingers and legs, hot flashes, blurry vision, heart palpatations, the shakes, crying for the dumbest things, eposides of violent rage and anger, bloating, late/”reverse periods” now with the pain in my ovaries and the anger I felt towards my son today I decided to google “episodes of anger associated with Mirena IUD” and stunbled upon this site. Well I’m convinced. It has to be Mirena. I’m a person that usually doesn’t trust what drs say and I research research but for whatever reason I trusted my ob and am now furious. With myself, with Bayer, and my drs office. My prayers are with everyone of you. I def know the feelings of being crazy on top of the constant physical pain. I’m getting this thing out of me asap!
Comment by Maria on 19 November 2011:
Oh let’s not forget the symptom my husband loves the most…NO SEX DRIVE. Zero. None. Its insane.
Comment by Dawn on 19 November 2011:
I have had the Mirena for seven years and my body has gone to hell, I have High Insulin Restitant, pre-diabetic, chest pains, aniexty and panic attacks low blood sugar, passing out, I have always had a high metabolism and now that is gone and have been putting on weight. I have never had any problems and have never taking no medicine I am 34 years old. I was never told about these side effects that this mirena was causing me, I just had it removed 3 weeks ago and I am so pissed that this IUD has caused this and now its going to take forever to get my body back to what it was 7 yrs ago. This company should take responsibilty at what the Mirena is causing in these women.
Comment by lyn on 23 November 2011:
i had a iud in for years iv allso had lots of pain so i wonted it taken out so i went to my doctors to have the iud taken out but the string snaped off thay couldent take it out the doctor said i needed to go hospital to have it removed so i did thay put me to sleep and thay got the iud out they said i was better haveing a new iud put back in because of my heavy bleeding befor so i had a new one put back in still haven pain so two on kepted on saying it was the iud thay would say no its not now iv found out i have blood in my urine had a camra in my bladder and found part of a iud or hol one so now iv got to wait to see whot there going to do now its been six weeks ago now and im still wating to here whot there going to do so please if any one gone thow the same could you please let me know has im going thow hell now o yes the new iud is still in the right place so it got to be the old iud
Comment by Cherie on 3 December 2011:
Has anyone heard back from this web site? I posted months ago and have not heard anything. Why would they made this site for us to post on to try and get help for them not to do anything to help us. Whatever I guess they don’t think we matter just like our doctors made us feel. Everyone is the same as long as it is only benefical to them they will help. I am sorry that we all had to go through such a horrible ordeal and no one care. I pray for you all and hope none of you end up having to have a hystorectomy like me because of some stupid birth control.
Comment by Courtney on 5 December 2011:
I had the Mirena put in 9 months ago 6 weeks after my 2 child was born. MY sister had the Mirena and had said it was great for her and that it stops your periods and you don’t have to worry about paying each month for bc pills. It sounded like a good option for me and I knew I didn’t want anymore kids until 4 or 5 years down the road. So I talked to my doctor about it and she said that it was an excellent choice for me and that she had had it and then 5 years after she had it she got it removed and got pregnant right after. They handed me a pamphlet and told me to read through it. They didn’t force me to read it or talk to me about all the side effects. They just here’s a pamphlet. They put it in with a little bit of pain and I was in pain for about 2 months with it off and on but they said that was normal. I have not been able to lose my baby weight very fast and I exercise constantly. I have had awful acne, horrible headaches, bloating in my belly, really oily hair, and still have had a period every month since I got it put in and they last for about 5-6 days. About a month ago I felt sharp stabbing unbearable pains in my belly, lungs, ribs, back and pelvic area. The pain just got worse after day 3 and I decided to go to the OBGYN and see what was up. I had heard of IUD’s being lost. I have no health insurance. I had a pregnancy test, infection test, ultrasound, and pelvic exam and they found nothing wrong. The pain got worse that day so I went to the ER because I thought it could be an appendicitis. I got blood work and a CAT scan, with NO insurance. They found nothing wrong with me. I finally realized that it was my Mirena causing me pain so I went in to have it removed and she couldn’t get it out, the nurse practitioner couldn’t find the strings and told me someone else would have to try to get it out n 2 weeks. So I waited for 2 weeks off and on in pain and I finally couldn’t take the pain anymore so I went in again and after a lot of pain and time they were finally able to get the strings and pull it out. They got it out last week and I am starting to feel much better but am worried pains might come back with my next period or many periods to come. I am also worried that if we try again to have a baby we will have trouble. I never had troubles with my first 2. This device is horrible and I wish someone had talked to me face to face about all the risks and then I may have not go it put in. I will be paying hospital bills for the rest of my life due to this thing.
Comment by brittney on 14 December 2011:
I had mirena put in a year and a half ago after i had my son. I have been problems ever since. And my doctor just kept telling me it was normal so finally i just couldnt take it anymore and went to a hospital and they did blood tests and a ct scan and found out i have an ovarian tumor which they think is cancer and i probably will have to have a hysterectomy. And now im looking to start a lawsuit bc this is horrible. Do not get it. And something needs to be done. Bc women dont deserve to go through these horrible things.
Comment by terra on 16 December 2011:
I had the Mirena inserted after my second son was born in March of 2010. My husband and I were losing our health insurance and wanted something semi-permanent in place in case we decided to have more children later on. I had almost two years of a good experience, it prevented me from getting pregnant again, but… yesterday I just found out I am 8 weeks pregnant and on top of that the DR couldn’t find the stupid Mirena inside of me with an ultrasound. He couldn’t find the strings to take it out and he said it could have passed out of my system but he said theres not much I can do at this point. I cannot believe how ineffective this device is… its terrible and if my posting this story keeps even one woman from deciding to get it than its worth it…. just say no!!!
Comment by vicki on 16 December 2011:
My daughter has 2 children and going to school. She has a triple major which at the college she attends has never had any one with a triple major in 50 years. She decided to have the mirena inserted to prevent another pregnancy due to her busy schedule and the fact they were happy with having 2 children. She’s had this for about a year and a half. Since having this placed, she’s experienced migrane headaches daily, spotting almost all month every month, depression, and forgetfullness. She went to the doctor yesterday to have this removed finds out it’s not there. Two ultrasounds were performed and it’s nowhere to be found. Luckily they had sense enough to use alternative methods of birth control and not get pregnant. After this news they get news today her finace’s company he works for burned to the ground. They now have no source of income. Bad news 2 days in a row not to mention a week before Christmas. So now they have the burden of no income in addition to what happened to the Mirena. I would not reccomend this form of birth control to anyone. She has had nothing but problems. She now has major health issues and someone needs to take care of this.
Comment by Cindy Ann on 20 December 2011:
After having the Mirena in place for a year and a half, I finally could no longer take irregular bleeding, and monthly back and side pains, along with the constant wetness from the 2 weeks of bleeding that would leave me vulnerable to yeast infections. My doctor kept promising me that my period would start to lighten and then eventually vanish, and I would no longer bleed. While it did lighten inintensity, it just spread out over 2-3 weeks each month. I have now had it out for about 2 years, and my cycle still runs 2 weeks of bleeding a month (before it was regular 5-7 days- just very heavy). I am still fighting the constant yeast infections from wetness from the prolonged period, coupled with the wetness of ovulation each month. I wish my doctor had NEVER reccomended Mirena and I wish I had never seen a TV commercial showing such a happy woman with the Mirena- it sure did not leave me happy.I am still dealing with it today.
Comment by Irna on 21 December 2011:
First of all Seasons greetings. I’ve had the Mirena for four years now. I’m an EMT, have been for the last 18 years. In July of this year i woke up one morning with severe, debilitating back pain, swollen ankles, blinding headaches, joint pain, unable to get to my bathroom without assistance. I’ve been sent for an MRI, and X-rays with no negative results. Last month I had my pap and mammogram done and was sent for a sonogram of my breasts. It showed 2 cysts in the right and one in the left. I’m due for biopsy on January, 11th 2012. I haven’t been to work since July 9th, and have been confused as to what’s wrong with me. The pain in my joints is unbearable, my lower back, pelvis and entire right upper and lower leg feel like they’re breaking and sex with my husband is near impossible. Those headaches are still with me relieved slightly for a short time with prescribed meds. I don’t know what to do. All I can say is my quality of life has been severely affected by this implant and someone needs to do something to help the countless women who were grossly under informed about this device from the pits of hell!!
Comment by Niki on 22 December 2011:
I didn’t have the Mirena even though I was pressured to have one. Luckily I am old enough to remember the Dalkon Shield to never get an IUD.
Can the attorneys find out about the incentives that the doctors are getting? Never in my life have I heard so many doctors rave about a product so much, deny that it causes any problems AND refuse to remove it. Not just on this website but many others.
And never have I heard of doctors getting angry if a patient refuses a drug or treatment but so many doctors get angry if women refuse the Mirena, including my own. I am sorry but what form of contraception should invoke an emotional response from a doctor unless it is impacting on them in some (financial) way?
Comment by Carrie on 26 December 2011:
Oct. 9th was my first post. This is my update…Made my obgyn take my Mirena IUD out Oct.16th after having it for 3yrs. My Charlottesville dr. confirmed that it was the mirena causing all my problems..hiatal hirneas, internal bleeding, bleeding ulcers, gastritis, 4 internal bleeding hemroids, a tumor on my liver, confusion, head aches, bloating, weight gain, extreme fatigue, hair loss, vomiting, mood swings, anxiety, numbness in my extremities, a rash on my back and chest, acne, not being able to sleep, severe pain in my lower back, stomach, chest, legs, and under my shoulder blades, throwing up blood, fever, and now drug induced Lupus!!
Comment by Annonymous on 27 December 2011:
I have a terrible doctor. 8 meeks after my first son was born, My doc encouraged me to get the mirena because my health insurance covered it. He told me it was awesome eveything that the doctors rave about.
So I agreed. He told me he would insert the Mirena during my first post-pregnancy pap. When I got there for my pap, he only screened me for STDs he didnt do a cervical scraping for cancer and he put the mirena in and didnt even document he put it in (as a my new doc says). It was very painful and he said it was normal, but this didnt feel normal something felt wrong, but i trusted him and went home.
2 months into it I was having
Violent mood swings,
hair loss in the right places
new hair growing in the wrong places
lathargy
Depressed
random spells of crying
Weight gain
heart palpitations
Severe acute sharp pain and cramping
night sweats
anxiety in social situations
forgetfulness
I never had these before, I thought it was mirena right away went to the doc and he said it wasnt the mirena i was crazy and that it was post partum depression and proceeded to tell me I should seek help in the community (mental health, counselling etc)
WTF?! Maybe I was crazy, I went home. Things just kept getting worse I started having my period every 10 days. and severe PMS and bad pain.
I went and saw another docter, she told me my body just needs to adapt. give more time. Then i started spontaniously lactating, i was sure now that i was pregnant and the mirena was interfereing with a pregnancy, i went to the walk in clinic in town and he tested me and it was negitive but he told me to get checked out. I scheldualed anohter pap and iud removal and then something hapened that shocked me, it was stuck! and it wont come out! now I need a series of tests, why didnt my doc offer to check me out after all the nagging, why did they say these things are normal and i have to adapt? My relationship is taking a huge dive down the toilet because of my episodes of depression and anxiety. and its all because this thing ruined my life!!!
if things are bad, im never gonna have a brother or sister for my son..
Im really upset and dont know if this is the docs fault or my own for getting it…
Comment by Elle on 30 December 2011:
I got Mirena 8 weeks after my 3rd child was born, nearly 2 years ago. I have had nothing but grief from it. Hurt like a bitch going in, I bled for 3 months straight, couldn’t walk for days afterward. Painful sex, horrendous cramping and bleeding, reverse periods, mood swings, back pain, leg cramps, headaches. It’s just awful. I am waiting until my insurance kicks in to schedule an appointment, but I am afraid that when I go to have it removed, I will receive horrible news about surgery or possibly even a hysterectomy! I do want more children in the future, and I am scared to death that it may not be possible…I also suffer from Muscular Dystrophy. My doctor said this would be the best solution to preventing pregnancy, and i was uncomfortable with it all along, but she assured me it was safe and effective. Doesn’t seem so safe and effective to me…
Comment by tina on 1 January 2012:
Had the Mirena inserted on10/7/2009 and it was painless and no side effects. It lessened the duration and flow of my menstral cycle so that was a plus. Weight gain was minimal but I can attribute that to my age and my metabolism slowing down so it was not significant enough to really be concerned. I have read many posts of terrible side effects and feel for those women that have went through that but thought it was important to say that all people react differently to medications and procedures.
Comment by Holly on 5 January 2012:
I am 56, got this mirena coil, as part of HRT, as I had an early menopause, which I maintain was caused by my thyroid problem, but anyway. I got this put in, not too bad pain on 20/1011 by my gyno, just handed a leaflet, nothing to worry about. My life has been hell since then, and if only someone in the UK would bring about a lawsuit, I would happily, put Bayer behind bars, and the drs, who push this device. Even as a layperson doing research, I know that I would not recommend to anyone with anxiety problems, but they just give it to everyone. I am getting this out this afternoon hopefully, will update as to what the outcome is.
Comment by Amanda on 5 January 2012:
I had the mirena in for 3 years…it made me have severe Acne which I can\’t get rid of even after having it removed. The acne has spread to my arms and legs and stomach and chest and back. Also severe weight gain which seems impossible to get rid of. I also have very abnormal periods after having it removed…I will have my normal period but after it ends about a week later I will start to have another one with lots of brownish colored discharge. So for about two weeks I can\’t be intimate with my husband. Then in another two weeks I have it start all over again. I have also had abnormal cells on my cervic not knowing it the mirena was the cause of it. All I know is the company Bayer didn\’t exclose these severe symptoms before or after I decided to get the mirena!!! If I knew this was going to happen I would never had gotten this contraceptive!!!!
Comment by Kelly on 7 January 2012:
Had Mirena inserted by Kaiser doctor in July 2009 (6 weeks after birth of my son). An like mist everyone else it was the worst pain going in. I also felt ill all afternoon and vommitted from the pain. In July 2010 my husband and I decided to try to give our son a brother or sister so I went to have it removed. After the Dr not being able to feel the strings it was found that the Mirena perforated my uterus and was in my abdomen. Had laparoscopic surgery to have it removed in September (earliest I could get in). I became pregnant in November 2010 but miscarried January 2011. I had a D&C and have been trying to get pregnant ever since. I go in beginning of my cycle to see if my tubes are blocked. I’m thinking the whole IUD perforation and abdomen surgery may have caused scarring and infertility
Comment by bec on 9 January 2012:
I had my mirena put in after my 2nd child in 2007 and after having numerous problems – abdominal pain ,internal stabbing sensations , extreme tiredness, lowered sex drive , pain during sex, spotting after sex , yearly ultrasounds on stomach/bladder, monthly large swollen lymph glands under arms , continual sporradic periods,continual UTI,s and UTI symptoms ,foggyness, lethargy and irritability aswell as systemic candidais I finally had it out today. I hope this is a new beginning for me .
Comment by Kerri on 10 January 2012:
I had my daughter on 1/6/10 and a few weeks after that got the mirena and at first everything was fine then about a month later I started having chest pains, shortness of breathe, I have been hospitalized and I have been diagnosed (sp) with sevre depression and many more side effects. I am not sure what to do but I would like some advise I still have mirena but after reading all the side effects that it has caused is making me think.
Comment by Crystal on 11 January 2012:
I got the mirena iud back in september of 2005. Not only was it a painful insertion, but I had the numerous issues right off the bat. I experience the random week long “break thru” bleeding but that was warned about. What I was not told about was that I would then start getting severe migraines, some related and some not related to high blood pressure. I started getting cysts on my ovaries, some that ended up having to be surgically removed. I developed numerous kidney stones, to date I’ve had 7. I had the iud removed in October of 2008 but the damage was irreversible. Here I am in January 2012 having to go for surgery for a stent in my renal artery and reading amonst things on here it seems the mirena could have been the start of it all causing the stenosis in the first place.
Comment by Meg on 16 January 2012:
I had the Mirena IUD put in 6 weeks after my 2nd childs birth in June 2009. I had no problems with it at first. In December 2010 I got my first period since being on the IUD. After that I got a period every 2 weeks. So I waited it out thinking since I had also just finished breastfeeding my son it was because of that and it would get normal. After a year and having the most painful horrific heavy periods I could ever imagine to the point I could barely walk I went to the Dr in December 2011 to get the IUD removed at that point I was convinced it was something with the IUD what else reason could there be? My Dr could not find the strings and I said well I have never been able to feel the strings I am sure the Dr who put it in cut them too short. She DUG with a hook for 20 minutes trying to find it and couldnt, I thought I was going to throw up from the pain. She ordered a transvaginal ultrasound and it still wasnt found. Then I had an x-ray done which finally showed that the IUD had perforated and gone into my abdominal cavity. Now, next week I have a Dr appt to meet a new Dr and schedule a laparoscopic surgery to have it removed. My husband and I were really hoping for another baby and now I am scared to death this will make me infertile.
Comment by Kristin on 18 January 2012:
I had my merina iud inserted in 8/2010 and after months of my memory getting worse and worse and fighting with my husband and yelling at mychildren and blurred vision, anxiety attacks, and generally feeling like I was going crazy I checked into my symptoms and found all of you ladies who thankfully shared your stories. My doctor intended to start my on anti depressants anti anxiety stuff etc. I had merina removed today and I hope this solves my problems.
Comment by Carol on 1 February 2012:
I have had the Mirena IUD for 7 years. I got it because I was having non-stop heavy bleeding for like 80 days straight. The IUD stopped the bleeding almost immediately. I have gained 70 pounds, have occasional night sweats, ovarian cysts, and really bad fatigue. I never linked it to the IUD until I started reading all the comments. I had the IUD removed a little over 2 weeks ago because I had a blood clot in my leg and 1 in both lungs. Well, today I am going to mental health for intake because about 7 days after I had the thing removed, I started having thoughts of self-harm. I will be in partial hospitalization for at least 7 days. Right after having it removed I gained a ton of water weight, so much that my clothes barely fit. Now that seems to have passed and I’ve lost 2 pounds. I didn’t have the psychological difficulties while I had the IUD, but I have been on an anti-depressant the whole time I had the thing in. Now I have to be on a more potent anti-depressant because of the thoughts. Actually, when I went to see my primary care doctor and told her about the thoughts and that I thought it was a result from having the IUD removed, she didn’t agree with me. Then she went on-line and started reading all these posts on different web sites from women who have had the Mirena-crash. She believes me now:) Well, I’m off to go check into the psych ward…unbelievable.
Comment by Leah on 2 February 2012:
I got the mirena in early 2008 after being convinced by commercials and my gynecologist that it was the best form of birth control available with little side effects. My doctor explained that there would be a little pain on insertion and the first couple of months I might be a little hormonal but after that I would be fine. He insisted that his wife had it and loved it. Because I only had one child, I questioned about how soon I could get pregnant if I ever decided to have it removed. My doctor informed me that immediately upon removal I would be able to conceive. I read the little info pamphlet I was given, and nowhere on the booklet did it inform me of all the complications I would have, and nowhere did it say that it could cause infertility otherwise I would have never decided to try it. Immediately upon insertion I almost fainted from the pain. I started having cramps and lower back pain and spotting immediately. The first couple of months I spotted constantly. My lower back hurt constantly the entire time I had the mirena. My joints hurt, my feet swelled, and I was constantly irritable. My pelvic area always hurt, and I would have sharp pains where my ovaries are. Half the time I felt like I was pregnant, and even invested in numerous pregnancy tests. After a few months of having the mirena, I started having anxiety and depression issues. I had never had a migraine in my life, and I began to have migraines for days at a time. I began having problems with my joints and back, and was told by a doctor that I had arthritis at 26. I don’t even know how much money I spent going to the doctor for numerous issues the entire time I had the mirena. Eventually I became so unstable that I would have anxiety attacks leaving me scared to leave my house. I went to the doctor and was diagnosed with agoraphobia, but was never informed that the mirena could be the issue. I was prescribed medication after medication, and nothing helped. Things just got worse. I was to the point where I didn’t want to live. I was advised to see a counselor, and he sent me to a mental hospital. I was in the hospital for a week having to take a temporary leave of absence from my job. When I returned to work two weeks later, I was treated as if I was incompetent to perform my job duties and as if I was crazy. A short time after this I was fired. A couple of months after this, after almost a year of having the mirena, my husband and I decided that I should have it removed so we could try to have another baby since I wasn’t working anyways. I had the mirena removed in December of 2008. Shortly after having the mirena removed, I no longer used all the mental meds I was prescribed. Although most of the issues eased once it was removed, nothing has really completely left. I still have joint pain and back pain. I still have occasional migraines. I still have occasional anxiety attacks, but nothing like when that object was inside my body. I haven’t used any form of birth control since, and here three years later, I have yet to become pregnant. All these years, I have felt like everything was my fault. The other day a friend informed me that he had heard on the news about some mirena users being infertile. Immediately I started doing my research, and began to put two and two together. All the medical issues I have had since the mirena are the same things other women are complaining about. This is not just coincidence. I almost lost my sanity, my family, and I lost a great job. I have problems now that I never had before. My husband and I have been trying to have a baby for 3 years, and I never had a problem conceiving before. I’m extremely concerned now of the possibility that I may never have another child. And at the same time, I am scared to even go to the doctor to find out if I am no longer fertile. After all the emotional damage I have endured which was apparently caused by the mirena, I’m not sure if I can endure not being able to conceive. I am sooooo angry. I feel like I have been deceived by my doctor, the fda, and bayer. I feel like I have been robbed of soooo much. How could they not say that this product could cause life debilitating issues??? Why didn’t they inform me that I may not be able to have kids afterwards?? Why were they allowed to make the decision that this product was safe without giving us all the true facts? If I had known that there was even half a percent that I might not be able to conceive I would never have decided to put this evil object in my body. Why were so many young women blinded of the real facts? Why were doctors so quick to say that there were no serious side effects if any at all?? I thought this is supposed to be a free country. Is freedom of choice not included?? Why did others make the decision that the benefit of mirena outweighed the risks? Why didn’t we have the option to know the risks?? These people should be ashamed of themselves. They can never make up for what they have taken away from so many women. Shame on all who knew and did nothing!!! Look at all the lives you have taken in your own hands as if you are God!! Nothing can ever repair the damage caused in the lives of so many people. Bayer should spend the rest of its corporate life repaying all those whose lives didn’t matter to them, all those whom they viewed as dollars signs instead of human beings.
Comment by Carrie on 8 February 2012:
I had the Mirena IUD put in on Jan 19th 2012 and was in severe pain and bleeding for 3 weeks. I went in for the recheck and the IUD had tore through my uterus. I had surgery on 2/6/2012 to have it removed by laproscopy. I was not told by the doctor the risk of complications- only how great this IUD is… most no period, good for 5 years, does not interfere with breastfeeding, low hormone dose so side effects are minimal. Within a day of receiving the IUD my milk supply was less than half of what I was producing despite increased pumping to try and increase my supply. Three weeks later my milk supply is gone completely. My left knee has had five surgeries and I do have arthritis, but my knee was doing great all through the pregnancy and I was not experiancing any problems. After I got the IUD my joint pain was intolerable and I could barely walk around anymore. This is only my second day out of surgery and my knee pain is gone. This was a horrible experiance and I do not recommend this as an option for any woman. Come to find out after reading, the risk for tearing through the uterus is increased with breastfeeding. It would have been nice to know this before they put this thing in me. If I would have known my risk was greater I would have waited to try this option until after I stopped breastfeeding.
Comment by Brienna on 8 February 2012:
I had the Mirena IUD put in place shortly after having my son. This Mirena device was inserted January 16, 2011. After insertion, severe cramping occurred and I felt my uterus trying to “expel” the device. I experienced a lot of bleeding and pain for at least two weeks following the procedure. I still had periods on and off for the majority of the year. Some symptoms I have experienced and are still experiencing are weight gain (upwards of 40lbs), constant discharge with odor, irritability/anxiety, headaches (feels like it’s behind my eyes), high blood pressure, and mild to moderate mood swings. I have spoken to my OBGYN and they have informed me that there is no need to worry as long as the device is still set in place properly (with ultrasound confirmation). I feel as though I should have chosen a different birth control method, and I am scared for future problems such as infertility issues, uterine damage, and prolonged hormone effects.
Comment by Kerry on 9 February 2012:
I am 43 and I had the Mirena in March 2010 due to terrible periods. After about a month l started to get boil type pimples on my face, which l thought was strange as l have never suffered with pimples before in my life. These pimples were so painful that my whole face as sore. They were huge, green and ugly. So l went to my GP and he prescribed antibiotics for the next 3 months. These meds did absolutely nothing. Every day l had a new visitor on my face. Then l started to experience other strange things happening to my body, which turned my life upside down. Things like:
Heart palpitations
Unable to sleep
Boils on my shoulders
Walking in a slow pace with no energy
Sweats – Day and night
Not wanting to leave the house
Anxiety
Depression
Constant thrush
No appetite
Panic attacks – One really bad attack driving home from work, had to call an ambulance
So I went back to the GP as my life was going downhill rapidly and didn’t know why. I had a great life and there was no reason for all this to be happening to me. My wonderful GP tells me that l need to go on antidepressants and l need to go talk to someone (skeletons in the closet)…..WHAT umm NO l don’t! So l go home and tell my hubby and he says all this started to happen after your Mirena procedure you should look it up. WHAMMO……..
Went to a new GP and demanded to get it out ASAP. This GP told me that she takes the Mirena from women every week due to side effects. REALLY, hmmm not surprised. I decided that when l get the Mirena out to get the ablation procedure as l don’t want a period and l would give that a go. Had the procedure 3 months ago now. Woke up with no bleeding at all and apart from cramps felt great. Still today l have not had a period. Still healing from the acne have scars now and l have a little anxiety but nowhere near as severe as what it was. My test results came back saying l had an infected uterus and that the Mirena was imbedded low and cased this. The GP gave me a script of antibiotics but l didn’t have to use it as l felt great.
I would never advise any women to get the Mirena, it’s just not worth the side effects.
Comment by Nivea on 10 February 2012:
Wow, after all this reading I really need someone to contact me about this Mirena. Im only 38 and have experience earlly menopause to other possible problems that I cant or any doctor can explain.
Mood Swings
Night Sweats when I get sick.
gain weight badly
constant feeling of discharge but nothing but clear liquid.
tired.
fatigue.
contant been sick feeling.
heart lpalpatitons
contast going to pee to the bathoroom
blood in my urine unexplainable.
finding some blisters in my scalp
libido really bad
I just want some answers to why Mirena doesnt give you warnings about early possible menoupause..
Comment by Felicia on 11 February 2012:
After the c-section with my son that ruptured my uterus, my docter said to me it would be best for me to not have anymore atleasted for awhile. So I started looking for birth controle, I have herd someone say that Mirena was the best. So I talked to my docter, and it was decided. I would have it put in. And there it started 4/20/11. The pain was so bad just from having it put in its self, a week and a half later still the same pain. Me thinking its just because its a new bc and all, but the pain never went away. Not knowing what was going on with me. The side effects I believe to be experiencing are as followed.
contraction like pain in my lower pelvic area lower back pain
bad headaches
dizziness
hurts during sex
burns when I pee (often)
tender breasts
oder and discharge
numbness and tingling in the hands and feet (sometimes)
excessive abdominal pain
I have been to the ER, they gave me some antibiotics and sent me home. I went to the docter a few weeks later and they gave me more antibiotics and some ibuprofen. I asked her if it could possiabaly be the Mirena, she said no, but I really truely think it is.
Comment by lana on 17 February 2012:
im 23 years old, i had the mirena in for about a mounth. I blead the hole time and had exstream amount of pelvic pain. The mirena acully came out of me on its oun. I had a PID, i had to go to the hospidel for the exstream amout of pain i was in. found out i had ovaerin sists, blatter infeactin. nothing but pain and problems. I wouldnt recomend this to my worst enemy. im still stugling with pelvic pain. i hope they stop making this iud the hole time i was moody and the whole works.
Comment by Ashley on 17 February 2012:
I had the mirena put in back in November 2011. It was extremely painful when put in and days after. I went to the dr to get it checked out and the mirena was not in place. They did an ultrasound and couldn’t find it. Had xray that same day and they could see it but could not tell where it was exactly so then back to the dr for another 4d ultrasound and they still couldn’t see it. They scheduled a mri which I had to wait 2 weeks until I they could fit me in. After all that trouble they still could not see it and had to do exploratory surgery on Dec. 19th. The iud was found in my omentum. The whole time I had the iud in my body it was painful… my dr said that it should not hurt and that it probably wasn’t the iud causing the pain. I know that it was the Mirena iud causing my pain. I had to spend $155 to have the Mirena put in, $175 for the MRI, $20 for my Dr. to read the MRI, $150 for the surgery,(I have not gotten the bill for Anesthesia), I am sure there are some I am forgetting too. Not to mention the money I spent on gas going back and forth to the dr and my time. I have three children so I also had to have someone to watch them while I went to appts. My body still does not feel right. I am breastfeeding my baby and just a couple of days after getting the Mirena put in my milk supply dropped tremendously. If you are considering getting the Mirena IUD don’t! It is not worth it! I can’t tell you how much stress it caused me and my family while I was going through this.
Comment by Samantha on 20 February 2012:
I had a child in 2004 after birth I had the copper iud put in for bc I went 5 yrs with no problems it was like it wasn’t even there. When time came to replace it my doctor thought i should use the mirena taking her advice I had it put in the cramping and pain was way more severe then I remembered with the copper for the first couple of weeks I had severe cramping and was just uncomfortable altogether. My doctor thought it would supress over time but things just got worse I started getting ovarian cysts that hurt so bad I would run to the er thinking that there was something terrible wrong in that area. Along with irregular bleeding and not being able to perform my job with the amount of pain I called my doctor and she thought I just needed to let my body get used to the hormones in it. well as time went by over the year and half period I had it I gained 30+ lbs was moody and overly depressed finally one day I had I guess what I thought was a nervous break down but the doctors thought I was either depressed or had severe anxiety I was in and out of the er cause I litterally thought I was loosing my mind I didin’t want my husband to touch me and I didn’t want to go anywhere I was at the bottom so with the pain still persisting I had it taken out and replaced with the copper iud in which I think I will be taking out this next week I still get sever cramping and lower back pain all the time and very heavy bleeding when I had the copper iud the first 5yrs I had no bleeding or cramping I just had no problems. All the mirena did for me was cause lots of medical bills and pain and sufering I would not recommend it to anyone. I still get severe pain on my left ovary alot not sure the cause my doctor isnt either. I dont feel that since I removed the mirena my problems have gone yet.
Comment by Alexandria on 21 February 2012:
I had Mirena inserted after the birth of my daughter in 2008. Prior to this, I had been on birth control since the age of fifteen due to the diagnosis of endometriosis. My ObGyn insisted I used Mirena as a replacement for traditional coc’s since it was practically “worry free” and told me if I did not like the change or the convience Mirena offered, I could simply have it removed.
At first, I felt as though Mirena was the most spactacular form of birth control on the market. I went on a health kick and actually LOST nearly 70 lbs. while on Mirena.
Innitially, I attributed my violent mood swings and severely negative behavior to post-partum depression.
As the year progressed into the second year, I started to experience the darker side of Mirena. Prior to the use of Mirena, my face was nearly perfect (despite the occasional blemish). Now my face is permantently scarred from my fight with severe cystic acne.
In fact, from the end of 2010 on, I had been seen for a number of ailments ranging from severe anxiety and depression, heart palpitations,severe weight-loss, cystic acne and (worst of all) alopecia (thats right, I lost 1/3 of my hair). Innitially, I was tested for hormone imbalances as well as hyperthyroidism; both of which came back normal. I was perscribed Buspar for anxiety (which made me feel worse).
It got to the point (I call it my dark days) where all I could do was curl up into a ball and cry. My whole family (including my fiance’) was afraid to interact with me in fear of my unstable demeanor. To be quite honest, if it weren’t for my daughter, I would have ended it all then.
On a hunch, I took it upon myself to get the real facts on Mirena and came across a few forums claiming the severely negative side-effects, as well as testimonials from women who experienced identical symptoms as me.
My doctor assured me that it was NOT the Mirena. Despite his protest, I YANKED THAT SUCKER OUT BY MYSELF!!!
A year has passed since the removal of the Mirena, and I’m happy to say, my hair has has grown back, my mood swings have subsided and I no longer feel the need to hide from my loved-ones.
However, all is not back to normal (seeming to be long-term effects of a silicone- based IUD). I now have joint pain and inflamaton as well as symptoms of accute fibromialga.
Honestly, I do not wish to be compensated. I just want this particular method of birth control to be taken off the market, so that women are no longer lulled into a sense of security by companies like Bayer; whose only goal is to sell their product as well as the hell that goes along with it. Bring this company to justice!!!!
Comment by Alexandria on 21 February 2012:
I failed to mention that while on the Mirena, I was treated for 3 cases of BV and nearly 12 yeast infections.
Comment by Alice on 22 February 2012:
I had my first and so far only child in March of 2008 and at my 6 week postpartum visit discussed birth control with my doctor who highly recommended the Mirena. I had the Mirena inserted in May 2008 and within 2 months I was no longer lactating. At the time I was unsure of what was happening and assumed something was wrong with me. In the Fall of 2010 I had noticed other problems over the years and did some research which showed me other women were experiencing the same issues while on the Mirena. My symptoms included violent mood swings, breast tenderness, nausea, periodic uterine muscle spasms, and increased pain and cramping during and around my menstrual. In January 2011 I decided to have the Mirena removed to severe and constant pelvic pain that increased while in a sitting position, tests later revealed that I had an infection in my uterus and was placed on an antibiotic. I waited a few months before trying to conceive and had my first positive pregnancy test on 6/19/2011, later I had my first miscarriage at 5 weeks on 6/28/2011 which resulted in an ER visit. Again we waited a few months before giving it another try and on 1/7/2012 we had our second positive pregnancy test. This time at 9 weeks I felt the familiar cramps and spotting and at my doctors office through ultrasound we found out that the fetus had stopped growing at 8 weeks and there was no heartbeat, that was on 2/16/2012. I’ve since then managed to pass the fetus and most other tissues on my own and am currently on medication to give it a boost and hopefully empty out the rest preventing a D&C. I have a follow up visit scheduled for Monday 2/27/2012 and fully intend to discuss yet again the possibility of the Mirena interfering. What I’ve seen is that a lot of women still have thinned uterine lining which is one of the ways Mirena prevents pregnancy and this prevents proper implantation of the embryo and leads to miscarriage after miscarriage. I’m going to ask my doctor to check the lining of my uterus and if she won’t do it or tries to brush it off like before then I will be finding a different doctor.
Comment by kimberly on 23 February 2012:
I got married at 19 and we had our first child not long after. Our second son came a few years later. We decided two were enough for now and reviewed our options. We chose mirena because it seemed like the best route for us. Now 4 years later I’ve been to the emergency room and my dr numerous times for ovarian cists. No one in my family nor I have ever had a history of female problems such as this. Now I am in pain most of the time and I wish I had never received the mirena.
Comment by Rebecca on 5 March 2012:
I had the Mirena IUD in for 2 and a half years. I had it placed in November of 2009 right before the FDA issued a warning to Bayer about their false advertisment and for not disclosing the full risks about mirena. I had been experiencing severe depression, body aches and fatigue, irregular periods and bleeding, weight gain, breast tenderness, an ovarian cyst, serious back pain, and horrible achne. I had never experienced any of these, until I had the Mirena inserted. I just had the mirena removed last week, which took them over an hour of digging in my uterus BLIND SIDED to find it and remove it and I am now experiencing the Mirena Crash. It is awful. My body got, i guess “addicted” to the amount of hormones the mirena was producing and now my body is detoxing and I feel just horrible. My emotions are haywire, my body is hurting, I’m extremely exhausted, horrible headaches, I’m itchy, bad cramping, and much more. You would think that I’m recovering from being a drug addict with how I feel and look. I WOULD NOT recommend mirena for anyone.
Comment by Mercy on 6 March 2012:
I had my first baby at age 20, he was born may 2011. The marena was recommended to me by my gynec. It was inserted after 6 weeks. In july of 2011 chronic pain on both sides of my body. in and out of the hospital no one could figure out what was wrong. this past Feb 2012 the pain hit me again. went to e.r. again and this time a gyne. called in. ultra sound revealed I had a hematoma cyst on the ovary. rushed to surgrey and now i am less one ovary/tube. I never recd risk factors or written info from my dr when inserted. Is this what has caused all of my pain? surgeon sd i would of died if i hadn’t gotten in when i did. they left the iud in. i see my reg dr this month. im having it removed and consult an attorney. pretty scarry. i had no idea it cause an ovarian cyst. mine was a hematoma cyst. i could of bled to death.
Comment by shonda on 9 March 2012:
WOW…what an emotional overwhelming feeling…to read all your stories and finally not feel so crazy. i am 27 with two kids.i recieved the mirena iud jan of 2008 6 weeks after having my daughter. my doctor made this product seem amazing…effective birth control for 5 years and NO side effects i thought of course this sounds great!!! the initial recieving the iud wasnt that bad..a little discomfort but tolerable…well fastforward 4 years and i am MISERABLE…i have looked up my symptoms and even asked for advice on forums as to what could be wrong with me… headaches, hair thinning, extreme bloating at ALL times, headaches, abdominal pain, pelvic pain, shortness of breath, aching body and joints, NO desire for sex….emotionally im a wreck irritable, intense mood swings, depression, anxiety, extremely fatigued,weak all the time, emotional meltdowns, problems with affection…..YEAH i know all this happened AFTER getting the mirena. I found this site along with many more sites with women and the same stories and problems as me…needless to say i am in the process of finding a doc in my area to get this thing out of me!!!!!! I never thought about this being the cause of my symptoms/issues because my doctor only made this thing sound remarkable. I am nervous and excited to get it out…nervous that it wont be easy to remove since ive had it sooo long also that there could be organs or something damaged from it and excited at possibly/HOPEFULLY being the old,,happy…affectionat…healthy person i was before the iud, I hardly ever had a headache prior and felt good all the time was full of energy!!!this iud hs taken 4 years of my life and made them hell…and took from my kids the healthy vibrant mom they deserved.
Comment by Kassandra on 9 March 2012:
I had the Mirena about 5 months after having our second child. From that point on, I had severe migraines that turned into migraines with an aura…it was so bad that I would loose vision in one eye. I had to be treated at the ER numerous times because over the counter meds would not help. Come to find out these migraines became so bad that there was a risk that it would cause a stroke due to the blood vessels in the back of my head swelling and putting pressure on nerves and so forth. (I was only 30yrs old)
That was not the worst. I had to travel out of stat to attend training for 6 weeks–husband and kids stayed home. Within 3 days, I began to bleed, pass out, become dizzy, weak, and unable to eat. I ended up in the ER during my lunch hour and in emergency surgery within 45 minutes. This was very scary for me. I was alone, my husband couldn’t reach make it to Florida in time to see me before my surgery. The doctor came back and said “Did you know you were pregnant?” I replied, “Must be a mistake, I have the Mirena and can’t be pregnant for 5 years”. She told me that this is very common in the ER and that I was pregnant but everything ruptured, I had severe internal bleeding, lost the baby, and if I did not have surgery in 30 minutes she may not be able to save me–my organs had begun to shut down due to the blood filling up the cavaties inside my torso/stomach. They called the hospital chaplain to say a prayer and talk to my husband on the phone when I went into surgery. Thank God I made it out okay but my baby did not and I no longer have my fulopian tube. It was horrible and I would NEVER recommend this product to anyone! I did file a complaint with the FDA.
Comment by Sandi on 9 March 2012:
I had the Mirena after going into preterm labor with my daughter in 2008. I decided to get Mirena until I was psycholoically ready to have another baby. In 2010 I decided I wanted to remove Mirena and try to have another baby. Because I did not have a period for the 2 years on Mirena I was not surprised when it didn’t start right away. However it is 2012 and I have only had 3 periods and am now inferitile without explanation. I called Bayer which was listed on my Mirena information and they took my complaint but stated they have no problem with infertility with Mirena and they were just filing the complaint but did not have to report it to anyone. The information was just for them. My little sister followed my lead and got the Mirena after me and now she has had it removed and still does not have a period and can not get pregnant. I have been told several times by my doctor that Mirena is not to blame however I have not had these issue before. I feel that my doctor does not care about finding the problem with me and wants to blame it on explained menopause onset but can not account for my period coming on 1 a year.
Comment by shelly on 9 March 2012:
I had the MIrnena in for about 3 months, i was sick for the whole 3 monhths i had it in, i had unbelievable discharge, abdominal pain, depression, mood swings, bleed pretty much the whole time,an awful odor, headaches and generally feeling sick 24 hours a day. i went to the ER and they told me i had an infection and gave me antibiotics, i felt good while on the meds and than about a month later i went to my gynecologist and asked to have it remove, they removed it and told me it was really infected cause of the odor and gave me 2 antibiotics, one for a bacterial infection and the other just in case it got in the blood stream as it was infected i think for the whole time it was in. i would not suggest anyone use this as a birth control as i think it does make us woman really sick. i have since i got it out, felt like a normal person again.
Comment by Jackie on 12 March 2012:
After having my 3rd child my doctor recomended the Mirena since we werent sure about having mor kids yet. At first I only suffered severe cramping and heavy bleeding all the time but a few months down the road i started having bad headaches and depression. Then I started having bad moodswings and rage. I would lash out at my kids and husband for no reason at all. I could not sleep at all during the night but during the day i felt so fatigued from not getting any sleep. Then my hands started tingling all the time like they do if they were to fall asleep. After about 6 months i noticed my hair started to get real thin and brittle and at about 9 months i looked in the mirror and you could see right to my scalp. I started googling my symptoms and could not believe all the blogs that came up from the mirena with people with the same problems. I demanded my dr take it out the very next day. He told me it will take at least 6 months with good nutrition and vitamins to even get my body close to where it was and be toxic free. This thing needs to be banned!!!
Comment by Jessica on 14 March 2012:
I had Mirena for a few years with no problems. My period went away and I thought it was great. Well in March of last year on a plane from Fl to TX, I had an ectopic pregnancy rupture in my fallopean tube causing extensive internal bleeding. I had to go in for emergency surgery to get it removed and repaired. I had always had regular check ups to make sure it was correctly placed still. I had absolutely no indication I was pregnant since it stops your period. Mirena almost killed me, I would never recommend it.
Comment by Karen on 20 March 2012:
I am 44 and had my Mirena put in 17 months ago. It was a painful procedure and the intense pain lasted a few weeks. I bled heavily for 6 months to the point where I was prescribed meds to stop it. I was told by my Dr that it was a great form of birth control and that 50% of all female Drs in their 40′s had this device. I have been suffering with soreness and stabbing pain in my left ovary for the last year, back pain on my left hand side. I still have periods though lighter, but my breasts hurt like crazy for 2 weeks out of 4 and this month, my left breast is agony, the a stabbing pain eminating from inside the nipple area to under my arm as well as the nomal tenderness and swelling. I had loads of bloodwork done 5 months ago and everything is normal. I feel so depressed and quick to tears. I am making an appointment with my Dr this week, I want this out regardless of what she says. I am convinced the Mirena is the cause of these symptons
Comment by Sally on 21 March 2012:
Mirena was recommend by my doctor for my severe menstrual bleeding. i thought I give try. when I gave birth to my second child in England the doctors there told me not to use any kind hormones. Here in the US i mentioned it to my OB/GYn. She reacted surprised and dismissed my comments. I was so desperate for relief that I decide to try the Mirena. After 5 month I begged my to doctor to remove it. I had all the side effects that they mention. After the removal I started to bleed. I checked it out and the information I got was that it can happen. After 11 days heavy bleeding I was rushed to the emergency room and received 7 units of blood. I was so weak they couldn’t even perform surgery on me. After 3 days horrible days they could stop the bleeding.The day after my release I received an injection to put me on a temporary menopause to stop my cycle. When asked this happened because of the Mirena . They said no. I had 3 months later a hysterectomy at age 36. They told me it is a decision between life and death. I couldn’t imagine going through that ordeal again. I still believe all this happened because of Mirena.
Comment by Amanda on 22 March 2012:
I cannot tell you how much better I feel after reading these posts from all of you. I have had MANY of these same problems myself, I really thought I was alone..that I was sick or going through early menopause(I am 36) for no reason. I had mine placed about 2 years ago,(excruciatingly painful and was in bed for four days bleeding) and in that time I have gained 25 lbs with NO change to my diet or activity level.My feet and hands tingle and go numb, I have developed insomnia, and I have been sick with more viruses and “bugs” than I ever have in my whole life. I get weird bleeding after intercourse, and sharp cramping out of the blue just above my pubic bone. I investigated PCOS, thinking it was the cause of my SERIOUS HAIR LOSS( I was told I have “female pattern hair loss”), even though my two older sisters, mother and 3 maternal aunts had NO issues with hair loss. I subsequently found out I have some kind of “growth” on my right ovary, (that was NOT there prior to the placement of this hideous iud), which is being followed with quarterly ultrasounds and hopefully will not require surgery…. My lab work and ultrasounds ruled out PCOS, iron deficiency, and thyroid problems, so I have been baffled as to why all of this is happening to me. I was told I was just going to have to buy Rogaine, and exercise more, along with prescription meds for the cystic acne. I have ZERO sex drive, and my self esteem took a long walk off a short pier…I am scheduled to have this HORRIBLE thing removed on the next week, and I can’t wait,all though a bit afraid of the pain:(
Thank god I am not alone in this..
Comment by Kellie on 29 March 2012:
Having mine removed TODAY! Yay…I am way overdue though. My original appointment to have it removed was while my mom was nearing end of life and I just couldn’t handle anything else. While I had mirena, I thought it was great…but I have to say, all the things I’m reading about, I experienced as well. I experienced post pardom depression before I had mirena so when it returned I didn’t think much of it. I did notice the weight gain but didn’t contribute it to the IUD. I had cramps and some back pain but nothing major..sounds like I was one of the luckier ones. I hope everyone begins feeling better soon and I pray I don’t crash after the removal as many have indicated they have. I do worry about that – and the fact that it’s pinching now and causing some ovarian pain. I will visit this site again to see how everyone else is doing. Hopefully, everyone will find improvement in their symptoms soon!
Comment by RODNEY on 3 April 2012:
MY WIFE AND I WENT IN FOR THE I.U.D N THE DR SAID IT WAS OK N SHE WASNT AT ANY RISK LIES NOTHING BUT LIES MY HAPPEN TO BE 5 WEEKS PRERG.. PRIOR TO THE INSETCTION OF THE I.U.D HE DIDNT PROPERLY CHECK MY WIFE WE LOST OUR ONLY DAUGHTER BECAUSE OF THE INCOMP.. DR
Comment by Hank on 7 April 2012:
My girlfriend and i decided we were ready to have our first child oct 2011 so she had the IUD removed. in January i look her to the ER because she was having severe abdominal pain. turns out she had an ovarian cyst that ruptured and she had to get surgery that night. we also found out she was 3 weeks pregnant that night. She got a pap smear at OBGYN and it came back abnormal… she had the IUD for about 10 months. We think the Mirena IUD is the cause of the ovarian cyst and maybe even why my girlfriend may have cancer in her cervix. If i lose my girlfriend and my baby to be i will have nothing. after leaving the military it is her who makes me feel human and alive. I love her so much and when i found out we were having a child it couldn’t have gotten better. If i lose the two greatest things in my life because of pharmaceutics corruption to make billions… Just makes me sick!!!
Comment by Suzanne on 8 April 2012:
I had the mirena ring in for two years. My last mammogram was clear 2 yrs ago. I have now been diagnosed with breast cancer. I believe they are related. I am looking for other women who have had similar experiences. Please contact me if you have experienced this or know anyone who has.
Suzanne
Comment by Christina on 9 April 2012:
I hate this Mirena creation!!!!! I had the mirena in for about 1 year and three months after a year of having it in my hair started falling out and breaking off! Everytime I got into the shower I would cry because it was coming out sooo bad. My partner even noticed that it looked as he would say “Different” I was talking to my sister about it, and she said she had the same exact issues and that it was the Mirena she had it removed after the doctors said her white cell count was off. freked her out and she said her hair was falling out soooo bad too. so I had it removed a little over a month now and since then my MID BACK was severly hurting I couldnt get out of bed for a whole day! Ive never had back problems ever! and my hair is kinda growing back its sooo bad I have nice curly hair but since I had the mirena ive lost at least half of my volume in my hair it doesnt even look good when i wear it up. I am now going to do a hormonal cleane to get my body right again. I cant wait!
Comment by Margeaux on 13 April 2012:
I just got my Mirena removed to day after having it for a year . I had been planning on taking it out back in Feb. but when I went to the doctor and told her my complications she said that it had nothing to do with the Mirena cause the Mirena only releases hormones in the uterus. My complications were I hardly ever wanted to have sex and usually when my husband is ready I am but after the Mirena for awhile I started to look at him like really I don’t want to and that was starting to be a problem I wanted it in my mind but my body was not up for it. I got the Mirena in March 2011 in January I was buying jeans in a size 5 now I’m up to a size 11 in jeans and a xsmall/small in shirts and now to a large my body looks so big usually if I gained weight it was just in my stomach just a little pug but not my whole body and that just made me feel unattractive to my hasband and myself. I had back pains so bad in my lower back to where sometin=mes it was comfortably for me to sit down or when sitting down to lean back and feel comfortable. My pelvic area hurted sometimes like a real bad cramp. I felt it sometimes during intercourse but my hasband said that he didn’t. Mood swings were something else sometimes I would be happy and then in a split second I’m mad and just really mad to were I was hollering at my kids and husband for small things, and then sometimes I would just feel so sad like something is just not right but I couldn’t figure out why I was so sad or what was wrong with me why do I feel this way. But my doctor just kept telling me that she knew for sure that it is not the Mirena and that the Mirena is the best thing going for me, but I just decided to see for myself because don’t no one knows your body like you the doctors are not with you or inside your body they can only go by what you tell them and what they have studied and doctors and scientist are humans just like us and make mistakes even though they would rather cover theres up make a patient seem wrong. But when I got my Mirena removed they took some swabs from me to take test of any complications or infections and will get back to me I pray there wasn’t any just my mood swings,back pains, and decreased libido.
Comment by Teresa on 14 April 2012:
I got the Mirena 2 months after giving birth to my daughter…… life after receiving mirena was a living ell. After Mirena was inserted I was spent plenty of days in the ER and nights in the hospital. They all thought it was just acid reflux. I told my regular obgyn about the problems (acid reflux, mood swings, weight gain and newly anxiety from the pain ) he told me it has nothing to do with the mirena. I request on numerous occasion for it to be removed he wouldn’t remove it and other doctors wouldn’t remove it bc they didn’t insert it was it and I was having complications from imit. Finally I had yet another trip to the Er. Dr finally came to the conclusion the Mirena was causing all my constant visits and requested to my obgyn to remove the Mirena asap. Shortly after that Er visit I was hospitalize and had to have emergency surgery to have my gallbladder removed due to gallstones attack and intestinal problems. I had the Mirena removed as well. My life hasn’t been the same since I the day I got the Mirena.
Comment by renee on 15 April 2012:
I have had two IUD’s. This second one has been in for three years now. I am going blind. I have optic nerve damage and 50% visual field loss. The opthoneurologist is afraid to claim its the IUD’s fault. He has told me that its likely to be the cause because there is no other reason for my vision loss. They put the IUD in to prevent migraines, it didn’t work and caused me to have permanent vision loss.
Comment by Maggy on 18 April 2012:
I decided to get the mirena after having my 3rd child. I have never had ANY problem with birth control before and my doctor told me the Mirena was the newest and best thing out there so far. So I went forward with it. There was a lot of discomfort when having it incerted, felt a lot like having the contractions from birth. This lasted for several weeks.Then the pain went from contrtraction type pain to sharp pain. Then the mood swings set it, the snapping, getting mean, it was pure hatred to everything and every one. The mood swings would tear me from pure fury to pure crying. I was miserable. And put my family in termoil – almost lost everything, my kids, my husband – I finily had the mirena removed and EVERYTHING stoped with in a few days! No more cramps, no more mood swings, and I was able to be apart of my family again!
Comment by niki on 19 April 2012:
Margeaux, your doctor is either a liar or stupid if she said that “Mirena only releases hormones in the uterus”. It doesn’t matter where something is released in your body, it travels throughout your whole system. If you read the Mirena info leaflet it says that the hormones released by the Mirena are even found in breast milk. It’s like getting a needle in your arm and the doctor saying the drugs only stay in your arm because that is where you got the needle. Absolute ridiculous rubbish!
Comment by latoya on 29 April 2012:
i have had mirena for about 3 years. i have gain 45 lbs with know change in my diet. I have swollen feet and hands, irregular cycle, back pain, breakouts, headaches, weight gain, depression, low libido, pelivic pain and body aches. i havent had a normal cycle since i had mirena. Im going to have it removed this week and i know there is going to be some more problems so im preparing for it…
Comment by Nicollette on 1 May 2012:
i had no prior femal issues i have 3 kids under the age of 6 so decided to get http://www.mirena-us.com/ after a few weeks of mild to sever pain above my pelvis bone and many obgyn apts i had it removed for the last year ive had same pain it finally got so sever had surgery 4-20-12 cycts and other things removed from overies and uterus have another apt with my dr this wends to see what eles this thing did to me, my biggest fear would have to say the chance of not having more kids
Comment by Kelly on 2 May 2012:
Reading this makes me so upset. 12 years ago, i struggled with my weight (i really liked to eat) and was up to 200 pounds at 5’6. I made a lifestyle change, got into the gym and began eating healthy. a year later, I was down to 129 pds and living with my new man who is now my husband. Maintaining my weight between 130-135 for 3 years, I decided to get Mirena. We don’t want to have children so in Aug 2005, I got my first IUD. I gained 20 pounds without changing my workout routine or diet. I figured it was “in love” weight and I began to work harder and never saw results. Loving the fact that I never had a period and accepting that I was going to always fight my weight and assuming that once you hit 30 your metabolism really slows down and no matter what you do you will gain weight (dumb I know), i got my second Mirena put in July 2010. I was engaged in August 2010 and loving life. Working out so much harder and counting calories to get down to 139 for my wedding day. I got gown to 145 (wow a entire 4 pds) in a year and when I had the final dress fitting, it fit like a glove. The final fitting was August 2011 and by October 2011 (my wedding day) I weighed 160 pounds. I gained 15 pounds and had to SQUEEZE into my dress that I paid a very pretty penny for. I sadly assumed again that it was “stress” or “age”. I went to the doctor in December 2011 to get tested for a thyroid condition and she told me I was perfectly healthy. I cried in her office telling her that being “overweight” is not healthy. In January 2012, I counted calories, not consuming more than 1200-1500 a day and started playing roller derby. 5-6 a week of pure cardio and strength training. NO change in body and no weight loss. On April 6, 2012 I have the IUD removed. I have since gained an additional 5 pounds and retain water. I am still playing roller derby and I can’t lose a pound. I was once a fat girl who was being treated for depression. I feel like i have become that fat girl again and I am back on anti-depressant medication. I know my symptoms are not as bad as everyone elses but I have been but I have worked too hard to become happy and healthy to have this drug take it away. No doctor thinks that a “birth control” can make it impossible to lose weight. Apparently, they do not listen to their patients. It has been a month and no changes…..
Comment by Nicole on 4 May 2012:
The Mirena took a month of my life and I am slowly trying to get it back. Blood pressure spiked to 185/110, I had the shakes, I was foggy in my head, couldn’t remember anything, irritable, hateful, no libido at all, slept maybe 4 nights in total for that month. I went to the emergency room and had it taken out. Now, 2 days post-mirena I am still foggy, though not as much and I am still having the full body shakes. I hope this all goes away because it is scary. I did not gain weight, I actually lost, but that is not worth having to take blood pressure medication. I am happy to say that my blood pressure dropped almost back into the normal range 8 hours after removal. I just wish the shaking would stop.
Comment by Kim on 9 May 2012:
I first had the mirena for 4 yrs and started having bleeding, weigh gain, terrible migranes. Was told it was due to the fact the mirena needed to be replaced. Did that and now 10-14 day periords w the new mirena in, still headaches, foggy vision, head, thinking, severe mood swings….having it removed friday and am scared for the mirena crash.
Comment by Summer on 16 May 2012:
I just had Mirena removed after the full 5 years. during that time I have had rashes, infections, eye blurriness. weight gain weight loss, I have had joint pain, muscle fatigue. Insomnia Anxiety. I have spent thousands on tests that fail to show much. I have been diagnosed with fibro. Mild RA. I have for 1.5 years paid for medication and visits back and forthto the doctor. I feel better for a few days and then crash again. WIthin 1 hour of having Mirena removed I started to sweat profusely and dropped 3 lbs in water weight in a day! 24 hours later I feel more like myself. I woke today with no painor stiffness and no hangover feeling. I have been alert all day and am amazed at the difference.
Comment by Jessica on 17 May 2012:
I had my IUD put in a little over 4 years ago. Six weeks after my daughter was born. when I went back for my check up 6 weeks later they couldn’t find the strings. After poking and searching the doctor decided to try to find it by ultrasound. She found it floating around in my uterus. Then assured me that it was fine and was still working but may be a little difficult to remove when the time came. 2 years ago I started having unexplained abdominal pain , back pain, headaches, mood swings, severe cramping, among many many other symptoms. I went to see my regular doctor about the cramping and stabbing pains. After blood tests, urine test, x-rays, and eventually an ultrasound of my abdomin (with no insurance coverage). They could not find anything wrong and looked at me like I am crazy. (I was beginning to feel that way). So I went back to my OBGYN and she told me I wasn’t crazy because they have had numerous complaints similar to mine. But that the only way to remove my IUD would be through surgery. My insurance only covers the placement and (conventional) removal of the IUD. She tried putting me on hormones for the mood swings and the tender breasts. It didn’t work. I just kinda dealt with it for awhile. Now it is extremely bad. I can’t sleep at night because it hurts to bad. Sex with my husband has become almost impossible because of the pain afterwards. It’s like the better the sex the more the pain afterwards. The stabbing pains in my lower abdomin are getting worse and happen all day long. I have started spotting and I haven’t had a period since 1 month after my IUD was put in. I returned back to my OBGYN and saw a diffrent doctor within the office. She seemed a little more concerned and wanted to try antibiotics and negotiating with my insurance company ( which I had already tried several times). Honestly I had gotten my hopes up this time. After she talked with the insurance company she received the same results I did. They will not cover the removal through surgery. Her next suggestion was to try the hospital and see if they would work with me on the payment of my surgery (which I have also tried before). The hospital wants $2500.00 down just to use the hospital (the remain $6000.00 to be paid out in monthly payments). Radiology and anstesiology have to be paid in full before the surgery. Pathology cannot give me an estimate up front, I just have to wait on the bill to come after the surgery.Totaling an estimated $10,000 before the surgery. I called MIRENA and was told the MAY reimburse me after everything has been paid in full. I am a single mother and can not cover these expenses. And I haven’t even asked how much my OBGYN charges to perform the surgery. Please if anyone has had this same problem or may have suggestions please let me know.
Comment by Misty on 19 May 2012:
I got the Mirena shortly after my son was born. I did not like it at first, as soon as I got home from getting it put in, I started my period for 4 months non-stop after that I had no problems till about a year later when I got it removed. I got it removed because my husband and I wanted to have another baby, shortly after removal I missed 4 periods, hoping we conceived, so I went to my obgyn because I was getting negative pregnancy tests and found out I have poly-cystic ovary syndrome and may not have anymore children again. I am a 22 year old mother to one child!
Comment by Amy on 19 May 2012:
I had my IUD inserted in april 2009. After that i was all downhill mmy moods changed I could sleep at all I began to fight with everyone all the time. Dr.s gave me medication for depression anixety and sleep. I was a police officer and one day I complete lost it none the less in a parking lot at Applebee’s one min I am crying uncontrolably another min I am yelling fomr the top of my lungs. unable to cope with the kids and the mood swings I lost custody of my kids cuz i just couldn’t keep it together. I lost my Job as a police officer too. All the Dr.s told me I was usffering from PPD but i didn’t feel that way at all. I even at one point had to check myslf into a Psyc ward but I couldn’t control my sadness, temper, anger, anxiety and i mean it in a combo of all this. My son is 3 and I still dont feel right.
MY body is not acting how it use to. I have a weird discharge that i never know when its going to pour out of me and a smell to accompany it. I have had in a matter of three year 12 yeast infections and they are hard to get rid of. I have had 7 uti’s and 4 badder infections. each time i have visited my doctor whem i asked where this is coming from they never offered the Mirena as a reason. instead I was made to feel like i slept around or left with the assumption that I needed to take a good look at my husband. PEE after sex is what I am always told. BUt guess what i don’t even have sex anymore the drive is gone. so i know that is not the cause of it.
the headache I get are unbareable I was driving with my children in the car and i literally had to pull over and call someone to pick me up. vicodine could put a dent in the pain. so after much discussion my husband decided that he will just go under the knife and no more forms of birth control for us. My body still hasnt recovered from this and my echo and good name has been tarnished by a side effect that no one ever explained to me.
Comment by Rachel on 19 May 2012:
I has my Mirena inserted 8 weeks after I gave birth. My uterus was perfectly normal and I was very excited to not have to worry about birth control for 5 years. I believe I have a high tolerance for pain, so placing the Mirena was no problem, mind you it wasn’t a skip in the park, but it was tolerable. Later that day I was having horrible cramps and just attributed it to the insertion. Then days after, and more days after I was bleeding a lot. Having terrible cramps, to the point to being nauseous. Till I just have to give in. I have had the mirena 2 weeks, and went in to get it checked. My doctor couldn’t find it. Went for an ultrasound. Couldn’t find it. Had a CT scan. Found it! It perforated my uterus! No wonder I was in crazy amounts of pain! I had to have laprescopic surgery to have it removed! The thing that pisses me off the most, is that I not only have to pay to have it put in, but pay to get it removed! I had it for less than a month!!! Unacceptable.
Comment by Niki on 20 May 2012:
Jessica if the doctor that put the Mirena in in the first place didn’t warn you of the possible side effects and the risks that it can move around your uterus, I would suggest that she is liable for this. And also the fact that she found it “floating around” your uterus suggests to me that it is her fault for not removing it then and there. That sounds negligent if it was not in the right postion but she it left there. I would demand that she remove it free of charge with her insurance covering the other costs or you will sue her.